Starting Chemo in May 07

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  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    No apologies...if we can't talk about our fears here, where *can* we talk about them? I'm struggling with a little depression, perhaps because I'm triple negative and there's no more treatment available for me after chemo.

    And I've been through this before in 2005, and got diagnosed with a second primary just 15 months after finishing chemo after my first mastectomy. In the back of my mind, I wonder if I have another 15 to 18 months before I get cancer somewhere else.

    It's so hard to walk on this tightrope, balancing between hope and fear. I want to be realistic, but I don't want to despair. I'm trying to aim for peace and acceptance, but it's really difficult some days.

    CindyKS, I'm so sorry to hear your news. Are they sure your spots are mets? Forgive me if I've garbled your circumstances in my mind, but I seem to remember that finances are a problem for you.

    If you *do* have mets, that makes you Stage 4 and I've heard that you can be approved for Social Security disability payments very quickly. I don't know if that's an option for you or not. Or if it would be very helpful. At least you wouldn't have to worry about getting to work when you're not feeling well.

    The girls on the Recurrence/Mets board may have better info on that. Know that I'm thinking about you and I'm hoping for the best.

    --CindyMN

  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    HI all thanks for the great words of encouragement.

    The spots showed up on the PET scan so they are reasonably sure they are cancer.  They also showed up on the CT scan I had after I found the lump and before I switched docs.  The old onc never said anything about them to me.  I read the report myself (from the old onc).  I'm so glad I changed docs.  I need to find out my staging.  I never really figured all that out last time.

    I have medicaid insurance right now.  Kansas has a special program for breast and cervical cancer patients.  I'm just glad I qualified for it.  It's the rest of the living expenses I worry about.  I will check out the disability payments. 

    I didn't mean for anyone to think that I thought I was not a 100% strong woman.  The 25% thing was just a joke cause we have lost a boob, the ovaries, and the uterus, so with only one boob left we only have 25% of our female parts left.

    Cindy- you cracked me up with all your cussing.  So much so that my son came to see what I was laughing about.  And believe me I have done a bunch of cussing myself.

    I think in the back of my mind I always worried about getting cancer or wondered if I would.  Didn't know if I had a family history or not.  My mom was adopted but her birthmom has said there is not cancer in her family.  Dont know about her father or his family.   On my dads side of the family we are not sure if my grandma had breast cancer or something else and then (confusing part) its either my gma's mother or sister, (back then they didnt talk about unwed mothers).  Anyway she had a hysterectomy and radiation but again we dont know why.  This was many many many years ago and anyone that would know is now gone.

    I'm going to do the genetics testing, so at least my daughter and sons can be aware of their risks.

    I'm doing my best to stay positive.   People have questions and my support group has grown alot since the last time.  It's hard to answer some questions and I want to cry alot.  I'm getting good at fighting the tears.  But I dont fight them all the time.

    My mom is having a hard time dealing with the news.  We need to check into a support group for family of survivors.  She really needs someone to talk to.  She has always been the shoulder people come to.  Not sure if she feels comfortable talking about her problems or not.  I do know she is good at sending emails.  My step brother replied to her and myself about an email mom had sent.  She told all that was going on.  But that is how she copes and she sent it to people who care.

    I'll continue to update when I have more news.

    Sorry this turned out to be so long.  Seems we are all good at writing books.

    Have a good evening and weekend.  Mine is gonna be busy so not sure when I will be back on but definately Monday night to update what I have found out.

    Big Hugs to all,

    CindyKS

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Evening everyone,

    We're a quiet bunch tonight.  I've still got you foremost in my mind CindyKS and hoping you're coping well.  I believe you have surgery early next week?  Please keep us posted on how you're doing.

    I think the Tamoxifen is kicking in because I have been a real "B" today!  My anger level can go through the roof with pretty much no notice and over not very important stuff!  I came home and got a notice in the mail from the cancer clinic and thought "Oh good - I think this means I will start rads on Tuesday (as opposed to next Monday the 19th) which was the two dates my doc gave me...well, I start treatment on November 30th!!!Frown  I wont' be done my rads until January 15th!!!  I promptly called the clinic but they were closed since it was after 5pm.  I am planning to call first thing Tuesday morning and see if I can get in sooner.  This bites!  If they can't get me in sooner, then I will have to reschedule my gall bladder surgery for later and that ultimatley means delaying my Mexico trip - yet again!Yell  I'm sorry for being so grumpy and whiney...I definitely know this isn't that big a deal in the scheme of things but **&%* I'm tired of waiting and giving more time and energy to this disease.  I normally do not have this attitude...this really isn't like me.  I've been told that our body usually takes about a week or two to adapt to the hormone issues that Tamoxifen brings.  I haven't had any hot flashes yet - you ladies on this drug already - what are your SE's and when did they start?  So far all I've had is an upset tummy (a little) and some gall bladder pain and of course emotional/bitchiness but that's it.

    I hope you all are having a good evening and find yourselves in better spirits than I am in...hope you all are well!

    Take care,

    Mandy

  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Hey CindyKS - with medicaid insurance I think you'd qualify for grants - maybe?  Here's info on the help I got, with links about where to apply if you're interested.  And I wonder if Sensational in Survival has funding again?

    Mandy, I've had a heck-of-a-time with tamoxifen during rads, and am taking a small holiday from it (against my onc's advice, it feels weird to be noncompliant, I don't usually do that). I hope things go a lot better for you than they did for me!

    Also, at my rads clinic they're super flexible - I almost never show up on time Embarassedand they still fit me in. Sometimes I have to wait a little, but it's not a big deal.  Anyways, my point is - seems like they'd be able to fit you in sooner than the 30th.  Sheesh.  Or is turkey-day throwing it all off?

    Hugs to all,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Amanda,

    I am so pissed about this delay in starting treatment.  Our Thanksgiving was in October so that doesn't affect anything.  The problem is that our cancer centre is so darned busy and it's the only one in the city.  They treat 1000 people per day there and so I guess it's a logistics issue, but man - my docotor told me we'd start in 3 to 4 weeks when I met with him - which would have been either the 13th or the 19th (the 12th is a holiday) so why I wasn't booked when I met with him in October is beyond me.  I fear that all the spots are now booked so I may have no choice in the matter - especially since it's 6 weeks worth of appointments - not just one that they can squeeze me in for.  Our city has seen such a boom and population growth in such a short period of time - nothing can keep up!  We have a severe housing shortage, we have a shortage of workers in every area - so much so, that we bring in plane loads of Mexican workers and provide them with living expenses, all of our roads are under repair and construction makes driving anywhere challenging - we have so much money right now due to the oil industry but non profits are struggling because we can't compete with the wages offered in the private sector and have a heckuva time keeping staff...sigh.  I REALLY hope I can get in sooner but it's hard to complain when I know there may be people with a more urgent need than myself to getting these treatments.  I'll keep my fingers crossed but if they say "sorry" I have no other option as they are the only ones that do rads in my area (unless I want to drive 3 hours one way to the next large city - where they have the same problems!!)

    I got up this morning thinking I feel much better today but after my verbal diarrhea on this topic, apparently I am still on a bit of a rant!  I guess I'm just tired of the delays.  You guys are all done your treatments and I'm looking at next year to be done!  Oh well....patience, patience patience!

    Mandy

  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    CindyKS, I searched for "disability" on the recurrence and mets board and found this thread. It has phone numbers and everything. I hope it will help you. I'm thinking about you and holding you in my heart.  --CindyMN

    http://community.breastcancer.org/topic/8/conversation/424992

  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    Heck, I don't think that link works. I'll just cut and paste the pertinent info. Also, it looks like your children are eligible to receive benefits if they are under 18. The Social Security office would know for sure. I also read that they can expedite SS benefits for Stage IV women, so you don't have to wait so long. --CindyMN

    Here's info from that thread, posted by Mena on 19 Sep 2006:

    FYI, anyone dx'd Stage IV automatically qualifies for SSD (Social Security Disability). The number to call is 1-800-772-1213. Of course, you will have had to work some time during your life to claim these benefits, as far as I know.

    Also, it doesn't mean you have to stop working! You can earn up to $880 a month and still get your full, yes FULL, benefit amount. This is Federal law.

    All us Stage IV's know that some days are great and some just plain suck...some days we feel invincible and some days we want to sleep all day...this is why SSD helps. We can still work! And we can rest when we need to...

    You can even apply online at www.socialsecurity.gov. Everyone's benefit amount differs, depending on the incomes they've had during their lifetime...

  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Mandy - aargh. that delay is just so frustrating.  OTOH (on the other hand) i pushed my rads start date out to 8 weeks just because I know that I needed more chemo-recovery time.  I think the recommended start was 6 weeks...

    hope things go better!

    CindyMN, it's so reassuring to know about the SSD info. AND the fact that one can still keep working.  My SSD + $880/month would cover my living expenses...and boy is that a huge load off my mind just in case i ever have to cross that bridge.  

  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    I know. When I first heard Stage IV women were eligible, it was a big load off my mind, too. I'm the sole breadwinner right now (hubby's in school) and I was really freaking myself out thinking about all the "what ifs." SSD gives us a little safety net.

    --CindyMN

  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    CindyMN - though one thing to note is that there is a 6 month waiting period that you don't get benefits for.  And in which if you work to earn more than $900/month then as I read it you wouldn't be considered disabled?  See here.  It looks like w/ mets that the application can be fast-tracked, which is good - some SSD (SSI?) apps look like they can take years.

    So, for those six months you'd have to have another source of income such as short-term disability ins. through an employer (or long term disability insurance? not sure how that works), or savings or investments or some such.  Or at least that's my first, totally uninformed take on it.

  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    I've heard that some Stage IV women got their start dates for benefits quicker than six months. But I could be wrong about that. I've also heard that some women, even though they're Stage IV, have had trouble getting signed up, etc., even though they're supposed to be automatically qualified. I think it depends on who's helping you at the SS office. (Someone nice or someone mean...)

    --CindyMN

  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    Thanks for the wonderful information about SSD and SSI.  When I get my exact staging and all that information I will definately check it out.  Anything would help at this point.

    I go to the OBGYN tomorrow and will find out when my surgery will be.  I'll post and let you know and also any new information I find out.

    CindyKS

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited November 2007

    Hey girls,

    CindyKS...I was thinking about you all weekend. Thanks for the link to your blog. I wil go there as soon as I finish my book.

    I think we should all stop apologizing for the books we write. After all, we all come her to read and to find distraction right? I know that I love reading what you guys write.

    So, here's my short book.....

    I've spent my weekend, starting Friday at 1:00 PM helping my siblings renovate my mom's house while she is in CA visiting her sister and then today, she went to Vegas for a week to see a friend.

    My sister Kristi (the only sister I have that hasn't had cancer) went over board....we (she) ripped out my mom's kitchen and bathroom and ripped up all the carpet, in the entire house. My mom's house was really old and needed alot of help but.......my sis got a new job with Home Depot designing kitchens and guess what? She has to work every day in training from Sat (yesterday) until Friday, the day my mom gets home. So.......she leaves this long list for us to do while she's in training from 8-5 when she was the one that was going to do most of the work. And....it's football season!!! Hello! So anyway, I went over Friday at like 1:00, worked like a maniac until 2:00 AM..., spent the nite at my  bro's house who lives 5 minutes from my mom's (I live 30 minutes from her) then spent ALL DAY LONG Saturday busting my ass (Cindy made it o.k. for us to cuss) and finally got home Sat nite at like 11:00. I filled my tub with hot water, soaked for 45 minutes and then fell asleep in like 1 minute. Mind you, I had a hysterectomy a little over a week ago......

    I feel good about it though. My mom's house looks so much better. We did new kitchen cabinets, counter tops, new wood floors (not done yet), painted every wall.....(not done yet)...I say did... we aren't done yet. My sister told me to take a break while she and her friends did the floor. So, I get tomorrow and Tuesday off and then I have to go back and put all my mom's stuff back together. Thank God........we've have beautiful weather and no rain.....at all....cuz her bed and EVERYTHING else she owns is out in the Florida room which is a screened in area...

    Anyway, blah, blah, blah.....my hands hurt, my feet hurt....I'm beat. But, it will be nice to see my mom, see her new place. That, will make it all worth while.

    Amanda, that sucks about the study you went into. I can only imagine how heavy that weighs on you.....

    CindyMN....I'm trip neg too. It does suck knowing there is nothing for us to take to prevent recurrance. Mandy....I hope your SE from Tamoxifin subside quickly....I wish I was on it and, I do not mean that sarcastically.

    CindyKS .......................You put in a pic! How'd you do that??

    Mandy....refer to note to CindyMN....I know it's easy to say but, look...December is going to fly by.....you'll be done with your treatments before you know it. Thank goodness you're not going thru this in March when nothing is going on! You've got Thanksgiving, Christmas and New Years to keep you distracted!! I'm sorry about you having to delay your trip though. That does suck.

    I gotta crash girls.

    I love ya and Cindy......you are in our constant thoughts....

    Hugs, Traci

    ps....Not proof reading again..

  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited November 2007

    Traci- you are NUTS!  Dang, girl, do you have energy, or what!!

    I just called a landscaper to do my leaves...  I am not up for raking/blowing/schlepping leaves to the curb.  My left arm (infusion arm) still hurts, and I'm a lefty, so it won't work out so much for me!!

    Got my car back on Friday...  I feel like my car has a giant bullseye on it and all the crazies are out to get me.  I even honked like a crazy woman when someone started to pull out in traffic in front of me (that's how I got creamed the first time).  Then, when I got to the traffic light, some guy was giving me hand gestures like "calm down" --- In my Tamoxifen enduced rage, I flipped him the bird.  I was thinking in my head, "DUDE, you have NO idea........"  Dumbass... (Like Traci said, Cindy made swearing ok....)

    Traci- no comments RE my Giants?  They were in it the first half.  Romeo just out played Eli...  :O  Dale Jr finished dead last in the race.  His season was over 1/2 a season ago.

    CindyKS- still thinking of you...

    Liz, LeeAnne, et al...where are you guys??

    Thinking of everyone...

    Virginia

    ps.  I used some "Fudge" hair stuff today that a very dear friend of mine from the Netherlands gave me.  I spiked my hair straight up and laughed HYSTERICALLY b/c I looked like the Heat Miser....  I plucked a hair yesterday to measure it....1 1/4 inches!  WHOO HOO!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Virginia - one and a quarter inches long???????  I think mine may be 1/4 of an inch long - and only in some spots!  I'm jealous!  Your comment about "Heat Miser" really cracked me up!

    Traci - you are out of your mind!  You say I have too much energy - how on earth were you able to work that hard - both physically and for the amount of time just one week after major abdominal surgery?????  Taek care of your self, girlfriend!

    CindyKS - you're still in my thoughts.

    Have a good holiday Monday everyone!

    I'm off for a run, a romp in the hay (my kids both have school but hubby and I have the day off!!Wink) and a massage.  My kind of day!

    Mandy

  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited November 2007

    Mandy- LOL...enjoy your romp...  Tee hee. 

    Yes, I feel a little guilty saying how "long" my hair is...  I only had 4 AC chemo's...I didn't have the taxols...(which now scares me b/c they say those are effective against HER2+ cancer which is what I had).  Anyhow...my last chemo treatment was June 21, so 'til now is how long it's taken me to grow 1 1/4 inches of hair...  (I think I had a little head start on you ladies in the hair growth department....

    V

  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    OK, that makes me feel a little better. My dh says I might have a third of an inch of hair. I can pinch it and hold onto it now! What a milestone! LOL

    --CindyMN

  • lizzzy
    lizzzy Member Posts: 285
    edited November 2007

    Sorry I've been quiet for a few days.  My blood counts both dropped to all-time lows as I predicted since I had no procrit or neupogen after last treatment.  Could low blood counts be a self-fulfilling prophecy?  I am so tired I can't even walk the dog.  And I get out of breath going up stairs, which is where my computer is.

    Mandy, Sorry to hear about the se's from tamoxifen. I am not looking forward to this and hope it won't affect running.  Has it affected your exercise routine?  Energy level?  I am hoping my onc will let me recover from chemo before starting me on it.  I haven't run in over two months and I would like to be recovered enough to run before I have to start dealing with a new drug.  And I have my expanders out in December so I have another little bit of recovery before I can run again.  Keep us up to date on your se's, Ok?

    Traci, I can't believe what you did at your mom's.  I get tired walking from one room to the next right now. 

    CindyKS, Thinking about you.  What's the news?

    CindyMN, Good to hear from you.  Hope you're not feeling too depressed.  Where's your picture?  You're done with your taxol right?  How are you physically?

    Virginia,  I can't wait until my hair starts growing again.  I look terrible with my thin hair and it was starting to be so nice and lush.  You're on tamoxifen too?  What side effects are you having?  How long have you been on it?  

    Has anyone gotten peach fuzz on their face?  Mine got so thick that I decided to shave it off and now I have a permanent 5 o'clock shadow.  I don't know if it's from the chemo or the menopause.  Anyone have any ideas? 

  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited November 2007

    Hi Liz-

    Great to hear from you...  Glad you are FINISHED!  WHOO HOO!!  I laughed...my "chin hairs" were the first to grow back in.  So annoying.  I have just been plucking them away...

    I started my tamoxifen back in July when I started the Herceptin.  The se's were hot flashes (but not intense) in the beginning, but now they are gone.  Honestly, I don't think there are any side effects.  I was just kidding about the "tamoxifen enduced rage..."  I can be crabby on a good day, so I won't blame it on the tamoxifen.  It's like taking an aspirin every day.  I acclimated to it fairly well...

    Your hair will grow...  I am STILL impatient...and I don't have a right to be b/c I have had a head start on you ladies!!  Anyhow, that's why I take the pics every month to remind myself of my baldheadedness...

    I finally got high speed interent at home...phew...  (I was on dial up at home believe it or not...)

    More soon...thinking of all...

    VAK 

  • lizzzy
    lizzzy Member Posts: 285
    edited November 2007

    I just realized how funny that must have sounded:  I am complaining about too much hair on my face and not enough on my head!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2007

    Hi everyone,

    Actually other than me being a cow on Friday, I've had NO SE's from Tamoxifen and I am really worried about it!!!  I even posted a thread on the hormone board to ask how long it takes for SE's to set in!  The only one I want is hot flashes - apparently it's an indicator of whether or not you metabolize Tamoxifen and I read a study that said that hot flashes were the biggest predictor of survival and recurrence in hormone+ bc - even more accurate than stage or grade...so I really want those hot flashes!!!!!  I probably shouldn't put too much weight into yet anohter study but I'd sure be happy to be hot!

    Liz, it hasn't affected my energy whatsoever and I had the best run I've had since before chemo...so you'll get feeling better soon!

    I hope you are feeling way better really soon Liz.

    Talk to y'all later (there do I sound American??Smile)  or maybe I should stick to Canadian...Talk to you all later eh?

    Mandy

  • chemo072
    chemo072 Member Posts: 682
    edited June 2008

    Hi everyone!

    Liz - good to hear from you, I was thinking about you, wondering how you were doing.  Did you get a blood-cell boosting shot so that you can feel better? 

    re: peach fuzz - apparently it's a common thing post-chemo, and I just shaved mine off when it first appeared.  Most of it hasn't come back....I figure those fast-growing hair cells just went a little overboard in reaction to being off chemo and that they'll even out sooner or later.  The good sign for me is that hopefully the hair growth means that the fast-growing cells INSIDE my body, such as my stomach lining, are recovering as well.  That would be very very good.  My tummy's still not back to normal.  No spicy food for me yet.

    BTW - 3 months post chemo for me, and my CBC isn't quite back to normal yet - takes a while for those bone-marrow produced cells to get back on target.


    Any ways, hope you feel better!!

  • lizzzy
    lizzzy Member Posts: 285
    edited November 2007

    Mandy!  Good to hear you're having good runs.  That gives me hope that I'll be able to get back to my running.  Don't be too anxious for the hot flashes -- this is a whole new kind of hell.  That is interesting about that study. I'll have to ask my onc about that.  Do you have a link for that study?

    Amanda,  I took both neupogen and procrit when I got home today.  I hope they start working fast.  I'm glad to hear you had a similar fuzzy face experience.  I figured it was the post chemo hair growth but wasn't sure since I'm in chemo-pause as well.  I'm surprised your CBC is still abnormal though.  Were you taking procrit or neupogen or anything like it?

    I actually feel pretty good tonight.  It's just my body is tired when I try to move it.  But overall (and mentally) I feel much better than last week. 

  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited November 2007

    Hey all,

    I've been caught up in what feels a little more like "regular" life and haven't visited this board in a bit but I'm finally here to catch up.

    CindyKS, you are in my thoughts and prayers!

    Mandy, how much do I love the fact that you've been married for what, 18 years and you still get psyched for a "romp" with your dh!! You GO!!

    Traci, your energy level is amazing. You should be so proud of yourself! I bet your mom will be thrilled!


    Liz, thanks for the blog comment. If you go back and read my entries from August you'll find that I was exactly where you are now. Exhausted! My body was absolutely wiped out. I know how frustrating that feels, especially when your brain wants to do so much more than your body is capable of. Hang in there though. It does get better.

    Amanda, my onc was adamant about me having recovery time between rads and starting Tamoxifen. I have an entire month off! Once I start he said I have to give it a solid 2 months, no matter how bad it is (well he didn't say it quite like that, but that was the gist) and we'll check in in February. I'm really looking forward to having even MORE hot flashes... not... but I do know how important the drug is.

    Virginia, I soooo relate to being moody even on my GOOD days. Today my son asked me "I wonder if other drivers yell at you as much as you yell at them?" LOL!! I think we all have license right now to be as moody as we need to be. So there. 

    I've been having more good days than bad, more "regular" activity but it still wipes me out. I've yet to go back to work, but hopefully next week I'll attempt a few short days before the holiday. Mostly I've been just parenting, going to the grocery store, running my kids around, having a few dinners and/or lunches with girlfriends and REALLY enjoying my boyfriend when the kids are at their dad's house... Wink  Oh and hey, watching some football too!

    I think I've figured out how to put a photo on here. I had to put it in photobucket first, but here's my latest hair pic:It sure is a lot of grey, but hey, I'm not complaining. It's nice to feel a bit like my hair is intentional. And 2 1/2 months post-chemo I've finally got my eyelashes and eyebrows back. Sure took awhile!

    Hugs everyone,

    LeeAnne 

  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited November 2007

    I forgot to mention I, too, have the peach fuzz from hell growing on my face. I did a little web research and it appears to be the result of unopposed testosterone. Seems it might abate in a few months... or continue. I haven't quite figured it out. I did, however, pull out my little razor and remove it which probably was a little impulsive. Waxing might have been a better solution because I don't think the stubble is going to be the nicest thing... methinks I should have stayed away from the magnifying mirror!

    LeeAnne 

  • chumfry
    chumfry Member Posts: 642
    edited November 2007

    I've got long baby hair on my face, too. Same thing occurred after I finished my 2005 chemo. Happened to a bunch of us. You can shave it and it shouldn't reappear, or create stubble. I just shaved once, last time, and it took care of it. I haven't shaved yet this time because it hasn't gotten quite long enough to bother me. It's getting close, though!! I predict I'll shave sometime this next weekend. Embarassed

    --CindyMN

  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    Well crap.  Just lost a long post cause I was trying to figure out how I inserted the pic.  LOL

    I just copied and pasted it.  And it wont show the one I want to put in now.

    Anyway,  Traci- your doc prolly wouldn't like it if they new you were doing so much so soon.  But I guess as long as you stopped when you got tired you would be OK.

    My surgery is Tomorrow, Wednesday at 1pm.  They will remove the lump and do the hysterectomy at the same time.  There are 2 different doctors and to coordinate both surgeries and get everything done that I needed to get done in just a couple of days time shows me how amazing this new doctors group is.  They all work together and I really feel like a person instead of just a chemo patient.  They care about me and what I am going through.   With scheduling, I'm now having to drive an hour to hour and half each time, so they look at my schedule and try and make things on the same day so I'm not making so many trips.

    I'll post and let you all know how I am doing when I get home.  I was told to not take anything valuable with me to the hospital.  Last time I took my laptop but don't think I will this time.  HMMMM wonder if I should take my boob.  It's pretty valuable and you know breasts are a hot item this time of year with Thanksgiving coming up next week.  LOL (err have a great pic to go here but it wont insert)YellTurkey holding a sign that says "You only love us for our breasts"

    Thanks for the thoughts and prayers.

    CindyKS

  • ocinny414
    ocinny414 Member Posts: 123
    edited November 2007

    OOPS forgot to mention that I also have the hair on my face.  I was joking the other day that I have longer sideburns than Bo Duke ever did.  LOL.  Wish the hair on my head was blonde and as long as the face hair.  Its about 1/4 inch and grey.  But hey I got some.

    OK I'll let you know how it turns out tomorrow.

    Hugs,

    CindyKS

  • lizzzy
    lizzzy Member Posts: 285
    edited November 2007

    Cindy, So glad you can laugh and make jokes the night before your surgery.  They sure got you in fast!  I'll be thinking about you and hope you keep that sense of humor in the hospital.  You'll need it.  I'm sure you'll do great.  ARe they going to keep you in for a few days?  We'll be looking forward to hearing from you when you feel up to it.

  • Lorain
    Lorain Member Posts: 68
    edited November 2007

    Hi, all!  Traci...you are crazy!  I can't believe you felt good enough to do all that.  Weren't you just exhausted? 

    CindyKS...thinking of and praying for you, girl!  Since I'm from Nebraska and an educator I feel a connection...except you are much younger that I.  I still believe all will be well!  Positive thoughts!

    Liz...I, too have "peach fuzz"...just noticed tonight how bad it looks.  I figured it was because I no longer have estrogen in my body...just testosterone.  Are you sure it's OK to shave?  Or should I use something like Nair?  

    Lee Anne...I swear my hair looks just like yours, except my hair line is not as pretty!  It is nice to have it growing back.  I also have my eyelashes and eyebrows back...Yeah!!!  Now a question...where's the photobucket?  I'd like to post a couple pics.   

    CindyMN...So are you a stage IV?  I can't remember you saying that before.  The treatments available are soooo much better nowadays...there's lots of hope.

    Rads are not bothering me at all, so far...neither is Arimidex which I must take for 5 years.  No SEs at all...I seem to have tons of energy...painted a bathroom a soft butterscotch last weekend and cleaned the whole upstairs.  we have a basement I'll get to next weekend.  It hasn't been done well since I was diagnosed in Feb. 

    Gotta get some zzzz's!  I really appreciate all of you gals...and this forum!

    Lorain 

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