MyMiracle13

Hello everyone. Just a short post to say I am still around. I believe my last post was in September last year which was the first anniversary of my WBR. Fast forward to February and I am happy to say that my latest MRI done a couple of days ago showed no progression and no new lesions. The enhancement on the right side of…

Mara and Illimae, you two are my inspiration. Shoofoo as well. There are others here too but I can’t remember all their names. It took me 3 months to recover but it turned out well in the end. Mara, I had a very tiny enhancement in the right pons of the brain in my last MRI and we thought it might have grown but my latest…

I just want to say hello to everyone and to let you know I’m still around. I haven’t been very active here since I had my WBRT last year. Well, it is my 1 year anniversary and I just had my MRI results. Still all good, stable and no new lesions. I am sharing this news to give hope to those who recently had WBRT and not to…

Hi. I finished my WBR in September. I remember that my radiation oncologist warned me about possible changes in character after WBR. She said some peopleturn aggressive or angry, may lose cognitive function and she told me to warn my family that it may happen. Thankfully nothing of the sort happened but I am glad that she…

I’m so sorry to hear of your mom’s demise. I’ve been praying for both of you. Thanks for sharing her name with us. Now I can pray for the eternal repose of her soul. May your family find comfort in the knowledge that Marie is now in the arms of the Lord and she is beyond pain and suffering.

Hello. I had 10 sessions of WBRT back in August and the side effects I went through were lack of appetite, loss of muscle mass, weight loss and extreme fatigue. Your mom must be going through these as well so please try and understand her. No amount of encouragement will get her to eat. I wanted to eat but just couldn’t. I…

hi. I finished WBRT on September 4. Experienced fatigue, loss of appetite and loss of muscle mass. I also lost weight. I drank Ensure Gold with HMB twice daily plus Supportan at mealtimes as I couldn’t eat proper food. Now I am eating much better and have gained weight. I still suffer from fatigue some days but tolerable.…

Hello everyone. Just posting an update on my WBRT sessions. I have finished 5 sessions and still have 5 to go. It has not been plain sailing. After 5 sessions, I feel more tired, no appetite and less energy. I can’t walk as far as I used to. I hope I get through the next 5 sessions with less difficulty. My radiation…

Thank you very much for the warm welcome and especially for the good news that you are doing great and are feeling great. It gives me so much hope that I may have many more years than what Dr. Google predicts. I’m just waiting for the schedule of when my WBRT sessions will start then I will let you know how I am getting on.

Hello. I was recently diagnosed with multiple brain Mets and will be having WBRT soon followed by SRS on the larger lesions after a month. I'm terrified but glad that I found you ladies. I'm hoping the radiation works for me. I also have lung and bone Mets. Any suggestions or experiences you can share are most welcome.

wow Lynn, I’m so happy for you. NED after 16 months! Are you going to be off these meds then?

Thanks Lynn. In your case, how did you know that Faslodex was working? How many months before your tumor markers started to come down? What about the other Faslodex users, can you share your experiences please?

Hello everyone. I’ve read in some older posts about “having a flare” while on Faslodex. Can anyone tell me what this “flare” is and when it happens? I will be getting my 3rd loading dose of Faslodex on Monday and due for a blood test with tumor markers in July before my monthly shots.

Hello. I am glad I found this site. I too have mediastinal and hilarious nodes mets. My problem now is that I have vocal chord paralysis which may be due to the tumor pressing on a nerve. Anyone here ever experience this?

Thank you Lynne and Lyn for your replies. I hope I can stay on Faslodex and Ibrance for a long time too.

Hello. I just had my 2nd loading dose of Faslodex and all is well. I will be starting on Ibrance soon and would like to ask those who have been on Ibrance for some time, how often do you have blood tests?

Hello JoynerL. I had my first dose of Faslodex 2 days ago and it went well. No side effects so far. Hope it works well for me for a very long time.

Thanks for the reply Jaylea. How often do you have blood tests to monitor your WBC counts when on Ibrance?

Hello All, I am a newbie with mets to lungs and interlobular and hilar lymph nodes. I will be starting treatment withFaslodex on Monday and Ibrance too in July. I am so happy to hear that Tina has been on Faslodex since 2011! Thanks for giving us hope. It means a lot.

Thanks very much for all the advice. I certainly need them. And thanks too for giving me the link to the other site (Ibrance.). It really is great to hear you are on your 16th cycle. Gives me hope

JoynerL, it’s me again. Do you take Claritin each time you get the Faslodex shots or was that only during the first injection? Sorry, I haven’t had time time to browse the early posts on this thread

Thank you JoynerL for the advice and good wishes. I will do that.I will also be starting on Ibrance in July. Any advice you have on that will be much appreciated too.

Hi. I am having my first Faslodex shots on Monday. Is it advisable to take antihistamine on the day of the shots? Or should I wait and see if I have rashes or experience itchiness before taking antihistamine. Any other tips from long timers on Faslodex will be much appreciated. Thanks!

Hi. 2012 Stage 2B 2018 Stage 4 Just about to start treatment with Fulvestrant/Ibrance. Hope it works for me as there is so much hype about this new treatment (Ibrance

Hi. 2012 Stage IIB 2018 Stage I

Hello. I am a newbie here and will just start with the Ibrance/Faslodex combo. I will be starting the Palbociclib first then follow it up with the Faslodex after 2 weeks. Hope the SEs won't be too bad for me as I am going on a pilgrimage to Europe mid June