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  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Sue, I hope you've gone up to bed and are resting comfortably.  I haven't had too many hot flashes since my first chemo.  It wasn't pleasant.

    How nice of dear Adam to cover the end of your shift for you.  It must be difficult for him to see you going through this since he lost his mom to bc.

    I had round 3 today and am feeling tired, but not nauseous at all.  Things even still taste normal (for now).  I'll check in tomorrow to let you know how things are going without the dreaded Adriamycin. 

    Thanks for all the well wishes ladies.  You are such a wonderful bunch and I'm so lucky to know you.

    Take care.

    Hugs,

    Karen

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Hi all...

    I've been gone for a while, feeling the need to move on. I did all the right things...mustered my support systems, made decisions, suffered the agonies we all do of waiting, got throught surgery and healing.  All the information and support from this board made it possible.

    Then a couple of weeks ago I discovered that my breast cancer does not make me the center of the universe nor excuse me from life. I have realized that there are worse things than cancer for me. The most wonderful gift in my life may be lost. It is more important to me to fight for my family than to fight for my life. Strange, but that's how I feel.

    So remember, ladies, all of us need so much that sometimes we forget that we are not alone. Our spouses, lovers, children and friends need us, too, and need us to surface from cancer from time to time.

    I have checked in from time to time and am so very pleased with Sue's progress and the wonderful family that has developed around her. In expressing what we all feel, Sue has created a safe place for others. It also helps us to have a place to talk without overwhelming our already overwhelmed families. It's all good.

    Towhee 

    Towhee 

  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Towhee... You made a really valid point.  I can relate to that feeling as well.  Sometimes it is easy to forget this is very difficult on those around us.  I am fortunate now to be doing very well. It took me a long time to realize that this has been so very difficult on my father.  I went through a divorce since my dx, my children even though they are older, took the news hard, but handled it pretty well as time went on...but my father...he was my rock.  My mom has passed, and he came and called as much as he could. He is 81, and then one day...I saw his face after my surgery...a face of worry, sadness...and it hit me...oh my gosh..how hard this is on him.  We forget, because we are strong women, that even though we are adults...we are still our parents "little girls"!!

    I see him now...his face is less strained...more relaxed...because I have beaten this dreaded beast!

    But yes...we need to remember all of those around us and how it effects them.

    Thank you for that reminder!

    xoxo

    Lisa

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    It was so good to hear from you Towhee.  I hope all is well now with you and your family.  Your message hit home.  I personally don't like being the center of everyone's attention.  I know that everyone else has their problems and are going through difficult times.  I find that others are reluctant to talk to me about their difficult issues.  I try to draw things out of them, but I can see their hesitation.  It makes me sad.  They don't want to burdon me with their "stuff".  I've always been a good sounding board and I miss it.  They don't realize that it actually takes my mind off my own troubles. 

    Thanks for coming back and sharing with us.

    Hugs,

    Karen

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Ladies, I can't believe the difference the absence of the dreaded "red devil" (Adriamycin) has made.  I feel totally normal today.  I imagine it will hit me in a few days, but I've never felt this well the day after a treatment.  Gosh, that stuff is nasty!!!!  God bless all of you who have had it.

    I'm watching "Good Morning America" and they are featuring a small town in Eastern Washington called Leavenworth.  It's a small Bavarian inspired town and they go all out on Christmas.  It's particulary inspiring to me since I'm 100% German.  It's literally like walking into a snow globe village.  Absolutely beautiful.  I may have to talk my dh into taking us there for a day trip soon.  I guess I'll have to ask the onc if/when it would be ok for me to go.  I just really feel like going somewhere to play in the snow.

    Much love and hugs to you all.  How are you feeling today Sue?  Hopefully, you're not working too hard.

    Karen

  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Karen,

    Sooo glad you are feeling better this time!  What tx did you have yesterday?  I had A/C for my first 4 rounds..the Adriamycin lives up to it's name! I usually felt ok the next day..started to hit me in the evening..then day 3 and 4..forget it...I was in bed, sleeping taking anti nauseau meds..etc.

    That town sounds like a great place to go and see for Christmas!! I love that kind of stuff!  Why do you have to ask your o/c about going out?  Do you have restrictions?  I did not.  Worked, walked..basically whatever my body felt  up too do.

    Today is my day off...I'll be checking in on here throughout the day.

    xoxo

    Lisa

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Hi Lisa!  I had Taxotere and Cytoxan yesterday. Not bad at all compared to that nasty red devil.  Don't know how I'll feel in a few days, but I'm hoping for the best.

    I think I'll just ask my doc when the best time to go will be.  I guess if my blood counts look good, there's no reason why I can't go.  I'll just have to steer clear of people who appear to be sick.  Be gone sneezers and coughers!!  My not so dear ex-husband was in town last weekend.  He was sick with a cold and he gave it to my daughter.  I've been wearing a surgical mask when I'm around her.  What a pain. 

    Hugs,

    Karen

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Oh, they have a snow train that goes up to Leavenworth from Seattle.  That would be a blast, but I'm afraid my kids would get bored.  I love looking out the window at the passing, snowy, scenery.  Just beautiful!  With my luck I'd be sitting near some sick person though.

    Later!!

    Karen

  • Shirlann
    Shirlann Member Posts: 3,302
    edited November 2007

    Hi Karen, I think our Sue is sleeping, but I have to tell you that we took a "Winter Trip" to Yellowstone. It was fabulous, and not all that expensive. The roads are closed so you drive to the South entrance, near Jackson Hole. Then they take you in on a SnowCat. You stay at the Snow Lodge, the big hotel is closed because they can't heat it.



    This trip is run by the National Park Service and we went over Christmas. Not very expensive at all. You can rent Cross Country Skis for a few hours, Snowmobiles, Show Shoes, and/or take trips to the various areas of geyser basins. The meal at night was really, really gourmet, just wonderful. Your kids would love this.



    All over the place are Bison, Elk, Moose, down from the high areas to sit around the warm springs. We just had a blast. You can stay any number of nights you want. We moved on to Mammoth Hot Springs for another few nights. We also took a dog sled ride in Jackson Hole which was a blast. We did this about 9 years ago.



    Ahhh, it was so much fun, we got into a 100 year snowfall year and had a wonderful time.



    Hugs, Shirlann

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Oh my gosh, Shirlann!  That sounds wonderful!!  I'm going to have to look into it and talk my husband into doing it next winter.  Thanks for sharing.

    Hugs,

    Karen

  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    Just doing my nightly check -in ladies.

    I know I probably said this before, but it just amazes me how a group of total strangers can come together and get to be like family.  You gotta love it!! You ladies rock!!!

    You ALL should be VERY proud of yourselves as well.  You are fighting like warriors and doing it all with grace & dignity.  You will have good days & bad days, happy & sad days, but you'll still continue to do what you must to slay what our dear Sue lovingly calls BOOTFACE!!!  I know this time next year you'll be writing here on the boards "I remember when............." because it will be all behind you!!!

    Much Love,

    Valerie

  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    Karen , I started reading a "Christmas" book called Where Angels Go , and it takes place in Leavenworth! It sounds like a wonderful place to be at Christmas time. I hope you get to go. I'm glad you are doing better this round of tx. My onc told me not to go to crowded places when I was doing treatment. But I had trouble with low blood counts.

    Towhee , so good to hear from you. I hope things are good for you.

    Karen , I too had to tell people to not tip-toe around me with there problems or joys. Yea , I was going through something "big" but what is happening in others lives are big for them and I too , always felt better hearing and talking about their life moments.

    Shirlann , sounds like a blast at yellowstone. Hows the kitty and Dusty doin'? Hope they are getting along.

    Hi SueSmile! Hope you had a good evening and you make it to bed tonight, and not fall asleep on the laptop! Hey , do you live in Bolton? I looked it up on the web and they showed it at Christmas time. What a beautiful town. I thought I saw a subway in the vitual tour , got all excited , but it wasn't a subway. Darn. I would sooooo love to come to England. Some day. xxxxx Melody

  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    Hey Valerie , good to hear from you. You're right , these ladies rock!!

    We really do have such a special bond. I am so thankful God has brought us all together here. Sisters forever!xxxx Melody

  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Hi ladies!!!!

    I was out all day on my day off..groceries..post office, then a trip to Big Lots and Gabes with a few g/f's for some christmas bargain shopping!! My feet are killing me!! haha..but it was fun!

    Karen..glad to see you are still doing good! I hope it stays that way.  I bet it was the red devil that did me in!  Taxotere was a whole different story.  I felt better, but I had allot of pain, and very tired.  I think I just worked too much also. I did not have problems with being around people...heck I work at an airport...lot's of people..touching their bags etc., but my blood counts always stayed in check.  Thank goodness.

    GUESS WHAT GIRLS?? I went to my hairdresser today, to ask what they could do color wise with the little bit of hair I have (so much gray)...and she said she could color it for me next Thursday..then the awesome guy who cuts it said..here have a seat...I will trim that up for you, give it some sort of style!! So they washed my hair, he cut it, all free of charge!! They are so good to me!  He took so much time with me, you would have thought I still had my long beautiful hair!  It looks great...I am so happy... I may not wear my wig back to work tomorrow!!  I may wait until the color is done next week then go wigless!  I only wear the wig to work as it is.  Anyhow...it felt soooo good to be in that CHAIR again..haha!!  I felt normal again!  The girl at the store said..honey you went short with your hair cut..and I told her..no..it's just now growing in...and she said well girl...you sure can wear it!! haha! Made my day.  Sorry...to be so long...but I had to share it!!

    I say ditto to about my new friends here!  You guys do rock!!

    xoxo

    Lisa

  • md_mouse
    md_mouse Member Posts: 99
    edited November 2007

    Karen,

    My sister went to Levenworth earlier this year and really enjoyed it.  She said the shops were quaint and told me I should go visit when I get the chance.  I hope you are able to go and enjoy the shops and scenery.

    Dawn

  • Lucy1234
    Lucy1234 Member Posts: 289
    edited November 2007

    Hi all



    Sue

    Im glad you like the book! maybe you can send it on to someone else on this thread after? Its very sad but also quite fantastic.

    Im ok, bored out of my brains at the moment! RAAAAAAAAAAAAAAAA (sorry...)

    Trying to get into that series 24 as I have been given the whole 1st and second series. Does anyone else watch 24?

    I'm not a tart but I would sure give that Kiether Sutherland a good seeing to! (I'd leave my bra on) LOL

    I still have the swelling on my back which makes me look like a hunch back! and because my back muscle is in my boob it really cramps up! My kids think it hilarious when I shout 'ouch ouch ouch bobbie cramp'



    Do you guys in the states all get snow at Xmas? That would be great. All we get here in the South of England is rain, wind and grey sky :-(



    Ow well on with the online xmas shopping (can't drive yet!!!!) Double RA!



  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited November 2007

    Wow, I can't believe so many of you have heard of Leavenworth.  Coming from a German family, I've been there many times.  It's been about ten years for me now though, and I really miss going--especially at Christmas time.  It truly is a gorgeous sight with all the snow and twinkling lights.  The shops are so quaint and fun to browse. 

    It was good to hear from you Poppy.  I'm sorry about that darn hunch on your back.  The cramping sounds awful!  To answer your question, not everyone gets snow at Christmas time here in the states.  We don't get much here in the Pacific Northwest, usually one or two good snowfalls every winter.  We're actually expecting a snow storm tomorrow.  I'm looking forward to it, as I don't have to drive anywhere.  That's always a hassle.

    What a great story, Lisa!  Your hairdresser is great!  I can't believe he trimmed you up free of charge.  How nice that you'll finally be able to go to work wigless. 

    We didn't hear from dear Sue at all yesterday, did we?  I hope that means she finally went to BED after work and just crashed out.

    Take care, all.  I'm so grateful for all of you too.  I feel like I have a wonderful, new extended family.  Each and every one of you is so special to me. 

    Much love and hugs,

    Karen

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Hello Everyone xxx

    I hope you are all OK .... xx

    Karen I am so pleased to hear about your treatment being better than before...I should imagine it is a huge relief....I hope you will bear up well the next weeks...and I am so happy your suffering is less ...xxx

    Awwww Poppy Poppy...lol....you are amazing!!! ......I couldn't wait to get in my car so I can well imagine how fed up you are...'big big hugs'  I think of you every day xxx I will certainly post the book on to whoever wants a good read ...thats a great idea...if it does the rounds you may not see it back for a good few months ..lol...xx

    I love you all xxxxx and all the places you speak of sound amazing!!
    Lets get a coach trip going lol   xx

    Well I had a day off yday...but I felt so out of sorts..just really down in my head because I was energless and just off colour....I decided not to post and whinge again...I am thinking you may find me a bind...xx

    I have been at work today 8-6pm....a long shift...and I felt rubbish...but I ignored it as it got me cross....it makes me mad that it has caused so much interference ...damn ugly nasty bootface.....

    Anyway I have another big worry now...and that is my other side...it is that painful I can't lie on it and it makes me feel sick with pain when I am working...there lumps there and they jusy do not feel like cysts ..... I did have a mammo in Sept and then insisted on MRI ...but I didn't have these symptoms.... I am scared witless in all reality and as time passes without the pain easing it is making me angry but only because it is frightening me....

    I will tell the docs next Tuesday...but I don't want any biopsy... I am so full of dread... COULD IT BE THE CHEMO OR THE ANTIDEPRESSANTS ...... I just don't know...but there is a sharp aching pain under my arm at times too....

    Has anybody had this with chemo or any meds

    Sorry to whinge..... what to do ...what to do....

    I have bald patches now....I am so sad

    Much Love xxx

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    and I am absolutley flaked out ...I will go and have a bath and see if I can do an examination....it is full of bumps

    First a cuppa ...lol

    xxx

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Just thinking while the kettles on...maybe it is all the meds...I mean chemo brings menopause on...so if it interferes with hormones then it could interfere with breast...oh my oh my I can not think straight....I make so many mistakes at work its a wonder I still got my job LOL xx  going for  a bath and watch another few hundred strands of hair drop xx

  • Lucy1234
    Lucy1234 Member Posts: 289
    edited November 2007

    Sue



    I'm not going to say try and stay positive but you know that cancer doesn't just come up in lumps just like that! Its prob just your hormones all over the place and you are also proberly prodding the hell out of them. I cant imagine antidepressants would do that but maybe the Chemo??????



    Go to the docs and tell him to put your mind at rest but leave it alone till then. You have enough aches and pains to worry about.





    LADIES -

    I have lent Sue a great book called Noodies at Noon. Its a great true story about 4 young ladies going though breast cancer treatment. Its really sad, funny and heart warming. I have told Sue to send it on to the ladies on this thread when she's done so if you are interested Pm her.



    Poppy

    XXXX

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Melody I live in Westhougton ...a little town about 8 miles from Bolton town centre..I work in Bolton right on the high street...Westhougton is in the Bolton district....I have been back for 2 years....I love the virtual tours...and the webcams of different places!

    I am going to google Leavenworth Karen...it sounds gorgeous...oh I wish I was a millionaire ...I would spend my whole life travelling...I love places and people!!!

    I will get up now ...... it is nearly 7pm...geez...why is time flying..I am sure its the drugs xxxx

    Towhee .... thankyou for popping in..you are a rock xxx

    I got an xmas card off of gb yesterday!! It was posted from Australia on NOV 26 and I recieved it on NOV 29 ...hows that for speed...xx I hope she is having a lovely time in Canada  xx

    xxxx

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    LOL Poppy...prod prod...it is more than anything my hormones..I mean all my periods are messed up for the first time in my entire life....oooooooooohhhhhhhhhhhh makes me MAD MAD MAD MAD!!!

    I am so happy to see you xxxx

    I will get up now ...lol...I am disgraceful xx

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited November 2007

    Poppy, about your question concerning snow at Christmas. I live in the foothills of North Carolina. They will be making snow by Christmas at the ski resorts (as soon as it gets cold enough) 20 miles up the mountain from where I live and occasionally they get the real thing at Christmas. We usually don't get any snow until sometimes in Jan and then only an inch or two that melts the next day. But right now they are predicting a dry winter until Feb. Not good considering we are at stage 5 drought (17+ inches behind in rain fall for the year).

    Sue, you are not disgraceful. It is the drugs making you feel so bad right now. You can make it through this treatment to get rid of this bootface.

    Sheila

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Sheila...hello xxxxxxxxxxxx I hope you are OK XX

    Oh Lord...I have prodded too much..but I have seen a new horror...My scar is very neat and pretty...and believe it or not on one side of the coin brings me immense warmth...as I will always remember the lady surgeon how checked on me the night when I was coming round...in my eyes it was quite a scene as she sat in the lamp light holding my hand telling me I had 14 lymph nodes...anyway I digress againn!!!  because on my scar tonight that wasn't there last night...is a tiny couple of mms sized bubble...which I thought was white but is a little green...right in the area where the lump was....I have no feeling there ...please help...I am going to google recurrance....

    SORRY SORRY ...but I have to say what I see.....reminds me of a game show....say what you see....oh Poppy if you're still around what was that game show called...was it catchphrase!!

    See you soon..I am off to google Cry  I think I will die next year...I am horrified

  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Sorry if I am being terrible....I don't feel like I should be posting ...you are all so very strong....I feel like I will never get better..and it is so out of my control...  sorry so much girls,you mean the world to me xxx

  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    Sue - AUNTIE EM SAYS "KNOCK IT OFF"!!!!!!!

    I agree with Poppy - those blasted hormones of yours are going crazy.  They just don't know what to do wth themselves.  Don't let it ruin your weekend.  Just make sure you have it checked on Tuesday.  Have a cuppa & a hot bath and STOP googling!!!  LOL.

    Love you girl,

    Auntie Em

    Poppy/Sue - I would love to read the book.  If its not to expensive can you send it to me snail mail???

  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    By the way Poppy we usually don't get snow here in NJ on Christmas either.  Our snowfalls usually occur in January/February. We get several small storms and and most times one big one - last year we had a 2 footer!!! However,  I did hear them say on the radio today that they are expecting snow this Sunday.  That is very unusual for NJ.

    Valerie

  • Ulla
    Ulla Member Posts: 840
    edited November 2007

    dear sue ..plztake care of urself ,,i feel u ,,i can feel ur fears and worries as i have he same  when it is the period time to mess all my hormones,,i have my wound swollowed and red in such time i thought it is infection but it was just my hormones ,,,i even have swollowed upper arm and under arm ..painfull,tender ,,,whatever type of pain that u can or cant imagine even in my back of the shoulder ...in my other side i have another issue,the god damn port ,,it became a painfull nightmere in those times just becoz my other breast sems to dael with double quantity of hormones (for the lost breast)laughing....plz stop googling anything,,u will just get hurt..i couldne sleep yeasterday at all though  took my sleeeping pills it seems that they r not working..i doubled the dose today lets see if i can sleep..plz take a warm bath,,with aromatic candles,,have a good cuppa,,,take double of ur sleeping and antidepressent pills and just go to bed,,,we will meet in her next year and u will beat that beast,,i can feel it,,trust my feelings,,,,

    i couldnt understand wat u said about the 14 lyphnode it is not saying that in ur dx...or did i missunderstood  u????

    love u more than u can imagine,,plz take good crae of urself and never hesitate to post again and again,,i am so very awake after i took my pills ,,,,strange huh???laugh at that beast while u r beating it so hard...u will defet it.....

  • Ulla
    Ulla Member Posts: 840
    edited November 2007

    sue ???honey are u there??post anything u feel u want to say...i am here for u ...

    by the way ..i started to use those stickers on my wound/scar do u have them ??they r amzing...controlling the scar shape and keep it clean and keep it covered ,,so u cant feel it everytime u look at it..the stickers name is MEPIFORM try to have them ,,they are really wonderfull,,they saved me of my obsession about the wound and the scar,,,i allow u to google such things only ..they keep u look forward when these bad days will be just a bad dream,,,hugs and kisses from sweden

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