Male with Invasive Ductal Carcinoma

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voncloft
voncloft Member Posts: 41
edited February 2020 in Just Diagnosed

I am 32 years old and male.

I had a mastectomy on the 9th of January

I just got my pathology report back

I am not sure what any of it means:

My Pathologic stage classification is: PT2N1aMX

My cancer is Invasive ductal carcinoma EP+, HER2-


Main Tumor Grade 2:

Tubular differentiation: 3

Nuclear pleomorphism: 2

Mitotic rate: 1


Main tumor: 5 x 3.5 x 3.2 cm

Lymphnode: 1.5 x 1.4 x 1.4 cm with extra nodal extension 7mm (has macrometastasis)

I had 5 lymph nodes removed only one had metastic ductal carcinoma (its a lymphnode in the breast forget the name of the lymphnode) the rest are benign (in armpit).


I am going back to my surgeon on Friday, and to see an oncologist.

I was told when having my drain removed that I will be having chemo and radiation.


I do not know what any of the medical speak means - if anyone does please can you assist?


Is it stage 3A or 2B?

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Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2020

    voncloft, Welcome, but sorry you've joined us.

    I believe that T2/N1 is Stage IIB. https://breast-cancer.ca/tnm-class/

    I don't know what, if any, differences there are in the treatment protocols for men versus women, so unfortunately I can't offer any info about your diagnosis and treatment options. We do have one very active male member on the discussion board, Traveltext, who will hopefully see your post and may be able offer some thoughts about what's ahead for you.

    And I'm sure the chemo (https://community.breastcancer.org/forum/69) and radiation (https://community.breastcancer.org/forum/70) forums will provide helpful information.



  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    Thanks Beesie


    I know being male here, I'm a minority and research is constantly pointing me towards female results so I will take any information I can. This is a group I wish I never had to be apart of or anyone for this matter - all cancer sucks.

  • ceanna
    ceanna Member Posts: 5,270
    edited January 2020

    voncloft, sorry you find yourself here, but someone will help you. There is a Male Breast Cancer forum where many have posted, and Traveltext often replies. If you don't hear from him in the next day or so, use the Search feature on the left column and post in a thread where's he has been active lately or send a message to him directly. He has his own website also about male BC http://malebc.org/ All the best to you.

  • blah333
    blah333 Member Posts: 270
    edited January 2020

    Sorry that you're going through this. Having breast cancer at age 32 is alienating enough, let alone being a guy. It is double-not-so-common. It must have come as a big surprise to you. I'm sure you they will be able to clarify things for you at your upcoming appointments.

    I hope the rest of your treatment goes smoothly. If you need any tips or advice about dealing with chemo and radiation, there are sections on this site for it and I'm sure plenty of ladies would give you some tips. Don't be feel shy here just because you're male. Some aspects of this experience ARE similar and it is good to have a place to come vent to.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2020

    Hi there voncloft,I hope someone can answer your questions soon! I do see that you are grade 2, and that's good--meaning it's less aggressive than it could be, like grade 3. Stage IIB is also better than what it could be. So welcome to the club no one wants to join. I expect you're shocked and feeling isolated so join us here, gender be damned. We are here for you and hopefully can be a source of support. No matter male or female, a cancer dx is overwhelming, but it's also survivable, and you'll get through it.

    There is a link here on bc.org where you might be able to read posts about other males with b.c and their experiences, but b.c is b.c. and we are an active group here, so I hope you'll be able to find information on all the boards here not just the male one.

    https://community.breastcancer.org/forum/51

    Hang in there. It will be okay.

    Claire in AZ

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2020

    voncloft, welcome to BCO, although we're sorry you find yourself with cause to join us.

    Besides the wonderful support you'll get here in the discussion boards, there are some sections of our main site that might be helpful, like Your Breast Cancer Diagnosis, where you'll find some good info that can help you understand pathology reports, treatment options, etc. Also, there's some great information on the main Breastcancer.org site's section on Male Breast Cancer that you may find helpful.

    We hope this helps! Please continue to let us know how you're doing!

    The Mods

  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    Thank you all for your comments I wish I responded sooner (I fell asleep lol)

    I sort of had an idea that it would/could be cancer....for as long as I can remember I always had an inverted nipple (maybe when I was a teenager I "remember" having an inverted nipple....but I definately remember having it throughout my mid 20's (memories are fickle)) - my initial thought was "eh thats just how I am made - no big deal"......BUT overtime I got more concerned and suspicious - specifically there was a bump behind my nipple and I was never 100% sure if it was behind it or not....so at 32 I decided to get it checked out.


    So of course I thought "lets get it checked out - put your mind at ease" - so I went to the GP and he said he wanted to get a 2nd opinion when he examined me....so on my back shirt off - looking at the ceiling I just felt "damned" of course I get a referral to go see a breast diagnostics team - I actually had zero feelings of being uncomfortable - sure I am a minority in a mostly female dominant facility and my view was "I don't care what others see/think about me - this is about my own health" So I get the mammogram/ultrasound and the urologist says he sees 2 suspicious masses and wants to get a needle biopsy and it is scheduled a week later.


    The NB hurt like hell (took one sample behind nipple and near armpit) - it felt like a wolf had gotten under my nipple and took a big bite, the one near my armpit (its a mammary lymph node - forget the actual term) which I felt nothing. Sure enough I get a call a week later saying it is "Invasive ductal carcinoma, grade 2, non aggressive EP+, HER2-". I felt nothing, it wasn't denial - my first thought was "whats the next step". I never once cried during diagnosis, never got torn down....if anything I made jokes about it (still do - my mom is a retired nurse and she said in her 25 years of being a nurse she never once saw a man with breast cancer.....when I got the results and she found out I said "Tada!!" like a magic trick (insensitive but hey I'm not going into the dumps and breaking down - I'm pushing through while making jokes)).


    So I went to genetic testing, Pre Op, and Physical Therapy - (Genetics are normal no BRCA 1&2 - I am a carrier of the FANCC gene however - which would only affect my offspring) - had the surgery just one single mastectomy and 5 lymph nodes removed. After surgery my first initial thing I said was "That feels good to get off my chest". Sadly not many enjoy my sense of humor but the alternative is worse for me...I refuse to get down in the dumps.


    So it only took a little over a week to get my pathology results and I am seeing my oncologist this coming Friday along with my surgeon and physical therapist. I just want my surgeon to release me to go back to work....and have a quick easy road to recovery from this horrible disease from chemo and radiation....maybe estrogen blocking pills for 5 years.,....just want this over with. It feels like a nightmare I am trying to wake up from.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited January 2020

    Welcome voncloft. I can see you are getting good attention here and, essentially, treatment for men is very similar to that for women.

    You've been given good explanations for your medical report and I'll add that your tumor type, ER/HR + HER2- is common for around 85% of men and is the most treatable. Let us know what your oncologist says about chemo and radiation for you. You can see from my stats below this post that I've had the full treatment and have been on Tamox for the past five years.

    Feel free to PM me if you have questions and be sure to come back to the forum anytime with your treatment reports and/or questions. We're all here for you.


  • 2019whatayear
    2019whatayear Member Posts: 767
    edited January 2020

    Voncloft.

    As a BRCA-2 person thanks for getting testing Every person who gets genetic testing done helps all of us.

    I like your humor that was a good one. Keep making jokes, we need to keep our medical staff on their toes.

    =Victoria

  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    2019whatayear

    I do what I can with the humor :D


    As for genetics it was done for the reasoning of whether I would need only one mastectomy or two - thankfully only one was removed. But if I can offer any help in this process than I am happy to oblige - anything to stomp out cancer.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    I hope you don't need chemo; a lot of ER+ PR+/Her neg patients only need radiation and anti-hormonals.

    I also kept my cool over my diagnosis. I was more, okay, let's take care of this. As a bonus for my stiff upper lip, I also got diagnosed with kidney cancer the same year. Yippee! A twofer! My voice may have been slighter fainter, but I still said "let's take care of it."

    I'm debating between two shirts to wear to doctor appointments. You may want the first one. 😁


    image

    image


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    Alice - I definitely want the first shirt. Is it truly available?

    Von - love your sense of humor. Glad Traveltext answered. He is the guru about male BC. Hope you'll keep posting throughout your treatment.

  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    AliceBastable its a shame the shirt doesn't come with the knife on the side my mastectomy was done on (right side) otherwise I'd buy it lol


    MinusTwo - I do what I can...attitude plays a big part in recovery and I refuse to be down in the dumps.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited January 2020

    That T works for me AliceB.

    Re chemo, a young guy would be advised to do chemo to avert a recurrence risk.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    I'm always learning here that one size doesn't fit all, whether it's treatment or shirts!

    I found the shirts on Ye Olde Googlenet. Type in "I'm fine shirt blood" (without quotes because Google gets confused easily) and a variety appear; maybe there are lefty-righty options.

    Maybe we need a "ghoulish dark humor" thread. I had posted the shirt picture once before and some pearl-clutcher reamed me out for my insensitivity. Sweetheart, do not humor-shame me. I have at least nine substantial surgical scars just on my left side, from face, neck, breast, kidney, and hip operations. We all get to cope in our own way, and this is mine. Don't like it? Scroll faster, cupcake.

    😈

  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    AliceBastable


    Here here...humor is better than curling up in a ball. Many of us cope differently, even before cancer I would find the dark humor in a dark situation...so it just bled over.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    Voncloft

    Bled over. Heh heh.


  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    AliceBastable


    I Didn't even realize I made a pun until now haha

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2020

    Voncloft, my spouse and I made a bunch of gallows humor jokes all through my dx and treatment. EG about month four of my chemo tx, my husband was dx with a small bit of skin cancer on his ear, and had to have it removed. We joked that he got "sympathy cancer" for me. Humor can relieve a lot of tension from all the emotion of this (your life has been threatened) and it really drew us together-we were like a platoon of 2. One place I eventually found myself was a place of fierceness--and it helped. I got fierce about finding everything I could about my own dx, I got fierce about treatments for the particular type of b.c. I had, I got fierce in fighting back and not allowing myself to be reduced to a disease. No matter how crappy I felt, I made myself go to the gym, yoga, and hike as I always had before. It relieved tension, helped me believe that my life would go on in spite of the dx, and kept me on my regular routine which was a great comfort. Research proves moderate exercise relieves side effects from tx, so that was a bonus, and regular exercise also keeps us more protected from recurrence--another bonus.

    :)

    Claire in AZ

  • ceanna
    ceanna Member Posts: 5,270
    edited January 2020

    voncloft, hope you are healing well and that your doctor appointments Friday went well. Update us if you get the chance. All the best to you.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    claireinaz

    It sounds like you had the same mindset I did - except I'm too lazy to be fierce. But all through my tests and surgeries and other medical stuff, I'd get out and hike in parks. It might have been the short and easy paths, but I did them! And I've never been a regular hiker. I was proudest of completing that favorite short hike about eight days after a total nephrectomy. All my post-boob walks had been good practice!

  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    Well...

    I'm getting a pet scan on Friday ... and have to wait an eternity to see if my cancer has spread elsewhere (2-3 days to get results)


    Then I need a chemo port and need to have 4 sessions of TC chemo once every 3 weeks....life is grand :-/


    Then I get radiation (not sure for how long)


    Finally I take an estrogen blocking pill for 5 years.......


    Ready to throw in the towel...joking....not joking.....maybe.....idk.....I want off this ride.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    Oh Von - yes, we all want off of this ride. I certainly understand your saying... but maybe not.

    I had a port and grew to love it. No continuing 'invasion' to my veins. I kept it for 3 years after chemo just for CT scans with contrast, etc. My rads were 30 weeks w/no boost. Many are only 25 weeks.

    We'll keep you in our thoughts. Please do continue to check in.

  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    Honestly - the worst part is EVERYONE treating me differently (mostly family....I have one friend that actually gets my humor and lets me vent and holds back nothing - and I LOVE THAT!!)....my parents (who say "I wish you wouldn't talk like that" when I say my dark humor......) mostly are the biggest stressors asside from my cancer diagnosis....THEY WANT TO THINK 30 STEPS AHEAD OF THE DAMN GAME!!! OR have a family tree of thoughts where each thought is a branch...and that branch has 5 thoughts....and each of those thoughts.....has 20 thoughts.....and each of those 20 thoughts....has 100. It is a land of what if's with my parents....


    Like my genetics test: My parents were well what if you have BRCA 1&2....that means you will have a chance of it happening again....and you'll be susceptible to other cancers...which means you could get other cancers ....... Oh look the test came back normal.....wow it was really worth worrying about this stuff wasn't it mom? Oh yes its worth worrying over nothing...ISN'T IT!!!!!!!!!! BOY I AM HAPPY YOU WASTED ALL THAT ENERGY!!!! - ISN"T MY LOGIC BETTER JUST GOING ONE DAMN STEP AT A TIME!!!!!!!!!!

    My mom will constantly think "Well...you better get a FMLA from work....because if you get sick .... they can fire you.....and if that happens you lose insurance.....and if that happens you have to move back home.....and if that happens......the world will catch fire.....and if that happens.....the end of the world is here.....and if that....." - I just want to yell SHUUUUUUT UP!!!!!!!!! AS IF I CAN'T SEE I NEED TO DO THAT!!!!!!!! NO I APPARENTLY NEED YOU TO RUN MY LIFE!!!!!!! CAN YOU CUT MY VEGETABLES ON MY PLATE TOO MOM?


    I just want to tell everyone to shut up!!!! seriously I want my old life back where I just went to work for 5 days....visited my parents ONCE a week (not get bombarded every day with text messages and phone calls checking in on me....JUST LEAVE ME ALONE!!!!!!!!!!!!!!!!! I AM PERFECTLY HAPPY SITTING ON MY COUCH WATCHING YOUTUBE VIDEOS OR BINGE WATCHING BREAKING BAD - everytime I hear my phone *ding* my entire mood plummets because I know damn well you will ruin my mood with some "what if" statement) I don't want to talk about feelings, I don't want my hand held during this, I don't want to talk just to talk.


    ...sigh.....everytime I visit my parents - they constantly push their feelings and fears on me....I AM THE ONE WITH CANCER!!!!!! I can deal with it anyway I want......if I want to be cold and lonely that is my right!!


    So I say again....I want off this ride. Man that feels good to get off my chest :D (again...hahaha) Honestly my mind is just going "Step 1.....Step 1 done....onto Step 2.....Step 2 done....Onto Step 3" it is not going "BUT WHAT IF STEP 2 MEANS THIS!!!!! OH NO THAT CHANGES STEP 3!!!!!!!!!!!!! OH NO!!!!!!!!"


    I know I sound like a jerk to my parents....I get it they can't believe their son has cancer...I get it....but back off. The cancer was caught early, the treatment is coming, what more can be done!!!! Worrying won't solve anything.


    I am going to be bald soon, I'm going to be sick soon for 3 months straight....I might lose the ability to have kids in the future (which I never wanted in the first place) - Just let me enjoy "some" good times before that happens because I won't have the "good times back" for atleast 6 months in the future. Gauranteed I will get a text from my parents one day "are you checking your other side of the chest for breast cancer (I only had the right side operated on)" which will cause me to throw my phone against the wall because apparently I'm not smart enough to do that on my own!!!!! AND/OR sever ties with my parents all together AND/OR BLOW UP AT THEM and say something I can never take back.


    I don't mean to be cruel or mean....but this whole experience has given me alot of anger lately and the volcano of anger is just bursting at the semes 3 months in.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited January 2020

    Voncloft, the reaction from your parents is not an uncommon one. They likely want what’s best for you, but have no idea how to broach topics that concern them in a natural way. Perhaps you could talk to them and explain that, while you appreciate their concerns, you’d rather not have to discuss things in such a dramatic fashion.

    As to your treatment concerns, my oncologist gave me some very wise advice when I was at your stage and freaking out about what lay ahead. She said: don’t have any preconceived notions about the effects of any stage of your treatment plan. So I didn’t and I breezed through eight months of intensive Neoadjuvant treatment: surgery, chemo, radiation, and hormone therapy. My side effects were very few, as you likely read in the link to my story that I sent you.

    Keep us posted. You’ll get through this.



  • voncloft
    voncloft Member Posts: 41
    edited January 2020

    Traveltext

    I'll try once again to address the issue....but I doubt I will be successful :-/



    Did you have a chemo port?


    Were you awake during the install/uninstall?


    How did it feel with both?


    Thanks


    (my private messages are empty I never got a link)

  • Traveltext
    Traveltext Member Posts: 2,089
    edited January 2020

    I didn't have a port, but they save nurses having to find a vein each infusion.

    Perhaps someone here will explain the process.


  • ceanna
    ceanna Member Posts: 5,270
    edited January 2020

    voncloft, feel free to express yourself here. It's a safe place and everyone will understand. I like your one-step-at-a-time approach. Traveltext's oncologist is right--not everyone gets the same side-effects. Deal with it one day at a time and one treatment at a time. All the best. Your sense of humor will help you through!

    Loopy

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    From reading lots of posts here, and from friends who have undergone chemo - many keep working through treatment, perhaps with one day off for down time, which seems to happen a few days after infusion. There are some who get unpleasant side effects, but there seem to be more who don't. Browse around this site and you'll find the full range of reactions.

    I was sort of lucky that my Mom passed away about five months before I started Cancerama. She was a chronic worrier, too, but she'd had breast cancer and Dad had had kidney cancer, and they both did well, so maybe she wouldn't have been annoying after all. But there were times I'd have loved to hear her voice.

  • edj3
    edj3 Member Posts: 2,076
    edited January 2020

    voncloft isn't it just the damndest thing that you, the one with the cancer diagnosis and the one who will be going through the various parts of treatment, are put in a position where you're comforting others? I found that utterly exhausting--last spring I shared with someone who started crying. She's crying, and I'm comforting her and I'm thinking HEY, stop it! You should be comforting me?

    And my parents' what if scenarios . . . heavens. Made more complicated by my dad being a retired MD and my mom a retired RN. Talk about endless branching bunny trails. Sheesh.

    So yes, vent away. I think you'll get more of what's helpful to you here, on an internet board from people you've never met.

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