2005 ROCK-TOBER CHEMO GIRLS

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Victoria, I look forward to the list of art supplies! You are such a giving person and giving me this list will really help me .... my daughter so loves to paint and make things. She is apparently making something at school for me, she loves calling it the "surprise" and she is really good about how she cannot tell me what "it" is!! I forgot to tell you how much I enjoyed the sound of your voice. Oh maybe I did tell you that!! It is very soothing and loving....and tell your friend, your voice is FULL of LIFE. Your days are not few.

    I don't have alot of time to read other forums. I used to go to a Mommy board but the girls didn't really interact well with each other .... everyone seemed to be all about themselves and their kids so it was filled with new threads, each woman posting her day, her life, not a group or running threads.

    Dev, you are very kind to worry about this woman. She is fortunate to have you as an organizer. You will really be able to foresee her needs like no other in your congregation.

    Well, gotta get Teryn ready for school.
  • ravdeb
    ravdeb Member Posts: 3,116
    edited December 2006
    Thanks Kelly!She and I discussed the shock of being diagnosed and the feelings about it, etc. We also talked about the wonderful doctors we have here...

    Jill..you are right about being at her home to help her out. That will be a tough one. She said she has somebody who will bring her her food from the health food store. Here's another one, Victoria. She eats only organic and whole wheat and so on... And she got cancer, too. And she's 91 years old and has been healthy all this time. She is our "bohemian". Very, very special lady. Very kind and very interesting and very active.
    At any rate..I will try to make her something healthy to eat for when she returns home but I still feel that she needs a familiar face when she gets out of surgery and wakes up...and not just her driver. Gotta get somebody over to the hospital for her..
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    ravdeb -
    Best wishes to your friend...hope it will all be okay, although with a friend like you...I just know it will. Hope your aches and pains subside soon! Arghhhhh...

    Let me see if I have it straight here. It's now: ravdeb, Debbie, Deborah, Devorah, Deb, Dev, and rabbi wannabe.

    OMG - LOL!

    (Gotta keep you smiling!)


    Laura
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Hi Girls:

    It's really difficult to remember everyone's stats and exact diagnosis. And it's easier to give more accurate and detailed advice, knowing the specific info surrounding each of our "stories".

    As stated in an earlier post...if you're not comfortable sharing the details, then don't. If you would like to submit this but prefer privacy, you can PM or e-mail it to whomever you choose. Thanks, Victoria, for proofing this for me, great minds think alike. LOL

    -----------------------------------------------------------

    Name: LauraGTO
    Age at DX: 45
    Date of DX: July of '05
    Which breast: left
    Type of Biopsy for DX: Needle Core
    Type of BC: ILC, multi-centric, multi-focal & LCIS with Ductal Features
    Size of invasive tumor/s: largest 3.9cm (ILC)
    Size of in-situ tumor: 1.4cm (LCIS)
    Stage: 2b
    Grade: 2 (histologic)
    ER: positive (80%)
    PR: positive (30%)
    Her2neu: negative
    ki-67: favorable, less than 10%
    Mastectomy or Lumpectomy: Mast.
    When: August of '05
    If Mastectomy, single or double: single
    Clean Margins?: micro-unclean at chest wall-posterior margin
    Prophylactic Mastectomy: yes (will be on Dec. 27th. '06)
    SN Biopsy: yes
    Sent. Node Positive or Negative: positive
    Axillary Dissection: yes
    How many nodes were removed: 11
    Positive Lymph Node/s: no
    If yes, how many were positive:
    Reconstruction: no
    If yes, what type: n/a
    Chemo: yes
    Radiation: yes
    Tamoxifen: yes
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: BSE
    Did bc show up on Mammo?: no
    Did bc show up on breast MRI?: didn't have one
    Did bc show up on an US?: yes
    # of B9 biopsies prior to DX: 1 biopsy - 25 years ago - same breast and same location as largest malignant tumor
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: no

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:

    I had annual mammos for 5 years. Tumors didn't show up, breast tissue extremely dense. Had an expander put in at Mast. time. Due to extreme and intolerable pain, had it removed 3 weeks later during the Ax. Node Dis. No plan of reconstruction in the near future. Mast. site still sore and underarm is still numb. Prophylactic Mast. scheduled for Dec. 27th (2006). I'm wearing lipstick to it, but not red! I look horrible in red lipstick...pink will do just fine!
  • Graycie
    Graycie Member Posts: 839
    edited December 2006
    Name: Graycie
    Age at DX: 56
    Date of DX: Aug of 05
    Which breast: left
    Type of Biopsy for DX: Needle Core
    Type of BC: IDC
    Size of invasive tumor: largest area was 3.2cm
    Size of in-situ tumor: N/A
    Stage: 2b
    Grade: I think grade 2 but not sure it could be grade 3.was never told......
    ER: negative
    PR: negative
    Her2neu: negative
    ki-67: don't know
    Mastectomy or Lumpectomy: Lumpectomy
    When: Sept of '05
    If Mastectomy, single or double: N/A
    Clean Margins?: yes
    Prophylactic Mastectomy: NO
    SN Biopsy: yes
    Sent. Node Positive or Negative: positive
    Axillary Dissection: yes
    How many nodes were removed: 21
    Positive Lymph Node/s: yes
    If yes, how many were positive: 1 (sn)
    Reconstruction: n/a
    If yes, what type: n/a
    Chemo: yes
    Radiation: yes
    Tamoxifen: no
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: BSE
    Did bc show up on Mammo?: no
    Did bc show up on breast MRI?: didn't have one
    Did bc show up on an US?: yes
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: no

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:

    I always had annual mammos. Tumor didn't show up. Six months later I found the lump by self examination. They thought I had an abcess and treated me with antibiotics because it was slightly inflamed so they also thought I had an infection. They made me wait 3 weeks to see if it would shrink. That is when they realized that it had grown and sent me in for a biopsy which turned out to be a tumor. Had it removed 3 weeks later. When SN turned out postive I had the Ax. Node Dis. Site is still sore on occasion and underarm is still numb. --------------------
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Graycie,
    I had forgotten that our dx's had several things in common! I think we were seperated at birth. LOL
    Laura
  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited December 2006
    Here are my stats:

    Name: Michele Wenz
    Age at DX: 41
    Date of DX: Oct 25/05
    Which breast: left
    Type of Biopsy for DX: Needle Core
    Type of BC: IDC, mixed with DCIS
    Size of invasive tumor/s: 4 cm
    Size of in-situ tumor: not sure
    Stage: 2b
    Grade: 3(histologic)
    ER: positive – Yes Highly
    PR: positive – Yes Highly
    Her2neu: negative
    ki-67: greater than 10%
    Mastectomy or Lumpectomy: Lump.
    When: Nov 17/05
    If Mastectomy, single or double: n/a
    Clean Margins?: Yes
    Prophylactic Mastectomy: n/a
    SN Biopsy: n/a
    Sent. Node Positive or Negative: n/a
    Axillary Dissection: yes
    How many nodes were removed: 23
    Positive Lymph Node/s: yes
    If yes, how many were positive: 3
    Reconstruction: n/a
    If yes, what type: n/a
    Chemo: yes
    Radiation: yes
    Tamoxifen: no
    AI, Arimidex, etc.: yes plus Zoladex injections
    Herceptin: no
    How was your bc discovered: BSE
    Did bc show up on Mammo?: yes in 05, but not on first one in 04
    Did bc show up on breast MRI?: didn't have one
    Did bc show up on an US?: yes
    # of B9 biopsies prior to DX: 1 biopsy
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: no

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:

    I had first baseline mamo at age 40 in Sept 04, nothing showed up in either breast. Breast tissue extremely dense. Discovered tumour myself in Oct 05, thirteen months after a clear mamo and knew in my heart it was cancer, didn’t ignore that little voice within. Glad I did…..chemo put me into menopause which is a good thing being er/pr+, put on Armidex in May 06 and started Zoladex injections a month ago to ensure I stay menopausal for the time being. May have ovaries out when injections are finished in 2-3 years, oncologist not recommending at this point, no family history of bc or gene mutation.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Michele -
    Zolodex...is Zolodex to pre-menopausal women what Tamoxifen is to post-menopausal women?
    Laura
  • cathy987
    cathy987 Member Posts: 179
    edited December 2006
    Name: Cathy987
    Age at DX: 65
    Date of DX: July 19, ‘05
    Which breast: left
    Type of Biopsy for DX: Stereotactic Needle Core
    Type of BC: Initially DCIS
    Size of invasive tumor: .5 cm (IDC)
    Size of in-situ tumor: Extensive
    Stage: Between I and II
    Grade: 3 (histologic)
    ER: negative
    PR: negative
    Her2neu: amplified
    ki-67: don’t know
    Mastectomy or Lumpectomy: 2 lumpectomies followed by Mast.
    When: August, September, October of '05
    If Mastectomy, single or double: single
    Clean Margins?: with mastectomy, yes
    Prophylactic Mastectomy: no
    SN Biopsy: Had one with second incision and one before mast
    Sent. Node Positive or Negative: one sn negative: then four sn negative
    Axillary Dissection: no
    How many nodes were removed: 15 from breast
    Positive Lymph Node/s: yes
    If yes, how many were positive: one (not a sn)
    Reconstruction: half way there
    If yes, what type: tissue expander with exchange to be scheduled
    Chemo: yes
    Radiation: no
    Tamoxifen: no
    AI, Arimidex, etc.: no
    Herceptin: yes
    How was your bc discovered: biopsy
    Did bc show up on Mammo?: only calcifications
    Did bc show up on breast MRI?: didn't have one
    Did bc show up on an US?: no
    # of B9 biopsies prior to DX: 0
    BRCA 1&2 status: don’t know
    Lymphedema: slight
    Tumor Markers?: no

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:

    At the time of my mast. I was also diagnosed w/Paget’s Disease which as I understand it is rare but when present accompanies DCIS. I had uterine cancer 19 years ago and had complete hysterectomy. Cancer had not penetrated the uterine wall and there was no lymph involvement so had no chemo. To me it wasn’t real. Breast Cancer is!
  • Graycie
    Graycie Member Posts: 839
    edited December 2006
    Laura, You are funny......maybe we were....lol

    Cathy, where have you been hiding? I was starting to get worried about you.
    Gail
  • maryannecb
    maryannecb Member Posts: 1,453
    edited December 2006




    Name: Mary-Anne
    Age at DX: 44
    Date of DX: Sept 20, 2005
    Which breast: left
    Type of Biopsy for DX: Needle Core
    Type of BC: IDC
    size of invasive tumor/s: 9 cm
    Size of in-situ tumor: none
    Stage: 3
    Grade: 2
    ER: positive – No
    PR: positive – No
    Her2neu: positive
    ki-67: greater than 20%
    Mastectomy or Lumpectomy: Mastectomy
    When:Sep2 26, 2005
    If Mastectomy, single or double: single
    Clean Margins?: Yes
    Prophylactic Mastectomy: no
    SN Biopsy: n/a
    Sent. Node Positive or Negative: n/a
    Axillary Dissection: yes
    How many nodes were removed:14
    Positive Lymph Node/s: yes
    If yes, how many were positive: 2
    Reconstruction: no
    If yes, what type: n/a
    Chemo: yes
    Radiation: yes
    Tamoxifen: no
    AI, no
    Herceptin:yes
    How was your bc discovered: BSE
    Did bc show up on Mammo?: no
    Did bc show up on breast MRI?: no
    Did bc show up on an US?: no
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: not done, unlikely if er-
    Lymphedema: no
    Tumor Markers?: no

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:

    Radiographic features suggested fibrocystic disease. My tumor grew fast, 2cm when i first felt it , 9cm at surgery,2 months later. I had regular mammos since age 40. It hurt.
  • maryannecb
    maryannecb Member Posts: 1,453
    edited December 2006
    Hey, we are all left so far...

    Fists up!
  • chumfry
    chumfry Member Posts: 642
    edited December 2006
    Name: chumfry (Cindy)
    Age at DX: 47
    Date of DX: September 2005
    Which breast: left
    Type of Biopsy for DX: Needle Core
    Type of BC: medullary
    Size of invasive tumor/s: 4.5cm
    Size of in-situ tumor: NA
    Stage: 2b
    Grade: 3
    ER: negative
    PR: negative
    Her2neu: negative
    ki-67: Don't know
    Mastectomy or Lumpectomy: Mast.
    When: September 2005
    If Mastectomy, single or double: single
    Clean Margins?: widely clean margins
    Prophylactic Mastectomy: no
    SN Biopsy: yes
    Sent. Node Positive or Negative: 5 of 5 negative
    Axillary Dissection: no
    How many nodes were removed:
    Positive Lymph Node/s: no
    If yes, how many were positive:
    Reconstruction: yes
    If yes, what type: expander to silicone implant
    Chemo: yes
    Radiation: no
    Tamoxifen: no
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: BSE
    Did bc show up on Mammo?: not sure
    Did bc show up on breast MRI?: yes
    Did bc show up on an US?: yes
    # of B9 biopsies prior to DX: 1 biopsy eight months earlier in same spot was benign cyst, which was drained
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: don't know

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:

    I had annual mammos for 10 years, despite dense breasts. No sign of tumor in mammo/ultrasound 8 months before diagnosis. My tumor was tender to the touch and grew very fast. Fast growth is typical of medullary. Luckily, this variety tends not to travel much. Fingers crossed!
  • ake
    ake Member Posts: 684
    edited December 2006
    Name: AKE
    Age at DX: 28
    Date of DX: August 19, 2005
    Which breast: right
    Type of Biopsy for DX: Needle Core
    Type of BC: IDC
    Size of invasive tumor/s: 2.2cm
    Size of in-situ tumor:
    Stage: 3A
    Grade: 2
    ER: positive (70%)
    PR: negative
    Her2neu: negative
    ki-67:
    Mastectomy or Lumpectomy: Bilateral Mast.
    When: Sept. 15, 2005
    If Mastectomy, single or double: double
    Clean Margins?: yes
    Prophylactic Mastectomy: yes
    SN Biopsy: yes
    Sent. Node Positive or Negative: positive...2 SNBs...both positive
    Axillary Dissection: yes
    How many nodes were removed: 24
    Positive Lymph Node/s: yes
    If yes, how many were positive: 7
    Reconstruction: yes
    If yes, what type: DIEP
    Chemo: yes dose dense AC/T
    Radiation: yes 25 Rads
    Tamoxifen: yes
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: random BSE
    Did bc show up on Mammo?: yes...calcifications
    Did bc show up on breast MRI?: yes...and positive nodes
    Did bc show up on an US?: yes...dense tumor
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: no

    I was only 28 at diagnosis and had actually had a physical 9 months prior to finding the lump. One week to get diagnosed after finding the lump...tumor showed up on mammogram with calcifications all over the place.
  • Paula15089
    Paula15089 Member Posts: 373
    edited December 2006
    Name: Paula
    Age at DX: 31
    Date of DX: September 7, 2005
    Which breast: left
    Type of Biopsy for DX: Needle Core
    Type of BC: IDC, multifocal
    Size of invasive tumor/s: largest 3cm
    Size of in-situ tumor:
    Stage: never been told.. never asked...2?
    Grade: 3
    ER: positive (85%)
    PR: positive (i think)
    Her2neu: negative
    ki-67:
    Mastectomy or Lumpectomy: lumpectomy, re-excision, then finally mastectomy
    When: Sep/Oct 2005
    If Mastectomy, single or double: single
    Clean Margins?: yes
    Prophylactic Mastectomy: considering
    SN Biopsy: yes
    Sent. Node Positive or Negative: negative
    Axillary Dissection: no
    How many nodes were removed: n/a
    Positive Lymph Node/s: no
    If yes, how many were positive: n/a
    Reconstruction: yes
    If yes, what type: saline/silicone implant
    Chemo: yes 4 x AC
    Radiation: yes 25 Rads
    Tamoxifen: yes + monthly Zoladex injections for 2 years
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: painful lump
    Did bc show up on Mammo?: dont know
    Did bc show up on breast MRI?: not done
    Did bc show up on an US?: yes
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: no

    I had quite a rollercoaster with my diagnosis.. was at first told i have a 1.5cm lump and the lumpectomy would be enough. Then was told the lump was in fact 3cm, and margins unclean, so need re-excision. THEN, after op #2, told more cancer found in the margins, so thanks to a multifocal nature of my tumour, mastectomy is the only option. I felt like i had bits and pieces of me sliced off like a christmas ham... and THEN, just before chemo, i had to have operation #4 to fix a faulty port for my expander...
    And the fight i had with my PS to have an expander installed even though rads were in store for me - thats a whole new story!!
  • ravdeb
    ravdeb Member Posts: 3,116
    edited December 2006
    Name: ravdeb,Rabbi Wannabe,Dev,dEBBIE...etc..
    Age at DX: 50
    Date of DX: Sept.5,2005
    Which breast: left
    Type of Biopsy for DX: excisional
    Type of BC: IDC
    Size of invasive tumor: 2 cm
    Size of in-situ tumor: n/a
    Stage: they staged me between stages 1 and 2. (I'm saying it's stage 1 )
    Grade: 3
    ER: NEG
    PR: NEG
    Her2neu: negative
    ki-67: 60%
    Mastectomy or Lumpectomy: Lump.
    When: Sept. 22, 2005
    If Mastectomy, single or double: n/a
    Clean Margins?: Yes
    Prophylactic Mastectomy: n/a
    SN Biopsy: Yes..one node removed
    Sent. Node: negative
    Axillary Dissection: NO
    How many nodes were removed: n/a
    Positive Lymph Node/s: n/a
    If yes, how many were positive: n/a
    Reconstruction: n/a
    If yes, what type: n/a
    Chemo: yes... 3 out of 4 DD AC and 12 weekly Taxol
    Radiation: yes..33 treatments
    Tamoxifen: no
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: BSE
    Did bc show up on Mammo?: they could see the tumor but they wrote, "appears to be benign".
    Did bc show up on breast MRI?: didn't have one
    Did bc show up on an US?: yes..this is when they told me my lump was highly suspicious.
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: Negative (for both)
    Lymphedema: no
    Tumor Markers?: no

    Specific notes, complications...

    After my 3rd AC, I got a high fever that wouldn't quit. They thought it was from the neupogen shots. But, it was a bacterial infection that had gotten into the blood. Was hospitalized for close to a month..the first week being sent home every day until they found the problem. From this infection, I had an eye infection and serious reactive rheumatoid arthritis that left me in severe pain for about 2 months. Other than that..I was fine!! REALLY!
  • ravdeb
    ravdeb Member Posts: 3,116
    edited December 2006
    Quote:


    Let me see if I have it straight here. It's now: ravdeb, Debbie, Deborah, Devorah, Deb, Dev, and rabbi wannabe.





    You can call me anything you...Just don't call me late for supper!!!
  • ravdeb
    ravdeb Member Posts: 3,116
    edited December 2006
    oops..I meant to write.."You can call me anything you WANT"
  • RoseMarie
    RoseMarie Member Posts: 502
    edited December 2006

    I guess I'm a little slow...where is the form?? How do I go to it??

  • RoseMarie
    RoseMarie Member Posts: 502
    edited December 2006
    (Copy and paste???)

    Name: RoseMarie
    Age at DX: 37
    Date of DX: August 17, 2005
    Which breast: left
    Type of Biopsy for DX: Excisional Biopsy
    Type of BC: IDC and DCIS
    Size of invasive tumor/s: 0.5cm
    Size of in-situ tumor: 2 cm
    Stage: 2A
    Grade:
    ER: positive
    PR: positive
    Her2neu: negative
    ki-67: Don't know
    Mastectomy or Lumpectomy: Mast.
    When: September 2005
    If Mastectomy, single or double: double
    Clean Margins?: yes, with Mast.
    Prophylactic Mastectomy: yes
    SN Biopsy: yes
    Sent. Node Positive or Negative: positive
    Axillary Dissection: yes
    How many nodes were removed: 14 (I think)
    Positive Lymph Node/s: yes
    If yes, how many were positive: 2
    Reconstruction: yes
    If yes, what type: expander to silicone implant
    Chemo: yes
    Radiation: no
    Tamoxifen: yes
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: Very Random BSE
    Did bc show up on Mammo?: No
    Did bc show up on breast MRI?: N/A
    Did bc show up on an US?: yes, although was told "looked benign"
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: Haven't done testing yet (shame on me)
    Lymphedema: yes
    Tumor Markers?: No

    Specific notes, complications, remarks, etc. re: your DX, treatment or current status:
    Had a maternal aunt that was diagnosed at 36 and died at 40 so my diagnosis at 37 freaked everyone out! Found the lump when I was putting on my bathing suit. Was told repeatedly by the OBGYN, the radiologist, and the surgeon that the lump felt and looked benign. Had never had a mammo before, never had any complications before, always very healthy. Was told lumpectomy was not an option as my excisional biopsy did not have clean margins and I was very small chested - "there would be nothing left to conserve." For the record...my first surgeon was a real idiot, answered his cell phone 3 times while he was telling me I had cancer! (had to go back and edit as I was feeling guilty for calling the surgeon a worse name...)
  • debbie444
    debbie444 Member Posts: 847
    edited December 2006
    Name: Debbie
    Age at DX: 33
    Date of DX: May 04 2005
    Which breast: left
    Type of Biopsy for DX: One with what looked like a horse needle!
    Type of BC: ?
    Size of invasive tumor/s:
    Size of in-situ tumor: 1.8 cm
    Stage: ?
    Grade: ?
    ER: ?
    PR:?
    Her2neu: negative
    ki-67: Don't know
    Mastectomy or Lumpectomy: Lump
    When: 26 May 05
    If Mastectomy, single or double:
    Clean Margins?: yes, .
    Prophylactic Mastectomy:
    SN Biopsy:
    Sent. Node Positive or Negative:
    Axillary Dissection: yes
    How many nodes were removed: 28
    Positive Lymph Node/s: yes
    If yes, how many were positive: 1
    Reconstruction:
    If yes, what type:
    Chemo: yes
    Radiation: yes
    Tamoxifen: yes
    AI, Arimidex, etc.: no
    Herceptin: no
    How was your bc discovered: Self
    Did bc show up on Mammo?: Maybe
    Did bc show up on breast MRI?: Did bc show up on an US?: yes, although was told "looked benign"
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status:
    Tumor Markers?: No

    As you can see, in England we arent told a deal, and i have no desire to see my notes.

    To add to the list
    Haematoma Yes
    Seranoma Yes
    Abcess Yes
    Haemmorrage Yes
    Infections Yes x7!!
    Oophrectomy Yes
    I do feel tho that this doesnt sum me up, this was just a period of my life, now i am back to me again
    Debbie
  • Graycie
    Graycie Member Posts: 839
    edited December 2006

    So far we are all left except for Amy.....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Name: Terynsmom (Kelly)
    Age at DX: 42
    Date of DX: July 20, 2005
    Which breast: right
    Type of Biopsy for DX: Needle Core
    Type of BC: IDC
    Size of invasive tumor/s: 1.7
    Size of in-situ tumor:
    Stage: 1
    Grade: 2-3
    ER: positive
    PR: don't know
    Her2neu: +++ (highly amplified)
    ki-67:
    Mastectomy or Lumpectomy: Mast.
    When: August 2005
    If Mastectomy, single or double: single
    Clean Margins?: yes
    Prophylactic Mastectomy: no
    SN Biopsy: yes
    Sent. Node Positive or Negative: negative
    Axillary Dissection: no
    How many nodes were removed: none
    Positive Lymph Node/s:
    If yes, how many were positive:
    Reconstruction: yes
    If yes, what type: expander with implant (not done the swap yet)
    Chemo: yes dose dense AC/T
    Radiation: no
    Tamoxifen: yes
    AI, Arimidex, etc.: yes
    Herceptin: yes (still 5 more to go!)
    How was your bc discovered: BSE
    Did bc show up on Mammo?: yes
    Did bc show up on breast MRI?:
    Did bc show up on an US?: yes
    # of B9 biopsies prior to DX: none
    BRCA 1&2 status: don't know
    Lymphedema: no
    Tumor Markers?: no (though I heard that having her2 is a tumor marker??)

    No family history of bc. Was quite shocked to find the lump but knew what it was not good! Did not show up real clear on the mammo and later doctor could not find lump. They said it was a miracle I had found it. Had an oopherectomy so I could extremely lower my chances of getting bc in the other breast and able to start an AI. Was on Herceptin and had to stop midstream due to poor MUGAs but restarted after 3 months of rest. Went thru a bunch of personal/custody issues with the ex during all this!! Single mom, working full time ... enjoying my 5 year old with every ounce of joy to be found!! Cancer is what we had not who we are. Teryn and I are not just surviving, we are thriving!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    It's strange mine was in the right breast. I had mastitis when I nursed in THAT traitor. I also had a bad perspiration in that THAT underarm. Since the mastectomy, I no longer perspire under my arms and I didn't have any nodes removed. I no longer use antiperspirant, just natural deodorant.

    Isn't that strange? I even went to the dr about the perspiration problem since that one side was ruining my clothes!!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Here is a page that gives a list of tumor markers.
    Tumor markers
  • TracySeattle
    TracySeattle Member Posts: 690
    edited December 2006
    Hi Everyone!

    I will complete the form later when I have time, but I am a "lefty" too!

    I got home from Houston on Sunday with very little sleep on Saturday night. I only got to see one of my friends on Saturday, so we used all the time together that we could! I am paying for it now as I am SO TIRED and I also think I am getting sick--I started pumping in the Airborne this morning.....

    Dave and I were SO HAPPY to see each other! I think a week apart really reinforced that what we have is good and for real..... ***sigh***

    Kelly - I am so glad that you are happy too--it seems that Dave is the name of the month, doesn't it? LOL!!!

    Laura - Dave & I watched the DVD last night. It is beautiful!!! Thanks so much! I brought it to work today and I plan to show it to all of my friends here....

    I don't have time to respond to each of you except to say that each and every one of you are very special and dear to me. Thank you so much for being there, I love our little group of friends!

    Jill, Brenda, Paula, Linny, Michele - I owe all of you a CD.... Is there anyone else whom I overlooked? It was by no means intentional at all - chemo brain and being too busy are my excuses! I will get more CDs made as soon as I can!

    Love you all - Have a great day!
  • debbie444
    debbie444 Member Posts: 847
    edited December 2006
    Booked Sam in for a haircut next Tues to try and even him out a bit , bless him! Its harder to get in withhis hairdresser than it is with mine. Guess he will have to look like a shorn lamb for a while to try and lose the join between short and long.
    Here he is today, being still because he is being bribed with a chocolate digestive!
    image
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2006
    Tracy -
    Welcome back!

    debbie -
    Sam is just the cutest little thing!

    Victoria -
    I agree...tiny tumors w/node involvement and then large tumors w/no node involvement. How can this be?

    Kelly -
    The perspiration problem on your bc side - could that have been due to er+? Just wondering...it's strange though...

    EVERYONE -
    Even in the other forums and threads, it seems there's an overwhelming amount of more left side bc than right. I wonder why! Hmmmmmmmmmmmmm...I can't believe how quickly you have all responded to the bc stats form! Truly an incredible and determined bunch of gals! FYI - you may be doing this but just in case...I am copying and pasting the posts with the stats into a word processing program. Then printing them out from there. It's working really well, although I increased the type size to 14 pt. because now that I'm "middle-aged" (clearing the throat)...my reading eyesight is not that sharp! Wahhhhhhhhhhhhhhhhhhh....LOL
    Laura
  • RoseMarie
    RoseMarie Member Posts: 502
    edited December 2006
    I wonder about the left side also. I was going to say maybe had something to do with driving and the sun coming in on the left side of the car but I realized that Debbie also had it on the left side....hmmmm is right...
    Tracy, so glad you had a good time with your friends!! And so glad to hear about Dave as well!!
    Debbie - Sam looks great!! Yea! He is almost cute enough to make me want a dog...almost...
    Laura - thank you for putting all of this together! I know you're a busy lady!!
    Kelly - how unusual about the perspiration problem - makes you really wonder!!
    Ravdeb - you're so kind and thoughtful!! Your friends are so blessed to have you!!!
    Ok, better go...good news - the kids just have a virus, no strep!
  • marymelodi
    marymelodi Member Posts: 515
    edited December 2006
    Can't do the survey right now. I'm a right side. BUT, I am left-handed. Amy are you left-handed? Might there be any link between hand dominence and the side of your breast cancer? I say this because I have been surprised at some other links with handedness and different traits and conditions.

    I'll be back later.
    Mary

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