please help
Comments
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Hi Sue
! Thought about you today and wondering how it went. Hope you're not to down. Like everyone is saying , its one more down and May is just around the corner! Take care.xxxx
Auntie Em you too are in my thoughts and prayers. Hope the biopsy went as well as it can. When does Bill get to come home? Let him know we are all fighting with him against old ugly bootface!xxxx
gb , how did your job apps go? Good luck to you. Are the jobs in the teaching field? I hope you find something soon.xxxx
Hi Lisa! Glad you were out and about yesterday. Yes , a full day after surgery kinda wipes you out. Glad you had a good visit with Bugaboo! Little sweetie... Have a restful evening. Hi to Olivia!xxxx
Ulla! You're a dentist?! I'm scared of dentist
! But I love you!xxxx
Karen will be praying for you honey. Hope all goes well tomorrow and it is sucessful. Love you xxxx
Hi to everyone else and hope you're all having a good evening.xxxx Melody
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.....as wellI have been reading the posts in the early hours when I am unable to sleep this week due to meds.... and I am extremely humbled by the extraordinary bravery of some of our other sisters ... which in turn has made me very grateful for all that I have got at this time xxx
ONE MOMENT IN TIME xxx
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Triple kisses and hugs to you Sue. You are probably right about the shingles making you feel down for an extended period. I'm so glad you are beginning to see the light at the end of the tunnel. You are in my thoughts and prayers.
Big hugs
Jane oxoxo
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Hello Melody !!!!
I am scared of dentists too lol....hahaha ...my ONKY said if urgent I guess its ok... so I took that as a nice thought...and will give myself more time to work myself up to going to the draggy appts and having the mouth mauled with xxx
Well I am going for a cuppa ...probably wont want one when I wake xxx
Hello to everyone of you xxx
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I really am going to apply for those jobs right now! Mel - just wanted to say that I am still waiting for my re-registration to come through. It can take quite a while at this time of year as all the new teaching graduates are applying for their permission to teach. So I am applying for lots of different jobs. Mystery shoppers, blood collection traineeships, clerical and the other day I saw one for a trainee journalist - I would love to get that but my age (51) will probably be against me. They probably want a young person barely out of their teens. Still, no harm in trying.
Right - this time I'm really going!
jane
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Jane ...I will take all the triple kisses in the world ...lol....I could squeeze you right up xxx
Lisa...you are doing great...blimey ...look how far you are coming!!! You are such an inspiration to anyone having recon xxx It is so nice to hear from you and what you're doing.... I always imagine you behind your desk at the airport xxx lol
Sheila...big sis.... I love you .... and hope you are having a good day xxx
Ok off for the cuppa...wondering how many hours sleep I am going to get...but not worrying.... xxx
Much Love xxx
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OMG KAREN!!! I didnt forget..GOOD LUCK FOR TOMORROW...
Please know that we will all be thinking of you .... you are very special to us ...more than you know xxx
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Hi Sue , glad to see you post.xx I'm so glad you are seeing the light at the end of this nasty tunnel. I agree that shingles had something to do with the way you were feeling. Glad to hear you are on the upswing.
gb , sorry , I keep forgetting about our time difference. You probably haven't even gone to apply for the jobs yet!lol Its 6:40pm here , and I think its that time everywhere!lol
Lisa , stop lifting young lady
You don't want to set you're self back do you? I'm with you , we need some sunshine and warm weather soon!
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Sue , a "mouth mauling!lololol I can't stop laughing , cause thats just how I feel.lol I can't stand the thought of someone in my mouth , and I am at their mercy , one wrong touch and OUCH! I bet you really want to go to the dentist now! Glad the onky gave you the go ahead though. I don't want you to be in pain from a toothache.xxxx
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hahaha Mel...another word for our vocab... a mouth mauling ....definition to vist the dentist...for the rest of my life now I will call them mouth mauling appts !!
BOOTFACE IS NOT WORTHY OF A DEFINITION... but at least we gave it its own derogatory name
Right I am off to do some googling for five then bed ...my face is screwed with tiredness...I have no eyebrows no eyelashes...a white knitted hat on...god grief what if my colleagues saw me ..lol..
Much Love xxx
spk tmw xx
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Hi all,
This past weekend my hubby and I were driving and this song came on the radio and made me think of all of you. It is called Stand by Rascal Flatts:
You feel like a candle in a hurricane
Just like a picture with a broken frame
Alone and helpless
Like you've lost your fight
But you'll be alright, you'll be alright
[Chorus:]
Cause when push comes to shove
You taste what you're made of
You might bend, till you break
Cause its all you can take
On your knees you look up
Decide you've had enough
You get mad you get strong
Wipe your hands shake it off
Then you Stand, Then you stand
Life's like a novel
With the end ripped out
The edge of a canyon
With only one way down
Take what you're given before its gone
Start holding on, keep holding on
[Repeat Chorus]
Everytime you get up
And get back in the race
One more small piece of you
Starts to fall into placeYou all are so strong. Even when you get down you get yourself up and Stand so this is for all of you brave, strong ladies.
Dawn
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Hi Ladies -
Another day down. UB finally had the biopsy today, of course we won't know anything for a few days. UGH!! They all ready started the steroids and want to start the chemo on Friday. Only problem is - UB told me he is leaving the hospital on Friday - he does not want to be there over the weekend!!
MEN!!
Sue - I'm so glad to see that you are feeling better and todays treatment was uneventful!!
Wish I had more time but I need to make a few calls.
Thank you all for your support. I am truly blessed knowing all of you.
You are ALL my BFF's.
Love ya,
Valerie
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Oh, almost forgot. I heard from Valsul - I was hoping she would post but since she didn't I will - her treatment is going very well. The Xeloda (sp) is doing its job!!!! She is tired and the Onky couldn't understand why but her DD ratted her out and told him she has been working full time. So that seems to be the reason.
Just thought I would share..............
AE
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Hi all you dear, precious sisters. Ulla, glad you are on with the rads, once started, it goes pretty quickly.
Dear sweet Sue, of course the shingles knocked you silly, silly. I knew you were in more pain than you should be and that was it. Also, my mom was SICK as in fatigue, on and on, the whole gamut. So it sure was not what you needed with all the other stuff going on. No wonder you were so sick, poor baby.
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Hi everyone. Feb. 20th 2007 I was diagnosed with bootface.
Feb. 20th 2008 I am still here!!!!!!
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Good for you Mel!!!!!!
February 19th, 2007 was my last rad treatment!!!
AE
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Hi everyone. Sorry that I didn't check in sooner, but it's been a busy day. I went for my radiation simulation appt this morning. I'm all ready for my treatments--tattoos and all. It was a very short and painless experience. I spent more time chatting with the technician than having my scan and all. Looks like I'll be starting rads in about two weeks.
Valerie, my thoughts and prayers continue to be with you and "Uncle" Bill. I hate it that bootface has darkened your doorstep once again. You hang in there, Aunty Em! Thank you for sharing news of Valsul.
It's funny how you all have confessed your fear of dentists. I used to be terrified of the dentist! I didn't see the dentist for close to TEN years because of my irrational fear. I've overcome the fear, but I still don't enjoy having work done.
Yipee, Mel!! One year out! Good for you!
Sue, I'm so glad you're feeling better than you did after your first cmf. I'm sure those darn shingles had a lot to do with how poorly you were feeling last week. Don't you overdo it at work tomorrow! That's an order! Love you!
Lisa, it sounds like you had a great day yesterday. So sorry that you were feeling wiped today. I hope you get a good night's sleep tonight and wake feeling refreshed.
Dawn, I don't think I've heard that song, but I love the lyrics! Thanks for sharing.
Jane, good luck with the job applications. I just know that you're going to find the perfect job. Any employer would be very lucky to have you!
Thanks to everyone for your well wishes regarding my surgery. I'm not overly anxious about it, but I'll be glad to have it over with. I'm sure I'll feel well enough to post tomorrow night.
Love to everyone!
Hugs,
Karen
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Mel - one year out - and I pray that there will be many, many years to come. God bless you - you are so precious to us here.
I was dx on Feb 26, 2007 so I will be looking back next week. I am starting a part time course in mental health on the 26th - strange coincidence - perhaps signifying new beginnings and a new career - who knows?
Karen, glad the simulation appointment went well. I will be thinking of you as you go in for your surgery and hope everything goes extremely well. Will look forward to hearing from you soon.
Hugs,
Jane
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I'm keeping you all in my thoughts and prayers... all of you.
You each have so much going on--surgeries, treatments, caretaking of spouses, children, and yourselves... And then there are those of you who are working jobs outside the home and plugging away at life even while facing all these challenges.
Thank you for sharing your journeys.
I had a fill today and boy does it hurt. I didn't feel it right away, but now it is amazing how much it is hurting. I am on so many kinds of meds to help which would, under typical circumstances, make me loopy and sleepy and I'm just wide awake and still feel some pain.
Ladies, you all have my respect at what you endure, but still manage to be so positive and supportive.
Hugs to you all,
~Wren
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Hi Wren,
Sorry to hear that you have pain after your fills. I really admire you ladies who have recons - it must be a long and painful process. I am not a good candidate for it. If I have LE after having only 2 nodes removed and no radiation, I wouldn't like to risk making it worse with any further surgery. I have now accepted myself like this so it's not depressing.
Hugs,
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Sue, I have a comment about what you said
I went for treatment...didnt really break down today..did protest in anger...but didnt flood the place with outrage.... something has changed in me mentally since last Weds night when I completely bottomed out...I am not sure what it is...but I have been feeling different in this journey....seeing a little light in a dark tunnel I think xxx
I am glad that you are seeing the light at the end of the tunnel and it is not a train! I knew that the darkness you were feeling was the medicines and you just had to walk through the darkness until you could see the light. I am glad that I have been able to help you through this terrifing trip of bootface.
Jane, my mom did not opt for recon. She felt that at 60 she did not need her boob to identify who she is. Sometimes she goes on about why I chose recon and went through to the final stage (tattoo). At 46, I could not see myself flat, my husband said all along that what ever I decided to do he would honor my decision. He did not pressure me into the recon. We discussed the decision for bilat since September 06 after my 2nd abnormal mammo that resulted in biopsy and lumpectomy for ADH. I was not a good candidate for tram flap but I have had great results with the implants.
I had an anniversary last week, Feb 14 2005 was my first biopsy that showed ADH and started me on this rollercoaster ride of BC.
Love
Sheila
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Good morning sisters! I am not "refreshed" as Karen wished for, but I did sleep about 6hrs or so. I will keep this short and sweet, I have to get in the shower, my brother and his wife are taking me out for lunch!
It will feel good to get out of this house...but not into the 19degree weather!
AE, still praying for you and UB, and thanks for the update on our Valsul. It sounds like she is doing well...but not resting...haha.
Mel...happy 1 yr out...and you are here with us to celebrate!! I heard that they were almost positive it was cancer on Feb. 19, last year. My date is coming up...March 6th. But I have to say, yesterday's one year is the one that sticks in my head more.
Wren, sorry you are having so much pain with your fills. We are here for you dear.
md mouse....I LOVE Rascall Flatts...thanks for posting the lyrics.
Jane, dear...next week is not a coinsidence...it is a NEW start for you!! Congrats early!
Love to all that I did not mention....I need to hurry my booty into the shower!
xoxo
Lisa
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Hi all
Well I am a bit sad today. One of my staff's dad has been in a lot of pain in his lower back in the last 3 weeks (fit as a fiddle before) today he has been given 2-3 weeks to live. Cancer of the spine too late for chemo or anything!!
They are the nicest family and I just cried and cried on the phone to my mum today. Its such a bastard disease!!!
Sorry its just all so unfair... -
(((Lucy)))
Oh god I am seeing RED with this .... it just rips lives apart...THAT IS EXTREMELY SAD .... horror to imagine....it could happen to anyone.... I could swear so much having read your post....
It goes past anger....!!!!!!
I am thinking of you .... and I am so sorry for the pain of your colleague xxx
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Hello Sisters xxx
Well shall I tell you something funny .... please dont laugh though.... lol... cos its not funny really hahaha...
Well yday I decided to keep above on the anti sick tabs... one before one after one at bed etc.....I figured it wouldnt hurt to take one at midnight either...and I felt great ....no sickness....and enjoyed plenty cuppas ...till the early hours...well.....off to bed I went.... only to wake several times in the night...with flashy lights in my head....when I got up this morning...no nausea!! alas ten minutes later I was sick with the overdose of the anti sickness....hahahaha...and havent been able to touch one tablet all day ...lol..... I will never cut corners again!!!
I am dog dog tired tonight...and feel fit for nothing..so in a min I am going for a hot bath.... it is soooooooooo cold in the UK tonight....brrrrr ...
I have a day off tomorrow ...thankyou God ....only Tom has called a staff meeting tomorrow night at 8pm...stupid ....all I want to do is sleep ...I wouldnt mind but its only about a stupid scrabbble promo!!
Karen hope your surgery goes well I am thinking of ya loads xxx
Ae & Ub .... you both must be absolutely shattered with the turn of events.... I hope you're both holding on .... and taking each day as it comes.... you are so strong.... I cannot believe the situation... Do you think they will let Ub out.... I know how he must feel.... but men dont do hospitals and illness well do they ...he deserves a medal though .... the courage he is showing ...and you Ae ....two shining stars xxx
Wow all these anniversary dates you are all having....maybe when we are all done and dusted...we should throw the biggest party ever...and burn bootface to the ground... I HATE BOOTFACE!!!
Sheila....I am so eternally grateful that I was able to find you on this journey ...and I am so very thankful for all your love and guidance...You will never begin to imagine the feelings that you awake in me throughout this xxx
Shirlann.... You knew I had something else as well as chemo...didnt you keep saying....rest rest.... and now you were right!!! Silly shingles...silly me!! why do I never listne to my body!! Well I do its just I forgot what normal health is!!!..I just cannot interpret health and illness!!! I love you cybermam xxx Give Walt a cuddle xx... I will post the pic of Cleo up tonight .... the one of her by the pc...wow she is a real healthy girl !!! xxx
Lisa have a lovely lunch today....you are doing great guns....soon you will feel all refreshed again...your body is healing.... and you will look and feel great xxx
Jane I want to wish you luck with your job hunting...and with your new course...that is fantastic....I love searching out new jobs...I go through phases of looking through them and wishing and wondering what it would be like to work here and there.... I even get as far as going for interviews and being offered them....never to actually accept in the end...the last job I got offered I really really wanted...It was the week before I got my biopsy results....I got offered the job....at the same time Tom text me and told me how I was the best....we had been going through a bad patch work wise....anyway I was set to give my notice...and I got the blow...of course I couldnt accept the job under my illness really...it wouldnt have been fair...so I stuck with good old better the devil you know LOL... xxxx
Dawn...Those are beautiful lyrics...I am going to download the track to my mp3 ..... you are always so full of wise and thoughtful words... xxx
wren...how many more fills do you have to go....I hope the pain is lessening....and the meds are working...isnt it awful how all of a suddne we realise how much meds we are taking because of this...it feels all so unnatural in the body xxx wren your posts are very strengthening to me xxx
Well I am just going to wash the kids dishes etc....o/h is bringing an indian home.... hope he's nice ...the indian that is....or maybe I will settle for a curry and a popadom lol
I will post before this posts itself for the 4th time.... spooky
Zippy is doing my nut in tonight...scream scream scream at me...even when I go to the toilet.... grrrrr...hes worse than anythin lately ... he owns me you know xxxx he wanted me to let you know I spend too much time typing xxx
xxx
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Hello Sisters xxx
Well shall I tell you something funny .... please dont laugh though.... lol... cos its not funny really hahaha...
Well yday I decided to keep above on the anti sick tabs... one before one after one at bed etc.....I figured it wouldnt hurt to take one at midnight either...and I felt great ....no sickness....and enjoyed plenty cuppas ...till the early hours...well.....off to bed I went.... only to wake several times in the night...with flashy lights in my head....when I got up this morning...no nausea!! alas ten minutes later I was sick with the overdose of the anti sickness....hahahaha...and havent been able to touch one tablet all day ...lol..... I will never cut corners again!!!
I am dog dog tired tonight...and feel fit for nothing..so in a min I am going for a hot bath.... it is soooooooooo cold in the UK tonight....brrrrr ...
I have a day off tomorrow ...thankyou God ....only
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Hello Sisters xxx
Well shall I tell you something funny .... please dont laugh though.... lol... cos its not funny really hahaha...
Well yday I decided to keep above on the anti sick tabs... one before one after one at bed etc.....I figured it wouldnt hurt to take one at midnight either...and I felt great ....no sickness....and enjoyed plenty cuppas ...till the early hours...well.....off to bed I went.... only to wake several times in the night...with flashy lights in my head....when I got up this morning...no nausea!! alas ten minutes later I was sick with the overdose of the anti sickness....hahahaha...and havent been able to touch one tablet all day ...lol..... I will never cut corners again!!!
I am dog dog tired tonight...and feel fit for nothing..so in a min I am going for a hot bath.... it is soooooooooo cold in the UK tonight....brrrrr ...
I have a day off tomorrow ...thankyou God ....only
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Well, my computer is acting up. On my last post the "matchstick" or little thingy just stopped working and I could not finish my post so it just hung out there with no good bye so if I stop in the middle of a word, you will all know why!
Sue, lovey, you just had so much going on, no one could have been able to separate one thing from the other. And I, like you, felt so much saner working, if you can, that is surely the best thing to do when you can.
I hope the next few weeks will be better, honey, damn bootface, so hard, so hard. I think that none of us understands in the beginning how looong this whole crappy thing takes. And it just wears you out, mentally and physically. Takes all the joys out of every thing we have all loved all our lives and leaves you like an empty shell on the beach.
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Well, it did it again! I never know, the little cursor just disappears and I am sitting here swearing and pounding and nothing happens. So forgive me, all my dear sisters, I will say goodbye and I love each and every one of you so much. I am saying goodbye now so when the cursor won't work anymore, you will know why.
It is finally raining a little in San Diego. Which is really a desert. Yesterday it was 70. I would like a little more rain than we get, but what the heck.
I am so glad to hear from Valsul and Ulla too. I did not have any trouble with rads mentally. I did wonder a few times what I was doing under this rad machine when we all know radiation causes cancer! Ah well! other than that, I did okay. And I was OLD, 63, you guys are all pretty little chickens. I am an old hen. hahaha
Love you, Shirlann
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Hi lovely ladies,
Thought I'd add to the anniversaries and celebrations...I had my last chemo yesterday...hurray!
Also had some bad news. My last CT-scan showed that the lump on my lung (which was never officially diagnosed) has gotten smaller. That's bad news because it's reacting to the chemo, getting smaller, and therefore likely cancer. I'm praying it's not, very scared...can't stop thinking about it. Kind of in denial I think...
Hope all is going as well as can be expected for everyone. Valerie & Shirlann...hope your DH's are getting along ok. My thoughts are with you all.
Sue...so happy that you are feeling a bit better. It's so horrible when we get into those very dark places. All that you are going through and then shingles on top of it...gosh...enough already!!! I don't know about you, but once I start feeling better again, I look back and can't believe I could have felt that bad.
Karen - glad that the radiation prep was uneventful. I have to go for mine on March 4th and I think I'll probably start rads around March 19th for 6 weeks. Hope everything went well with your surgery today.
Lisa - sounds like you are recovering well. So great to hear!
Hello to everyone else...hope you're doing well!
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