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  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2008

    Sue, maybe it's best to do as Tender and Geebung say -- call an ambulance or taxi, and get to hospital.  I think at ages 13 and 11 your boys will be okay at home.  I don't like the dizziness.

    take care,

    Ann

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  • geebung
    geebung Member Posts: 1,851
    edited February 2008

    Ann is right Sue but I do understand your not wanting to leave David and Daniel - most mothers would be the same. Ok - so long as you go first thing in the morning. You really need to do this! We will nag you incessently if you don't stay in hospital until you get your s/es sorted out.

    Much love to you dear Sue

    gb xxx 

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008

    Goodness, isn't Sue up this way, I wonder if she and her boys felt this.





    updated 15 minutes ago

    MANCHESTER, England - An earthquake struck Britain early Wednesday and was felt across large parts of the country. No injuries or damage were immediately reported.



    The 4.7-magnitude quake struck at about 1 a.m. and was centered about 125 miles north of London, according to the U.S. Geological Survey.



    Tender

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  • Wren
    Wren Member Posts: 324
    edited February 2008

    Sue, please go in to the hospital soon...  Let your boys post here to us to let us know how you are doing.

    I'm keeping you in my prayers!

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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    OH MY GOD TENDER I DID I DID ....GOOD GOD THE WHOLE HOUSE SHOOK I THOUGHT DAN FELL OUT OF BED...WAS THAT AN EARTH QUAKE ...BLIMEY IT WAS VERY SCAREY ....IT WAS VERY VERY STRONG XXX  I AM GOING TO PUT THE NEWS ON XXX

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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    Thankyou wren xxx I am going to the hosp in 6 hours....I will keep everyone posted.

    Going to get some sleep  xxx

    I am in shock about the earth quake.... gosh it was very spooky.... xxx

    Sweet dreams xxx

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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited February 2008

    Goodness!  See what i miss when I'm away from my computer?  Sue, you have to go to the hospital first thing in the morning.  You should NOT be bleeding when you use the bathroom.  That is so scary!

    I'm so glad you're ok after that earthquake.  I was living in LA during the Northridge earthquake.  Portia was a tiny baby and it was scary as heck! 

    Please have one of your boys post if they admit you into the hospital.  We're all going to be worried sick about you!

    Love and hugs,

    Karen

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  • geebung
    geebung Member Posts: 1,851
    edited February 2008

    Sue - the earthquake was all of us telling you to go to hospital! Our collective voices and emotions were so strong, that they materialised in a tremor! Lol!

    Get some sleep and then get thee to a hospital or we will send another one!

    Jane. xxx 

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Sue, was hoping for an update.

    Jane was right, that earthquake you felt was all of us letting you know we are here for you!!!

    I'll check back later.

    AE

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    I am just getting caught up from last night. and Jane is right, that earthquake is telling you to get to the hospital and get treatment.

    I am praying for you that it gets sorted out quickly and you feel better for your next treatment.

    Sheila

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  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2008

    I'm hoping Sue got to hospital 5 or 6 hours ago -- it's about 8 AM in NY now.

    Hugs,

    Ann

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Its 9:30 here in Jersey - 2:30 in England - I'm guessing our Sue is still not home yet.

    AE

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  • geebung
    geebung Member Posts: 1,851
    edited February 2008

    Perhaps they will keep her in hospital for a day or so? Sue, thinking of you and praying for you. Will check in later. Just about to leave to meet son's plane.

    Love to everyone,

    Jane. oxoxo 

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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Keeping a distant watch on this developing situation too. Gentle hugs to you Sue, for your strength and determination in the face of this bootface adversity. Warm thoughts toward your boys too.



    Tender

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Maybe she will reach out to Lucy...............

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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    Hello Sisters xxx

    I am returned!!! Thankyou so much for kicking my ass last night xxx

    Well I have been thouroughly checked over and tested. Christies hospital in Manchester is such a lovely hospital ... but each time I go it brings on sick feeling and I cant help think of it as a chemical factory...blerghhhhh blerghhhhh

    Anyway I have got neutropenia ...the white blood cells are very low...which goes with the chemo...but they cant tell if they are on the way up or down and have to wait and see if my body will recover.

    I have also developed severe mucousitits .... inflamation of the mouth throat intestine tract .... for which they are concerned. I have been given morphine to take. They wanted to keep me in but I didnt want to stay, so we compromised...and I promised I would phone them if the inflammation got so bad I couldnt eat. There is nothing they can do but to let mother nature heal.

     I asked about next chemo ... they have contacted the oncologist to warn him of the reaction I have had.... and they will look into lowering the dose.....telling me no one can ever judge how one will react to treatment.

    I had 2 nose bleeds while I was there and they are hoping that in 3 or 4 days my blood clotting will be on the upturn.

    I am so fed up today girls ... so drained and ill .... I never thought it would be so hard on the body.  I am feeling very sad for all the very sick people I saw today and very very angry with BOOTFACE ....

    I really want to speak with my oncologist....I just dont know what to do next treatment...and it is making me panic inside....I feel like I am going to have a panic attack

    Well I am sorry for whinging.... I will try try get my body to buck up xxx

    Much Love xxx

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  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited February 2008

    Sue, glad to see that you went for some treatment. hopefully you will be feeling better soon. Please take care and if you start feeling bad again, don't wait, call and get help!

    back on the yellow brick road

    Sheila

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  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2008

    Sue, I am so happy to hear from you!!!

    Thank heaven you got some attention to this.  Severe mucositis in intestinal tract -- sounds like this is not just a question of "toughing it out."  (Maybe I'm talking out of turn here, because I haven't had chemo -- and others may have better information -- but my sense is that your "gut feeling" of terror is LITERALLY your gut/intestine telling you it needs urgent attention and consideration.)

    You are not whinging.  Your oncologist absolutely should be available to hear what is going on with your body.  And don't spare any details when you tell him!

    (((hugs)))

    Ann

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2008

    Sue,

    I am so glad you are home.  My, my, you have so much going on.  My guess is the onky will change something around the next time you go in.  Did they give you a shot of anything to bring your cell count up?? What did they advise you to eat??

    Now get some rest, UB says he is jealous you got morphine - he only got percocet (sp). LOL 

    Love ya,

    AE 

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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    AE xxx

    They didn't give me a shot as they didn't know whether was on the way up or down ....and wanted to see if my body would pull through these next low days...

    I have to eat soft ...not hot not spicey etc..... oh my I had a packet of crisps earlier and my tongue was bleeding ..............the FREAKING PAIN IS DRIVING ME UP THE WALL....

    I have a large bottle of morphine!!! It will last forever... my o/h is on call with the syringe in his hand LOL Wink

    Ok I am going to make a cuppa and blow on it ... I did just have a nice special fried rice from the chinese...it took me  hours to eat!!!

    I hope all of you are having a good day...and I hope Ub is resting up and doing as he's told.... yikes AE ... lol... you tell him !!!

    Maybe I might see if I get some relief from eating some ice xxx

    I am so hungry all the time ....

    Well a week tomorrow I will be off work for a weeks holiday !! So I am holding on xxx

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  • geebung
    geebung Member Posts: 1,851
    edited February 2008

    Big gentle hugs to you Sue. Glad you are home. I so hope you start to feel better soon. You are precious and loved.

    Lots of love

    Jane. xxxx 

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  • Wren
    Wren Member Posts: 324
    edited February 2008

    Sue, I am so glad you went in and at least got some documentation of what's going on inside your body so your oncologist will know how badly you've been feeling.

    I hope you will bounce back a bit now too in your white counts... I am sure your oncologist will make some kind of adjustment, if not in treatment, at least in how he treats the side effects.

    Take off more days from work so your body will heal up faster (if you can). I'm sure that 'vacation' time you have coming will really help you...

    Thanks for letting us know how you are doing now.

    I'm still praying for you -- and thinking of you.

    Hugs!

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited February 2008
    Oh Sue honey , how ya doin? I'm truly sorry you are in such pain and agony. Yes , your onky definitely needs to reassess your tx. You're white blood count is getting dangerously low. There is no reason they can't let you skip a tx and let your worn out body recover. I wasn't going through half what you are , and my wbc was getting to the "danger zone" and my onky called me , told me to stay home from work for two days and was gonna have me skip my next tx , but my wbc rebound and I was able to keep going. But you my dear are physically getting wiped out. I remember you saying that your dad would help you out financially if you needed it. Please let him help and let your onky write you off work for a couple weeks. You really need to take care of you right now Sue. Big hugs to you honey. God , I wish there was something I could do for you. I would love to come and help you with the boys and let you get your rest. Is there any chance your sister might come and help you out? I love you Sue. I am going to go light a candle for you. And pray that God will bless you with His healing powers. Love , Melody xxxx
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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    I am so grateful to you all xxx I have just come upstairs to crash out with my laptop... waiting for another earthquake!!

    David has just given me a geography lesson on how the plates under the continents move ...and ours probably touched last night ...and why Japan has so many quakes as its on the edge.... anyway I have to be firmer with Dave ...his bedtimes have gone from 10 ish to gone 11pm... and its not his fault ... just time goes by and everything is such an effort of late ... so tomorrow night we are gonna be strong ...lights out at 10pm for him ... !!!

    wren xxx I am so looking forward to my week off .... the last hoilday I had was in September and it coincided with the dx ... so this holiday is long overdue ......  thankyou so much for your prayers xxx

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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    Melody ... I love you too xxx

    I am going to ask ONKY about treatment now. I know my body is at its limits ... I was hoping there would be a turn around as usual happens by the weekend just gone...but well its just got worse ...

    I would love a respite from treatment... I am on a trial so maybe they will alter it back to every 3 weeks... I would just love to know which part of the CMF causes the mouth problem ...I am going to do some reading on it...

     If I had had a let up of the s/e by now I would have considered going through the next one but I am in PANIC mode ..... what if they say I have no other option....  I wonder why they are being so aggressive...maybe its the trip neg thing....

    I am so looking forward to feeling better... I will run for the hills on my weeks holiday.... even though I am supposed to have tx on it ... xxx

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited February 2008

    Ladies , I lite a candle in prayer for God to give Sue strengh and to heal her. I put it in a group called "sueps" if any of you would like to add one. xxx Melody

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  • sueps
    sueps Member Posts: 2,266
    edited February 2008

    PLEASE EVERYONE DID YOU ALL HAVE REALLY BAD S/E WITH CHEMO... DID YOU EVER FEEL LIKE THROWING THE TOWEL IN...

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited February 2008
    Sue , what is the "trial" you are on? I just wondered if it has something to do with the reaction you are having. I don't blame you Sue. I think I would be running for the hills right now , if I were you!lol
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  • honeygirl
    honeygirl Member Posts: 1,718
    edited February 2008

    Oh yes Sue. Every night before I was to have tx! I'd cry and tell my o/h I wasn't going. But when my onky said I might not be able to have tx that one time , I cried cause I didn't want to prolong it! Crazy , I know...

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited February 2008

    Just before my last chemo , I truly felt like I knew what it felt like to be dying. Thats just how I felt , because it took alittle more out of me each time.

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