please help

GB



I dont know if they do that in the Uk?

Ill ask though

Here I am ladies! Hi Sue! And just to let you all know , you're not having chemo brain or anything else when it comes to my avatar , I didn't have one before , it just said honeygirl. Sue , I'm puzzled about the hair. I can't imagine it getting thin but none falling out. Run your hands through your hair and see if it comes out. When mine started falling out , it was everywhere , couch , pillow , brush , drain , everywhere! Well , I'm sure you are fast asleep by now. I think it is midnight there and I know you have to work tomorrow. I hope you have a great day Sue. Good luck with the counting. Hugs and much love to you and your boys.xxx

Hey lisa! Glad to see you ran today. You will be in the zone before you know it. I love your avatar. What a little sweetie.

gb , fishing! I just love fishing. I haven't been in alot of years. But my S/O just bought us some fishing poles. So hopefully this spring we will be fishing! I really just like the sport. I throw them back. And how exciting for your sons. You must be so proud of them.

Hang in there Poppy. Time is the key to recon. healing. I had drains in for a while for the fluid. Did you have any drains? I would ask your doc if there is anything they can do for you.

Hello to everyone else , and I hope you all had a peaceful , healing weekend. xxxx Melody

Rats! I went to the Christmas card list and I am too late to get on it. I would love to send a few more cards so if anyone would like to pm me their snailmail address I will try to send you a card. I say "try" because I am going to Canada in a few days and I am running around like a chook with its head cut off trying to pack, pay bills, and collect my scattered thoughts. I will post the cards before I leave.

Hugs everyone!

gb 

Ulla, I had 3 FEC and 3 taxotere.  It wasn't pleasant, but I found my hair coming back during taxotere.  The first taxotere was the lowest I got and with the second I was definitely on the way "up" before Christmas last year.  I then did 25 rads which started in Feb and finished at the beginning of March.  Like you I felt that the end would never come, but it does and when I look back now it seems like it was all over in a flash.  My thoughts are with you for what seems such an uphill struggle, but one step at a time - don't keep looking at how high the mountain is, just plod on to the next camp and one day the end has snuck up on you!

Much love

Valerie S

Oh dear sweet Sue, you are truly a riot, I am going to take this whole thread and write a book! "How Sue's dear friends SHOVED precious Sue through treatment and back to good health!" Now there is a title! I know about the work. It was better for me, too. I just worried at home. When you are at work, you can only think about that, and that is good.



We ALL hate this danged disease, after a lifetime of walking into the docs with a sore throat, and maybe a sore back, getting well in 6 days, we are all spoiled rotten.



I will tell you a story about my last boss. She had a daughter, her 3rd and last child. One day, as we all know the "period" started. This girl was extremely athletic, all sports, and very much the Tom Boy. Well, Dotti was sympathetic, Katie was wailing about what a mess it all was, they went to the drug store, got her all the the stuff and on the way home in the car, Dotti starts to talk to her about different things, accidents at school, first few days, the whole nine yards and Katie literally leaped off the car seat and shouted, "What? You mean this happens every month! I thought it was just once!!!!!.



This is absolutely true! And Dotti and I have laughed about this for all the years since. Poor Katie thought the period happened just once in your life and that was it.



Anyway, that is my laugh for the day, to take your mind off of bootface.



Remember, honey, one step at a time, one day at a time. You will make it and we will all meet at Hyde Park and have a picnic and a hug fest!



Love you, Shirl

My poor 15 year old.... he reluctantly rubbed my bald head after I had a buzz but he couldn't help himself - he said ohhh it is so soft... and was pleasantly surprised. About 3 weeks later I was talking to him about just school stuff.. and said, now when my hair grows back it might be different; curly, white, thin, thick.. I dunno.

He gave me this look first of shock, then of relief and then he grinned from ear to ear... and said.. "OHHHH mommy (first time he has called me mommy since he was like 6) It's going to grow back?

  Then it was my turn for shock - poor kid, talked about all this stuff coming off me, body parts, hair, white cells - neglected to tell him my hair would GROW BACK.

Both my boys internalize so I try to be as up front and open about anything so that I can open the doors for them to feel free to discuss these things with me - fears, worries, excitements, challenges and all this time this poor kid, is thinking I am going to be bald and sick forever.... We haven't talked in great depth about the dying thing yet, because we don't know prognosis really - but I am going to have to be very vey careful when we do. We briefly touched on it, but I told them both not to dwell there and they seem to be okay about that, but I really wonder what their minds are up to - it's hard eh? But they seem interested and fairly upbeat (16 and 20) and have grown accustomed to my overly high forehead.. *Grin*...

Sweet dreams to those sleeping, sweet moments to those awake.

Karyll

Hi Karyll , thanks for sharing with us about your sons. Oh , I am soooo glad I have a son , except for the fact , with him , it is like pulling teeth to get him to talk about things at times. Being a "girl" , and being with my nieces as they were growing up , us girls talk about everything. Boys on the other hand... He did ask me about my prognosis , just before my surgery. And was anxious to hear my path report after my surgery. So I make it a point to tell him things instead of waiting for him to ask. And that seems to open him up a little. Yea , I think they are ok with stuff like "bald mom" because they love us no matter what! But sometimes I wonder to what he is thinkin'. Hugs to you and your boys.xxxx Melody

I'm so sorry that the hair thing has you so upset, Sue.  I've never liked my hair, so losing it wasn't a huge, traumatic thing.  You have nice hair, so of course you're feeling more of a loss.  When I was at the point where you are, my scalp hurt so badly.  It was a relief to have it shaved off.  I guarantee that you'll feel better if you do the same.  Having it fall out by the handfuls is such a nasty mess.  I'm with Shirlann.  Take the control back and whack it off!!

Your boys sound so sweet.  My Chase is such a loveable little guy.  My daughter just never was as sweet or affectionate.  She's her daddy's girl.  Now she get jealous when her brother crawls on my lap and snuggles with me.  She actually tries to do the same thing---but she almost weighs as much as I do!  Ouch!!!  And she has a boney behind!!  

Take care, Sue!  You'll get through this.  Your hair will come back in even more beautiful.

Love and hugs,

Karen