Illinois ladies facing bc
Comments
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The seasons are shifting, The winter shades lifting,
The springtime is filling
Earth's children with mirth.
The daffodil yellow, The south wind so mellow,
The gentle rain falling,
Upon the green earth.
The song sparrow singing, New life quickly springing,
All nature is telling
A tale of rebirth:
The deep wells of being, Beyond each day's seeing,
O'er flowing with new Life,
Restoring the earth.
- David E. Bumbaugh -
Morning everyone,
I know its Spring. My nose keeps filling up. Time to get the springtime meds out. Probably should have done it earlier....but who can be sure any more that we are reallly there with inability to predict. How is Chicago doing??? Seemed like the whole state was going to have a better day. Sure hope so.
Hope you all have a gorgeous day. Sun is out here and due to warm to the 60's. Double yay because I am ready after the gloomy, rainy stuff we were having.
See you all later.
Jackie
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Lovely poem to read first thing in the morning. I love it, Jackie!
Marina, I agree, try some escape reading. Yet, I do have a suggestion on a book about breast cancer though , but my reason for suggesting is odd. I have a copy of Living Through Breast Cancerby Carolyn Kaelin who is a doctor and also a breast cancer survivor. She is actually the director of a breast health center in Utah.
The reason the book is dearer to me than most is because I picked it up at a local book store and when I brought it to the desk to pay for it, the owner (small book store) said, "You too? I have been there and done this too." At that moment I needed to see a real life survivor and so I have very fond memories of that encounter. The book is okay. I would be happy to send you my copy as I have absorbed all the information. Let me know!
Off to take my grandchild to the park. I have a bottle of bubbles. I love bubbles.
Susan
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Bubbles would be a great way to spend today. And they are great for keeping bugs and varmits out of your gardens! I agree you have to get your mind off this monster. I try with gardening, or going for a ride or cybershopping! I can put together a great outfit from J Jill or Coldwater Creek or Talbots!
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Don't start me on shopping.. I am VERY danerous.. I think I spend more now then ever.. thanks to the baby..When I had the other two, there were no internet baby stores or Ebay.. boy are they dagerous.. and I never fail to buy. Glad my DH is finally working and doesn't see all the packages.. I bet my Nanny thinks I'm nuts..but hey.. it provides positive emotions.. so why not...
and I don't go anywhere othe than tx so can't buy at malls..My baby is finally recovering as is my DH..so I am back to my routines of tx and work and crossing my fingers for some fast improvements and some good news before my BIG B-day coming up next month...
Beautiful out.. just took lunch and went for a walk with the baby.. Sun sure puts everyone in a better mood..even though it's only Tue...
Marina
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Babies love bubbles! And so do I - especially the ones in my bathtub everynight!
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Hi ladies - nice to meet you all. I live in Chicago and just happened to see this index. As you can see from my "signature" I have IDC (which started off as DCIS) and am HER2+++. I meet with my oncologist tomorrow to discuss chemo & Herceptin, both of which make me more than a bit nervous.
jneumann and marina: excuse my language but is this HER2 stuff an MF'er or what? OMG you are both such troopers. SO glad you are here.
Looking forward to getting to know you and sending you all well wishes...
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sslepski! Welcome! Sorry you are "eligible" to join us, but the girls here will help you through it all. Best wishes at your Oncology appt tomorrow. Of course you're nervous - but once you have a plan...you will feel better. Hang in there! Our motto here is: ILLINOIS GIRLS ARE TOUGH! You can do it. A bunch of us are meeting in Schaumburg on Thursday evening - if you'd like to join us...simply sent me a private message.
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Where's WENDREW!?! Oh...maybe she's been out in the Z all day!
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sslepski welcome I am glad you have found us
Zap I love bubbles too. I love those bubble baths.
Jneuman.... Please tell how you use it in your garden. I am desperate here. Thanks
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well.. I knew this was too good to last.. My boss called that she has consulted our HR about my situation.. and they have requested a note from my Onc.. about any considerations or job restrictions that I have.. So I asked her if working from home is causing any work not to get done.. she said NO... this is just to protect me and the Company if for some reason I can not work... GEEZ.. I asked to work from home so I can recover from my cold and not risk getting another cold while half the office is sneezing..
Anyone have to deal with that? If so, any suggestions?
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Hi All,
My modem is broken & I'm sitting in a Fed Ex office reading the posts.
Won't have another modem until Thursday - so I may not be back on the boards for a few days. My doctor's office called with the results of the biopsy. They biopsied & took cells from a lymph node. There was no cancer. Unfortunately, there was cancer according to the biopsy of the cyst they found. It's the nasty IDC that I already have growing gangbusters in another area of the right breast. Because it's not near the other mass this means I'm having a mastectomy. The doctor has recommended two plastic surgeons for me to see. I got very lucky. One decided to fit me in tomorrow and one had a cancellation on Monday. So for all the waiting I've been through in the last two weeks, suddenly my head is whipping around at the spead of everything. The funny thing is that the nurse told me that there is period of time that the dr is unavailable. I forgot to ask when it was - but it would be just my luck that he'd be going on vacation or something - could that really happen to me twice?????
I'm doing really well this time with the outcome. I'm not thrilled that I have to lose the breast, but I'm sort of at peace with everything. I'm not terrified like I was in February.
My sister's going with me to the Plastic Surgeon's appointments so between the two of us, we'll get the story straight.
Thanks for everything - you gals are the best.
Carolyn
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Welcome SSlepski...though sorry for the reason why!We are all in this together.. some in TX and some not!! I have been post chemo since june 2009 and have much to share if you ever need anything answered. Where are you goin in terms of Dr and oncologist etc? Just know we are a good support system and we are all here for you!!!
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Oh Marina!
Do I hear you girl! A sub teacher was hired while I was in surgery. I wanted to return in less than two weeks. I called and said the same. I was told to take more time. I said I didn't want more time. One thing lead to another and I was then told (angry tone) to take more time. I showed for work and was asked to go to a room, leave my class with the longterm sub, to do sub plans in case I would be absent in the near future.
I said I wanted to return to my classroom. I was told to stay and do sub plans until indefinately! I did. I then researched my rights and educated myself. My DH is a lawyer but this was not his area of expertise, but he guided me IN SHOWING ME THAT IF I CAN SHOW I CAN GET THE JOB DOWN, than the job is being done and I should not lose it. In your case, you are getting the work done at home... so you are getting the work done!
Be cautious. PM me if you need to write anything you do not want some one to read. Cancer is a very slippery slope, especially in this economy. Perhaps your HR is just following up on a very legitimate manner, but be strong, in the event they are looking for reasons to change your status as an employee.
Sorry, but you touched a sore spot here; I will never forget. Again, Marina, perhaps all is on the up and up but I went through something that tested me at my lowest time, and I advocate for anyone who experiences the same. I am writing this here as I do feel many are affected by your wonder as to what is really happening. I hope nothing!
Susan
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Marina, how fantastic that Susan can step in and offer some info/comfort/help of just the variety you need. Marvelous and Susan......you are a very caring person to come to Marina's rescue though that is why we all stay around here.
For the new Susan....sorry you needed to come here...we all pray for the day no one needs a place like BC.Org, but we really do try to hold hands and help each other through some of the difficult periods or whatever comes. It may be anger, rants on things, fear, questions answered and just good old hand holding and understanding.
Carolyn --- glad to hear even though I doubt you'll read this any time soon how things panned out. I'm glad you reached a place of calmness as no matter what happens it will all be a bit better if you do remain as unruffled as possible. If you stay in the moment, well focused, you will have a security about everything that probably would otherwise be hard to find.
Hi to Donna, Buddy and Laura.....I'm off to jammie land. Longer day than I meant to spend, but did not work that hard. See you all in the morning.
Hugs, Jackie
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Morning! The weather has been nice....and no, I am not out in the Z. In fact...haven't been out at all. Dh was nice enough to pass on his very nasty cold. Haven't had one since chemo 3 years ago. I don't like colds. Nothing like sitting around with tissue stuck up your nose. Hopefully it will quiet down enough to meet up with the girls in Schaumburg tomorrow...what time are we meetng by the way?
MakMak....yep, online shopping can be dangerous. As can watching QVC and HSN!!! Glad that Susan jumped in with some advice. And I agree....chemo is a temp. thing...and you do need to stay away from sick people and there are so many of us out there! All your work is being done. But like you, I would be more than a little concerned.
Sslepski.....sorry you had to join our little club. And you joined mine as I am Her2+ as well.....VERY positive. I was er/pr + as well. Yeah....this is a more aggressive cancer but Herceptin can and does work wonders. I tolerated it very well, as well as chemo which for me was taxotere and carboplatin. I finished up chemo in May 2007 and Herceptin Jan 2008 and still am just fine.....fingers crossed!
Carolyn....glad you fnally got your results. Not what you were hopng for with the mastectomy of course but at least you will be able to see the PS's very soon and have a plan. I sure hope they don't make you wait....again...for the surgery! Will you be having chemo first?
Annette...ain't it grand to be finished??? Port out...soon????
Time to grab some more tea and tissue....I guess it is a good thing DH and I weren't able to get away this week - what a waste for both of us to be this sick, and be paying for a hotel room! Will check back later.....
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Happy Wednesday to all....Spring oh spring where are you. No sun today just a few rain clouds here. My fish are stirring up in the pond so I know that spring is here. Looks like I may have a new batch of baby fish this spring...They have been very busy those fish. lol
Carolyn....glad to see that you have your results in hand. Hope you do not have to wait long for a surgery date. There are girls here who have had a mast done, so ask away with your questions.
Makmak...glad to see that you are feeling better and baby too. I am jealousy for people you can knit. I tried it but I am all fingers. Just not coordinated with two needles. Happy knitting to you.
SSlepski...welcome to our board. Hope we can answer some questions you may have. Come often and sending you a big hug.
Rita...how are you?. Getting ready for golfing. Dh and I signed up for golf lessons together. It was his idea to spend time together. Hoping I won't kill him with the golf club. lol
Jackie.. I loved your spring flower pic....Yes, spring is almost here and the flowers will be blooming. Yes it is time to stop and smell the roses.
Juliec...back from your road adventure. Any new kid stories...hope you had fun.
Zap...are you enjoying your spring break? I know now that I am counting down until June .Question, why to teachers plan sooo many field trips?
Laura..how are you doing. New job is starting soon??
Wendy....thank DH for that cold of yours. He just wanted to stay indoors with you and snuggle. lol Hope you are feeling better soon.
Well just wanted to stop by and say hi to all. Gotta run...have a great day. Think spring.
Remember to be healthy ...be happy..enjoy life.
BJ
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Good Morning Girls!
Carolyn - Glad you are finally going to prepare your plan of attack. Best wishes as you make this journey. You know we'll help you through it. Also, if you need a computer "dude"...please let me know. There's a real good one down the road from me. He's helped me several times. Hang in there!
Marina - Just what a cancer patient needs...grief/aggravation/intimidation from an employer. Here's a couple of informational links - if you haven't already found them:
http://careerplanning.about.com/cs/legalissues/a/cancer.htm
http://employment-law.freeadvice.com/job_discrimination/employee_rights_for_cancer_patients,htm
Wendrew - Hope you feel better soon. Be prepared, the cold/flu strain that I had lingered for quite some time. Arghhhhh...I went through 3 boxes of Kleenex!
bj/Chick Nurse - Hi! Doing well...keeping busy. Haven't started yet...First week of April...
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REMINDER - Tomorrow night (Thursday) the Dinner Bunch is meeting @ 5:30-6:00ish in Schaumburg. PM for more details.
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Hope you all make the most of this day!
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Dogs are our link to paradise. They don't know evil or jealousy or discontent. To sit with a dog on a hillside on a glorious afternoon is to be back in Eden, where doing nothing was not boring - it was peace. Milan Kundera
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Thank you Jackie for your kind words. Last night I rehashed that whole bad time and I got myself all upset again. I am not an aggressive person or even strong, but something ignited in me when all that came down! Maybe it was the steroids
I think the hardest part was that I lost my ability to trust certain people or assume they would do the right thing. I guess it just made me less naive. Frankly, however, maybe they just had a different point of view on what was the right thing to do for the organization. As I said to Marina, many people do not understand that cancer is treatable and we can function just as we did before we got the damn thing. We just need some time to get better.P and I are going to Milwaukee to see the Dead Sea Scrolls at the Milwaukee Museum so I will not be able to do dinner. WE sure know how to have fun, don't we!
Take care!
Susan
Edited to add: You are right about dogs being worthy of our trust all the time (well, except for pit bulls, perhaps). Dogs are good!
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Ok....this is something I cut and pasted from another BC blog. I think it is an excellent read, and well worth the time. Hope it prints here w/o funny marks. Jackie
> With Cancer, Let's Face It: Words Are Inadequate
> By DANA JENNINGS
> James Steinberg
>
> We're all familiar with sentences like this one: Mr. Smith died yesterday
> after a long battle with cancer. We think we know what it means, but we
> read it and hear it so often that it carries little weight, bears no
> meaning. It's one of the clichés of cancer.
>
> It is easy shorthand. But it says more about the writer or speaker than it
> does about the deceased. We like to say that people "fight" cancer because
> we wrestle fearfully with the notion of ever having the disease. We have
> turned cancer into one of our modern devils.
>
> But after staggering through prostate cancer and its treatment - surgery,
> radiation and hormone therapy - the words "fight" and "battle" make me
> cringe and bristle.
>
> I sometimes think of cancer as a long and difficult journey, a quest out
> of Tolkien, or a dark waltz - but never a battle. How can it be a battle
> when we patients are the actual battleground? We are caught in the middle,
> between our doctors and their potential tools of healing and the
> cell-devouring horde.
>
> We become a wasteland, at once infested by the black dust of cancer and
> damaged by the "friendly fire" of treatment. And ordinary language falls
> far short of explaining that keen sense of oblivion.
>
> As a patient, it's hard to articulate how being seriously ill feels. In a
> profound way, we are boiled down to our essential animal selves. We crave
> survival. We long for pain to end, for ice chips on parched lips, for the
> brush of a soft hand.
>
> It pays to have a positive outlook, I think, but that in no way translates
> to "fighting" cancer. Cancer simply is. You can deny its presence in your
> body, cower at the thought or boldly state that you're going to whup it.
> But the cancer does not care. You're here, the cancer has arrived, and the
> disease is going to feed until your doctors destroy it or, at least,
> discourage it.
>
> Then there's the matter of bravery. We call cancer patients "brave,"
> perhaps, because the very word cancer makes most of us tremble in fear.
> But there is nothing brave about showing up for surgery or radiation
> sessions. Is a tree brave for still standing after its leaves shrivel and
> fall? Bravery entails choice, and most patients have very little choice
> but to undergo treatment.
>
> Which brings me to "victim." I didn't feel like a victim when I learned
> that I had cancer. Sure, I felt unlucky and sad and angry, but not like a
> victim. And I have no patience for the modern cult of victimology.
>
> Victim implies an assailant, and there is no malice or intent with cancer.
> Some cells in my body mutinied, and I became a host organism - all of it
> completely organic and natural.
>
> And what are we once treatment ends? Are we survivors? I don't feel much
> like a survivor in the traditional (or even reality TV) sense. I didn't
> crawl from a burning building or come home whole from a tour of duty in
> Afghanistan.
>
> I'm just trying to lead a positive postcancer life, grateful that my
> surging Stage 3 cancer has been turned aside, pleased that I can
> realistically think about the future. I'm trying to complete the
> metamorphosis from brittle husk to being just me again.
>
> The phrase "salvage radiation" is not used much anymore, but when one
> doctor said it in reference to my treatment, it made me feel less human
> and more like a "case." It meant I needed radiation after surgery, because
> the cancer was more aggressive than expected - I needed to be "salvaged."
>
> I felt as if I had been plopped into some screwy sequel to "Raise the
> Titanic!" - time to raise the U.S.S. Jennings, lads. Or maybe I was going
> to get picked up by a scrap-metal truck and then get zapped at Frank's
> Junkyard, laid out in the back seat of a 1960 Ford Fairlane.
>
> And I'm still troubled by this sentence, which I've heard many times:
> "Well, at least it's a good cancer." It's usually applied to cancers that
> are considered highly treatable, like those of the prostate and thyroid.
>
> Most people mean well, but the idea of a good cancer makes no sense. At
> best, the words break meaninglessly over the patient. There are no good
> cancers, just as there are no good wars, no good earthquakes.
>
> Words can just be inadequate. And as we stumble and trip toward trying to
> say the right and true thing, we often reach for the nearest rotted-out
> cliché for support. Better to say nothing, and offer the gift of your
> presence, than to utter bankrupt bromides.
>
> Silences make us squirm. But when I was sickest, most numbed by my
> treatment, it was more than healing to bask in a friend's compassionate
> silence, to receive and give a hug, to be sustained by a genuine smile.
>
> Strangely enough, although cancer threatened my life it also exalted it,
> brought with it a bright and terrible clarity.
>
> So, no, cancer isn't a battle, a fight. It's simply life - life raised to
> a higher power. -
Welcome SSlepski......you've found a great thread and a wonderful group of caring and informed ladies. we've all experienced your fear and anguish over decisions, treatments, and the unknown and most of us did pretty well getting through the surgery and chemo. We will be here for you and help you in any way that we can.
Susan, enjoy your trip to the Museum tomorrow. That sounds like so much fun! You'll have to tell us all about it!
BJ...so glad that you and hubby are taking golf lessons together. What fun! You're gonig to be hitting that ball pretty far after all these lessons. Caution: golfing can be addictive!!!! LOL
Wendy, so sorry that you've caught the cold/flu bug! That's no fun at all. Hopefully it will short-lived and you'll soon be back to feeling your normal perky self!
Well, today was out last day of bowling on Wednesday morning. That means that spring is here. I'm trying to convince myself that the weather is going to be nice enough from now on to get out there and clear off my flower beds. Am I pushing it????
Well, I want to write a few questions this afternoon so I'd better get off here and get busy..
Catch you all later.
Rita
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Any ideas on how to get rides to and from appointments? Getting a little foggy for me to drive so I thought I best find help.
Joann
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Joann...Call your local American Cancer society office.. they provide the volunteers for this in your town. Truly they cannot do enough for you and this is where to go!!!!
Laura...what job are you starting in April? Congrad's!!!!You may want to contain your vodka intake as i know it is tough but throwing the bottles ar neighbors, just is a true sign of aggression..hehehe. I will never let this go you know!
My DH's 30 years plus in the Fire DEPT is coming to an aggreed state for all to approve. We also saw a great piece of property online in Tucson. My brother lives there and is goin to see the property today for us. Have a feeling things are goin to hit faster than fast!!!
Hope all are enjoying the spring weather and even if in TX.. it helps alot!! A gal i know here has had her MX Monday and had hoped to have heard from her. She never did get in here as i told her to.!
jackie.. LOVED the dog poem!!!!!Also the cancer summary as it is all so true!!!
South Side Girls.. Apri 23rd 11:30 at Pf Changs in Orland.. will get address and directions closer to the time and make reservations. so far we have 6 coming..YEAH!!!
Hugs and Sweet Dreams,
Donna
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Thank you all for the warm greetings!
I met with the oncologist today (at Northwestern Memorial Hospital Donna Dio) and in consultation he said, "No treatment." I was like "You're kidding right?" He said my tumor is so small that I don't meet the criteria for chemo OR Herceptin. How does that happen? LOL Seriously, I was preparing for chemo, etc. Ladies, I have NEVER thought of myself as a lucky person until this happened to me. Does that sound strange? I didn't have the BRCA gene, I didn't have another area on my left that they were worried about, my RIGHT breast biopsy was benign, no lymph node involvement, and now this. And when I read about what some of you ladies are going through - well words just can't describe it.
I will be getting a second opinion, of course, since I keep seeing little bugger cancer cells floating in my bloodstream or something. I also have to make an appointment with the radiation oncologist to begin radiation.
I was picturing spending all summer being completely submerged in this cancer thing. I lost my job in December and I was like "how can I get a new job when during my probationary period I would be taking time off for chemo and radiation?" I know this sounds trifling but cancer is SUCH an inconvenience, and frankly, a pain in the a$$.
My last beef: I was told not to wear deodorant under my left arm until 6 weeks after SNB. So, I have a smelly armpit only relieved periodically by wiping with rubbing alchohol. And God knows that's SUCH A MAJOR problem with BC (she says sardonically). : )
In conclusion, hats off to all of you esp. those going through chemo. You have my utmost admiration.
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Hi Susan. I am Susan too! So happy that there is no chemo in your life. You must have caught this thing very early! Do something to celebrate. Where do you live in Chicago? My daughter lives in Lakeview.
Edited to add: I love the cat. I am a cat-lover too. My girl is Cece Marie and she is wonderful.
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Susan.....what fantastic news. Hopefully all is well, but I definitely would get a second opinion to make absolutely certain all is fine. I do think many times, if things go just right we could fall into the category of needing very, very minimal treatment. I at first was only going to have a couple weeks radiation after my lumpectomy. That got changed during my surgery -- a boring story now, but hats off to good medical care and quick intervention. You are shining proof that if you are fortunate enough.....things can go well. Many of us have things "discovered" a little on the late side, but just know we are all thrilled for you. Cancer most definitely is a pretty huge in-convenience along with the fact that generally no one truly sees it coming. Even some with a bit of history get caught off guard. In lots of cases most of your life stops -- all you are used too --- while you take time out for tests, treatments, chemo, rads, or whatever comes along. It becomes a very consuming thing.
Do let us know how it goes. And once again....Hooray for you. Talk to you later.
Big hugs, Jackie
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Carolyn422 I sent you a PM.
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Susan... Fantastic!!! IT is impt to keep check of it all in the future and getting a second opinion is smart for you to know you did it all. I would not call in LUCK as a spiritual intervention!!!This is such a scary process from hearin you have the disease and everything after that.!!At least you found us and know the support was there and will a good insight on how it all is. Like the other Susan says.. CELEBRATE!!! Years back i lived at Lakeview and Wrightwood in Lincoln Park..DID alot of celebrating..lol! Be well and keep us posted!!! Nice to finally get some news of relief!
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Super news, Susan! You've got to feel pretty good right now! YEA!
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Morning all...cold is getting better, just started with the "if you open your mouth you cough" tickle and for me, that's usually the last symptom and lasts a day or two. Just in time for spring break to be over. I don't know why, but DH seems to like me with my mouth shut! Tea and honey works great, but my poor kidneys! They are not used to all this liquid. Love lemon zinger k-cups!!!
Susan #2....I am so happy for you, but glad you are getting a 2nd opinion re: no Herceptin. And yes, that seems to be the norm these days if your tumor is very small. They weren't doing this 3 years ago when I started, but then my tumor was 1.5cm so I had to do chemo any way first to get to Herceptin. So....YAY!!!!! if you do not have to do chemo!!!!!! And hope too that the job market opens up for you soonest!
Jackie...your poem was quite lovely! How's your BP doing these days?
BJ....cleaning on spring break? sounds like a lovely vacay! Have a new app for you top try....it's "zombie farm"...what a hoot! I am addicted!!!!!
Donna....wow, things ARE moving fast for you! Tucson sounds wonderful.....
Budders.....how is the corn? LOL
Laura...yes, I agree with Donna....you MUST give up the vodka once you start back at work! Sorry..... (ps: you could however hide it in tomato juice, covers up the smelll on your breath)
Ginny....think about you all the time! How is the new regime treating you? Hugs!
Juliette...you must be coasting now on the downside of rads! Soon....a "rad grad" diploma will be yours.
Carolyn...how did the appt go?
Juliechicago.....glad you are home safe and sound from "minnesconsin"! How's your cold? A scrub brush in the throat is exactly how it felt!
Time to move on....still home as coughing like this going to the gym would just have been stupid with a capital "S" and I don't think the other people would have appreciated it...I know I don't like it when sick people cough all over the equipment!!!!! Hope everyone has a nice day....looks like the temps are gonna fall off today into the 30"s but nice for next week...sure, now that DH's break is over!
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