Help me I am very depressed.
I am going to have my port a cath put in Tuesday August 7 I have come to accept that and now I am worried about something else because I suffered a heart attack in May 26 2016 I have five heart stents
The doctors talked to me about starting the combination chemo drugs Taxotere and Cytoxan and I have been googling these drugs and the side affects they will have on my heart and all I read was not good.
It seem that these two drugs will make my heart worst or give me heart failure. I feel like I might die before my rounds of chemo is done and what I read about radiation close to the heart is no better.
Please somebody give me some good advice. Someone who have had a heart attack or have heart disease and develop breast cancer and I want to know how are they doing and what treatments did they receive and did the treatments have any affects on their heart. PLEASE HELP. I am about to have a nerves breakdown. DESPERATE.
Comments
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Elisa, these are questions only your doctor can answer. I suggest you make an appointment with your cardiologist to discuss these things. People on a random message board are in no way qualified to advise you on your cardiac health.
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mustlovepoodles - Thank you I know I should ask my heart doctor but I just wanted to hear from others with the same similar situation that I am facing. Because I was hoping that I could find another BCO members who have heart disease and develop breast cancer about their experience with chemotherapy drugs and their outcome that's all. I know sometimes I can be a pest but I do not mean to be. I am so afraid and have nobody else to turn to. I will delete my post and thank you so much for your good advice.
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No, you're not being a pest and I'm sorry if you felt chastised. I certainly didn't mean it that way. You're asking questions that are very specific to your health and no one can really advise you but your own doctor.
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elisa - I hope you're not really leaving the site as you said in your other post
I think with regard to your health conditions, remember that doctors don't recommend things unless they believe the benefits outweigh the risks.
Also, there have been so many advances in both oncology and cardiology recently that I'm sure a care plan can be devised for you that takes the best care of you possible. Just a few days ago a lady who has a pacemaker was also posting about her concerns with chemo. There are lots of people who have heart disease and many other health problems who go through chemo - hang in there, ask your doctors your questions and let them come up with a plan that takes into account all your health issues.
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moth- Thank you so much. I feel so much better now since you gave me such an inspirational comment. My eyes are tearing up now. I just do not want to be a worry to anybody. You have made my day. You are a sweet heart and thank you for understanding. I will stop posting but right now I will not delete my account
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elisa, I hope others come a long that may be in a similar situation to you. While treatment will vary between individuals, it can still be helpful to hear what others in similar situations have done!
I've asked a lot of things about my cancer treatment since being diagnosed in August. But when push comes to shove, I know my doctors and I must make a decision based on what's best for me. I agree that speaking with your cardiologist is an important first step and that he or she work in conjunction with your cancer doctors.
Continue asking questions, there are a lot of good people in this forum that give support. I wish you the best, and peace!
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Elisa60, if you want input from other heart patients, put heart in your topic. Also it would be easier not to go through all of your new topics to figure out if you need chemo. But of course you do because you have TNBC. So why not fill out your profile now? I only hope they give you the right kind of chemo the first time around. So join the TNBC groups. Just do a search. Definitely get approval from your heart doctor before treatment. I did.
So sorry this is so overwhelming for you in more ways than one. You could spend your time researching TNBC and chemo?
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elisa60, stay here in BCO! I understand your fears. Remember, your doctors want you to do well as much as you do! If they are aware of your previous heart issues,and I'm sure you told them everything, then they will be making the best plan. That doesn't mean for you not to ask questions though. Ask your regular doctor, your cardiologist, and the oncologist. I'm sure there must be many women with heart issues that have gone through this before you. Once your port is in and the small incision heals, you will be glad you have it.
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elisa60, I am so sorry you are feeling depressed and scared. A cancer diagnosis is depressing enough, but coupled with your heart history, I understand why you are feeling the way you do. When I had my Herceptin treatment, I had echocardiograms every three months to monitor my heart. Doctors watch their patients very carefully while on chemo and I'm sure your doctor will as well, as long as he/she is aware of your medical history. Share your fears with your medical team. On another note, when I was diagnosed with BC for the second time, I was extremely depressed and I sought out counseling. I think it is always a good idea to speak to a professional about our fears when we are going through a stressful time. Many people on the boards are also on an antidepressant, which can help you get through this stressful time.
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And Elisa, sometimes members on here reply with a comment that is snappish or hurtful. I don't know why they do that, since we are all here because we are going through difficult times and are looking for support and guidance. It is rare, but it happens. Try to ignore them, although I know it is hard. Another member telling you to ask your doctor because no one here on a "random" message board can help you is just wrong. Of course you'll ask your doctor, just like we all ask our doctor. Getting feedback from (nice) members here helps us know what to ask our doctor, and even suggestions to make to our doctor.
You were RIGHT to ask this question here. Please ignore anyone who tells you otherwise.
As someone nice suggested, if you put "Pre-existing heart condition and chemo" as the subject of a new thread, and then ask your questions, you will probably get more answers.
Also, go to your profile and complete it. When you do this, it shows your diagnosis and your treatment underneath all of your posts as part of your "signature", so that anyone looking at your post knows what is going on with you and it is easier to answer your questions.
This site is very helpful and you will make friends here.
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ispy- Thank you so much for understanding and beautiful put encouraging words. I know that BCO members are not doctors but all I wanted was to connect to anyone who was facing or been through my similar situation that can give me some idea of what to expects according to their experience.
I will complete my profile page soon I know that will be a lot of help to. I have gotten my answers to my questions through experience, I had my first round of chemotherapy Tuesday August 14 2018 and My medical team was very good to me, they went out of their way to make sure I will be ok.
My medical team gave me medicine before my chemotherapy started and during and after my chemo. My doctors assured me that my treatments will not do harm to my heart, After my chemotherapy I have not had one side effects, I sleep good, I get up feeling good, do my house work, run my errands, cook and go for my morning walks I am very thankful to God and BCO members like you and others who have taken time to answer my concerns. I appreciate you all very much and I will keep you posted on my journey
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This forum is the only place you can go and compare notes because we are all here for the same reason in various stages and grades.
Of course we aren’t medical professionals. The reason we all sign on here is for suggestions about similar diagnoses. It has truly been my lifeline from the getgo. Words of encouragement and support are so helpful in dealing with a BC DX.
The group I typically align with have become friends over the years. We share things other than breast cancer issues. It’s a wonderful connection with people.
If someone is rude just take that response with a grain of salt. Everyone is entitled to their own opinion as long as you are respectful.
Diane
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Love that good update, elisa60. Yay! I don't know if there is a topic on here for your particular chemo meds, but probably so. When you have time, search for those meds and the people there will have tips and experience too. Keep us updated here as you go along and post any questions.
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MuddlingThrought- Thank you. I will keep you posted. Again thank you for sharing your experience with me. You being so nice to me.
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Good news, Elisa. I know you were so worried about chemo. Did you ever get your port?
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mustlovepoodles- Yes I did and it was not as bad as I thought. I guess fear of the unknown had got the best of me but know I am glad I have the port and my first day of chemotherapy went good and the doctors took time to answer my questions and other concerns. I have not been sick or nauseated, I am full of energy and I have to make myself set down I just keep going and going. Everything good and thank you so much.
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If I relied on the information my doctors have given me, I would know nothing at all.
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elisa60, if some of that going and going and going energy is from steroids (it was for me) don't be surprised or dismayed if it runs out after the steroids clear out of your system. Okay? It won't mean you are doing poorly or getting worse, it's just part of the cycle.
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elisa60:
I am glad you are doing well. I don't think you were wrong to have the worries you did. They were valid issues and it sounded like you needed answers to them you weren't getting. Anyway I am glad you got the port and started treatment and I hope things continue to well for you from here on out.
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hi elisa60,
I'm sorry to hear you have breast cancer. I can't speak to your heart health condition but I can provide you with information on your concern about radiation near your heart (I'm assuming left breast).
I am receiving Deep Breath Inspiration Radiotherapy. It is a technique where you breathe in to 80% of your maximum lung intake and hold your breath whilst radiotherapy is administered. The breath hold moves your heart out of the way of the trajectory of the radiation. I asked for this and my BC surgeon referred me to a colleague he knew who does this
Ask your doctor if there is a chance you can be referred to a clinic that does this.
My radiology oncologist feels this should be a minimum standard for women and men with breast cancer. And he is right.
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So true. This community was one of the first places that started to inform me (passively as I read lots before joining) and without the information I would have been deeply afraid
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hello sweetie I was diagnosed while making our wedding plans 2nd marriages I received cytoxin adriamycin 5fu 3 mo before and after Lmast got married then rads then 5yrs Tamoxifen. Had took leave from work after treatment done went back to work had shortness of breath worked at clinic at time they nurse n doc checked me I had asthma. Then went to E R after I woke my husband up breathing labored kept me in hospital diagnosed with heart arrythmia and then heart failure but I am doin great that was 10 yrs ago I'm doing great Praise God. People don't even know it if I don't tell them when I do they say No Way. I'm a 24yr Survivor. Praise God. Positive thoughts and Hope got me thru. You can do this too. idc stage 2 0\3 nodes Lmast chemo rads 5yrs on Tamoxifen. msphil
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msphil- You are so strong. Thank God. You are such an inspiration to me. Thank you so much for sharing this with me it just give me strength to fight on. I know I have to work on my positive thinking because sometime I can be so negative. I see that you have been through a lot but God and positive thinking got you where you are. I feel so much better now since I read your post and the next time I start feeling sorry for myself and been so negative I will stop and read your post. Well I have been feeling kind of bad for the past five days but I feel so much better now and thank you so much for sharing this with me.
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It's always a pleasure to hear from Mrsphil. She is so inspiring. She has BEEN THERE & DONE THAT!
Just wanted to add a little encouragement for you, elisa. It sounds like you're doing great with chemo. I was very surprised when I had chemo how well i felt. All I knew about chemo was what I saw in films and TV--ugly, bald, gray-faced, puking. I was none of that, well, except bald.The steroids they gave me with the chemo gave me decent energy and pink skin. I lost my hair, but my wig was smoking hot, Haha. People who didn't know me had no idea I was wearing a wig. I had some pretty bad fatigue between chemos, but usually only for about a week. Then I was back to fairly normal. So, for me it was 2 Chemo Days-5 days of normal-7 days severe fatigue-7 days normal and looking good. Although my taste buds changed, I never felt nausea or threw up. I hope you will have an easy time of it, elisa.
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I was recently diagnosed and pretty much every single thing that came up I "knew" before it was confirmed- from the lump itself to the affected lymph nodes. Listen to your gut and get that information from as many resources as possible and don't accept anything that feels less than right to you.
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mustlovepoodles - Thank you so far so good. It was scary for me before I had my first round of chemo, I never heard nothing good about it. When I google chemotherapy the news was always scary and frightening but after I had my first round it was not bad at all.
My nurse gave me something for nausea by mouth and IV before starting my chemo drugs and when I went home I felt so energetic. Although I am completely bald I wear my wigs and makeup and always try to keep a smile on my face because I know this is only temporarily.
Do you order your wigs or buy them locally? I am searching the internet for wigs shops for more styles in wigs and always looking for different looks. Only thing that I had after my first infusion was my taste bud went away everything tasted sweet, sour and bitter but that's trying to get better and when the steroids wore off I guess I crashed but that got better to. I will keep you posted. As always I am so glad to hear from you.
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elisa60:
If you have the money you can also get custom made wigs that look like your real hair.
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My oncologist gave me a prescription for a "cranial prosthesis". Fancy medical terminology for wig. I called my insurance company to find out their procedure. My insurance did not require me to go to any particular place, but they did put a cap on how much they would pay. All I had to do was buy the wig, send in the receipts, and they would reimburse me up to the $$ cap. I got the name of a local wig shop from the cancer center. Made an appt and we got down to it. Wig Lady was very professional and had been doing it a long time. Once I settled on ther right wig, she trimmed and styled it for me, too.
My wig was about $250. It was synthetic, so very easy to care for. It looked quite natural and lots of people asked me if I had colored my hair myself or had it done at a salon (a salon, of course, LOL). I have kept the wig just in case i ever need it again. My insurance only pays for one wig per lifetime.
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I am doing the cold caps but I'm not one of their raving success stories. I'm just walking around kind of bald on top.
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