Anyone want to sit and wait with me?

Colleen,

That's a good question to ask your onc. I think they base it on if you have symptoms, like headaches, vision changes.

My onc and I debated whether or not to do a brain CT, and first she said yes definitely. I have a lot of headaches, but it's not new. And all this radiation, I wanted to reduce it; she kind of left it up to me which is kind of scary. She said we could always do it later on if indicated.

An article in PubMed states that "It is generally accepted that MRI (contrast enhanced) is superior to CT scan (contrast enhanced) in the diagnosis of brain metastases" so I don't know why CT is always being done instead, they are saving money again I guess.

Inclusion of Brain scanning for cancer patients

How did the Rads experience go for you?

Dear Colleen, I've just been reading through your thread and am very sorry for the insecurities you've had to deal with.

Maybe I missed that, but was the remaining tissue rediagnosed as to percentage of ER and PR, or if it was still HER2, or if Ki67 has changed ...

My daughter also had residual tumor tissues. But HER2 had disappeared, Ki had decreased considerably, and HR status had nearly remained the same.

She was told by her oncologists that TP didn't usually get pcr since driven by estrogene, which didn't mean a worse prognosis than HER2+, HR-, together with a pcr.

Best wishes Gudrun

Weird. I posted, I saw the post, and now it's disappeared. It had jokes and everything.

I will join you on the waiting side of the waiting room. I have a nuclear medicine bone/joint scan next week. I'm probably still experiencing effects from the chemo port, which was hard on me, but it's getting worse over time. It's probably still that, but 3 members of my BCO chemo cohort (that I know of) have mets or recurrences, so it seems stupid not to get imaging. I want an eval for mets to the clavicle before I use more aggressive treatment, like acupuncture, for the pain.

Colleen, actually after reading that article, I thought about it and phoned my onc and asked if she could order an MRI of my head and ---ta da! -- she actually agreed to order one. Because I do have daily headaches, so just for the peace of mind.

Ksusan, Greetings. Sounds like you are doing the right thing. Hey, and scroll up if you want to check out our poolboys. Apparently our waiting room has a pool lol

Thank you. I know all about the pool boiz & grrlz. That's why I picked this facility.

Just dropping by this great "facility" to say hi, even though I I'm off in the forest yonder, I'm thinking of each of you, waiting with you, hoping for the best possible outcomes, and meanwhile, enjoying this resort-like environment which has just about any features one might wish for. Being a BC survivor (as we all are) can have its perks

Colleen, how are your eyes doing?

My bone scan's tomorrow. sigh. Then MRI, then PET (if it is approved.) I guess I will be in the waiting room a lot. I send you all greetings and wishes for a good week

Colleen, glad that your vision improved with contacts, so that you'd not have to worry that blurry vision meant something ominous!

Let us know how it goes, Amica.

Thanks all -- I appreciate the support. I found the bone scan claustrophobic when that thing was positioned about 2 millimeters from my nose--I closed my eyes and tried to meditate. Helped a little.

Our waiting room is starting to look like a resort !

I close my eyes and, if it's noisy (like an MRI), throw a bass line and tune over that percussion noise.

Thanks Colleen, InnaB

Apparently it is still unclear how many lymph nodes are involved. I will have the MRI of the brain on Labor Day of all days.

May all your waiting be as peaceful as possible

Amica, yay!

Colleen, Mickey Hart's album Planet Drum is my model for MRI percussion!