Starting Chemo May 2008
Comments
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Oh, Linda, don't worry that what happened to me will happen to you! You know that each of us responds to this stuff differently. My "foot" problem is weird--the "hand-foot syndrome" usually affects the hands first and more severely, but I haven't had any hand problems at all. I think maybe my reaction is just because of the extreme sensitivity of my skin to any type of irritant.
My feet are sore again this cycle (#4), but not as bad as last cycle. This time I have a red, sunburned-looking strip along the medial side of each foot, right at the edge of my arch. I don't have the big red patches on my heels this time. Both times, the redness appeared around day 9 or so and lasted maybe a week. I don't think it would keep me from long walks this time, but running might be awkward. That's just me, though.
Interesting thing your onco said about Taxotere vs. Taxol. That makes me feel even more comfortable with my decision to go with Taxotere/Cytoxan rather than AC. I didn't know oncos were leaning toward Taxotere (vs. Taxol) for ER+ tumors. My onco did tell me that Taxotere wasn't given weekly because of the severity of some of the SE's. It is given every 2 wks, though--there are several women on the Taxotere/Cytoxan thread who are getting TC on a "dose dense" (biweekly) schedule.
otter
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Otter, I am sorry to hear about stuff with your mom. I kind of feel the same way, but I think sometimes people will say stuff because they really want it to work out well for you and so if they say oh it will be fine, it will be. Not that it makes you feel any better. My MIL said to me last weekend, oh my brother said your hair isn't that short. Seriously about 2 inches long and it used to go to past my shoulders. It was odd...and why tell me. Other people said well you're haircut will be so cool for the summer. Sure it will be cool for another 3 or 4 days until all of my hair falls out! Whatever.
I did tx 2 on Wednesday and it was okay. A little more nauseous and severely bloated....I guess all the saline. Don't really know. However better in that I knew what I was getting you know? I knew I would be a little buzzy and fuzzy which was so much better than not knowing.
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otter - I get the mom thing, too. Mine is about 5 minutes away and sometimes that's great (like when I want the 4 y.o. to spend the night with her!) and sometimes not (like when she wants to come over on a Sunday afternoon and "hovers").
One of my friends said to me "Not only will you have your own emotional life about this, but you will have everyone else's, too." And she's really so right (sometimes it's good to have a bunch of psychologists as friends...lol). Last week, dh had a meltdown. Right before everyone came for the birthday party. We got over it. Hopefully, your mom will "get it" that at least it's not your choice not to go.
Rock - Still gathering data. Are you back from DC now?
Oh, boy, I didn't write stuff down and now I'm on another page. If I go back, I'll lose what I just wrote. Crap. I know there were other things I wanted to respond to, but it'll have to wait. I think I might be running a slight fever again. If it's still there in the morning, I will call the office. They are open for shots on Saturday mornings, so at least I could get one of the RNs if I need to.
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Neulasta shot finally kicked in....aching bones tonight....Tylenol to help. Going to sleep. I will check in with you all tomorrow...
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Everyone is invited to TEXAS today for lunch- we are cooking out and I baked a chocolate cake for my oldest daughters birthday. I also made a homemade blackberry cobbler with berries my sister gave me.
I know its not the islands but at least it is an outing for us!!!!!! Everyone is invited, bring your families!
Happy Saturday!
Kristy
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Women,
I am doing dense dose AC for four cycles then supposed to be switching to taxol and herceptin for my her2neuPOS ER POS...I will ask my oncologist what he says about taxotere vs. taxol as I, too, am curious. So glad you brought it up ... I am supposed to do dense dose taxol and herceptin for four more doses then go 40 more weeks of heceptin...he is out of town for my next chemo scheduled for the 19th ...my third A/C one day after Jeano, but I guess I am getting ahead of myself. First, I need to get through these first four doses. Finally got the sore bones from the second neulastsa shot last night. Dang. Tylenol is my friend. I have mom stories that would crack you all up. My mom told me if I died of cancer, she would kill herself. I am serious.
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I'd love to be there, Kristy, but I won't be able to make it.
Crap. (Sorry.)
I am already running a fever today and will probably have to make "the call". When I got up at 7:30 this morning, my temp was 98.9, which is a degree higher than my "normal" morning temp. Of course, there's nothing normal about chemo, so I figured with all the skin blotches and achiness and my red, sore feet, it's understandable that I have stuff (not bacteria, mind you--but "stuff", like prostaglandins and all that) floating around that would cause my temp to go up.
By 10 a.m., my temp was up to 99.9, and over the next half hour it went up to 100.1. So there's not much farther to go before it reaches that magic number of 100.4.
Of course, this is all complicated. First, my dh left home a couple of hours ago (when we assumed I would be fine) for a road trip to multiple locations in a city that's a 75-minute drive from here. He'd planned to be gone all day, but left instructions that I should call his cell if something came up. Second, it's Saturday; so of course my onco's office is closed, and I'll have to call the on-call fellow at the university hospital. Third, and worst of all, the university hospital is a 2-hour drive from here. Each way. Crap.
Oh, and I'd LOVE to take an Advil, which would make my fever go down instantly and would make me feel much, much better... but I can't, until my temp reaches that magic number and someone paid much more than I ever was is called upon to advise me what to do.
Oh, and the bottom line will be this: I had a Neulasta shot this cycle as usual, so even though this is day 11 and within my supposed wbc "nadir" (days 10-14 according to my onco), my wbc should be shooting back up pretty quickly anyway. And, except for my usual seasonal sinus congestion/drainage/cough, I don't have any other signs of a possible infection. So what will they do, besides put me on an oral antibiotic, since I'm in the "low-risk" category?
Grrrrr.....
otter
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otter - I'm so sorry. I hate having a fever, but I was never told not to treat mine. Why don't they let you take anything until it gets to the "magic number"? Especially if you are already getting the Neulasta? I don't get it...but I really hope you don't have make a four hour trip. If their just going put you on an antibiotic (like they did last time), can't they just call it in to your pharmacy? Feel better, friend.
Eddie - I'm with you on the bone pain - except ibuprofen is my friend of choice (Tylenol doensn't do crap for me). I tried Alleve the other night and only took 2 (like it says) but not only did it NOT work any better for the pain, it also made my heart race and my whole body pulsated with my heart beat. Not fun. Anyone need a barely used bottle of Alleve?!
Kristy - Sounds like fun!! And chocolate cake...I'm there!
Have a great time! -
O.K. ladies...this is it - the very last call for anyone on deck for next week and if you are up the week after, I'll take that info, too. This is what I have so far for next week. I'll forward the final list to Rock Sunday afternoon. So far, I don't have anyone scheduled for this coming Monday.
Monday - ???
Tuesday - SharonF (#3); Angels (?); Jean (#3)
Wednesday - Rock (#4); Adrienne (#4); Karin (#2); Gracie713 (#2)
Thursday - Eddie (#3); Cristine (#2); Kristy (Herceptin); Linda (Tax#1)
Friday - mominaz (#2)
Please let me know if I have missed anyone or have any wrong info.
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Otter, so sorry about the fever. You're probably on the road by now, getting it checked out - if so, good luck, and I hope it's nothing and resolves quickly.
On the hand-foot syndrome thing . . . I know that I may not get it (one of the first things the chemo nurse told me when I went in for my first treatment was, "forget about anyone else's experience with chemo"). I guess I was just musing out loud (make that, on screen) about where it would rank in my personal hierarchy of bad SEs. Believe it or not, if I had to choose between keeping my hair and being able to run, I'd sacrifice the hair. That's how much running has come to mean to me.
(Keeping my taste buds ranks up there, too. Hmmm . . . hair, taste buds? Hair, taste buds? If Kristy still has any blackberry cobbler left, I just might have to opt for the taste buds!)
I'd be interested in what others know (or learn) about the Taxotere vs. Taxol choice for ER+ cancers. I should be clear that my onc acknowledged it's one of those areas where different doctors have developed different preferences; whatever differences in effectiveness show up in the research don't make a definitive case.
It's also interesting that some women are doing TC dose dense - I wonder if the doses are different when Taxotere is given in combination with cytoxan vs. sequentially? If the dose is higher when it's delivered sequentially, that may explain why going dose dense isn't an option.
Eddie, we await more mom stories!
Linda
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Oh, boy. It's amazing how much better a person can feel after a couple of phone calls and a piece of birthday cake.
I called the on-call onco about my fever, and he talked to me for a long time. He said almost certainly my wbc is down right now, but most likely it will bounce back up fairly quickly. He pointed out that Neulasta works, but not perfectly.
After determining that I don't feel good but I'm not really sick (just this sinus/congestion/mild cough thing), he explained that what he usually does for someone with my symptoms and on my treatment regimen is prescribe an oral antibiotic--his preference is for Levaquin. He said for fun and curiosity, it might be interesting to go somewhere to get my wbc checked right now. But, that's not really feasible on a Saturday afternoon with no local doc involved. And he noted that unless my wbc has really tanked (which he didn't think was the case), the numbers wouldn't change the treatment strategy anyway.
So my dh is picking up my prescription in a couple of hours, on his way home. I had to promise the doc that I would call tomorrow if I was not feeling better; and that would probably necessitate a trip to the university hospital.
Cristine, my understanding of the fever thing is that a fever is often the only evidence that someone on chemo has a dangerously low wbc and is at risk of--or has already contracted--a bacterial infection. My cancer center does not check wbc's mid-cycle on patients getting Neulasta. They just assume everything is OK unless that temp hits the magic number. The wbc is checked just prior to the next chemo tx (same day), since if it's down then, the treatment will have to be delayed or changed.
I don't know how often the low wbc actually leads to serious infection and hospitalization in those of us on Neulasta or Neupogen, but it does happen. So, even though we could suppress the fever and make ourselves feel better by taking an NSAID, that would do nothing to restore the wbc or prevent or treat the bacterial infection. By masking the fever, we would just be hiding the problem, until we got really sick.
Probably the fever would not be so important for those of you who have your wbc checked at mid-cycle. Even if they checked mine at day 7 or 8, I think it would be down (again?) by day 10 or 11 based on this pattern I have.
OK, now I'm going to take an Advil, and have another piece of that birthday cake.
otter
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my whoa is me for the day.......
thursday was supposed to have been #2 a/c for me. They tried to access the port 4 times with no luck. By the end of all of this I was begging the to let me come back on friday and just take an IV, it was horrible. They think that my port has turned upside down and I may have to have surgery to get it fixed. *sob* I think at this point I would deal with having an iv each time instead. It was hurting so flippin bad and I am all bruised up again because of it. I did get to go back the next morning and just get the iv instead, which was a walk in a park compared.
I have a doc appt on monday to see what the heck is up with the port. The nurses said it shouldn't be hurting nearly this bad. I swear it felt like they had a dull pencil trying to jab it thru.
Then to top things off the hair is coming out. I had it shaved down with a #2 at the shop. Sat in the car and bawled with my gf about it. She then took me out for icecream afterwards. Nothing like chocolate to make you feel better. Hubs saw me afterwards and said it wasn't so bad. At least I don't have a lumpy head.
Otherwise feeling ok today just a tad tired. They had to switch out my nausea meds and the new ones seem to be doing the trick.
Next round...... 26th. I may request to just have it done iv from now on.... only 6x left.
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Oh, Sable, all I can say is - that really sucks. (I know that's another whole thread, but it's certainly appropriate here.) Ports are supposed to make treatments easier, for crying out loud. Not harder. I'm so sorry.
Otter, glad things are under control without a long drive to your hospital.
Ready for a bald report? I decided to make today an all-bald day: went to the farmers' market bald, went to my regular grocery store bald, went to the drugstore bald, went clothes-shopping bald. It's warm here, and as much as I like my various head coverings (I've been experimenting with ethnic identities, from my everyday "rock the shtetl" look to a more elaborate head wrap that, I was told, made me look like an African queen . . . a very pale African queen, LOL, since I'm pretty darn white), I just decided today was a good day to go without.
And it was fine. Interesting, though. I wound up in a number of conversations that I otherwise wouldn't have. The Canadian guy I bought my tomatos from was especially nice. The egg guy asked me if I was going through chemo, then told me about his son, who died of Ewing's sarcoma at 14, which made both of us tear up. A woman stopped me as I was coming out of the grocery store to say that she went through chemo for breast cancer last year, is doing great now, and is organizing a group for "young survivors" that I might be interested in. (She looked to be in her mid-30s at the oldest, so I was flattered that she considered me "young"!)
Being publicly bald, it seems, is taken by others as an invitation to talk about cancer. Today, I was fine with that. There are also days when I wouldn't be.
The biggest cheerleader for public baldness is my daughter. (Kind of ironic, since hair seems to be her #1 interest these days - she'll spend hours straightening it, curling it, arranging it, washing it, rubbing and spraying it with various potions, etc. etc.) She keeps telling me I look good bald, and should go out that way. This, from a kid who still shakes her head sadly at my taste in clothes!
Linda
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Ok, I have 2 mom stories. I've already said she can be strange. Back in the 70s, my grandmother was in the hospital. The doctor wanted her to have surgery, but because she was 86 at the time, didn't push it. She, the spunky lady she was, was all for it. None of her 6 daughters were. She pulled rank. As she went in for surgery, my mother told her, if you die in surgery, I'm going to kill you. My question, can you die twice?
My father is 91 years old and should definately not be driving. My mother agrees, and says she won't ride with him if he does. We convince him to voluntarily give it up. Dad, I love driving you around. You always treat me to lunch. As soon as he says yes, mother states that it won't hurt to drive to the hardware store. And he says he's losing it.
If I may continue complaining about family for a bit more. My sd lives in CA. Since January, she said she was coming to visit. After my dx, we asked that she not come when I had surgery, or for the following week. She said ok, but if there was anything she could do, to let her know and if I needed her to come and entertain her dad (he is so protective), to let her know. We asked if she would come and go on a jeep trip we had signed up for before dx. The weather we turning cold and I was going to start chemo the next and didn't want anything to get in the way and I was still sore from the surgery. We would pay for ticket over. She couldn't. She thought she was going to Catalina to visit a friend. Understand, that she goes to Catalina at least 2-3 times a month. But she still wanted to visit. We asked that she not come when I had a tx and for the following week, since I generally felt crappy then. I sent her all of the dates. She called this week and wants to come the 24-27. My next tx is the 25th. DH said he would tell her no. I told him not to. She's not using me as her excuse, but they were on there own. A friend volunteered to gowith me to chemo. So, the princess will be her at 9:20,whoops, wait, make that 10:45 ( apparently she can't read the itinerary). We got that information after I changed her dad's appointment with the neurologist and we won't be able to get in for another month. By the way, she's not a child, she's 31.
On the other hand, my ds dumped his slut puppy of a girlfriend. So in any one has a dd available, he's a good catch - has a good job with a great future, definately isn't afraid of work, owns his how house and is 26. The sweetie even came by to today, looked at me and told me I was growing hair, it almost touched my ears, and it wasn't gray.
Sorry for the complaining, but I really try not to say negative things around her about the princess.
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Christine: Could you please move me from the Tuesday group to the Wednesday group? I am getting tx on Wednesdays. Thanks.
Linda: I am also ER+/PR+, HER2-, and I am scheduled for Taxol once I complete my A/C tx. I will see my onc on Wednesday and inquire. I laughed about your choice of running (and food) over hair, I would have made the same choice for both as well. Ran bald today and it felt great.
Sable: I cannot even imagine a port turning, this is hard enough without that happening, sorry to hear that news.
Otter: Glad to hear your feeling better, I gasped when I read about your situation. Thanks for the note on the fever, I was told nothing and would have reached for the tylenol.
Out to kayak. Jean
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Sooooo -- You guys can ignore this (tho info & corrections are always appreciated!) I'm not done but wanted to write this down before I forgot...
Oh heck. It's just too much. (How in the heck do you do this, Cris?! And Otter, I am putting a hat on just so I can take it off to you guys...)
Monday - ???
Tuesday - SharonF (#3); Angels (FEC?)
Wednesday - Rock (dd A/C #4); Adrienne (dd #4); Karin (#2); Gracie713 (#2) Jean (#3)
Thursday - Eddie (#3); Cristine (#2); Kristy (Herceptin); Linda (Tax#1)
Friday - mominaz (#2)
Tomato: W. 4/23 TCH every 3 weeks
Christi. F. 4/25. 4 AC every two weeks; Taxotere for 12 straight weeks.KristyAnn: Th. 4/25. TCH- 6 chemo treatments (TC) every 3 weeks and Herceptin on the in between weeks; then Herceptin every 3 weeks to the 1 year mark.
Robin: Th. 5/1. 4 cycles T/C every 3 weeks
EyesOTex: F. 5/2.
Eak2863: M. 5/5. 4 AC treatments every 2 weeks followed by 12 weeks of Taxol.
Adrienne: W. 5/7 4 tx of AC then 4 of Taxol.
Rock: W. 5/7; 4 tx of AC fthen 4 of Taxol.
Angels: Th. 5/8. 3 treatments of FEC at 3 week intervals and 3/3week treatments of Docetaxel (Taxotere)
Carla: Th. 5/8.
Kat: Th. 5/8. FEC
Roxi: Tu. 5/13. AC.
Cstock: W. 5/14
Diane: Th. 5/15 4 AC, then 4 T.
Collector: M. 5/19. 4 rounds of T/C
Tina/gogators: Th. 5/22. 6 of TAC
Karen: F. 5/27. TC.
Danismom: F. 5/27.
Sue: F. Cisplatin and Gemzar, 1 dose every 8 days or every 12 days for about 16 weeks
Cris: Th. 5/29?? 4 C/C every 3 weeks; 4 Ts for three weeks?
Gracie: 6 FECs every 3 weeks, followed by Taxotere x4 every 3 weeks
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Christine,
You have me right for next week (June 19th)- Herceptin only
For June 26. I get full enchilada chemo- TCH Number 4
Rock,
I actually started chemo April 25= TCH every 3 weeks and herceptin only on in between weeks
Cobbler is GONE, still have cake!
Kristy
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Today is the hair loss day! Was taking a shower this morning, getting ready to go to DH's family reunion--what great timing! So, we went outside and he buzzed what is remaining. Would have went bald, but since we were going to be out all day, decided on a bandana. Grandkids wanted to know where my "crazy hair" (wig) was--too hot for that!
At least I had an appetite and got to enjoy all the good food! May have gained back some of the weight that I lost the last couple of weeks.
Rock--my treatments are FEC x6 every 3 weeks, followed by Taxotere x4 every 3 weeks. (If all goes according to plan-I'll finish Dec. 3.)
Don't know how I could get through this without you all!!
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Rock - I'll be 4 X Taxol (DD) just as you. YAY for our halfway point this week!
Tonight was my youngest daughters graduation from high school. The whole reason I even purchased a wig was for this event...bought it before I started chemo. I tried it on for the first time today and hated it. So just went with a nice hat. So it will go to the American Cancer society as a donation.
~Adrienne
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Adrienne,
Congrats on your daughter's graduation....and the sun shined.
Sable,
I encourage you to get the port checked out asap. You should not have to be in pain and I am worried about you.
Mom stories coming soon, I promise...Jewish mother stories who are just like other mothers only they make one feel more guilty...sometimes. You all have some good ones. My heart goes out to you, Otter. Aaaargh! Fever sucks. the rest of you....can we all make a pledge to remember to breathe deep tomorrow and to remember that father's day is a merchant's day and that all of the dh and dads blah, blah, blah will manage fine and be happier if we just take time to rest? Sleep well dear women and may all SE take a long hike somewhere we are not tomorrow? Talk to you soon. I am thinking we all deserve some nice dreams.
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Jean -- Kayak? My temperature just dropped 10 degrees...
Do you get the sense that we now understand why ACS has all these wigs to share??!!
I'm back from DC. I'm traveling with my own pack of dwarves (some of them "lesser" dwarves):
Happy (it was a great trip), Sleepy (I'm tired!), Sneezy (everybody on the train had a cold), Busy (There's a lot to be done if I'm moving out of the US in Jan), Anxious (BRCA results tomorrow)...
It's so nice to be back among you. While it was good to take a cancer break, I did miss you guys.
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Holy Cow my scalp hurts!!!!! I finally cut it off yesterday. It is at about an inch and a half. I chickened out on shaving it. Now I have to do something with it but it really hurts to touch. I did not see this one coming. I am trying to put the picture up as my avatar. I have never had short hair so this is going to be so funny trying to figure out what to do with it until the rest falls out. I love my hairdresser. I found her when I decided to cut it the first time before my surgery. She had a brain tumor so I guess we kinda bonded from that moment. How many other stylist would not be offended if you said "I brought a hat in case I can't handle it?" Nope she says "We were going to give you one if you needed it." The salon is connected to a boutique and the owners brother is an officer with the same dept as my hubby. I learned all this after starting to go there. Of all the places to pick....
Moving where? When did I miss this?
Oh, and I am calling my mother today...so I am sure I will have some venting later today!
Have a great day!!!!
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Hey all,
When I feel up to it, you will all get my Polish mom stories, very Jewish even tho she's Catholic.
Okay, recovering from tx#2, a little more nausea, but tolerable. Yesterday the hair started coming out in clumps....I think I'll shave tomorrow...I decided to go grocery shopping, mostly because I needed out and I wanted to drive somewhere!!!lol....that turned out to be a very tiring outing and I paid for it by crashing on the couch,BUT, I had 4 lovely ripe melons waiting for me on the counter. had I sent someone else to the store (sorry honey) he would have not bothered to ask the guy to pick them out and I would have had to await a couple of days for my melon fix.
While you are all talking about cake, I am sitting here with my bowl of steel cut oats and fruit, fantasizing that it morphs into banana cake..........randie
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otter - Thanks for the info/update on the fever issue. I figured it was something like that. But I'm glad it was resolved without you needing to drive 4 hours!
Sable - A port turning? Owie!! I hope they make it right somehow.
Linda - You go, girl!! I may be in the bald bald group (I'm expecting it to really start going after this next tx), especially when it hits over 100 degrees this summer.
Rock - Glad you're back, even with dwarves! By the way, kudos to you for going back and getting everyone's "start date"! I don't do that - it's enough just to get it right for the coming week! (And you do have mine correct.) So...what's scoop about moving out of the US?!
Jean - It looks like Rock made the correction in her list, but I did fix it in my little post-it notes I've been keeping. And kayaking...wow. I'm grateful I can walk across the street to Walgreens when I need to.
Lee - Young children who are difficult are challenging enough (and at least understandable), but grown adults? "Helllloooo! Please join the rest of us in the real world..."
Adrienne - Congrats to you dd!!
Gracie - Sorry about the timing of the hair, but at least you could eat!
Eddie - Did your bone pain get any better? The Claritin has really helped me in the past 2 days. But someone said it has to be regular Claritin (not Claritin D) and they were right. I take Claritin D anyway, so thought I could squeak by - NOPE! I think it's because the regular Claritin has twice as much medicine. Hope your Tylenol worked!
More mother stories...can't wait! I may some of my own after dinner...
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I know that there are probably those who see me type the word "hair" and wince ("there she goes again!") but! I simply want to extend my support to those of you who are in the throes of "hairfall" or "hairshed" or whatever you want to call it.
Randie, I take it as a most excellent sign that even tho your hair is coming out, you can still imagine the truly delightful things in life . . . . like banana cake.
I am someone who has never spent more than $4.95 on a "beauty product" in my life (slight exaggeration) until the last month or so. But I do recommend buying a facial toner-type product in a spray/mist bottle for use on the bald head. It feels great especially on hot days! (I use Aveda's facial toner for sensitive skin.) And my scalp looks pretty healthy.
Smooches.
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(Rock - [how do you type in whispering?] O.K., I won't tell anyone. But...woo-hoo for you!! What an awesome accomplishment!)
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Rock: Congrats to you, that is an amazing accomplishment! Welcome back as well.
Last night was a beautiful Minnesota evening and I spent an hour kayaking around the lake that I live near. Although it takes very little effort to paddle, I found it to be a great way to work my (still sore) arm that I had all the lymph nodes removed from. It was incredibly peaceful on the water. . . needless to say, I slept well.
I cannot thank you all enough for sharing the cake stories. When I went in for tx #1, the nurse indicated that sweets would not taste good during treatment. Seriously, for nearly a month I have not eaten a single sweet item because of that. After reading about all of the cake offered up, I tried some, then indulged.
Jean -
Jeano,
I seriously believe that it is our body telling us to avoid because it is not good for us. Had my 1st treatment T/C on 5/28. Foods that were good for me tasted pretty good, slight variation from non chemo but still able to enjoy and didn't have to force down. Anything not good for the body tasted like crap. My Birthday cake included, lol.
Right now I am on an upswing berfore Wednesday treatment #2 and everything tastes good. Pigged out at staff end of year party. Let the good stuff go and gravitated towards brownies, eclairs, etc. Wounder how many pounds I added? lol
Enjoy the day, Karin
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I've got another item for the dessert buffet: how about some strawberry-rhubarb tarts? I just took them out of the oven, with the filling bubbling over the sides. Mmmmm. Come and get 'em.
Jean, kayaking sounds so great! My kayak is sitting in my garage, while the storage rack I pay for at our local park is sitting empty. Loading the kayak onto my roof rack and transporting it to the park was supposed to be this weekend's "must do" errand, but between my daughter's social life (I need her help with the lifting) and the thunderstorms that keep moving over our area, it didn't get done. Oh well.
My last neupogen shot (for this round) is tonight. It will be SO NICE not to have to inject myself for 4 whole days.
Linda
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Linda, set aside some of those strawberry-rhubarb tarts for me. That would be just the right combination of sweet-tart to cut through the yuck in my mouth. I found that, except for those days when my mouth and tongue were really tender, I enjoyed not-from-concentrate lemonade and limeade. I could taste them, and they were wonderful.
I second the motion about "good" foods vs. "bad" foods. Once I figured out how to control the chemo-induced indigestion and could eat real food, I had serious cravings for vegetables. Mostly that was in the form of frozen mixed veggies, but also boiled carrots, nuked sweet potato, winter squash, etc. I also can't tolerate anything fried, which has really modified our cooking style.
Lately, my dh will cook a full meal, and I'll eat only the meat (generally grilled fish or pork) plus the veggies. That means I'm skipping the baked potato, the dinner roll, etc. Even now, starchy things just don't have the attraction they once did.
Except for sweets. This banana nut cake is almost gone, folks. It's especially good with a small scoop of vanilla ice cream. And I've had absolute cravings for glazed donuts, but none are available at present. I can fix that, as soon as I can get some shoes on these poor, sore feet.
otter
[Pssst: Rock, that ROCKS! Oops. Sorry--that wasn't my inside voice.]
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- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team