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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008

    Karyll,



    Glad to hear you're making it through, step by step, as that's just all we can do.

    I'll look on the 'Going Through chemotherapy' thread soon to check in on you.

    I'm so glad to see your post!

    Tender



    Sue,

    I trust you've had a busy weekend with your dear boys, and are taking some relaxation time for yourself.



    Now with the surgery less than 3 weeks away (but whose counting) why don't you check all your medicines for any aspirin products, and remember it's best to avoid Ibuprofen (Advil and the like) as well as Vitamin E (which is in your daily vitamin) as these agents 'thin' the blood, or prevent proper clotting necessary during and after surgery.



    Hope to hear how you are soon.

    Tender

  • geebung
    geebung Member Posts: 1,851
    edited September 2007

    Hi Sue and Karyll,

    I just wanted to send you both some healing vibes and hugs. You are sure doing it tough right now and my heart goes out to each of you. It is such a stinking, rotten disease.

    Much love to you and everyone who is in a similar place,

    gb 

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008

    Sue,

    Anticipating surgery is not for the faint hearted. Keep busy so you're mind doesn't wander. Stash some extra pay if you can for another, not too far off, fun day for you and your boys.



    We're thinking of you, sending our positive thoughts on the waves of the ocean!



    Tender



    Karyll,

    Thinking of you too, as you undergo your tests today and tomorrow. Step by step, you're getting through.

    Tender

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    I havent posted for a few days, I have been on here but am feeling very terrified and very low .... that I couldnt bring myself to post...I DO NOT WANT CANCER I DO NOT WANT SURGERY AND I DO NOT WANT TO DIE ..... I HAVE SOME ALTERNATIVE TREATMENT ZEOLITE...please help me I dont want this I do not want to not see my sons grow up

    I cant go throught with surgery...I am in utter turmoil

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    I cant do any of it,I just want to go back to my own self my own life my children my job my dreams ..I do not want this EVIL EVIL EVIL intruder making me ill and forcing me into physical pain and mental torture....I want to  carry on and not acknowledge it...They have gotten the wrong person

  • sueps
    sueps Member Posts: 2,266
    edited September 2007
  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008





    "I do not want to not see my sons grow up"



    The best way to ensure you will have this reality, Sue, is to take it one step at a time towards the surgery. It's very fine that you don't post. We all have our days when we don't want to interact, especially when you're in the waiting game... and yours is a long one. October 11, right?



    Just now I hope you might talk with your surgeon or primary doctor again. Getting low is so very common, and something to proactively work with like an anti-depressant can be so valuable. Helps to guard against the "squirrels coming out" like Shirley said.



    I don't know what Zeolite is. I have been keeping you in my thoughts, though.



    Tender

    Edit: Oops, sorry Shirlann, had one to many nut cracking days!
  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    OCT 9th my surgery date is supposed to be...

    I am going to see my primary doc tmw for some sleep tabs

    Thx Tender...I dont think I will have surgery I am terrrified, how long do you think I will live for if its is 10 years then that will do ..

  • sueps
    sueps Member Posts: 2,266
    edited October 2007

    May be I am indifferrent right now as I have pre bloomin menstrual syndrome ....BUT I do not want cancer

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited September 2007

    Sueps, don't let doubt slip back in. If you have the surgery you will be here longer than 10 years for your boys. My mom had a single mast and went through the chemo and rads 6 years ago and she is going strong, no evidence of disease. She has a friend who had breast cancer at least 30 years ago and she is doing well because she went through treatment. Don't let your fears keep you from getting the treatment you need to survive!

    Sheila

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    well why do people go throu horrific ordeals only to die bcos it suddenly becomes mets

  • Shirlann
    Shirlann Member Posts: 3,302
    edited September 2007

    Darling Suepps, you can do this and you MUST.  If you want to be around to annoy your children when you are old, you have to just do this, one step at a time.

    None of us wanted this.  We were EVERY SINGLE ONE OF US just like you and truly would have loved to just ignore cancer and pretend it did not happen.  But you cannot ignore this.  You must go for your surgery and do what they tell you, and you will HAVE YOUR LIFE BACK!

    There are thousands of us out here who have been on this journey, and are JUST FINE.  I am 9 years post treatment and doing fine, you will too. 90% of us get this treatment and recover fully.  You have a very good prognosis.  You will be fine.  Just don't give up now.

    Don't give up now, it truly is easier once the surgery is over and that dang cancer is out of your body.

    Stay strong, you are loved, and you are in are hearts and prayers.

    Gentle hugs, Shirlann 

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    thankyou x I feel a little better...I just cant accept that I have this. SO SORRY.

  • emg326
    emg326 Member Posts: 102
    edited September 2007

    Sueps,

    I completely understand your anxiety about all of this. Before my bilateral mastectomy which was July 10, I was nervous too, but would have been terrified had I not done it, and I couldn't live like that. I have 2 kids ages 8 andf 10, and it's because of them that I've been so aggressive with my treatment. My mom had bc but died of lung cancer. I'm stage 1, no nodes, er/pr+, her2-. I could've gone the lumpectomy/radiation route, but I chose to get rid of both. I've also chosen to do chemo even though they weren't sure how much benefit I'd get from it. I did it mainly because my tumor was grade 3.  The surgery and chemo have been completely doable. Both things have come such a long way in the last 10 years. My last chemo will be the end of Oct. Then I'll finish reconstruction. Have I had days of fear, dread, self-pity etc...?  Of course, but I honestly have tried to not let this control my life. I want to control it, and I've done everything I can to make that happen. One of my friends told me yesterday that she forgets I'm going through this because of the way I'm dealing with it and how my attitude is. I told her I don't want bc to define me; it's something that happened, and I have to deal with it. I also want my kids to learn that problems happen in life, and you must find ways to solve them and cope with them. I wish you all the luck with this. It's hard, but it's a battle that must be fought.

    Eve

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    Eve ,lovely post..thx xx. I am just very negative right now...I hate needles I hate blood I hate hospitals..and yet I have the worst thing now as I have so many fears to confrontxxx

  • Shirlann
    Shirlann Member Posts: 3,302
    edited September 2007

    Sueps, honey, you will be just fine.  Remember, when the wind blows the curtain in your room, it is all of us, watching over you, standing in the shadows of the OR, in the waiting rooms, we are all with you.  This is a huge sisterhood of lovely women who have everyone of us been scared half silly.  Just as you are.  You are perfectly normal.  You will be a different person when the surgery, especially, is over.  It is not that bad, you go in, go sound asleep, and wake up and its over.  You feel like a truck ran over you, but from that instant on YOU ARE GETTING WELL!!!

    Trust us, sweetie, we are all with you.

    Hugs, Shirlann 

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Sue,



    I figure it's close to 1 a.m. now over there. I hope you're getting some sleep at night. No sleep and chronic fatigue can really drag one down. Many of us use Xanax or Ativan, diazepam, just 1 or 2 milligrams a bit before you try to sleep works wonders. So, if you're still awake, and your unable to sleep, perhaps you might try one.



    Needles, hospitals, surgery, completely legitimate things to dislike. If you let the nurses know ahead of time, they can usually see that things are taken care of for you: they'll talk with the anesthesiologist and the anesthetist and head the anxiety off at the pass. Truly.



    Like everyone has so well said, we've traveled down this path before, and we are with you all the way, Sue.



    Take care and post as you see fit.

    Tender



  • Karyll
    Karyll Member Posts: 235
    edited September 2007

    It's surreal Sue and it is not so long ago I was there waiting for surgery, and the next stage of the game. 5 weeks yesterday I had the right mastectomy and I start chemotherapy tomorrow. I will admit I had to force my one foot in front of the other to get there some days but I did because I have to give this treatment a chance to work, to live, to experience my children for a bit longer too. I thought all the things you are, I felt and sometimes still feel .. "to hell with this, I am not going to do this" But from somewhere, something makes me go to that next step to realize that one step at a time I CAN do this. I look at all these women here with admiration for what they have been through, and are still here to tell the tale.

    I don't want it either.. believe me... My friend said to me... Karyll, you have been dealt a hand that you are forced to play... so lets play cards hon.  So hold on tight and we'll go on a helluva ride. I am only a couple of steps ahead of you here, so keep putting one foot in front of the other and you will be here too - on the other side of surgery-

    PS - My lump sitting there, hurt worse than the surgery to remove it.

    Plus there was a comforting relief in knowing that "thing" was out of me.

    Take my hand, and the hands of all the wonderful ladies here offering you theirs... You CAN do it.

    Karyll

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    I'm with you Sue. It had to be a mistake. No way could I have cancer. The very thought was disgustingly horrifying. This is one head-in-the-sand, ignore-it-and-it will-go-away kind of woman speaking here! Who me? No way!!!

    Frankly, my dear, even after surgery and doing reading and research and having tests and talking about it, deep down inside I still don't believe it. It just can't be.

    So go ahead. Be mad. Be furious.  Be scared.  And while you are in that state, go on autopilot for a while and just do what you have to do. You know what that is. Believe me, Sue, you are in the absolutely worst part of the whole thing...waiting for surgery. I thought I'd go totally crazy. Well, I was totally crazy.

    Remember, the only thing you absolutely must do at this moment is take another breath. If one day at a time is too much, take it one breath at a time.

    No one can do this for you, or make it go away. You are in control of what you do to give yourself the best chance at finishing raising those boys and looking forward to spoiling your future grandchildren.

    We can't hide from the reality of what life handed us this time. It won't work. You and I may not the type to jump up and shout that we will beat this thing no matter what it takes, but we can do what needs to be done, get it over with, and get on with life. 

    You've gotten some wonderful advice and support here. I believe in you, and look forward to October 10 and hearing you say, "That wasn't so bad. It's over. I'm okay."

    Towhee 

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited September 2007

    Sue, I've been following you on your journey, but until now haven't posted.  The other ladies (Tender in particular) have been taking such wonderful loving care of you.  I just have to post now though.  Please, please, please don't give up on yourself Sue!  I know it's scary and I understand the temptation to just ignore it and hope that things will go back to the way they were before.  You can't run away from it or pretend it doesn't exist, Sue.  You must FIGHT it!!  Make this cancer sorry that it ever darkened your doorstep!!!  Do it for yourself and do it for your boys.  I refuse to even consider that my kids will grow up without me.  I'm going to enjoy my grandchildren one day.  There is no other option!

    Hang in there Sue.  You are stronger than you think and you WILL beat this thing.

    Sending big hugs and prayers your way,

    Karen

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Hi Sue,



    I wish to say thank you to you today. Through you, and the wonderful support the other ladies have given you, especially about FIGHTING and never giving in, just true grit determination to be there for your kid's kids, I have had the opportunity to reconsider things.



    Like my attitude towards breast cancer. When I first was diagnosed, I went into fighter mode- I made my list, checked it twice (with my doctors) and then did it. And then I hit the first wall, called the "o.k., what now wall"? So I turned to what I love to do, read amongst other things. And this has staid me well. But you can hide behind words, and listening to you has brought back to my surface a re-kindled determination to fight. To get into the best physical shape (I'm not all that out of shape), to eat predominantly the right food (like broccoli or cruciforms, low fats, some protein, yogurt, green teas, not cheat), to check my medications against one another (which helped with some of the new threads running in the forum), to lower my stress level, to take pleasure in the here and now and to expand the fight in true advocacy against this disease.



    So, I want to thank you, Sue, because through you and our sisters I have learned more about me. If I could come over to you, and put my arm around you today, it would be a great day! A great day when someone with breast cancer walks the needed walk, joining hands with us all. And I would whisper truthful words in your ears: GREAT STRIDES have and are being made in the knowledge of breast cancer. If you accept treatment, you will allow the pathologists (the doctors who look at the tissue under the microscope) and your surgeon and oncologist to analyze your personal tumor, and then advise you according to the best evidence on what to do, what to take, and provide you with the means to do it. NHS, from what I've seen these last weeks, is working for you, although the wait has held you hostage.



    BTW, I looked up Zeolite. Literally, means "boiling stones", as a chemist noticed that these silicone containing stones, when boiled, jumped around (reflecting the heating of the molecules, primarily cations like Ca+, Mg+, Na+) etc... But it's not advisable to take Zeolite, Sue, in spite of what advertisers say. That's because it's also capable of causing our blood to clot, and in fact is used in the O.R. for that purpose. So, now with surgery coming up October 9th (sorry about thinking it was the 11th), you sure don't want your blood clotting abnormally.



    I hope you're not having panic attacks (hyperventilating, chest pressure, feeling of intense doom), Sue. Sometimes I've wondered a little if that could be the case. Klonazepam, a very good drug for panic, takes the edge off pretty fast. Panic is very common, and under-recognized and undertreated. Maybe talk with your doctor or his nurse about what physically happens when you feel afraid. I know of them, and didn't know I was having them until my own oncologist recognized an episode.



    We're all human, all have fear in our own ways toward our cancer, and all want to help you get to the confidence side of the equation. You can do it, Sue.



    Wishing you well today and always,

    Tender

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    Hello everyone and thankyou for the much needed and deeply deeply appreciated support.....I feel so close to you all and Tender I really feel you with me even though you are miles away...When I read its as if you are all sat right next to me. This is what I need see....the support from here is very very sincere and I dont know how I came about this site but I am truly grateful..

     However I really really really really am finding the whole ordeal difficult , beyond comprehension and very cruel, and I think the fact that the op is around the corner brings home reality, which,, whatever way upside down, inside out I cant for the life of me get my head around the fact that I have this.

     With reality comes the fear....and it is not only fear of the unknown but fear of everything.

     I told my primary doc today I wasnt going through with it, as I didnt want to do all this that and the other for it to resurface etc and get me in the end....her face was one of shock...she trusted that I was a fighter previously...

     And then I spoke with my dad on the phone...and he said the only ally I had was that it would come back and that it was a normal ally to have in such a situation....its a lottery this really...life is a lottery..

     What to do I have no idea...I feel very lonely ...but very loved at the mo.....I walk around in a daze when I am not working ...to the point that I resent EVERYONE for getting on with life.....and then I feel bad for resenting and selfish for being so selfish..

    What to do I dont know ... its all too cruel for me.... and I have profound respect for you all xxx

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    The doctor told me to ring my cancer nurse and to speak with them when I go for the pre op the day before (a week Monday) she said I had to go throught with it or I would certainly cause myself more trouble...so did my dad....(my dad has recently been diagnosed with a blood cancer and is taking chemo at home mild because he had a triple bypass a few years ago) and we made a pact we would fight together..I think he is frighened I wont do it..what to do what to do ...I just took a diazepam I wont be taking anymore zeolite....just in case I decide to have the surgery  x

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    However...maybe I feel so bad cos I have PMT ...... MAYBE ? and this is the first pmt I have had since the news....I really try to understand myself.....the last 2 weeks I was determined right.....Life is full of trials and tribulations

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    Tender your last post has touched me no end .... truly thankyou...

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited September 2007

    Sue, I don't want to sound like a drug pusher, but in my case, antidepressants have been SO very helpful.  I was in a hopeless state of panic when I first found my lump.  I asked for medication before I was ever diagnosed, and I'm so thankful that I did.  I can remember exactly the moment it "kicked in".  I was so grateful for the feeling of calm that came over me.  I was able to think rationally and calmly.  I'm certain that it would help you as well. 

    As for the Zeolite, don't feel badly about believing the advertisements.  I almost bought into it too.  I was thiiiiiiiiis close to ordering some.  I knew that it was too good to be true.

    Stay strong and keep posting.  We're here for you! 

    Hugs,

    Karen

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    Hi Karen xx  Yes zeolite ...well my partner got a small bottle off of the internet for a small price Surprised

     I think I will ask for some anti depressants...but maybe I will stick to the diazepam every now and again...I have appx 16 left so these should last me...and of course my sleeping tabs are an absolute godsend at the mo..

     I just cant work out if some of my state is down to PMT... when I am at work I am fine about everything as thats the only place of normality and a completely welcome distraction....and I have only 7 days left there until doom..

    TOWHEE ...... I need to start that paddle again dont I ....lol...I am almost capsizing....

  • Shirlann
    Shirlann Member Posts: 3,302
    edited September 2007

    Hi dear Sueps, I take anti-depressants and they were a true life-saver with the breast cancer diagnosis.  Portia is spot on, they are great.  They do, however, take a few weeks to reach real relief, so don't give up on them if you start and be sure and be patient.

    I also take Diazepam for "break through" anxiety attacks.  When under siege, as you are, I take 5mg, 4 times a day, I don't wait for an attack, I take them regardless, until the stressful situation is over.  But I am a big gal, so that is okay for me.  I am a life-long anxiety/depressive.  Like Portia, I don't like to sound like a drug pusher, but a little chemical help to get you past the surgery might be a big help.   You need to do this, any way you can get through it. 

    Please don't worry about mets.  First of all, it is highly unlikely you will get them, and even if you do, they are very, very treatable today.  Women live for many years just knocking them down when they pop up.

    So screw up your courage, dear girl, and do what you need to do to stay with your boys.  It is hard, but you can do it.

    Hugs, Shirlann 

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    Shirlann...thankyou ...regarding the mets comment and all of your last post...you see I am starting to screw my courage up with all this support..I have just taken a diazepam so I am at the moment ok

    love xx

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008



    Sue,



    Letting you know you're in my thoughts today and tomorow and seconding Shirlann's latest remark.



    Tender

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