2005 ROCK-TOBER CHEMO GIRLS
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Paula..you look gorgeous! and so does that yummy sundae! We don't get that kind of sundae here in Israel. Israelis do NOT know what they are missing!
I wish I knew what to say to our young women with cancer. It's beyond not being fair. This cancer takes so much out of our lives and yet, though the cancer wants to destroy us, we seem to rise up to the occasion and become stronger and more loving with each day.
Laura..I do hope you begin to feel better soon. Keep us posted as I know you will.
Mary..I know it worrisome for you but I also believe that you will be just fine. We have to believe that.
RoseMarie...again..thank you so much for updating our address/phone list so that we can all stay connected not only on the boards. That takes time (though I know you had a lot of that the other night!).
Thanks for the article, Gail. I read it. Interesting way to look at it all. Gail..I have a spontaneous dissected carotid artery that was diagnosed several years back because of a headache over my eye that wouldn't let up and a droopy eyelid. So, at the beginning they thought it could be a tumor so I had an MRI. Since then my follow ups are with a duplex and sometimes a CT angio and I'm on aspirin as a blood thinner.
And my hair..it is pretty much back to the same texture it was before chemo, the same waves and touch of curl in certain parts..and it's growing fast like it always did. I'm keeping it short so I need to have it trimmed about once a month now..or more often. But, I'm not happy with the style. Must find a new person to do my hair!
TracyNY.. that drunkard better watch out! He doesn't know who he's dealing with!
So the Sib Saga is like this...received another e-mail from my sister who said it appears that it will be very difficult for us to all get together at the same time because we can't just pick up and travel. I haven't answered her yet. But if we were to meet in the States, they could travel for 2 days on a weekend and manage. I can't do that but was willing to pick up and travel for an extended period of time.
Whatever. It's a waste of my precious time to get angry about this. I will write back after I take my walk on the beach and sort it out in my mind. Pray for no rain for the next hour! -
wHERE DO I START?
I have a few mins before i leave for work.
Amy, Paula - it sucks it really does. I guess we are looking at the same problem from different sides. I may not be much different in age (34) but i have my kids and whittle about leaving them behind. I dont think its easier whichever side you look at it from.
Mary - keep plodding - we will push you up the hills if they get too hard - i am usually near the back anyway!! Seriously, know all will be OK.
Michelle - glad the dog has won a repreieve , the dog i grew up with ( Emma) was on borrowed time for the first 3 years - she chewed everything walls, curtains, plaster, flooring, furniture. We still had her 18 years later!!
Dev, That was good advice someone gave you about plan for yourself, invite the otehrs and if they dont come, well stuff them , its not your problem that they want spoon feeding with their lives.
Tracey NY - i fear for that little man. It reminds me of something that is happening here at the moment. My aunt ( the one in the dog attack) wanted a bathroom fitting. Roger was busy so she paid someone else to do it. £10000 ( yes thats right) she has a shower that plays music, mood lighting and steam ( shes late 70s) but no water , and a toilet and sink that if you use makes a noise so loud in the rest of the house plumbing that you cant talk over it. Oh - and it makes all of the other taps in the house turn on and run as well - its weird. Well, Roger was so cross, as this man had told her that there was nothing he could do and she would have to live with it. Rog rang, frightened the man out of his wits and demanded he come back. They arranged a date , and we warned Mary that he would come before to avoid Roger. Well, this guy turns up at all strange times to make sure Roger isnt there. 7 in the morning, 8 at night but he cant fixit. Rog told him to clear off but to expect a bill from someone who wasnt incompetent and if he didnt pay it to expect court proceedings. It makes me cross that people take old people for granted. Sorry - pet hate!!
Laura , hope when you next post things are better.
Everyone else - catch you later or will lose my job!!
Debbie -
I agree with you, Debbie...I think I will do what fits into MY schedule for a change instead of what fits into everybody elses. Reminds me that my therapist told me I mold my life around others too much. Thanks for this gentle reminder. Am feeling better already about it.
What a bathroom your aunt has. I agree..I hate when older people are taken advantage of...or women. Pet peeve here, too. -
Kelly - we took the kids to see a Night at the Museum - it was cute! Charlotte's Web is next on the list...
Debbie - I hope everything gets straightened out with your aunt. I too HATE it when people take advantage of the elederly - or ANYONE for that matter.
Paula - you're so pretty! Your hair looks fab!
Well, my dh will be all over the US for the next 3 months -San Jose, San Diego, Atlanta, New Mexico, Chicago - everywhere I want to be! Kids start back tomorrow and life will be back to normal. Tonight I'll learn what it takes to be a "Girl Scout Cookie Mom." I have visions of Thin Mints stacked in my garage!
Mary - sending gentle (((hugs))), and peaceful thoughs your way!!
Have a great day ladies,
Lots of love - -
Girl Scouts - that the same as Guides?? Made me laugh, came home to a message on my answerphone asking me to help out at cubs on Fri. We have been having a recruitment drive and numbers have gone from 6 ( which was nice but a bit limiting) to 20 , virtually overnight!! Ben said he had rung me as he wanted someone with authority ( i think he means loud voice) that they would actually listen to. Remind me to take headache tablets before i go. Remember Mark was rising money for a charity in Tanzania? Well bless him , he goes to hand it over tonight. He aimed for £50 , and has made ( off his own back) £228.57 !! Is that about $440 ?? Oh i do wish you were my neighbour Rosemarie - it would be so much fun.
And for those of you needing a laugh on a dull day , guess what i have been roped in to doing at school. Think of my accident prone, unbalanced nature , then think who seems the most natural person in the world to be asked to start a CHEERLEADING TEAM ! Well when i had stopped rolling on the floor laughing i realised she was actually serious. I am hoping it will all die down and go away , but if not ' In for a penny in for a pund' as the saying goes!! It makes even me laugh at the absurdity of it - never mind anyone else!! -
That is so unfair showing us that! It looks fantastic - will go and get myself an icecream from the freezer. Roger came back with a brand called' skinny cow ' as he thought it was funny but wont eat them as they are low fat so they are all mine!!
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Oh that is Funny Debbie.....Don't you ever get tired? You are amazing. I wish I had some of that energy. Never a dull moment in your life and what a wonderful son you have. You should be proud, that is wonderful that he raised all that money.
Tadah, Are you being evacuated? I hope you are safe. I heard about the gas leak and of course now I am sitting here worrying about my son on Wall Street.
I am off to lunch and the Movies with my friends, hopefully that will take my mind off of things for a while.
Mary, Thinking of you...
Gail -
Debbie, that is sooooo funny. I have been trying to tell my mom about you. She saw our video and she thought it was amazing! So when she saw the car all crashed ...... well that helps explain you!
Laura, my mom thinks you should send our video to Oprah! -
Laura, Thinking of you too, Hope you are feeling better.
Kelly, Your Mom might have something there..But knowing our luck it would probably be tossed on the side. Lost and forgotten.... -
There's gas leaking in NY? What do I know? I don't watch the news. Maybe that's why I'm feeling so sleepy. I took an ativan last night and woke up at 7:24am.
I usually get up at 6am and still have to hustle out the door, I look like a dog's dinner right now. This is the first time in I can't remember how long that I left my house with no makeup on!! I'm trying to pull it together! -
Debbie:
I think you'd be great at the cheering part. Just let someone else teach them the lifts and stunts! Just kidding. I think they would be privileged to have you for the cheerleading coach. Your enthusiasm for life is infectious.
Mary -
Hi ladies,
I just got back from a doctor's appt. and everything is fantastic. My breast surgeon really thinks it's okay that I get pregnant after Tamoxifen as long as I'm NED. I have another doctor's appt. next week to just go over everything again with my onc. but they are usually on the same page because they work together.
And my husband and I have officially decided to do surrogacy, hopefully having a baby sometime next year. We're going to see if I can harvest my eggs (we have to meet with a big time specialist in NYC) and if not, we'll use an egg donor. We're definitely feeling more positive and excited and more...normal.
I still may be off and on this week because overall, I think I need a mini-break from cancer this week. I've been overwhelmed and exhausted and I need to give myself permission to not be on the boards this week just to get a break. But, I love you all so much and want to figure out when we're going to get together!
-Amy -
Debbie..they definitely picked the right person. I think you should be OUR cheerleader for the Rock-tober Girls!!!
(But..PLEASE wear your helmet!! )
Amy..that is wonderful, wonderful news! All things work out if we have a little patience. I believe in this. Somethings take longer and sometimes they are not what we thought they would be..but it still all works out!
You take your break. We will be here for you when you drop in.
RoseMarie..you sure live a busy life with those kids. I guess my life has slowed down a lot. I used to work and I had 3 small kids and was driving them around to all their activities and watching them dance (daughter STILL dances!)and basketball games and whatever else they were doing. But..still..seems like you are so busy! (but my mom said that about ME!).
Gas link in NY? Are you okay, Tracy? Going out without make-up??? did the drunkard come? looking like a dog's dinner????
Speaking of dogs..I had to take my dog out this morning and when she doesn't want to do something I take her by her collar. So, when I grabbed her collar, she tried to bite me and then gave me her "ugly teeth look" as we call it. She has always been like this..ornery...like a little kid... but I got really mad and hurt by this (yes..by my dog!)but then..look here...the is why she didn't want to leave...I had given her this great blanket and she was all snuggled in it...
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Debbie: Yeah, for Mark!!!
Amy: Yahoo for you!! So happy to hear your good results.
Well, the MRI results are in. Nothing is wrong in my head, at least nothing that can be seen by an MRI. Personality, strange thoughts, weird emotions . . . they won't show up on that kind of test. Ha-ha-ha!
So, the doctor is going to treat me for a sinus infection because they think I may have some inflammation in my right sinus above my eye. That's where the pain has been centered. I started amoxicillan this afternoon. Strange because I have no drippyness, no cough, nothing except the headache. And now they say, no ibuprofen. Take Tylenol.
OK, I can do that.
Whew!!! Glad to have just garden variety, normal aches & pains.
Mary -
Oh Mary that is SUPER !! And so is Amys news. Two lots of fantastic news on one page - can it get much better??
Its agood job that the heads OK Mary because it looks like we may be calling on you to knit boottees!
It was strange you mentioned Tylenol - I had never heard of it before today, then i read a peice in the paper about it being used to make Crystal Meth, then you come out with it! There are some strange bugs about at the moment - I sent an 11 yr old girl home today with Migraines - I owe my friend in the office a big coffee as i left the girl sat there with a bucket waiting to be collected only she missed the bucket big style!! In fact i seem the healthiest around at the moment.
Anyway - going to practise shaking my pom poms!
Debbie -
Debbie
Your cheerleader is just too cute!
I join in the cheers for Mary and amy. Yea, Rah Rah.
Or as the cheer for the Catholic School my best girlfriend taught me in my youth:
Chicka lacka, chicka lacka, chow chow chow.
Booma lacka, booma lacka, bow wow wow.
Chicka lacka chow, Booma lacka bow
Go girls, go girls go girls now!
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Hi Girls -
Greetings from the forest:
Woke up this morning again feeling like a truck hit me. Stayed in bed until my appt w/the surgeon. He is convinced this is a virus and nothing to do with the Mast. He said the lump by the incision is scar tissue that will probably even out and not be so much of a lump. He told me to stop the antibiotics, which I will gladly do because they made me so frickin' sick, splitting headache and nauseaus! As for the pain, he said to keep taking the pain meds, if it hasn't subsided in a week, call him. I got back home at 2:00 and went right to sleep and slept until just now. I'm going to try to relax the next few days, but I have a water color (painting) class scheduled for tomorrow that I really need/want to attend. I'm brushing up on the techniques I learned in art school, as my client wants me use this medium on some of the products I will be designing. Trying to deal with my impatience with the pain...not an easy task for me! Patience has never been one of my strengths. Thanks for all the concern and support.
mary -
I am so happy the MRI was clean. I know it leaves unanswered questions, but it is process of elimination and it is a start. Just in case though...fyi - my dh had migraines years ago, and biofeedback helped him. I hope the meds work, then you would know if it really is sinus/versus migraines. Also, I think you said you collected snowmen...have you heard of Bethany Lowe Designs?
debbie444 -
OMG - Do not do any of those human pyramid tricks with the cheerleading...yikes, I'm worried about your latest endeavor. Worldy One's cheer is great! Here's another:
rah, rah, ree
kick him in the knee,
rah, rah, rass
kick him in the....
(other knee!) LOL
Paula -
You and that sundae - that is a great photo!
Amy -
I am so happy for you. That is great news...
TaDah -
That drunkin' bum should be shot! LOL You bring the gas can, I'll bring the matches! LOL How far are you from 47th and Lexington in Manhattan?
ravdeb -
I can't picture you without the curls! Photo please...
Kelly and Brenda -
I don't care how crappy I feel, wild horses could not keep me from our meet! Kelly, I will send it to Oprah! Great idea, Mom.
Graycie (my twin), RoseMarie (rice and beans...one of my favorites), Cindy, Cathy (I love your cheer!), Michele, Maryanne (where's Ginger? LOL), Victoria, Tracy (any Vino Beeno photos?), Linny, Jill...
Hi there!
Laura -
Mary - thats great news!! Hope you'll be feeling better in no time.
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Hi, everyone...
I know that Debbie has a tremendous amount of energy. She would be the personified version of the Energizer Bunny here in the States.
But is there anyone out there who has waves of fatigue now and then? I was shopping (SHOPPING!) yesterday for clothes and the wave hit me. Then I could not go on. I stopped by a Starbucks for a tall caramel machiatto but it did not help. I was so tired I could hardly drive home. I felt better after a 2 hour nap, but when I woke up it was too late to go back shopping.
Today I woke up feeling okay. I felt fine right until I came home from work. I was in the middle of walking Angus when the wave hit again. I almost let go of him as he sprinted towards an alluring, fat, white cat ACROSS THE STREET!
Has anyone else been extremely fatigued lately? -
Yes - fatigue gets to me, also. In fact, I'm heading off to bed now at 9:20pm.
Sweet dreams everyone!
Mary -
Here's something amazing. I just changed my display preferences for this discussion topic to show 50 messages per page. So, now when I read our messages, it shows 120 pages plus a new one started. At 50 message per page that equals 6000 messages. This page is now page 121 and this will be the 5th message. We have sent 6005 messages to each other on this Rocktober Girls space. Just thought you'd want to know.
Mary -
Debbie..perfect avatar. You are tooooooooooo funny!
Laura..how are you feeling today?
Mary!!! I'm soooooooooooooo relieved! And YES..It DOES sound like a sinus infection..those can be killers. My girlfriend gets them and it's like migraine as far as pain rating. But the good thing about that is that it GOES AWAY!
Feel better soon!
That is quite amazing about our posts, Mary, but NOT surprising!
Brenda..Yes..I suffer from fatigue. It is disrupting my life and makes me angry. I never suffered from it before. Sleep does NOT help me. If I'm going through a fatigue phase, I'll wake up tired..like today. I had to force myself out of bed.
My onc nurse had told me to keep walking. I do! I get more tired walking in the colder weather. This could have to do with my asthma and making it a touch harder to breathe but I am not having a problem with asthma..
It could be the good salt air that knocks me out. But where is the excuse on the days when I don't walk?
Debbie..perhaps you could share some of that energy with us? I feel it emotionally but physically..it hasn't quite gotten to me. I feel so terribly old since chemo.... -
btw..new avatar of mine. (so proud I did that myself! )but it's before hair cut..
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http://haaretz.com/hasen/spages/811353.html
This was in the Hebrew papers today about Tykerb. My doctor, Dr Bella kaufman (they wrote Bala )is mentioned in it. She is GREAT! The doctor from Hadassah hospital in Jerusalem who was my second opinion, was on the news last night talking about it. SHE got on the News but it was MY doctor who got women in Israel to be a part of the study! Way to go, Bella! -
energy isnt what it used to be, I just keep going as i feel better when i have actually done something, if i sit and veg i get down and its a vicious circle!!
Are we any closer to sorting a date? What we need is a teacher with some laminated overlays and some coloured markers!! Like i said, would two be not as good but eassier to arrange?
Debbie
Btw - good atvar Dev!
Dont argue with idiots - they bring you down to their level, then beat you with experience -
Debbie - you shake those pom-poms! I agree, I think we would have a blast if we lived closer!!!
Mary - yippee!! So glad for great MRI!
Amy- so happy for you too!
Laura - hoping your feeling much better soon!!
Cathy - Lol! cute cheer
Everyone else - sending lots of love your way!!
Word to the wise...if anyone ever asks you to be the GS cookie mom, light your hair on fire and run away screaming as loudly as you can!! Didn't know it would entail so much!! -
Debbie - I think two dates is a good idea - one in late Spring, and then one in the fall maybe???? Maybe even two different locations - there are a lot of ladies in/near NY, would that be a good location for one of our meetings?
I certainly don't want to complicate things more!! -
Quote:
Word to the wise...if anyone ever asks you to be the GS cookie mom, light your hair on fire and run away screaming as loudly as you can!! Didn't know it would entail so much!!
I am ROFL!
Debbie..if you don't have the energy that you had before then you really ARE hiding in disguise as you must be the TRUE ENERGIZER BUNNY!
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Laura: 47th and Lex is $2.00 and a train ride away. Nowhere is really far in NY by the subway. I hope you feel well enough to go to your art class. Take your mind off things. I need something to take my mind off slaughtering that furniture man.
Old age is attacking my right leg! I'm limping along these past two days, I feel like all the grease went out of my joint and I'm just creaking along.
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