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  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    Or did you mean anyone who wasn't on that list?

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Have a good night sleep miss Sue!!

    Melody and everyone else...enjoy the rest of your Sat. nt.  I will be going home shortly...to most likely an empty house...I am sure my 2 daughters will be out...just me and my little yorkie!! haha

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Yes Mel everyone that isn't on the list lololol...I don't want to trawl thru the list and check I gotten everyone xxxxx

    Lisa give your lovely Yorkie a cuddle...and remember you are alone in your house...but you are not lonely as you have us in your life...thinking about you xxx

    Sweetdreams... Much Love xxxx

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    christmas card list?? oh well....I quit sending cards out 5 yrs back...had to cut expenses.  But I would send a few to my ladies!

    yes...Sue...I am not lonely...Ill be fine...I know my dog loves me! lol

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  • Ulla
    Ulla Member Posts: 840
    edited November 2007

    laughing at uncle fester look..com on ladies we r so beautifull to look like him..it made me laugh to imagine us like that,,,,do u know wat i started to do since tow days ,,i started to go out without the wig,,

    bald head,,feminan KOJAK,,laughing so crazy now,,today with my husband in the resturant when i just started to have my pizza my head cover moved slightly which realy bothered me ,,i felt ungery suddenly and it took me a second to take it of my head with the wig in the middle of the restaurant,,,we were sitting among about ten tabels filled with ppl,who started to look at me ,i looked back in the eyes of everyone had a look at my side and it took about minutes to make it normal bak in the restaurant ,,,i went bak with my bald head and i felt better,,i am intending to go to the school in monday bald too..i just feel so rebiliouse(sorry for the spelling mistakes ,,i am playing awful these days ,,i forget how to write in the right way and i mix the swedish with the english sometimes,,anyway we call the swedish language here as -swenglish language-)love u all sisters ,,,and yes sweet sue the time difference is just as u said ,,1 hour only,,by the way ..i have my sister and her husband and lil girl in UK,,she is in NORFOLK..I AM NOT SURE ABOUT THE SPELLING HERE TOO...GOD I HATE THAT ,,I JUST FORGET HOW THE WORDS CAN BE WRITTEN ,,,THIS IS KEEP HAPENING TO ME SINCE I STARTED THE CHEMO,,

    KISSES AND HUGGS 

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited November 2007

    Oh Sue, lovey, you are still awake! I seem to get in here to post just about the time you are asleep.



    I had another idea that has worked for some of the women. I don't know what Subway has available, but some companies here let other employees "donate" one or two of their sick days to someone like you, who might need them. I don't know if this will work, but might be worth a try. Then, if you need to stay home, you will still get paid.



    Now, how are you feeling? Stupid question for a person on chemo. Never feel quite "right". But the days are going by and every day past is one day closer to DONE WITH YOUR BOOTFACE!!!!!



    I love you, honey, Shirlann

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited November 2007

    Ulla! You go girl!!LaughingSmileCool You are soooo beautiful , I'm sure you were stunning when you took off your wig. My girlfriends talked me into not wearing my scarf one day , and I haven't wore it since. I wish I had the nerve to do it when I was bald. I salute you dear Ulla! You go to school Monday , and hold your head up high. We will all be right there with you!xxxx Melody

    Hi Shirlann!

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  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    I have just been catching up with all your posts - you wonderful, crazy women! I LOVED reading them all and I was giggling. It was more like a chat room than a forum! All that laughter - if you are in danger of wetting yourself it has to be a very good quality laugh! So GOOD for you!

    I love reading everyones' posts - little snippets of life in far away places and yet we all live on a small planet and have such similar feelings about so many things.

    Ulla - there is so much life and energy in your posts - I love it when you drop in a Swedish word or two! Your links to those websites sound really interesting - must read them when I get a chance.

    Went fishing this morning with 2 of my sons. (Well, I watched and felt a bit sorry for the fish!) It was so much fun though and lots of laughter. They are leaving in about 3 weeks on a round the world holiday, the bulk of it being spent in the UK, working. I will miss them so much but I am so excited for them. 

    The Christmas card thing is such a lovely idea Sue! Where is this Christmas mailing list? On these boards? I will try to pm you Sue.

    We Australians are a funny lot. All our shopping centres and malls are decked out in raindeer, fake snow and figurines of rugged up people singing  carols - and yet most of us are sweltering in the summer heat! It's even funnier when we cook hot roasts, plum puddings and all the rest of the traditional Christmas fare - it makes our kitchens into saunas! A lot of us do have cool foods on Christmas day though - salads, pavlova, and icecream cakes. The beach or a pool is the best way to cool off after a big Christmas lunch. 

    And yet, I just love the idea of a snowy white Christmas so you can really enjoy all the traditional trimmings! Last year it snowed around Melbourne and parts of Tasmania over Christmas and it was quite cool even where I live - such a refreshing change.

    Enjoy your day off Sue - I hope you spend it in a disgustingly lazy way!

    Love to all,

    gb 

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  • Ulla
    Ulla Member Posts: 840
    edited November 2007

    oh dear gb..it is nice that someone here finds it funny to read all my spellings mistakes,,believe me i never been bad in speling like i am now,,,this really started with me with the chemo thing,,i just feel that i forget how to write the words in the right way ,,it feels like that i saw the words for the first time ,,do any of u ladies feel the same ??it is very bothering thing,,i feel sometimesw thaty my brain turns to be blank,,empty for few seconds,,

    oh,,seems that i am the only one having this problem,,

    dear sue i hope u feel good today...

    thanks for asking about my adress and here is it ..

    Ulla Hamsa 

    Hedbovagen 8C 

    511 63 SKENE

    SWEDEN 

    dear sue  (plz u must put 2 dots above the a  in vagen)i dont have swedish letters in my laptop...thats the only letter that u need to put 2 dots above it...

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  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Ulla - hugs to you. You are a darling. I am sorry you are going through this but so glad that you joined us all here.

    gb 

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  • livesstrong
    livesstrong Member Posts: 1,799
    edited November 2007

    OMG!!!!  You ladies are UNBELIEVABLE!!!  I miss one day posting here and I had 4 pages to read!!! From what I've read, looks like Auntie Em is going to have to keep her eye out on the liquor cabinet!!!  LOL.

    The Uncle Fester analogy was HYSTERICAL!!  I loved that show.

    I looked more like Howie Mandell - with glasses!!

    It was nice to see you ladies laughing and joking.  See, it can be done!!

    Love & Hugs,

    Valerie

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  • Lucy1234
    Lucy1234 Member Posts: 289
    edited November 2007

    Hi all

    How you doing Suzie? (this is your name now Sue) LOL

    I have a back like a hot water bottle that feels like its going to split any second! Gross!

    My Titty are starting to stick out to the sides???? Im trying to push them into the right place but they are rock hard!!!! like barbie boobs!

    Im am now offically a freak!

    Suzie can you pm me with your address and I will send that book, I must say it gets a bit sad at the end and its not a happy ending for all of them, but it is VERY funny, true and heart walming. So if you still want it let me know.

    Ulla- I love Swedish people, we went to Greece and met a bit group of Swedish people they were out partying until 4am! they were older than my parents!

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  • Lucy1234
    Lucy1234 Member Posts: 289
    edited November 2007

    ow ow ow Dont forget all those in the UK. Kylie Minogue thingy on Channel 4 at 8pm tonight. Shows her going though cancer treatment.

    Might be worth watchin


    XXXXXXXXXX

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Poppy Laughing

    I am always so pleased to see you xxx

    My goodness I would give anything to look like barbie hahaha.... I am all mutilated ..... thank god it looks quite pretty and neat....OH damn.... I never give myself long enough to dwell looking... to wonder what I truly feel like.... but when I see my scar the first thing I think of is 'that saved my life' and of the surgeon who paid me an extra visit the night after.....and how kind she was.....

    Poppy.....I bet you will look fab in a few weeks...patience!!  LOL.... I am so inspired by you ..... The little picture of your dog always warms me... xxx 

    You only came out of hospital just over a week ago....and you had loads more done than me!! You're great!

    Thankyou so much for the Kylie Programme ...I am so looking forward to watching that now.... xxx

    Much Love Suzie xxx   hahaha

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Hello Everyone!!  xxx

    I hope you are all well XXX

    Today I am feeling OK....I have been shopping at Asda for all the vegetables...again....for the third day on the run around about lunchtime I had a weird half hour and it happened in Asda...I just went crazy and couldn't stop laughing and grating my teeth and talking loudly....my O/H was scared ...LOL....do you think its them steroids  .....

     Anyway I went to another shop and bought a couple of hats....I had nightmares about Uncle Fester last night...lol....

    My hair has always been lovely and thick...well at times I wished for thinner hair! My hair is still long but noticebally a LOT thinner....I haven't really seen any fall out...so where has it gone!!! Why is my hair thinner if it hasn't dropped out.... How strange!!

    I am not looking forward to having no hair...I will be rushing it to grow back quick and I know I will be impatient...I might look for some special ointment to throw on my head and get it to speed up!! Good grief it hasn't even fallen out yet ...lol

    gb ...the christmas card list is on a thread on Time to Circle the Wagons board xxx... I will PM you my address now xxx

    Poppy I will PM you too...as I would love to read that book....especially after the rubbish I had read last night!!  Will you PM me your address please ....so I can return it...and of course send you a nice cheery xmas card....

    Right I am off for my third cuppa and then I will do some reading....

    Have a great morning/afternoon/evening my dear sisters xxx

    Much Love xxx

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Hello Ladies!!!!!!!!!!!!!

    I just got back from a 2 1/2 mile run.....felt good!!!!!!!!!!!

    Glad you all enjoyed our crazy conversation yesterday....we sure did laugh!

    Ulla....your problem with words and memory...I KNOW HOW U FEEL!!! I finished my chemo 8/29/07 and I am still struggling with that.  I hope in time it all goes away.

    Poppy....I hope you are feeling better, I am sorry your back is in such discomfort.  I can't wait to get my reconstruction!  Well...I am nervous about it.

    Good morning Miss Sue...enjoying your day off??

    Where is our Melody?

    xoxo

    Lisa

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Ulla ...thankyou for you address... xxxx  I am so glad you're still feeling better...we must get through the next treatment...xxx

    Do not worry about feeling forgetful...my mind has been going blank a good few times a day.... I cannot remember things or peoples names.... I usually have a real good memory.... you see....Melody has a picture of a piglet next to her name...for the past week since it has been changed I have been trying to remember for the life of me what was there before...

    I forgot everyones name at work too...so everything and everyone is called dooberry this and dooberry that.... LOL

    Keep Shining bright Ulla xxxxx

    Much Love xxx

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Hello Lisa xxxx

    I hope you are having a good day...my day off is nearly over Frown it is 5pm already!! I hate Monday mornings...it is stock take on a Monday...and I end up counting over and over...which could take all day tomorrow given the circumstances ...lol...and I have a full weeks work this week...no shirking at 3pm as I have rota myself on til 5pm for my 'good week'..  DAMN

    Ulla ...when is your next tx ..mine is Dec 4th....is it your 3rd next time xx

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Ulla and Sue....the memory is so fustrating!! I so relate to that!!

    Haha...I can't remember what Melody had before her piglet either!! oh my!

    Sue, it is too bad you don't have off 2 days in a row!!  Did you see what Shirlann wrote about sick days?? That would be great if your Subway did that.  Does your Subway make the small pizza's?  Our's at the airport does..they are very good actually.

    I see my oc tomorrow morning for blood work etc.  Hope it all goes well. 

    Sue...what are the two tx you are taking right now?  You spoke earlier about the talking and grating of teeth...I do think that is all steroids.  I was only on them before my tx's of taxotere..and I HATED THEM!!

    How long dear Sue has it been since your tx?  My hair fell out pretty rapidly by day 15, then I had my friend shave my head!

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Sue....please check your email...I sent you one!

    xoxo

    Lisa

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    Lisa....I wish you lived near me ...we could go running together!!!!  I would manage 400 yards and wait for you on the bench ...

    My treatment is epirubicin every 3 weeks...four times...I have done one and it is day 12/13

    Then I am having CMF for 16 weeks...2weeks in 2 weeks off...which I am NOT looking forward to!

    I am sure it is the steroids that make me nutty...do they stay for ages in the system... or maybe its the anti d's ..... the thing is I can't stop taking any of them to eliminate them lololol oh well xxx

    As for sick days and Subway.... I am not too sure if I have ever heard of this before...it seems a good scheme.... but I am store manager and there is no one to cover me save the owner....as there are no other managers....and we are too busy ... but he said he would pay me in full when I was sick..... so maybe I might go lenient with myself next treatment....

    xxx

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  • Karyll
    Karyll Member Posts: 235
    edited November 2007

    What memory? Thats what I want to know. ANd word salad... anyone mixing up words? I was trying to say "The sink is plugged" at least I can type it. I went to the maintenance guy and told him the plunk was sinked and every time I tried to clear it up it got worse... the slink in punked... the plink is sugged.. It just would not come out right.

    It was good giggles last night - thank you everyone!!! Watch that bladder (like you will ever be able to live THAT down).

    Signed (Bruce Willis in drag) Hey, if you get to see Live Free - Die Hard and like action movies - that's a good one, a bit farfetched but good nonetheless.

    Karyll

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Thanks Karyll!....aka Bruce!!

    I just saw a feel good movie...out at the theaters...went with the girls on Friday while they were home from school...the new Disney...Enchanted....very cute!! Lots of fun and laughs!

    Sue, if you went running with me....I would not let you rest on the bench! haha!

    You said your treatments...what is CMF?? Sorry...I am ignorant with all the abreviations!

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    LOL@ Karyll.... aka Bruce ..lololol....i wonder why the treatment affects our minds so much...

    Well Lisa....CMF ....is another chemo....I can't for the life of me remember what it stands for.... and I am too fatigued to get the paperwork out.. LOL..... I think it is similar to FEC ...but then again I don't know what that is either...

    I just sent you an email!

    Well I am going to make a coffee and have a look at what the Kylie programme is about tonight..... Please all behave whilst I am AWOL

    Much Love xxx

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  • sueps
    sueps Member Posts: 2,266
    edited November 2007

    WHERE IS MY HAIR GOING IF IT ISN'T FALLING OUT BUT IS GETTING AWFULLY THIN!

    Please may someone answer my predicament as it is really puzzling my head....and my head is too puzzled to be anymore puzzled lately xxx

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    It's not in your brush Sue?? How about going down the drain in the shower??  I could tell when mine was coming out.  Then I could not stand it anymore...and buzz it went!

    Enjoy the rest of your evening...it is only 1pm here in Ohio!!  Cold today...but sunny!

    They talk about the chemo brain...and not sure if it is scientific..but I know it's real!! haha.

    I sent you another email as well!

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  • Karyll
    Karyll Member Posts: 235
    edited November 2007

    AHA - google is amazing

    CMF is named after the initials of the chemotherapy drugs involved, which are cyclophosphamide (pronounced sigh-clo-fos-fa-mide), methotrexate (me-tho-trex-ate) and fluorouracil (floo-ro-you-ro-sill, which is also known as 5FU).

    I am having the FEC which is the same F and the same C but the E is epirubicin.

    Here is a note too: -

    Hair loss Complete hair loss is rare with CMF chemotherapy, but you may notice that your hair becomes a little thinner. If you experience any hair loss it is temporary and your hair will start to grow again once the treatment has finished.

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  • my3girls
    my3girls Member Posts: 3,766
    edited November 2007

    Wow...thanks Karyll!!...There you go Sue!! See...you may not loose your hair at all!! Lucky you!!

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  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Sue, I sent you a pm last night. I can't remember what Melody's previous avatar was either! And I'm not having chemo - that's a bit of a worry!

    The plunk was sinked! Lol! I love spoonerisms!

    Hugs,

    gb 

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  • geebung
    geebung Member Posts: 1,851
    edited November 2007

    Poppy, I am so sorry you have so much lymph build up on your back. Could you maybe ring a lymph specialist and ask them if they can do anything to help you? As I haven't had a recon I don't know what the treatment for excess lymph is after such surgery.

    hugs,

    gb 

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