Starting Chemo in JAN 2007
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Grrr, just lost my post...
Cindy and Nancy Horray! big {{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}} and congatulationos on finishing.
Mizissy, I can't do the last weekend of sept. either. I have an anuual conference in Palm Dessert, CA (at a beautiful resort) that week and will be flying out there on that Sunday. I am pretty sure I am open anything other time earlier that month. I'm sorry you went through so much effort to find that many of us couldn't make it that weekend.
Thanks you to all the girls who have emailed me your snail mail addresses. For those who haven't, please send your address to me at lynnjm@charter.net. I have something I would like to send you all. I'll wait a couple of weeks to get as many replies as possible (and to get my act together). the ladies I've heard from so far are:
Caya
TLC
Nancy
Tina
Shorti
Viddie
Jan
Joni
Mizsissy - I need your snail mail address
Skye
Rebecca
I'm also going to compile the list of addresses to send along as well. If you want, I can also include email addresses. If you DON'T want me to include your information, please let me know, else, I'll include it. Mizissy, can you forawrd me your listing of Jan. girls so I cna see whose missing? thanks.
I had a pretty rough evening/night last night. After taking Emend, Zofran, and Ativan I was still pretty nauseaus last night, it was awful. And that was day 1...blech! I then preceeded to get up to pee 7 times and everytime I woke up, the nauseas feeling was back...not fun. I appear to be a little better this morning (well afternoon by now) but feel pretty fragile. Doc says to go ahead and take the Ativan every 4 - 6 hours which I think it helping wiht nausea and making me just sleep through the misery. I keep telling myself 'only 1 more'.
Well, it's been quite a chore trying to type. Think I'll sign off and rest for a bit. It was great catching up with everyone.
love to all! -
Skye, My doctor does say that the weekly taxols are easier on the body than the denser ones, which is why he prefers them. Thanks for the encouragement! Lynn, I am sorry you feel so badly; sleep is probably the best thing for you right now. And Nancy, thanks for the acs suggestion; I feel like that might be a good contact for me to make. I do feel very alone in this a lot of the time. I had to keep it quiet at work as my industry is small minded and gossipy, and I am afraid that speculation re my health would hurt my sales. I am responsible for over half the sales of the company, so lots of people depend on the income that I bring in. Sometimes I wish I could stay home for a few weeks during all this, but mostly I think the stimualtion and distraction of work is good for my mental health. And my husband and I need the income ...
Stay well and strong all; we will get through this.
Melia -
I am so excited! When I took my shower this morning I noticed hair growing on my underarms! Not that I'm glad to have to shave again, but it gives me hope the hair on my head will return soon! 8-) After concerning liver test results and being told to try and get by with as little pain meds as possile, I was dreading this last treatment, but here i am on day 4 feeling pretty good!
Skye: I love the idea of a fruit platter for your last treatment, I think that is what I will do too. My chemo nurses all seem to be pretty "healthy" kinda group so I think the fruit will be a hit. Maybe I'll include some nummy danish from the local bakery too, just in case they want to be bad and celebrate with me!
Hope all are doing well...
tlc -
Anyone heard from Terry about how he and his wife are doing?? If you're out there Terry, drop us a note and let us know how Tai is.
Thinking of you,
tlc -
Good afternoon ladies,
Mizsissy, it looks like the Sept. 30 weekend will not be good for Joni and Jan - anyone interested in October? The only weekend not good for me in the first one, Oct. 6 - 8th, because that Monday is Canadian Thanksgiving. But if October works, ( and fall is lovely here ), I would be happy to phone around and try to get some good rates in a few of the more moderately priced downtown hotels. Just let me know what weekend, how many rooms, dates etc. Also I hope you are feeling better - rest, that is what you need.
Melia - I really admire you working throughout this, and you're right, we will get through this, we have to.
Tina - sure hope your head hair returns quickly. Whoever thought we'd get excited about pit hair growing?
Nancy - I also found extreme relief once my condition was "out" - I was living on Ativans for the 7 weeks I kept my condition secret for various reasons, just me, DH, and the shrink I started seeing to help me through it all knew.
Cindy and Amera - glad you are finished. Amera, that popcorn sounds amazing. We have a chain here in Canada called Kernels - they make amazing flavoured popcorn. Like you said, probably toxic, but hey, we deserve it once in awhile.
Lynn - wow, it sounds like you are really having a rough time. Just sleep it off, it's almost over.
Skye, I hope the Herceptin won't be too bad for us. My onc. said, and I quote him, "Herceptin is a piece of cake compared to chemo." I sure hope so, I could use some cake.
Your cruise sounds great. My 25th anniversary is this October, but I don't think we'll be able to go far. I'll see how I am feeling, but I like the idea of being catered to and pampered.
Not much else, feeling better today, I think my medications for my various ailments are finally working, sure, just in time for Taxotere # 2 on Thursday, but then it will be only one more...
hugs to all
caya -
Caya, Joni, Lynn, Mary, Shorti, Jan...
Toronto has the advantage of being close to a major airport, but I am just wondering how much *fun* it would be to gather at an impersonal hotel, or even worse, to be scattered around in different hotels. Hotels are basically places to sleep so we might end up traveling a great distance just for a few meals together in restaurants. I think it might be more fun to be together at an old fashioned inn or in a house, or even camping, where we can spend the entire weekend together doing things. I would also prefer warmer weather.
What say yall?
Lynn, sorry you're feeling so raunchy. Being on chemo is no piece of cake.
Melia, now I'm *really curious* about your "industry." Are a Hollywood Gossip Columnist?
Nancy, Caya...those Ativans are mean pills, but probably not as bad as Xanax. I'm still tapering my Ativans down. I am now on 1/4 pill each night.
Mizsissy -
Hey ladies,
Caya, I'm thinking the Herceptin is not too bad after the first one. I've been doing some extra reading on it and from what I can tell the se's are minimal once you get into it, it's the first hit that feels like flu and I think that is what's going on. And it took 3 days to hit me, right when the big Taxol dose also unloads. I'm still wiped out but finally just gave in to sleeping and lying down. My goal was to go grocery shopping with dh but finally sent him by himself with a mission to get me something gooey and bad for me like cheesecake...but just one piece. I also spent some time with a few "cancer empowering" books I have, trying to figure out if I'm supposed to be rethinking my life, etc. as I come to the end of this stage of treatment. The best advice I got from them was the final word from one oncologist who advised, when your treatment is over, the best thing to do is assume you are cured and get on with your life (not giving up necessary monitoring, of course). And yet I do find myself thinking about making some changes, scaling back on my type A personality and spending more time sniffing the lilacs. Anyone else having thoughts like this?
Tic60, the idea of nummy Danish WITH the fruit platter is perfect. I will do that, thanks.
Tina, way to go on the pit hair. Altho they sure are harder to shave after losing the feeling from the node removals. I've noticed my leg hair starting up again. Can scalps be far behind? - Skye -
Aww golly where did the day go?
I had a very modest day today, but yet still took 2 (yes, count them) 2 naps. YECK. I feel totally useless, and limp like a used tissue.
I hear you on the pit hair Skye...mine comes and goes through the cycle, butI have yet to shave. I am also quite afraid since touching that whole area is rather like touching the girl next door...someone ELSE's scraggly pit, not mine
Lynn...know that someone in Edison NJ is totally on the same wavelength as you. ABSOLUTE BLECH today...and yesterday was a percocet blur.
I am definately glad this is almost over...I am not sure how much more battering my body can take. My RBC and Hemoglobin have been taking a steady dive, and now they are nosing into low territory, and I can definately feel it.
So far so good on nasea, but not too much tastes good, and I am having trouble eating more than a few bites....and anything that requires real chewing is totally out of the question. pathetic. Hydration is an issue as well, since the same thing applies.
We are battoning down for the Nor'Easter here...with all the hubbub on the radio I am pretty sure that it is going to be a fizzle
Anyway, just checking in, I think I am going to head back to my couch. hugs to all -
Melianne,
Sorry you've had such a tough time after the A/C. Hang in thee. You'll be back on track this week, I'm sure, for the taxol. It'll be easier....and as Nancy, said it'll FLY by. Really, by the time you do it, get your stuff done, it's another week and you're back in the chair. It was the fastest 12 weeks of my life. -
Lynn,
I can't believe you are/were that sick after all that anti-nausea meds! I can see I was reallllllly lucky. -
Nancy, did you see the show on some tv a few months back...it was a talk show of some sort, can't remember the host, but it had a mom in her 40's w/her early 20's daughter...believe her name was Lindsey Avner and she was from either Columbus or Chicago and she did just that...a preventative mastectomy? She had it done at Memorial Sloan Kettering. I have to say, if I did do the BRCA test and was + I would encourage my daughter to get it and I think...at least now, I'd want to do a prophylactic mastectomy, if I were my daughter... This is such a cross to bear... to be able to avoid it would be so great. But, on the other hand.... by the time my daughter is even concerned, there may be a cure...
-
Mizsissy,
You are doing 33 rads? Wow! That's a lot. It's got to be weekly, so when will you be done?
I hate that feeling "is what I'm feeling normal"? I hate to be a hypochondriac, like w/my eye issue this week, but then again... I have to remember "you have CANCER!" and a/c, taxol, herceptin, etc...can cause heart problems, etc., so take symptoms seriously... -
We are battoning down for the Nor'Easter here...with all the hubbub on the radio I am pretty sure that it is going to be a fizzle
Ha-ha, Rebecca... I remember those forecasts from living in Boston. Even worse waiting for a hurricane to hit in Miami...we'd put those shutters up (tons of work) and nothing would materialize...thank God.... but, you start ignoring forecasts. Here, the snow is laughable....you never have more than a few " on the ground at any given time. And we all have garages...never had that in the old New England neighborhoods. Super grey here though, a lot of the time and I hate that. Today was CRUMMY. Cold, wet and grey. I managed to stay upbeat though...had a kind of fun day. Went to see a house for sale that was to DIE FOR inside and out. I'm not moving...just checked it out but it was like euphoria, the decorating and all... -
if anyone likes decorating, cool houses, check this out. This was the house I went to today:
http://her.realliving.com/Property/Details.aspx?PropID=6064600 -
Thank you so much for your concern TLC. I do try to check the posts every 3 or 4 days and I know I miss a lot cause there are soooo many posts. Usually I am looking for something in particular that someone has experienced so I can see if it fits any of Tae's problems, which are many.
Last night for example; half past midnite, Tae has a temp of 103 and here it goes again. Cold cloths, ice water, cool shower, call the ER - they tell me to check with onc. Onc sez just wait for the antibiotic to kick in and give the Tylenol a chance (temp is now 104.4). Well by 0530 temp was down to 99.5 so we slept till noon. This happened about a week after the first Taxol also, but this time was worse.
Also about this time the stomach pain starts. Last Taxol and now this Taxol. Seems to last about two days.
The bone pain is the worst though. Knees and ankles mostly. I try to massage, but I am not good at it. Tae sez it helps though. Tae is now 9 days past Taxol #2. 2 more to go. I wonder if it is too late to switch to the weekly treatment for a weaker dose? Is anyone else having this tough a time?
I read about someone trying to get off the ativan. Just DO NOT go cold turkey. Tae decided to stop the narcotics and doubled up in a cold sweat on day two. Onc said it was withdrawal. She had to start using again to get some sleep. Onc said she had to get off them gradually. He will help when the time is right.
Well sorry about all this downer news. We are trying to stay positive, but the only thing we look forward to is day 10 after treatment #8.
Terry 4 Tae -
Nice to hear from you again Tae & Terry. Tae is really having a terrible time on chemo. Thank god it's over soon. You're right...don't go cold turkey on the ativans. BTW, Caya and Nancy, how did your onc's deal with this problem?
Lynn, I just wonder if your nausea might be do to an infection, especially with all that peeing. Does it also hurt? Do you have temp; I had a lot of UT's and you don't necessarily get a temp. I also had Aloxi with the infusion and never got the least bit nauseous.
RADS...Tina, I'm not so sure it's going to be the piece of cake I hoped. Everybody said it's easier than chemo, but maybe I had an easy time on chemo (did I get a placebo)? On my last zap on Friday I definitely felt suddenly very sleepy and my heart felt fluttery. Didn't feel good again until today. That was only Rad #3 and I probably have 30 to go.
Mizsissy -
t4t give Tae a big hug , now maybe i have an answer to my cold sweats never mind the menopause complications .
Mizsissy : we will keep trying on the get together , there should be some places around here that are not downtown hotels . There is always Niagra Falls or Niagra on the Lake .
tppj yep 33 treatments of rads is standard , i should start mine in May sometime everyday mon to fri .
Hope the storm coming up this way is not too bad , girls in the upper NE , we are supposed to get snow or rain here . Common spring where the heck are you !!!!!
This taxotere hits when it wants .... one day i am feeling well go shopping ect the next it feels like i have a 10 lb weight on my chest . All the muscle and bone aches are between my shoulders . Sleep is the only way to cure that , one tylenol 3 and an ativan . I only do it at night , if I keep my mind occupied during the day it does not seem too bad . Got lots of books from the library to read / or browse through .
I also went to one of those sexy parties on Friday put my wig , brows and eyeliner on . Had a good time , lots of laughs felt good ..... chatted with old neighbours and had lots of comments on how good I looked with my wig , if you did not know me you would not guessed . I am doing pretty good at adding my brows . Did not by any toys but the demonstrations were "educational" After I got to take home leftover goodies tarts and cke for my hubby and kids . We always get the leftovers from my neighbour she is in charge of hotunches at the local school and we have always got leftover pizza on Mondays. I could not even try to explain how much help I have got throughout this . From food to driving me to chemo . The whole block knows I have BC and have helped us in so many ways .
Now come spring I will be shopping for some nice plants and flower as thank you gifts .... -
Caya and Skye, they will watch you like a hawk on Herceptin #1. You are right in that if there are going to be problems, it's generally on #1. Rare though, I'm told by my dr. I had zero side effects from it. I go for my first "every 3 week" tx on April 25...I'll be getting more Herceptin than I had when I was doing it weekly. I'll let you know if I notice any difference. The dr. said I wouldn't. I am just so thankful they have this stuff. This whole thing would be a nightmare (well, worse nightmare) for me if it weren't for that.
-
On my last zap on Friday I definitely felt suddenly very sleepy
Mizsissy, was it like the "50 mg's of bendadryl" sleepy that you get before your first chemo? I have never been so out of it in my life, except for general anesthesia. I couldn't speak...God forbid I thought I was having a reaction, I probably couldn't have told them. -
TPPJ,
No I did'nt see that program but I know my 26 yr old daughter did alot of research and in the beginning of my journey of bc she really considered having them removed. It bothered me alot because she does'nt even have kids of her own yet. Then I think she eased up and with her husbands advice just decided to be very aware now, do self exams make sure her P Phy knows the history. Even though I was asked numerous times about genetic testing, I really felt with the way our health ins. in this country is so hard to get that if it came out that they My girls are predisposed to get this they would be discriminated against. I seriously would'nt doubt it, once it's on paper that's it. BTW, I was born in Col and my DD lived there for several years in the Victorian Village. 3 wks after she married her HS sweetie he took a job in Tucson AZ. I miss her alot. They got married in Goodale Park. -
Mizsissy,
I've never yet tried to stop ativan. My reg Dr has had me on .5 mg for years as needed for my panic attacks and my onc. moved me up to 1 mg for the chemo. I really don't take much of it only when it's 3:00 in the morning and I haven't slept. I think the worse withdrawal I ever experienced was going off Paxil. I felt like I was being electrocuted every time I moved, I cried and shook, It was horrible. I'll never take that stuff again.
Where is Spring? -
Terry 4 Tae,
I'm on the same 4x Taxol dose as Tae, and yes it is that bad, I've been asking my dh to massage my knees and ankles too. I don't know if it's worth switching doses midway, though. Now that I have only one left I just want to get it over and be done with it...thinking of having 4 or 6 more versus one is unimaginable even if they are lighter doses. I am a little miffed that my onc never really offered me the choice however. With this third Taxol my whole lower body has felt numb, inside and out. I stagger around the house like a zombie from a bad movie, but I do try to move around a few times a day. It's day 7, and I only managed to walk about a block on my first time outdoors since last Tuesday. And I can tell I will need a long nap this afternoon. You could ask your onc about going to the weekly doses but bear in mind Tae will end up with a larger total amount of Taxol in her body with the extra doses. There is a lot to consider.
Rebecca condolences on the Nor'easters out there. We actually have a beautiful day here. After my very short walk I sat on our deck for a while, although well-covered up because you should not have sun exposure on Taxol. It just helps to be outdoors in fresh air, looking at buds and plants and things coming out.
Lynn I hope you are over your bad spell and feeling better today. - Skye -
Terry
So sorry Tae is still having a hard time of it all, and bless you too, you must be going through your own hell with this crap.
With only a few more treatments to go I hope you are able to see the light at the end of th e tunnel - it will get better!
Hugs to you both
tlc -
Nancy...on your problems with meds. Paxil...what evil stuff!! That medication should never have been legal, but it was over-promoted. I took One (1) and 20 minutes later decided I would NEVER take another one. My DH took it for a week and it started making his body stiffen up and make his head jerk.
When I was younger I had several bouts of anxiety attacks and the SRIs worked wonders for me...and quite a few other people I know. In fact, I think I know more people who take them than people who don't!!!! Even our cats!!!
Tina, I don't know what happened to me on Friday, but it was just a sudden feeling of fatigue and sleepiness. And I don't even know yet if it was related to the radiation, but I'll find out next week. Five coming up!!!
Mizsissy -
Hi ladies,
I was going to say 'good morning' because that's what it feels like. I got up at 9:30 this morning, came downstairs, got my hot chocolate, found nothing to watch on tv and fell into a deep sleep, woke back up at 12:45pm...guess I'm sleeping through it all. The nausea is better today, and much of yesterday, but the strong yuck from chemo is going full steam ahead. AND, when I wake up from my morning nap, there is 2 inches of snow! YECK!
This list is now:
Caya
TLC
Nancy
Tina
Shorti
Viddie
Jan
joni
Mizsissy
Skye
Rebecca
Cindy
Come on January ladies, send me your snail mail address to lynnjm@charter.net.
Mizsissy, I don't think it's an infection. I always pee an incredible amount that first night between all the water I drink and all the chemo infused in me. The nausea has been getting worse with every infusion. The up my drugs so I officially feel like a pharmacy. You would never know I'm on steroids though, I can't keep my eyes open.
We have a few lousy weather days to look fowrard to in New England, dh made me another fire in the fireplace today. I'll be feeling bad for all the people in the Boston marathon tomorrow.
Tae, it's almost over, hang in there!
Mizsissy, gee, hope that was just a fluke since it's only your 3rd. Let us know how it goes next week.
Have a good day ladies, I'll check in later after my next nap.
hugs! -
Lynn,
The other thought I had was it was the cumulative effect of taxotere. You and I both are having taxotere exclusively and it is a newer drug, but I know it is very hard on the epithelial cells. Maybe it's getting to the lining of your intestines. How many more do you have? I NEVER had nausea, except when I had to take Macrobid (an antibiotic) on top of the chemo. Aloxi worked for me, maybe it works better, or maybe I never got as far with the cumulative effect, although I had four infusions, every 2 weeks instead of 3 weeks.
I'll send you the list latter...I'm in the middle of a post and can't look back to the lists. I would really like to put up a little spread sheet on my website (available only to us of course) where we could see our names, pix, vital statistics, dx, addresses, etc., so it would be so hard.
One thing that bothers me a lot is that when someone has a health or chemo issue, I can't remember her dx or treatment so I don't know how to respond.
Mizsissy
***REMINDER****
EVERYBODY WHO HASN'T SEND LYNN YOUR SNAIL MAIL!!! -
Hi gals! Sorry everyone is having a hard time with the Taxol treatments. No too much longer though.
I felt a little nauseous after my first rads appt on Friday. Not sure if it was related-either physically or emotionally. I tend to feel sickish when I'm scared or anxious. Not sure why I would be either, but who knows? I cried a little bit as I was lying there. You cannot move either or they have to start all over. Not sure what came over me.
Hey, my family was on TV yesterday. We got company seats to the Red Sox and were right behind home plate in the first row. It was a riot. My husband's cell phone kept ringing with people calling to say they could see us every time the batter was up.
There were some drunk, obnoxious 20 somethings right across from us. They got progressively more drunk and obnoxious, dropping the F-bomb, as time went on. I finally stood up and said, "Excuse me!" until they caught on and shut up. They even apologized. The people around us actually applauded. Breast Cancer Amera strikes again! Not so sure I would've said anything without the massive amounts of security people close by. :9) -
Yea Skye, so you'll get your last session on the 23rd. Tae will be just almost 2 weeks later on May 4th if she stays on schedule. I spoke with the onc nurse today about the stomache pain. She said it is the steroids. Tae has to keep a little food in her, but she just cannot eat. Nurse said she needs to force a couple of bites every couple of hours. We'll give it a try. Nurse was upset with onc when I told her about the fever and chills. She said that should have been an ER visit cause there is obviously infection. The chills hit again this morning at 0420. Why is it always through the night? I think we will go in Monday for some blood work and a face to face with the onc.
Here's a prayer that your last session will be kind to you.
Terry 4 Tae -
Lynn, here's the list
**************************
Aladora, Victoria,7-May WHERE'VE YOU BEEN?
Amera, Mass, AC, 22-Mar DONE, CONGRATULATIONS!!!
Brenda ????? DONE, CONGRATULATIONS!!!
Caya, Ontario, FEC-T, 10-May
Dar1, Alberta, AC, 7-Mar DONE!!!! CONGRATULATIONS!!
I82jem(Jan), NC, FEC, 11-May
Ihopeg (Ilene), Penn, TAC, 2-May
IowaCindy, AC/Taxotere, 13-Apr DONE!!!! CONGRATULATIONS!!
JoniIMB, Alberta, FEC, 20-Apr COMING UP SOON!!!
Jungiee
Kids123
Lucy, TCH/Herceptin, Dec
Lynn12, Mass, TC, 8-May
Melianne, Cal, AC/Taxol,30-Jun
Mer1957 (Mary), Michigan
Mizsissy, 4 cats, Mich,TC, 5-Mar DONE!!!! RADS April/May
MrsShea NO CHEMO!!! RADS starting last week
Nandy, Missouri, 2-Apr DONE!!!! CONGRATULATIONS!!
Nancy AB, 3 cats, AC/Taxol, 10-June
Ritajean, Illinois, CMF, 30-Mar DONE!!!! CONGRATULATIONS!!!
Robertin, Kansas, 8-May
RobbinJaye, California, AC, 29-Mar DONE!!!! CONGRATULATIONS!!
Rsheehey (Rebecca), NJ, TAC, 2-May
Sandra7inCA
Shorti, Ontario, FEC/Taxotere, 23-Apr COMING UP SOON!!!
Sirgin, Mass
Skydivine, Midwest, AC/Herception, 23-Apr COMING UP SOON!!!
t4t(Tae), Alabama, AC DONE!!!, Taxol Started, 4-May
tcl60 (Tammy), California, TC/Taxotere, dose dense! 25-April COMING UP SOON!!!
Viddie, Mass, AC/Herception, 19-April COMING UP SOON!!!
Vlfr, LA, Braxane/Herceptin, 3-May
Tina...I don't have your data. When do you finish chemo?
Mer...I don't your data either! Where are you in treatment!!!! -
I don't think I can commit to a date for the get together yet. With my aunt so sick I'm just not sure when we will be traveling plus husband has some uncertainties at work. So...you guys just go ahead and plan and if I can come I will certainly try to. But I don't want to say I can right now when I'm not sure.
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- 50 Immunotherapy - Before, During, and After
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