Can we have a forum for "older" people with bc?
Comments
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We still have lots of snow on the ground but it's pretty much thawed on sidewalks and streets so I was able to go out yesterday without boots. That's always a treat. Today it's a gorgeous blue sky and hopefully the sun will melt down some of the snow piles on the lawns.
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According to the law of Dharma, you have a unique talent and a unique way of expressing it. There is something that you can do better than anyone else in the whole world--and for every unique talent and unique expression of that talent, there are also unique needs. When these needs are matched with the creative expression of your talent, that is the spark that creates affluence. Expressing your talents to fulfill needs creates unlimited wealth and abundance. -Deepak Chopra
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Dh and I lived in southern Cal. for many yrs. I never got to San Diego ( though I heard much about it thru the yrs. ) but then it is a big state. We lived in the Santa Barbara and Ventura area. We usually headed farther up the coast -- San Luis Obispo - Paso Robles and later inward to Fresno/Clovis areas.
Carole I always found the ocean ( had to get use to it and build an affinity first ) VERY soothing. Especially when I was feeling unsettled by things. I'd just pick out a wave leaving the shore line, put my concerns on it and watch it hit the horizon far away and disappear. So many things in my life were handled and taken care of in this way. While people can develop fears of water -- the ocean is a very huge and majestic body -- if you can become one with it while standing on the shore you can allow it to become a real blessing to you. I still miss the funky fishy salty smell of the ocean and its soothing powers. I think that is partly why we easily developed the desire to live out at the lake here. That is despite the fact that we don't have lake behind us -- but it is to the side. We actually have to go into our neighbors yard though to be right next to the lake. To me water is sacred -- have to remember we all spend our first nine months in it.
Hope you all get rested up and have nice bright days. We are definitely holding good temps. thru the day --- so hopefully other than an occasional bounce down we are moving towards warmer months overall. Bright out today though rain could arrive tomorrow.
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I need to make a correction. The Louisiana budget passed the House and is in the Senate now. The state cannot operate with a budget deficit, according to the constitution, which must be a faulty document since at every state election there are constitutional amendments. The whole printed document must weigh many pounds!
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"Those who contemplate the beauty of the earth find reserves of strength that will endure as long as life lasts. There is something infinitely healing in the repeated refrains of nature -- the assurance that dawn comes after night, and spring after winter."
-- Rachel Carson -
Good morning and I hope it is really good for everyone. We are having some very light rain. So light in fact that Dh is putting straw down over some freshly seeded spots in our lawn. I spent the day yesterday doing a final clean-up of the area. A lot of hard work, but towards the end the neighbors son and a couple of his friends came over to help me. Our neighbors are doing something right I think. The young man in question ( I've seen this on a number of occasions ) tells me that he does not want to be paid and would not even take an Orange soda. Nor his friends. The young man told me to go on in the house and put my feet up.
I didn't do that of course, as not only did they need to know what was most important to me, but I wanted to assure myself that none of them would get hurt while I lolly-gagged inside. Now I have far less to do outside --- just some on this side which I think won't need to be seeded. So, I am ( they have no idea ) so grateful for these young men. Walking up and down our hilly yard is quite wearing ( even the young men got a bit tired ) and I had spent most of the day out there save for running to town to pick up the straw which Dh had forgotten.
Not much planned for today. Have to say --- I slept like a log -- only getting up my normal couple of times to use the bathroom. Frankly, I don't remember much about that other than I found my way there and back.
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IllinoisLady - Wholeheartedly agree with you about the soothing powers of the ocean! Cannot wait for vacay in 2 weeks & being able to sit under an umbrella on the beach, gazing at the ocean and letting my cares melt away!
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I've lived in Chicago for 40 years, having grown up in Brooklyn and then moved to Seattle for 7 years. For the first 27 years of my life, I had access to evergreens and salt water beaches. I was delighted to see the waves on Lake Michigan, which was vast enough I could not see its opposite shore and was sometimes even blue. But two things seemed odd--I couldn't quite put my finger on it. Then I realized that the waves didn't smell like saltwater--in fact, they didn't smell like anything (except during the annual August alewife die-off). And come winter, I also realized almost all the trees were bare--Chicago is both too far south and north to have native evergreens (I think the geo-ecological term is "deciduous climax-forest" zone). I found myself driving around in search of evergreen trees planted on people's lawns. I cherish the arborvitae in front of my house--it looks sort of like a cedar, and is green all year round.
I used to be proud of my ability to bounce right back from jet lag after a trip. But not only must I admit that it's much tougher after traveiling westward (and having tried to cram as many experiences as possible after less than a week), I'm also not as young as I used to be--though I'm still comparatively healthy, just out of shape. The conventional wisdom of one day of adjustment per time zone crossed--at which I always scoffed--is beginning to get truer as I get older. I did get a lot of rest since coming home late Fri. night (had been up 27 hrs. straight!), and finally trusted myself behind the wheel again for a couple of errands today.
I am gonna teetotal as much as I can this week, both to give my liver a rest and cut some calories. Finally found the right Alitalia lounge (from which I made my previous post), which required another elevator ride (by then, I'd gotten in 8000 of my daily 10000-step quota). It was so posh (the restroom stalls had showers) that it made the Delta Sky Lounge at O'Hare look like a Waffle House. Ordered a wheelchair for the rest of the trip to the plane. Good thing I got it--had to go back up a level, and the "gate" was yet another passport-control station, followed by a trip back downstairs and on to a bus across the tarmac to a lift-truck. It was already 80F by then, and that un-air-conditioned truck didn't leave for the plane till it was chock-full. (I nodded off twice, dropping my boarding pass/claim checks in the process). They let me board first, as I was in business class at the front of the plane--and I got the stink-eye from the other elderly lift-truck inmates who were in Economy.
Well, it was like being led from a prison bus into a luxury RV. The plane was a Boeing 77. Alitalia's Premium Economy, while down a peg from what it was in 2015, had still been a considerable step above steerage on the way from JFK. And I'd recalled Iberia's business class as fairly posh (much nicer than British or AA's). But Alitalia's new business class was amazing. Turns out they eliminated First Class and turned business class into "Magnifica." There were cubbyholes and hooks everywhere for my shoes, carry-ons (except my rollaboard, which had to go into the ridiculously spacious bin) & jacket. The pillow was feather & down. The blanket was a comforter. There was a bolster for my back. There were noise-cancelling headphones and both USB ports and an AC outlet (dual-voltage). And the seat belt had a built-in air bag. Not just that--the whole flight I never got any grief for walking around, and there was never a line for the toilet.
Soon as I sat down, I was handed a prosecco, a menu, and a drink list. Meals were served on a bone china (including espresso in a demitasse with saucer). The wine glasses were crystal. I could not believe I was eating airline food--it was as good as some of the restaurant meals I ate in Rome. Snuggled in after dinner for a nap--the seat-bed was the widest and softest I've ever had on a plane, and I was able to fall asleep--on my side--instantly. Awoke with about 3 hrs left, so watched Marshall (great), was served a light antipasto-and-fruit meal with yet more espresso (didn't need more alcohol), and even got to freshen up.
(Speaking of which, there was a huge difference between the Premium Economy & Magnifica amenity kits. In 2016, the former was by Frette, in a nicely roomy little zipper bag, but now replaced by a neoprene pouch with barebones stuff. The Magnifica kit was in a large padded linen-textured case, which was indicated for re-use as an iPad sleeve. The toiletries were all Bulgari, the usual comb was a folding hairbrush, there was a cover for the toothbrush, the toothpaste was a full travel-size, and even the socks & sleep mask were nicer).
We landed at JFK, but had to sit on the taxiway for an hour before we could get a gate; and was eventually met by a wheelchair attendant, who whisked me through Immigration and baggage claim. I was wordlessly waved past Customs to the bag-re-check desk, where I got my boarding pass for the Delta flight home. Uh-oh: this one didn't have the usual "TSA Pre-Check" notation on it. This time, we had to take the AirTrain to Terminal 4, where I was handed off to another wheelchair attendant. But since my flight was at the far end of the terminal, we had to take yet another bus, the "JFK Jitney," to that end.
Now, Delta is one of the world's biggest airlines. JFK is one of the world's biggest airports. O'Hare is the world's busiest airport (surpassing both Heathrow & Atlanta Hartsfield-Jackson). So why is my JFK-ORD flight departing from the butt-end of the terminal (like a small-town airport tacked on as an afterthought, without even a concession or bathroom on that level), on a little regional jet so small I had to gate-check my rollaboard? The flight home wasn't bad, and my bags were among the first off the plane. Got right to the head of the taxi line...and as soon as we left the terminal area we abruptly got stuck in traffic due to a multi-car pileup just past the first exit from I-190. When we got off the expressway, everything was fine till we made the turn for the homestretch--Peterson Ave. was torn up, "cored" and bumpy. I think it added five bucks to the meter. But I finally got home, and stayed up till Bob did too. By the time I hit the sack, I'd been up for 27 hrs. straight!
Spent a lazy Saturday adjusting. Think I'm almost back to normal--went to CVS & Whole Foods, and it feels like a normal Sunday night. Back to routine tomorrow.
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I am 62 years old. I had a BMX on May 27, 2017 with 4 rounds of chemo. Since I am HER2 positive I have to take Herceptin for a year, only 3 more treatments left.
Cindy
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Welcome Cindy -- only three more left. Great words and a good feeling. Glad you found us. As noted we are a bit older and have different issues from many of the younger ladies. We can be really chatty here sometimes as we do talk about everything here -- and enjoy the company of each other. I have been here ( at this board and BC. Org for quite awhile now -- since 2007. Glad to make your acquaintance and I hope you will come often.
Jackie
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I am in the present. I cannot know what tomorrow will bring forth. I can only know what the truth is for me today. That is what I'm called upon to serve. Igor Stravinsky
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Good morning to all of you and today. It rained most of the night here, but is not right now. Hope that holds for long enough for me to go feed the cats. I think it will continue on and off today and thru until tomorrow about 8 p.m. or so. Sigh !!!! The good part is that we won't be dropping temps. much. Were able to get the new grass seed covered yesterday so fingers crossed. In fact, though a ways away, this coming Sunday will be in the 70's. So glad we are at this spot. It does mean that the ( well it should be that way ) big chill mornings and evenings should be past now.
Sandy, we don't bounce so well anymore I don't think. I don't travel so I'm not as aware of THAT part, but I know I don't bounce well when I fall. Not quite sure when it became not a bounce but a very surprised huge thud. I use to just giggle a bit and jump right back up -- but oh, not now. In fact, anytime I'm horizontal for any reason I struggle to get upright again. Sigh !!! Just one of those things about age. At least we are in good company. Hope your all the way back now and rearing to go or stay or whatever you have to do.
Paying some bills is on my list for today -- but otherwise mainly quiet. Hope you all have a fantastic day and some sun to warm you I hope. Enjoy!!!
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Welcome, Cindy. Good luck with those last treatments. I was diagnosed with bc in 2009. I went to my bc dr. today for an annual ultrasound of the chest and underarms. I always see the NP, Heather. Everything looked good, according to her. I meant to ask her if there was any new advice about diet, but we got to chatting and I forgot.
I also went to my WW meeting and was down another 1.6 lbs. Yippee!! For a total of 5.2 lbs. For the first time in about a year I am below the 170 number. Another 9 lbs and I will be at goal weight, 160. The goal weight has edged up with each decade. I'm tall, 5' 7", so that weight is reasonable at my age, 75.
Once I reach goal weight, the WW meetings are free so that's an incentive!
Today was another lovely spring day. We've actually had spring this year, which has been nice.
Sandy, it sounds like you've rebounded from travel fatigue pretty fast.
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Carole, congrats on the weight loss! Even at <5'3" I'd be deliriously happy to get below 180 (which I haven't been in over 4 yrs). A week's worth of pasta, gelato, wine & Aperol spritzes didn't do my midsection any favors. I might have to start wrestling with Spanx. Ugh. Even tougher than putting on pantyhose...or my compression sleeve. I'm likely to injure myself putting Spanx on. (Interesting how they call it "shapewear" these days--in our youth they were "foundations," our moms wore (and taught us about) girdles, and our grandmas wore corsets). I figure that having to wear a bra and "control" panties is as rigorous as it gets for any occasion not requiring evening wear.
Interesting thing--I had so little time to catch my flight to Rome and so much aggravation getting to my flight back to JFK, not to mention dealing with that big honkin' splint-brace on my left hand, that I forgot both times to don compression on my right arm. Guess what happened? Nothing. (My LE doc was correct when he said he never prescribes compression for patients who had "only" 4 nodes removed).
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Interesting about the sleeve, Sandy. I have never been fitted for a sleeve and, so far, no problems from flying.
Another beautiful day ahead. I should work in the yard this morning but I'm playing golf today instead of tomorrow. I didn't sign up for tomorrow's women's event, a member guest.
Hope everyone has a great Tuesday.
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Nature has given to each conscious being every power she possesses, and one of these abilities is this: just as Nature converts and alters every obstacle and opposition, and fits them into their predestined place, making them a part of herself, so too the rational person is able to finesse every obstacle into an opportunity, and to use it for whatever purpose it may suit. -Marcus Aurelius
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I too find the news of sleeves interesting. I tend to look at it this way. Just like getting a dx. late in life for cancer, I think one too might get lymphedema issues sort of who knows for sure when. I do recall quite some time back on another thread hearing about a lady who chose not to 'use' a sleeve while flying. On her hundredth flight -- lymphedema set in. Soooo, I do think if you are NOT a really frequent flyer, you might do just fine. You get what you get when you get it and that is about how it shakes out I think. I have only flown once ( 3 nodes removed by the way ) but I decided that I'd feel comforted by using a sleeve which I did. I also seem to recall that it was presented as perhaps a good idea to use a sleeve when you were doing perhaps repetitive type work -- like shoveling snow, or raking leaves, etc., but I never did that one. So I finished all txs. ten yrs. ago and ah ( knocking on wood here ) so far, so good.
A few showers this a.m. but otherwise I think the day will be fine. May or may not see some sun, but I think the shower part is hopefully done. Tomorrow some sun and the temps are lower, ( in the 50's and 60's ) but holding and by the week-end we will see some 70's. I think maybe some of that planted grass seed may feel comfy in germinating. Onward. I did see a couple of other patches that could use attention -- so I may do a patch later on today for the coming sun and good weather.
Struggling with my weight always as well. I say I'm 5' 8" which I once was but I think now that is only true with shoes on. More like 5' 7" and I really do need to discipline myself. I've been running about 192 -196 and that is just too much. I am long boned so most people are amazed if I tell them what I REALLY weigh and I don't think they are feigning their surprise. I can carry it fine, but I don't always feel fine. Sometime my feet, knees, and back are not happy with me. Now that I can start playing in the yard a bit more maybe I will be able to do better. I need to work on portion sizes and loading in a few more less starchy veggies.
Hope you all have a really good day.
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I was 5'4" and am now 5'2". It doesn't seem fair that they expect me to be the same weight as someone who was always 5'2". My front didn't shrink, just my back.
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I dress skillfully enough to hide my bulk--people are surprised by how much I weigh if I tell them. As a short person, I've found that I look my slimmest in as skinny a pair of jeans or leggings that fit comfortably, with a hip-length jacket or open shirt over a tee or tank, or a tunic. I still can wear a size 2 Short in Chico's knit pants, though their jeans have much less give. I'm a 16WP or 18P in Old Navy jeans. For tops, Chico's size 3, and 3 or 4 in jackets (depending on cut and whether I wear them open or closed). My biggest problem is pant length. For jeans, I just let them "collect" around the ankle if I can't find petites, but with knit pants I sometimes have to pull even the short ones all the way up to the bottom of my bra so I don't step on them when I walk. (Heels or high wedges would alleviate that, but that's too precarious for me--not to mention they do a number on my Bunion from Hell). In the pool, I wear a bra-sized one-piece or a tankini (greatest thing since sliced bread).
I don't wear skirts any more--who needs pantyhose or Spanx? I have nasty spider veins anyway--the only time you'll see me in shorts is in the gym (and I haven't gotten the green light yet for that from my hand ortho).
Speaking of which, I can start playing guitar & dulcimer very carefully--but I can't make barre chords on guitar yet because it still hurts my wrist so much. Going to have to reexamine the few songs on which I play them in order to find alternatives. I might not be able to play my friend's son's wedding processional, because the progression contains chords I can play only in barre form. Maybe do the rock & roll "power chord" partial-chord fingering thing and hope the oboe lead line covers it up. I sleep in the brace now and use an ice wrap and occasional slather of Voltaren 1% gel (or the 2% diluted with arnica). I'm finding lidocaine-menthol gel actually stiffens me up.
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Also got my Zenni computer progressives remade with single-PD, and it makes a huge difference. Bob's been complaining of eye and neck strain using the hospital desktops, so I'm going to go on Zenni with him so he can enter his Rx and pick out a pair of cheap frames. Got my Zenni spare regular glasses Saturday: frames, progressive lenses and blue-block coating ran me about $50. If they were single-vision (either readers or distance), they'd have been $7 plus $5 for the coating!
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Sandy, you have an impish smile in that picture!
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The first step in the evolution of ethics
is a sense of solidarity with other human beings.
- Albert Schweitzer
Few are the giants of the soul that actually feel
that the human race is their family circle.
- Freya Stark
Kindness is the light that dissolves
all walls between souls, families, and nations.
- Paramahansa Yogananda -
Going to be a beauty of a day today -- said the high 60's, but the glorious sun is making is feel like we are there and maybe past. Well, I'll hopefully be able to do some raking in the yard. Can mainly only see the roof on the house over on the next street -- which I see a bit less of when the trees get all leafed out. The tree bushes in between us are just going to town.
I hope you are all going to have a really fine day.
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Hi everyone-
Cindy, I went through pretty much exactly what you are facing. I also was HRT+ times 3. I also had 4 rounds of chemo before my double mix, then 37 radiation treatments. I was Dx in Sept of 2013. I had the chemo before the surgery, and have been told (including at my yearly checkup with my ONC in Jan) that because they did the chemo first, I will not ever have a recurrence of that type of cancer again, and my chances of having cancer of any kind is the same a someone who has never had cancer before
Since everyone is being honest about Weight issues, I was 197 when I started my “diet” in Jan. I am extremely proud to tell you, as of this morning I am 179. I was 178 for the past two weeks, but was in Lake Placid for 4 days and ate what was available. It is coming off slowly, but it is coming off. I like the basics of the plan I am on, but have problems finding new, acceptable dinners that fit. Breakfast, lunch and snacks I have pretty much figured out. The hardest part for me is losing the starch. Potatoes, rice and pasta were in every dinner I ate. I have found cauliflower rice is a good substitute for regular rice (once I realized you had to boil it, not fry it) but have found no substitutes for potatoes or noodles.
Hope everyone is having a good day
Anne
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Anne, congratulations on that weight loss! I'll bet you feel better and feel better about yourself. I agree that it's very challenging to do without our comfort food carbs. I love potatoes and pasta. I can do without the rice. I'm going for the moderate method with the carbs.
I finished pruning/murdering the huge azalea bed today. And pruned a smaller azalea bed. There are two more but my time is growing short before departing for the summer.
My mother has a medical appointment at 1 pm. I will need to be at the nursing home about 12:30. I'll drive to the clinic (ENT, I believe) and meet her there. She'll be transported by the home's van.
So I should get moving pretty soon and shower and get ready to drive 30 minutes to Hammond.
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Weather here: today - sunny and 78, tomorrow - sunny and 80, Friday - cloudy and 64, Sat. - cloudy, showers 56. No hurry to get out the summer clothes. Weather forecaster said this is our normal 2nd week of July weather.
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If we face our unpleasant feelings with care, affection, and nonviolence, we can transform them into a kind of energy that is healthy and has the capacity to nourish us. By the work of mindful observation, our unpleasant feelings can illuminate so much for us, offering us insight and understanding into ourselves and society. -Thich Nhat Hanh
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Another beauty of a day here. Lots to do. Carpenters are coming to take down the old antenna tower in back and put the crawl space door in the at the back of the house. Carpenter says it will be much easier going underneath to work on things. I'm sure that's true. Right now the other two entrance points are at the sides of our house where it is difficult to get under --- much more room in the mid-section of the house so the new door will be placed in the middle.
Going for a hair-do. Hoping to go the whole way, but Beth wasn't there when I called and one of her co-workers made the appt. Not sure if I'll find it is the whole ( cut, perm, wash and set ) thing or just a cut --- but I do need the perm. Sigh !!! So, a surprise this a.m. Otherwise. some more yard work to do, but not too bad. Hoping for good things where the fresh seed is planted but that always takes a while.
See you all later. Hope you have a beauty of a day where you are.
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My mom just started chemo 2 weeks ago. She is 76 years old and has always been pretty healthy. She has neuroendocrine cancer in her breast and has chemo 3 days in a row with Cisplatin and Etoposide. She has not been doing well with this at all. She has been sleeping all the time, I know fatigue is part of it, but she cant keep her eyes open. Then that means she isnt drinking at all because she is sleeping. Not taking her medications because she is vomiting and having uncontrollable diarrhea. She had severe bone pain with the neulasta and that put her in the ER for morpine. We did the claritin and it didn't help. Immodium she cant keep down. I bought, before she started treatment, the list of things she might need from these blogs. Everything on the list and told her why she may need them. I researched it all. These blogs were a god send. I need your help again. She was very dehydrated so they gave her IV saline in the ER and was told to go to the oncology office on Tuesday and Wednesday for more fluids. There she was directly admitted to the hospital. Vomiting, pain, diarrhea, confusion and falling. Is this the normal process? Her WBC are low and her kidneys are shutting down because of dehydration. I thought having everything she might need on hand that she could get thru this as long as she stayed on top of it all. She will have 3 more cycles of chemo and then radiation. 3 days every 3 weeks. All her lymph nodes were clear. PET scan clear and they removed all the tumor from the breast.
What do I tell her? I encourage her, I stay positive. But it is so hard. She doesn't think she can do this anymore. She has another 10 days before she has treatment again. She doesn't want to do this. They ran a CT of her abdomen to see why she is having abdominal pain and diarrhea. I am at a loss and I just don't like to see my mom like this.
Any suggestions that I havent thought of? Please and Thank You
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No suggestions, but lots of sympathy. Given how older people handled drugs differently, they may need to reduce her dose or something. Popcicles are a good way to get fluids down when nauseated. Worked for me during pregnancy. It sounds like the hospital is a good idea because they can keep her hydrated and in less pain. It would be worth a conversation with the MO (her and you) about her prognosis with and without the chemo. I don't know anything about neuroendocrine, but cancer in general is less agressive with age (I'm 77).
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