Illinois ladies facing bc

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Too funny! The latest litter in my forest was an empty bottle of Bailey's! Really do have to wear a hard hat next time.

    Susan#2 - That's great news...good for you.

    Have a nice day, all!

  • DonnaDio
    DonnaDio Member Posts: 905
    edited March 2010

    Laura... Baily's huh.. goin for the tastier and more easier kind to hide in a glass.. maybe you should consider some help, as April is right around the corner. heeheee!

    MAN it is cold here today and good for you WENDY and keepin up with the gym as you do!

    Ok.. i am up to no good here.. do hope ALL are well and TX;s,appts are going well etc!!

    Hugs!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Girls, thanks for celebrating with me!

    Wendy: How was/is the Herceptin for you?  Did you get a lot of SE or any long term problems?  My fear is the heart damage - did you get that periodic MUGA thing done?

    Everyone: I did some research last night and it doesn't look like I'm out of the woods.  Just because I have a teeny tiny tumor (alliteration for all you English majors out there : ) ) doesn't mean I have less of a recurrence than someone with a 7 foot tumor (lame attempt at being funny) as HER2 is a particularly aggressive cancer.  Evidence is showing that it's the biology of the tumor and not the size or the grade.  The problem is that when research was being done with Herceptin and HER2, they were not including women who had tumors less than .5 cm.  They are currently treating women with smaller tumors with Herceptin to see their 5 year recurrence rate but the data is not in yet.  (As my size of tumor was left out of research, they don't even know what dosage of Herceptin should be given or for how long.)  Thus, my friends, I am in limbo.

    Here's a fake scenario happening in the VERY BUSY oncology department at Northwestern Memorial Hospital -

    Dr. A reads an oncology journal and sees that women with tiny HER2 + tumors should be treated with Herceptin.  Dr. B. walks in.

    Dr. A: Hi Dr. B. I just read that we should be treating women with HER2 tumors the size of a pinhead with Herceptin.

    Dr. B: Yeah I read that, too.

    Dr. A: Hey remember that patient Susan with the pinhead tumor that was HER2+++?

    Dr. B.: Oh yeah that pudgy blonde haired lady with the glasses.  I remember her as if it were yesterday (MUST NOT LAUGH).

    Dr. A.: Yeah, well I'm gonna call her to come in for Herceptin treatment.

    NOT GONNA HAPPEN!!  So I am going to have to be very vigilant about this. Sigh and ugh.

    your friend, Pinhead Susan

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010

    Susan  -- I loved your story/scenario......and you are right ---- size does not determine if a recurrence happens and as well much does depend on tumor etiology.  Wish they could have determined what size you were.  

    Oh my, what a day.  It was trying to rain as I went to work and shortly thereafter started in earnest and just did not let up.  So, it was a long dreary day at work.  I'm hoping for better tomorrow, but don't know till later when I see some news with a weather report. 

    Just glad the week-end is coming.....and maybe a little warmer would be darn nice too. 

    As it was a long day I'm going to go find a cozy spot and relax.  Blood pressure....called in the numbers but haven't heard anything as yet.  They were half and half.....half below 90 diastolic and half above.  We will see.

    Hope you all will have a good day tomorrow.

    Hugs, Jackie

  • elf_song
    elf_song Member Posts: 163
    edited March 2010

    Hi, ladies, well, it's already 2 am and I'm still up...

    Sslepski (Susan)- Nice to meet you and sorry you found us, then again, I am happy for you~~ and getting second opinion is great idea..  I am also ER/PR- and HER2+   I had two lumps in one side which was DCIS and IDC.. It grew within few month little after I stopped breastfeeding my younger son and I had aggressive chemo with very very bad nausea for 4month with 4 different medicines which none of them worked and went through 7weeks of Radiation..  Then they had to stopped the Herceptin in 7month cuz heart function got decreased... Yes, I did many MUGA Scan...every 3month and later on every month..  dang...  I am just glad my heart function got back to normal and so far so good...

    I hope everyone is doing ok with cold, chemo, rad, Herceptin or even just resting...

    Hugs to you all~!!!

    I'll come back later with bright smile~~ Laughing

  • ritajean
    ritajean Member Posts: 4,223
    edited March 2010

    Good morning everyone.  The sun is actually shining here today.  I hope if finds you, too, Jackie in southern Illinois.  The temps aren't supposed to be very high but the sun sure adds a nice touch!

    Ej.....you always add a bright smile to this thread!  I'm glad that everything is going well for you!

    I'm off to get some work done around here before the mood escapes me!

    In case anyone is interested...the Peoria Susan G. Komen Race is May 8th.  It's always the Saturday before Mother's Day.

    Catch you later.

    Rita

  • wendyk13
    wendyk13 Member Posts: 1,600
    edited March 2010

    Morning!  Well...I broke down and called the doc for some cough rx.  Just one good night's sleep and cough is pretty much gone.  DH is fine.  So much for spring break!

    Susan #2....I had no se's from Herceptin except for a drippy nose for a few months.  I had echo's done, one before I started, one at 4 months, once at 9 months and they were all perfect so my onc didn't bother with one after tx.  No problem for me.  Yes....they are on the fence about Herceptin.  I think....think....that when your tumor is so small they give you Herceptin without chemo in Europe.  I don't know how that regime is going over here, with the ins. co's.  There is another forum...I think it is Her2support..or something like that.  There will probably be a lot of news re: tx there for you to read.  In some ways it is horrible to be Her2+ but then we have Herceptin which is a godsend for us.  Good that you are checking further....one thing you do not want is for this to come back, and her2+'s love to come back as distant mets.  So....throw everything you can at it the first time....and I think that's one thing that all of us would agree on!

    Laura.....Bailey's now????  Honey, I can get you a number to call for help.....lol!  I'm just wondering...are they sitting in your woods, drinking or just throwing the bottles?????

    Donna....I don't go to the gym by choice, believe me!  At my age, and being hypothyroid and being on arimidex if I don't exercise I am sure my weight would def. be going up much faster.  As it is...in the past 5yrs I hav e put on 5 lbs that I am sure is perm. and I have to watch what I eat all the time now.  I did switch to a new gym last winter and I have to admit....my arms look much better and my jeans aren't tight anymore.  It is so funny....when you stop yakking with the girls and actually WORK OUT....it works so much better!!!!!  Funny to be in a co-ed gym tho....to watch the guys primping in front of all the mirrors.  It is truly hysterical!

    Hope everyone else is doing well....looks like next week is going to be lovely, weather-wise.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    Susan #2 - So I guess in your case bigger (tumor) is better! Geesh...what a dilemma - just what you need after a bc dx. I agree...you should post at the Her2 thread. No doubt...you will get lots of info. Hang in there...and YES...you do need to be a squeaky wheel!

    Wendrew - Hope you get some relief from that nasty cough. Does your gym have a steam or sauna room? Both helped break up all the crap in my lungs. If not...how about boiling a big pot of water and sitting over it with a towel over your head. Sounds ridiculous...but it really helps. I was WAAAAAAAAAAAAAAAAAAY too impatient to just let it break up naturally. Best wishes. As for the litter...NO WAY is anyone partying in my forest. They would eye to eye with my shotgun. They just toss it all out their car windows. I even found little kid's toys - the ones that come with McDonald happy meals. The little turds throw the toys out of their mini-van windows! Nothing like being a litterbug at a young age! lol 

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010

    One for Laura:

    I feel sorry for people who don't drink.  When they wake up in the morning, that's as good as they're going to feel all day.  ~Frank Sinatra

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010

    We can only be said to be alive in those moments when our hearts are conscious of our treasures.  ~Thornton Wilder

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010

    Good morning, and good morning sun.  I am so thankful we are ( even if it  was only 32 degrees ) having sun today and will begin to dry out.  I know it is going to rain again....but I need my blooming period.  Starting to see the little green leaves of the forest bushes so spring has truly sprung....we just have to get through that rain now.....and get some pleasantly warm weather back. 

    Glad your doing better Wendy. Hope your getting plenty of sun today as well.  My feral kitties get food today....too much rain yesterday. 

    Well, I'll be losing this computer shortly so best do.

     Hugs, Jackie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    elf_song: When you say 4 chemo drugs didn't work, what does that mean?  Were you so sick to your stomach that they had to keep changing meds?  I am SO SORRY you had such a rough time.  What other options do you have besides Herceptin?  If your heart returns to normal, can you go back on Herceptin or is that null & void?

    IllinoisLady: Lovely quotes... ; )

    Everyone: I went to Gilda's Club today and it was simply amazing.  They have so much going on there.  I was there with 3 other new members.  One man had throat cancer and another had lung cancer and was going through chemo (bald and thin as a rail).  The last person was an attractive young woman in her late 20's/early 30's.  I was thinking to myself "OMG does she have cancer?"  When we went around and spoke briefly about our situations, this woman said that she lost her father to lymphoma last year and promptly burst into tears.  I wanted to hug the S out of her and had to refrain from sobbing myself.  On a brighter note, they have a LIBRARY which makes me very excited and a new member breakfast some time in April.  And it's all free.  I also learned who Robert Lurie is/was.  The cancer center at Northwestern Memorial Hospital's Prentice Women's Hospital is named after him and I kept seeing his name all over the place but had no idea who he was.  I was informed today that he is/was a philanthropist who donated money for cancer patients.  He also BOUGHT the building that houses Gilda's Club (5 floors) and charged them - get this - $1!  A nice guy who knows what do to with his money!

    Lastly, I made an appt. with the radiation oncologist and will see him on Thursday afternoon.  I was reading that I will have permanent tats on my hooter (sorry  - there was a Hooter's down the street from Gilda's club - go figure) that will look like black freckles.  Good times.

    OK gals, gonna go chill now.  Mwah!

    P.S. How do you add stuff to your signature?  Is that a lame-o question?

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010

    Go to my home, and then edit my profile and scroll all the way down to signature -- place what it is you want there and then hit the save changes button.  I had to play with all this a lot to do any of it -- somewhat computer challenged, along with a whole bunch of other things Ithat present a lot of challenges.  I had never been on a blog until I came here.....so I have learned a lot about many things...

    No question is a lame question ---  we are all here because we needed the help of others, and it is great when ( partly because it is other women and we feel comfortable ) we can ask ANY question we need or would like to have an answer for. 

    Great thing your getting to go to Gilda's.  I'm sure that was a really touching experience. It is always hard to lose a parent I think -- to anything. I hope it gets easier for her and that some day she can almost smile when she talks about a parent she loved.  I smile when I talk about mine because I am so thrilled and happy they were my parents.  They taught me so much and gave me so much......and it hurt like heck to lose them.....lots of sadness and tears and lonliness for them, but I now prefer to honor their memory in as positive a way as I can.....and that means sharing my wonder at and through the devotion they always gave to me -- even when I wasn't particularly deserving.  Great examples of how to live a good life.  They are always in my thoughts and never very far away. 

    I'm having a wonderful day....even if I have to be inside.  Need to close the office now.  Hope you all were enjoying as much sun as you could.  Hope it is a great week-end too.  See you all later.

    Healing hugs, Jackie

  • Carolyn422
    Carolyn422 Member Posts: 162
    edited March 2010

    Hi

    Posted about my appointment yesterday, but see that my post seems to have got lost in limbo land. Surprised

    Saw PS #1.  This is a PS that is not in my insurance PPO.  He fit me in to his schedule right away. Took a good amount of time with me.  No tummy tuck recommended (darn!)  He talked about filling up the tissue expander slowly (was happy about that!). I need a breast reduction for the other breast (oh darn - now I might actually find bras that fit!!!)  Pictures he should looked good (but would he really show bad pictures???) 

    I figure it's going to come down to money and pictures.  Anything else I should factor in to the consideration?

    Oh and today my nose starts running!!!!!  NOOOOOOOO! Yell I'm hoping this is just an allergy.  I can't get sick now. Can I will myself to be well?   I will be well......I will be well....I'm going to drink hot tea and curl up in the recycliner.

    Have a nice night!

    Carolyn

  • zap
    zap Member Posts: 2,017
    edited March 2010

    Dear Susan( I am the other Susan) I know where that Gilda's Place is as it is right near my daughter's apartment.  I hear it is a wonderful place and even offers activities for children of cancer parents.  It sounds like you were very comfortable there.  There would also be Breast Cancer Support Groups with Northwestern. I never went to a real time meeting with people with cancer, except for one and  I was not comfortable at all.  I happened upon a group and some of the participants were very sick and very sad  and it made me very tense.  We all are so different, aren't we? 

    Have a good weekend!

    Susan (I hate  Say Susan#1 as it sounds so arrogant)

    Okay the contest begins.  How shall we differentiate the Susans as the NEW Susan is a keeper and the OLD one ain't going away.  IDEAS?????

  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited March 2010

    Hi Ladies

    Marina suggested I check out this thread... I live in the western burbs but grew up about 50 miles north of Chicago. I am 45 and was diagnosed with metastatic breast cancer last summrer. So far just Tamoxifin plus Zometa and Zoladex (ovarian suppression). I feel pretty good--no real symptoms. I have been meaning to check out Gilda's club, I work downtown.  

  • Mich101
    Mich101 Member Posts: 529
    edited March 2010

    Welcome EnglishMajor-sorry you had to find us here but this group is so nice to know.

    Posting my most recent stained glass project:

    Still have not made my decision on Fosomax.Connie, what did you get switched to from the Actenol?

  • Rene23
    Rene23 Member Posts: 314
    edited March 2010

    Jackie - I loved that BC blog entry you posted. 

    Mich - The stained glass piece looks beautiful!  I'd love to see a larger picture of it if you're able to post one.  If that's a problem, you can just email or PM it to me.  

    Sorry I missed dinner, ladies.  My daughter and a school friend of hers have been here all week for their spring break.  THEIR spring break wore ME out!  LOL.  I took them both back to the city today.  It was great fun to have her home again, but it really does throw a wrench into our normal "routines."  

    Tomorrow is my Saturday to work.  Bleh.  I hate working weekends, even if it is only every third one.  It's always crazy busy.  I do love my job, but I'd rather just love it during the week!

    I am scheduled to finally do my first Zometa infusion this Friday, after having rescheduled it twice.  Yes, I do believe I've been putting it off, even if I did  have valid reasons for the rescheduling.  I'm a little edgy that sitting in my onc's office again, hooked up to an IV will bring back some deja vu of my chemo days there.  It's silly, but there it is.  I'm also dreading the possible bone pain/flu symptom side effects on top of the joint pain I already have from my Femara.  Hopefully, they will be short-lived, if I get them at all.  I'm just being a total worry wart about it!  Maybe a pre-infusion Xanax is in order.  I'll have to ask about that. 

    Take care all!  

  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited March 2010

    Hi Rene,

    I have been on Zometa since Sept. I didn't have any flu like symptoms--everyone is different. My legs were kind of sore the next day, but that didn't last. I am fairly active and have found I feel better if I keep moving  (i.e., taking my daily walk).  Zometa is tough on your kidneys--your doctor may have told you this, but it's important to drink a lot of water before and after and you get the infusion. Good luck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2010

    zap/Susan: I changed my signature to Susan Clare to avoid confusion.  My middle name is in honor of my grandmother Klara.  And yes, I know what you mean about support groups bumming the crap out of you.  I attended support groups for bipolar disorder right after I was dx'd in 2003 and it made me more depressed.  The majority of people were barely functioning and frankly, were inappropriate a great deal of the time.  Plus the meetings were held in a bank basement - no windows and bad 1950's architecture.  Talk about singing the blues!  Gilda's Club appears more upbeat by a long shot - the atmosphere is amazing - very positive and uplifting.

    EnglishMajor: Welcome to our thread.  I was an English Major too so we are kindred spirits. Wink

    Michele: Nice work!  Is that your own design?  I make cards and gift bags and am into quilling (paper filligree) and have just started parchment craft.  Are you into any other crafts?

  • elf_song
    elf_song Member Posts: 163
    edited March 2010

    Hello~ ladies~!  just stopping by on the way to bed... 

    How was the dinner??  picture will appear soon??

    Susan Clare- sorry for the confusion, when I said 4 different meds, I meant for nausea not for the chemo..   For  Herceptin, once your heart function gets below the 50 they will stop and rest for 4 weeks then you do MUGA and see if the number is back to normal and if not you gotta rest for  another 4 weeks then do another MUGA, if the number is still low, then you have to stop completely and that's what happened to me..  Also, your onco will calculate the difference from the first time you had Herceptin and last MUGA..   My onco didn't want to stop but she had no choice and I even told her it's my body and affecting my life too much, there're few times I had to laid down flat on the floor so I could catch my breath, omg, I am glad it's all over..

    EnglishMajor- nice to meet you and welcome~

    Michele- what an art~!  I love it...  can I buy one from you??  that is very pretty... 

    Wendy- I hope you feel better soon...  I just had lemon and ginger tea, I don't know what it is, I feel ok during the day but night time, my throat gets little bit scratch... I have to cover my neck from exposing wind, every time I get little bit of cold air around my neck my throat gets scratch..

    Rita- you are so kind....^^   I think that's my moto 'smile Laughing'  and trying to see on bright side.. and how can you not smile when you have too munchkins with you..

    Carolyn- I hope it just allergy not cold.. 

    Goodnight ladies and happy sweet dreams to~!!!

  • wendyk13
    wendyk13 Member Posts: 1,600
    edited March 2010

    Morning!  DH and I were finally feeling somewhat human by yesterday afternoon so went out to DSW where he found 2 pair of shoes and then we went to a little sandwich shop for a quick dinner out...where, halfway thru my beef sandwich I realized it was Friday, and it is Lent and I am Catholic.  Oh well....I finished it anyway.  So that was a big day out for spring break.

    SusanClare.....Gilda's Place sounds like it was a good fit for you!  And....they don't have to do the tattoo's.  They can use sharpie markers with a clear round sticky placed over the marks.  A lot of girls had that.  I did the tats as I didn't know I could argue....mine were blue.  Halfway thru they disappeared (BTW, they are very tiny) and they wanted to redo them.  By that time I knew about the sharpie thing and I refused.  They were not happy but you know what???  Who cares...my body.  AND....the marks and those sticky disks never came off on their own.....took me a long time to peel them off and then get the adhesive off and then of course, trying to get the sharpie marks off.  There was an elderly lady there who actually brought the techs a set of colored sharpies so she could change color once in a while!

    Carolyn....oh no!  You do not need a cold right now!  Tea, with honey and lemon, Vit C...rest!  Fingers crossed that it is indeed allergies.

    Elfsong...that's exactly what I had...that scratchy throat.  Not sore...I think it was Juliechicago who likened it to a scrub brush.

    Rita....Easter coming up...grandbabies!!!!!!!!!!

    Jackie...just saw the weather, gonna be up to 72 here!!!!!!  But we will have to wait until Friday for that...loved your post from the other blog.

    Rene.....good luck with the zometa!  Go ahead and get an rx for something - why not!

    BJ....last 2 days...boohoo!

    EnglishMajor....welcome to our merry band!  Where about in the western suburbs?  I'm in South Elgin....

    Mich101....that stained glass piece is so beautiful and count me in as one who would buy one in a heart beat!  Really!!!!  Is that your own design?  Wow...you are so talented!

    Laura...just watching the news and there is a lady on who designs hats.  Just thinkiing about those bras you did...you could really make some great hats.  You know, to keep your mind off your alcohol problem LOL (only kidding new girls,  Laura just finds lots of empty booze bottles on her property.....)

    Is anyone else scratching their heads over this census thing?  Got a letter that told me it was coming...after of course I had seen the commercials about a bazillion times, telling me in was coming.  And then I got the census.   And now I got a postcard, telling me that I should have gotten it.  Hmmmm.....seems like a lot of postage paid...but then the post office needs money!

    Out to dinner tonight with my sister for her BD and then tomorrow is dh's last day of spring break so hopefully we can do something fun.  Maybe some more shoe-shopping???  LOL  Have a great Saturday, my pets!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010
    In what you say of another, apply the test of kindness, necessity and truth, and let nothing pass your lips without a 2/3 majority.  ~Liz Armbruster, on http://www.robertbrault.com/
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2010

    Good morning everyone,

    A big welcome to EnglishMajor.  I see you figured out how to post on your signature line.  Good job.

    Elf --- I hope you were going to bed long before 2 a.m. in the morning.  Keep drinking that tea and getting as much rest as you can.  I know this time of year the allergies start kicking up.  For some maybe that contributes to giving germs a great place to gather....don't know.  All I know is that I've gone to doubling the Kleen-X's so Spring is definitely coming to stay.   

    Rene -- hope that Z-infusion goes well Friday.  It would be off-putting to have to go back to the "chemo" routine almost to get this.  No matter how far I have come......and often I do not even think about it all so much anymore, that might just get to me.  I had my chemo at the V.A. and were I to do it all over again....I wouldn't -- not there.  It was ok, but the nurses were used to dealing with men and seemed somewhat un-sympathetic.  They did their job, but just barely it seemed to me at times.  At another facility with other women I would have probably got through better.  Sigh !!!  Hope it all goes well for you.

    Mich --  I too think your work is stunning.  You have a good thing going on and may be on to a whole new career.  Now I'll have to get one of those too so I can say I was one of your first customers.   

    About that census thing.  We got the card/letter telling us it was coming.  Ok, fine.  Then we got it and filled it out and mailed it back.  Then a couple days after that we had a card sticking in our door that we had missed the "census" person.  Huh ??????  I thought that was what the mail it back census was all about --- so that there did not need to be people assigned to come to your door.  Give me a big red F for failure to understand.....and if I didn't understand this.....Lordy, don't ever toss something out that is complicated. 

    BTW --- Having a Susan and a Susan Clare is great.  There was a local cancer group here.....I went a couple of times but did not like it.  Guess in the main as I felt so alone when first getting my diagnosis that I went directly to the one place I knew I would find strong support and that was through Y-Me and found several cancer blogs.  Tried a couple of those...stumbled on not only this one, but Rita's thread --- who knew so many, many Illinoisans would be undergoing my same exact diagnosis -- and here is where I stayed as it was totally comfortable immediately.  In fairness to the meetings....I was through the majority of my txs when I found it and went.  They were very nice ladies, but it was like going to a Tupperware party.  I just didn't need anything by that time so it was ok ---  but I could almost have been anywhere. 

    Saying all that brought me back to how amazed I am ( I'm sure it is about the same anywhere though )/was about the number of people in Illinois who do/did have cancer.  I did have it but no longer do as the cancer drugs eliminated it, but thinking of it now.....did I think I was in a special small group in this state -- not so.  I, along with all of you will be so happy when the "cure" is finally allowed to come out.   

    Well, must get along and get my Saturday started......ah, sweet, sunny Saturday.  Hope it stays...the sun that is.  Saturday is a sure thing....sweet and sunny could get iffy later.  Have a fantastic day and Laura -- sure taking a long time to clean your woods.  Don't work too hard.

    Hugs, Jackie

  • makmak
    makmak Member Posts: 632
    edited March 2010

    Good morning.. Just wanted to let everyone know the colds in our house are slowly getting better.. Everyone still sniffling but at least breathing and not as cranky!!  Wanted to share that I named Gabriella Claire with Claire being my great-grandma Klara as well.. wow...

    So I have this pain under my tumor all the time when I'm stressed.. and stress unfortunately is my way of life.. Keep hoping it doesn't mean fuel and growth..

    Love reading the posts from those who are past all this.. and the fact that life does eventually get back to normal...

    Carolyn, glad you're doing all this research on PS... one day I too hope to be in position to have to face that choice..

    Enjoy the sun and hpefully good weather and spring will soon be here.. as I contemplate whether to start Gab on cereal tomorrow or wait until Tues and the pediatrician to give me the green light... Just can't wait since it's so fun to see that cute little messy face!!!

    Marina

  • ritajean
    ritajean Member Posts: 4,223
    edited March 2010

    Welcome English Major.  You have come to the right place.  The ladies on this thread are awesome and you'll never be alone since you've found us.  Come often!

    Marina,  as you go through the doctor appts and the treatments, it does sometimes seem like a "forever thing" that just doesn't seem to end.  Rest assured that there is a good life after all these treatments.  We all remember your feelings and that's why so many of us stay around the boards when it's all over......to help encourage those who need a little boost here and there.  Also, we've become such good friends that we'd really be missing something important if we pulled away.

    Michele............what a lovely and meaningful stained glass piece!  You do have an artistic flair!  I bet this design would (and will) sell FAST!  Since I have no artistic talents of ANY type, I really admire those of you who can create such great works!

    Today we're doing some outside projects around the house and then heading for the Club this evening for a committee planning session for golfing events for the year.  We've never done this before so it should be fun.  There's a little Mexican restaurant in the town where we're headed and we're going to give it a try before our gathering. 

    So.............the sun is out and I need to get moving.  I just got us registered for the Peoria Komen walk.  My family is coming to walk with me again this year which means so much to me.  It's hard to believe that I'm going to get my hands on my little grandsons both in April and May!  What a treat! 

    Catch you all later...........

    Have a great weekend!

    Rita

  • zap
    zap Member Posts: 2,017
    edited March 2010

    Marina, I heard somewhere , but I do not know where on this board, that pain occurs whenthe tumor is dying out.Maybe that is the pain you are feeling.

     Wendy, so happy you are feeling better and DH.

    Welcome English Major.  Where about in the city do you live?

    Take care all!Susan

    Edited to add:  Rita, what a great way of saying how the people on this thread remain when the treatments are in the past.  It is to offer support, but I am also at a point I couln'd just drop you guys because the cancer was treated over three years ago.  You all are my friends now and we were brought together through a sad circumstance but moving on suddenly would be a terrible loss of friendship for me.

  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited March 2010

    Hi ladies

    I live in Brookfield and work near Trib Tower.  With Stage IV cancer, it's the least toxic treatment first, so not too much going on with me. I feel pretty good and that has to be good! Thanks for your welcome messages.

  • BustersMom
    BustersMom Member Posts: 495
    edited March 2010

    Happy Weekened everyone - I haven't been here in quite a while, sorry :(   My hubby just went to pick up my Mom & bring her over for our belated b-day celebration, which will be very nice.  

    One of these days I need to catch up & see what's up with you all.

    Sorry I couldn't make Pompeii on thursday, but I'm truly pooped these days.

    9 more rads to go - my skin is in bad shape (blistered & raw & red) - so I refused the bolus as of yesterday.  My fingers are crossed that my implant will survive, although it is seeming very angry at the rads :o       Otherwise, I'm hanging in there, just like all you tough Illinois gals ;)

    Hope everyone is doing okay - I didn't have much time to read posts so I'm behind on everybody's lives right now.

    XOXO   P. Juliet

  • zap
    zap Member Posts: 2,017
    edited March 2010

    Had to step back in when I read Juliet's post about the rads. 

     I had a terrible time with the rads as my skin just burnt literally to a crisp in some areas.  I was miserble and delayed rads hoping the skin would repair itself just to be burnt again.

    A doctor "on call" for the rads doctor gave me these sheets of gel-like material that they place on people with 3rd degree  burns.  It was like heaven descended upon me.  I know they were terribly expensive and not covered by insurance (don't get me started) but she gave me some from the hospital supply and I used what I had sparingly.  I wish I knew the name but I bet Wendy or Smerf , BJ(or any other nurse I am forgetting) could tell you what they are called.  This was just serious relief from pain of burns that I must mention it to you.  I was mad at my doctor for not suggesting them in the first place.  The doctor "on call" said that maybe he was withholding because they were so expensive.  I would have purchased them no matter!

    Good luck!

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