I want to quit
I did the 4 AC treatments and 4 of the weekly taxol, 8 to go, and I cannot take the fatigue anymore. I can't take care of my 5 year old daughter, my (supportive) ex husband does. I can't work. I can't even sleep most of the time. I can only lie here.
I'm doing the lupron and eventually the AI and the radiation and the axillary node dissection. Isn't that enough? My oncotype was 25 but my sentinel node biopsy showed a 4.5mm mass in one node and 0.2mm in the other.
The choice to do chemo was sort of optional to begin with, but because they didn't know if it was in more nodes, plus I'm 43 and have a small child, I did it. (I did have a negative pet/ct scan).
I also just started an antidepressant (Lexapro) about 3 weeks ago and it's just barely starting to work, which I can tell because it makes me jittery and so even harder to rest.
I can't take this anymore and I want to quit so badly. I want energy again. I miss talking care of my daughter so much. I know I'm spoiled in a million ways and there are people who would think of themselves as being very lucky to get this treatment. But I hate it so much.
Please anyone give me your perspective
Erin
Comments
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Erin hun, it's only 8 weeks for possibly a lifetime and watching your little girl grow up.
You aren't SUPPOSED to do anything other than fight cancer right now.
Move from bed to couch back to bed again. Try to take a walk outside every day but don't do anything else.
The bounceback is fast - I promise you. I did rads after chemo and started in a fast paced nursing program while still in rads - I could barely drag myself around during chemo but 2 months later I was back to being a (sort of lol) energy bunny.
You don't have to like it. You don't have to be brave. You don't have to be grateful. You just have to show up and keep showing up 8 more times. You can do it. It's a decision you made for a reason...stick with it.
For insomnia during treatment, talk to your doctors about melatonin and L-theanine. See if they'll ok it.
otherwise, try the Sleep with Me Podcast with Scooter. I was very skeptical about it but it really worked for me.
hang in there -
Thank you moth.
Please everyone more of the same. I know you're right.
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I feel/felt the same way. I just completed my fourth AC today and then start in three weeks taxol for four treatments. I have two daughters 13 and 17 and I do miss the way I used to be instead of walking around in a fog and not feeling well overall and tired. I think everyone is getting tired of me being tired at this point! lol.... I have voiced that I wanted to quit to my immediate family and in the end they convinced me to keep going bc at the end of the day I can say I did all I could to fight. I don't want to look back with regret....
Hang in there ……
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Erin, hang in there! I did AC+T too. I wanted to give up several times during this crap. First time was after AC#4 because I didn't bounce back very quickly at all, was so dehydrated. I felt like a slug, couldn't rest at all, just laid there tired wide awake all night and accomplished little more than breathing around the house. But I pushed myself to start Taxol. After Taxol #4 of 12, my Oct ladies will verify, I was really ready to throw in the towel. I was done.I found Taxol really messed with my emotions, in fact all of us ladies felt on Taxol that it really messes with your head a bit. I still couldn't sleep but maybe a couple hrs every night if that. The anxiety, the dry heaving, everything.... But in the end I wanted to be able to say I finished, I had gotten this far, can't I go just a bit further, if all this temporary crap would extend my life by decades perhaps?So I dragged myself to the end and finished, not a hoot and holler finish, but a finish none the less. I know this is incredibly hard, but just think of each Taxol treatment like King Leonides and his band of 300 going in there to kick cancer ass. Let the King do his job and let him slay away in there!
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You sweet thing. Eight weeks must seem like a lifetime. How about you take it one week at a time. What’s your treatment day? Can you get through the next one?
I just flashed on the 16 years of my life that I was gone from home two nights a week because we’d moved away from my job. My husband was a single dad those two nights that whole time and he is so close to our kids. This is not a bad thing for your daughter and her father. There is an upside to this short window of time for the two of them so please remove that piece of your worry.
And have someone bring you some ice cream.
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Thanks everyone. Please keep it coming. I'm literally going to read this thread every hour.
Solobroker - if it weren't for my family talking me into it literally every day I probably would quit.
RadagastRabbit funny that it was taxol #4 for both of us. Thank you for the specific self-talk to use also.
Ingerp thank you very much for that perspective, also i did see your advice about protein in the other topic and I'm taking it seriously. I'm a vegetarian but i have been trying to eat as much protein as i can.
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My treatment day is Wednesday, since it used to be i was just fatigued on the weekends. Maybe the antidepressant will help. I hope so. The AC was actually easier that way, which is what gets me. Now I never have a good day.
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Erin, I just wanted to speak to the issue of beginning a new antidepressant. Waiting for a new antidepressant to kick in can be an extremely difficult time. I've been through it twice. My medication just kicked in to where it is now working and the jitters have gone away. It was so hard but I'm glad I was able to stay with it because I feel so much better. I know it will get better for you. Please keep checking in. You are in my prayers.
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Erin, NOW is your moment to kick the ass of this cancer! NOW, when it is weak and giving up! Stay the course!
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Hi Erin,
Cancer treatment is sooo exhausting! I've been where you are right now. You're physically and emotionally drained. Plus add in sleep deprivation and it's so much worse. I get it! I wanted to quit after AC# 3. And again during Taxol at #6. I found with Taxol I only had one good day a week, day before I had to do the infusion... AGAIN! I understand that this is SO HARD!!
You're kinda dealing with a double whammy right now trying an antidepressant too...that can also mess with your emotions and sleep until it starts working well for you!
One day at a time..."THIS TOO SHALL PASS".
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Erin--hoping you had the beautiful sunrise we had here in Central Virginia. How are you feeling today?
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Erin, you are stronger than you know, girlfriend!! Take each treatment one at a time. You need sleep for the body to heal physically and mentally- please talk to your MO.
It helped me to find something to look forward to everyday and write it down; trying out a new tea, opening this blog, a sunny forecast, reading a book with your daughter, waiting for the mail (I have a big family-received lots of cards). Whatever it is you enjoy, but, find something to smile about during this journey-it can be very dark. But please know YOU WILL get to the other side and life will be GOOD. We're all here praying and cheering you on!
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Erin, Like others have said, this is a time to take care of yourself, be a little selfish, let others take care of you! If that means laying in bed and watching tv, so be it. Maybe you could rent funny movies for you and your daughter to watch together. Plan something simple and enjoyable to look forward to. I went to Tucson for my Moms' 80th bday in between my 3rd and 4th chemo TX's. I was so tired and it was hard to just walk to the bathroom sometimes...but, I had so much fun seeing my siblings and forgetting about my BC for a week. I dreaded my last TX when I got home and almost convinced myself not to do it. My Mom told me, "just get it over with!" That stuck with me and I put my big girl panties on and got through it. One day at a time, sometimes one hour at a time, sometimes one minute. Pretty soon it will be in your rear-view mirror and you will be on the other side, helping others. I journaled a lot and spent lots of time with my grand-kids. . Like, L8Blmr said, you are stronger than you think! Best wishes to all of you:)
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Hoo boy, do I feel you, sister! I'm on the back end now, but I am so sick and tired of being sick and tired. Two things helped:
1) Taking it one week at a time. First I was "OK, get through 6 of 12." because half way seemed like a significant milestone. Then, #7 to make it more than half. Then #8, because what's one more. Etc. Down to my final 2 and I guess I may as well finish as I've come this far.
2) Extra hydration at the end of my chemo session. One hour / one litter of saline / hydration does wonders for my nausea and energy.
My youngest is older than yours. She turned 14 yesterday and I have absolutely hated the milestones I'm missing. Biggish ones - my sister is taking her shopping for her cotillion dress next week, for example. Little ones - she needs new bras and my Mom is taking her to get fitted as she's grown (as 14 year olds will). Things a girl's Mom should BE there for. But I'm missing these milestones to make it to the others - high school graduation, freshman college drop off at the dorms, first job, first love. I WILL be there.
Just this weekend she was planning her birthday party - time shifted to accommodate my chemo schedule (damn it!) and she said - "Oh wait, Saturdays aren't good for you." and I was able to say "Yeah, but I'll be done with chemo by then, so go ahead and plan your sleep over. Invite the whole darn class if you want". Felt good!
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Erin-Plan something special for yourself so that you have something to look forward to once you have completed your chemo.It could be as simple as a massage or a special few days with your daughter. I went a little bigger and planned a trip to Alaska (somewhere I always wanted to go, but hadn’t gotten around to yet). It really helped to have something to work towards and look forward to. The trip was excellent.
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Erin- I promise you - you can do this - I know it is awful, but You Can Do This. I use to repeat to myself all the time ‘This too Shall Pass’. I repeated this over and over. I literally laid in bed from chemos 3-6. Take one chemo at a time and accept the fact that you really can’t do anything til this is all over. Your job now is to fight. I had a 10 and 12 year old. I have more than made up for the time I missed with them while recovering. I promise you that it will come to an end and all this will Be behind you.
Hang in there we are all cheering for you! I will be thinking of you.
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One day at a time. Every day you get through means you are closer to the end of chemo.
Plan for something very special you will do to celebrate after your final treatment and keep your eyes on that.
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Thank you all so much. I can't thank you enough really. People keep saying the same things basically but I need to hear it with details and in all the different ways. For some reason it is so hard to internalize these messages "one day at a time", "this too shall pass", "it's only 8 weeks to let you watch your daughter grow up" I don't know why I haven't been getting it and why i still need to hear it so much.
Tomorrow is taxol #5 of 12, which means 49 days till the last treatment.
Today i saw my daughter for a couple hours which was lovely. She seems fine, happy, not that surprised to see me, not especially sad to leave, she's almost 5 and time is not really linear for her yet. Which is good. It was a fight through fatigue which causes me anxiety but I enjoyed her.
I feel ok right now but as Cowgirl and others have mentioned, starting the antidepressant is also hard. This is i think my 4th time starting one in my life, I'd been off it for nearly a year. Today was 3 weeks back on so hopes of real effects soon. It's a little better but my anxiety is still bad. Mornings are very hard. I wake up and think oh God another horrible day and i try to sleep some more and i can't. This is depression i know, I've been through it enough times. So sooner or later it's got to break.
Erin
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Hi Erin, thinking of you today on your treatment day. You can do this. Find the little slices of joy and take one step at a time.
We're cheering you on! -
my daughter was 2 when I was diagnosed, my son was 8.
During my treatment, my kids ate too much pizza. There were days I put the two year old in bed with me...and we binge watched Disney movies because that was all I could manage.
I taught her to climb on the change table cause I couldn't lift her. I also taught her to climb in the tub, and the car seat, also because I couldn't lift her. I had no energy. I felt like the worst mom ever.
My kids survived. It was an unpleasant blip. We came through the other side. I finished treatment, I got stronger. They remembered, but we moved on. In the thick of it...I wanted to quit. But I crawled my way through it. You will too. You got this my brave sister. You are doing what you have to do to survive. Your 5 yo will remember that love. Don't be so hard on yourself. Hugs...
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beautifully put!!!
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I always tell cancer patients, there are days you will want to quit chemo - sometimes many days. Don't tell your family as they cannot handle it. But wanting to quit is NORMAL - not unusual. Tomorrow it will be better.
And talk to someone who has been there. AND YOU ARE!
I literally BEGGED my MO to let me quit at the point you are at right now - just after AC. I cried, I pleaded, I begged some more.
He sat me down, held my hand in a doctorly fashion, and told me he would not let me quit. He promised that Taxol woud be better. He told me I had the strength to do it. He was right.
I just had my 7.5 year cancer free checkup. I always thank him each and every six-month visit for not letting me quit and thank God every day since I completed chemo that I did not quit!
YOU CAN do this!!!!! We are here for you!
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Hi Erin,
I read your post and literally recalled how I felt 3 years ago when I was in your exact same position. I told everyone that I was done, except for my daughter. I wanted it to be over and wanted my former life back. BUT, you can do this and you will get past this point. I used to get so angry when people said that to me..... they had no clue what we went through. The only place that gave me comfort was here.
So, if you can do this for 8 more weeks, you can walk from this knowing you gave it your all, even when it was so hard. I used to count the days until it was over. I will count with you to help. Also, get meds from your doctor if you feel this is necessary. I did and I do not regret it. No one understands how taxing these treatments can be, both physically and emotionally.
Please call on us for help and stay the course. You've come so far and it's almost over. Many hugs to you
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Thank you everyone. Your specific stories really resonate with me, especially how tresjoli2 says it's now a blip for her family. I pray to get to that point, unimaginable as it seems. Today is 47 days until my last treatment.
I'm still here. I did taxol #5/12 and at least they let me skip the steroids so got to sleep that night. I went to see my daughter but then had to leave cuz my ex's girlfriend was coming over! That stung a bit, but considering all he's doing I can hardly complain. The next day I saw her again for longer though.
Yesterday was bad for anxiety but at the moment i feel tired but ok. Maybe antidepressant starting to work now, it's been 2.5 weeks at the full dose.
I asked everyone at the treatment center if anyone ever quit and they said "don't quit". Somehow i have to make it through.
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erin - nothing feels as good as finishing chemo. Take my word for it. Walking out of your infusion center knowing that you climbed that mountain is such a good feeling. You will feel 10 feet tall. It was one of the best feelings of my life.
Just think, once you finish the next one, you're halfway done! The further you get, the more you pick up steam and going to the next one doesn't seem so hard.
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Thank you hapa. Honestly today is another day where i just don't know how I'm going to make it through, emotionally or physically. I just don't know. I feel like I'm losing my relationship with my daughter. She's getting used to her mother not being around.
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Erin
I would echo what everyone else has said-- but let me add this. My girls were 7 & 12 when I was diagnosed.... I was working full-time, having chemo, then radiation--- I had 4 rounds of AC that literally kicked my ass.... I could not believe how tired I was, how hard it was to drag myself to work- and when I was on the steroids, well, I was just crazy. I had less treatment than you.... so I cannot tell you how to get to the next step--but I will say that your 5 year old daughter will not remember this--- my now 18 year old only remembers that at 7 she helped me with my wig and we sat in bed and brushed it out and I let her try it on. I was not "present" for them for several months as I worked through chemo then focused on radiation-- all we could do was let them have their regular schedules, hang out with their friends, be a little closer to their dad--all good things. I have enjoyed the last 10 years with them as they have grown up, gone to high school, one has graduated from college, one is about to enter college..... This is a small amount of time (40-50 days) so you can enjoy the rest of your life with her. I know it feels like forever when you are in it--- but trust me when I tell you that in two years- you will literally barely remember this....... neither will she..... hang in there-- we all know how you feel.
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hello from your futute self. I have benefitted great from powering through shitty but up to date therapies. I lost my hair 2x. Had extracapsular extention. Someone called me metastic. Looked like a zombie, had no mojo....took time. Took a lot of time by being careful, quiestly fighting, realizing my child and friends and family grew such faith in me. Of course it meant nothing to me. Until I got through it. Held my child. Filled out my name on all his school forms and attended pta meetings with some hair under a baseball cap with jewerly. I arranged parties. Vacations and now hes an honor student. I was asked thanked and praised at work, at school, by friends...til one day I realized it was me. I did it. I survived. my voice and impact were far from over in this world. The best was telling off my in laws...Im still here...and this child is old enough, no matter what you say or do, my mark is on him. My son and others are better because of me..
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I am so glad to have found this topic. I have 2 of 12 Taxol left after completing 4 A/C. Erin, I wanted to quit so many times, including today. My MO calls me the poster child for SE's. If it's listed, I have it. Heck, I even have some not listed! My children are grown, but my granddaughters are 4 and 7. I just missed their birthdays along with my daughter's. But I will be here when they have the next one and the next 20, I hope. I take life hour by hour right now. I just never know how I will feel. But, in a few weeks, this part will be behind me. I still have a lot of treatment - rads and hormone drugs - to go but if it gives me the chance to be around for my granddaughters' weddings, I am going for it! You can do this. Yes, it's hard. But you are tougher than this. One hour, one day at a time. Prayers for you and your daughter.
Annie
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hi Erin, If I may tell you my side of the story. I dont have kids but I clearly understand that you miss your normal life with your daughter. you have to think that you are going through all of these things for you and for her
I was "lucky" with my chemo treatment because I had my 12 weekly taxol first and then my 4 FEC (which my doc split at X 8 weekly doses). I can assure you that besides my hair loss taxol was ok. the hard thing was the FEC. I had times that also I cried and wanted to quit, but then I see the lines that I drew on my wall (you know as a prisoner counting days) and said to myself "you're almost done"...
We've been all at the same position... wishing you strength and courage
p.s. my english maybe a little hard to understand (I'm writing from Greece) but the words are coming from my heart
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