Can we have a forum for "older" people with bc?

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Living life in terms of your vision and working toward your goals must be done in the context of today's activities. Do not focus too heavily on the results of your efforts. Do not live for the future attainment of your goal. Live your life through the lens of your vision and what can be done in the present moment. Living your vision is not about reaching your goals. It is about living and working toward them. It is not about producing results but about living your life in a more meaningful and personally rewarding way. -Ari Kiev


    You had better live your best and act your best and think your best today;
    for today is the sure preparation for tomorrow and all the other tomorrows that follow. -Harriet Martineau

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Not so nice today, but not raining. Could later on -- but what I'm thinking about more is that evening night time temps could produce a bit of snow. Nothing that would stay -- but it is sure not what I want to have happen amid the Easter Lilies that still have some flowers on them. It will revert back to warmer once we are thru the little cold snap that really won't be that cold, but just not too fun when it has been warm enough to have the windows open for three or four days. Well, we can get some weird weather while we are waiting for consistency after Spring has popped in.

    Going visiting some of my favorite dogs this afternoon. Two different places -- Doc's house and my cousin's house. My cousin here recently had the fireplace ( a pretty good sized one ) removed from her living room. They never really liked it and felt they would rather have the room it was taking up rather then re-do it in any way. So, I haven't been back over to see it yet. They also had new flooring ( wood look though I think it is sort of a rubber type product ) and painted.

    We are totally in love with the new kitchen doors that fit like a glove. We talked about new doors a couple of yrs. ago so we didn't rush the project. We did however, have a bit of a change of heart once we started looking at them. We were going to go with what we had which was full glass in both the interior and storm doors and though I liked being able to see so much through the doors ( out here in the woods ) the dogs always had their noses on them as well as the cats sneezing on them -- so the glass on the bottom of them should have been a whole lot thinner just from excessive washing required -- on all sides of them too. So -- we ended up more with three quarter glass in both.

    Dh off today -- so not much else going on. Hope you all have a fine Sunday.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2018

    Pouring cats & dogs as I left for O’Hare—by the time I got there it was raining sideways! Killed time in the Delta lounge, boarded, and sat on the tarmac for 40 minutes as they de-iced due to it having begun sleeting. Landed at JFK 20 min.late. Even with all the flight crew secret shortcuts to get from T4 to T1 (avoiding a long slog and the AirTrain), and being waved into the flight-crew/wheelchair/Precheck line, I barely made it to the gate in time—I was page while I the TSA line, and I bet it was for the standby Business Class upgrade which of course I was too late to claim. At the hotel now to catch some ZZZs—probably blow off the lunch reception

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    "The greatest test of courage on earth is to bear defeat without losing heart."

    – Robert G. Ingersoll

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Just wow -- the winterish winter wanting to hang around a bit long. Thought we could have some overnight snow but it waited until this a.m. Actually, it was more white 'pinging' sleet that would have stayed on the ground, but even though it was thickish, the sun came out for a short while about an hr. after it began and it is all gone now. I do believe it will warm and we won't have more of that, though with the look of our uncertain skies --- possibly some rain. I'll sure be glad when we are thru this. I can handle it okay -- save for knowing when it is like this we are a bit too grey to suit me. Maybe the sun will find its way back -- but it was so kind to melt that sort of piled up sleety snow.

    Not much planned for today. Just going to be a normal Monday. Hope you all will have a good one.

  • pingpong1953
    pingpong1953 Member Posts: 362
    edited April 2018

    I've spent the last 24 hours listening to ice pellets hitting the ice. The screens are completely obliterated and everything outside, including my car, is laminated in a thick sheet of ice. Now it's snowing and we're getting at least a couple of inches today. Thank god I'm retired, although I have an appointment on Wednesday. I hope it'll clear up a bit before then.

  • Wren44
    Wren44 Member Posts: 8,585
    edited April 2018

    Pingpong, I hope you keep your electricity. Ice storms here seem to end up with trees and/or big branches on the power lines. And I hope it melts.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited April 2018

    A cool sunny day here, high in the upper 60's. I went to WW meeting and learned, not surprisingly, that I was up a little less than a lb. Thanks for small favors! I will try to do better this week.

    Tomorrow I will skip gym and do a little more yard work.

  • Wren44
    Wren44 Member Posts: 8,585
    edited April 2018

    Cold and windy here today, but at least the rain has mostly stopped. Conditions at the Boston Marathon just looked dreadful. I saw a photo taken here of a woman and her kid inside a clear tent-like structure with a zipper opening. They were sheltered from both rain and wind. Probably the most comfortable parents at the soccer game.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited April 2018

    Chilly this morning but supposed to warm up to 80 degrees. Once again I will skip the gym and work in the yard for a couple of hours. One job is to lop off the small trees growing in the big azalea bed.

    Jackie, I've been missing a long time member of our group, Rita. Does she still speak up in the Illinois group?

    Happy Tuesday to all.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Joyfulness keeps the heart and face young.
    A good laugh makes us better friends with ourselves and everybody around us.
    - Orison Swett Marden

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Good morning from a fine sunny day in southern Illinois. I'm so glad the sun chose to visit today. It has come and gone the last few days and while I'm not as affected as when it is grey all day --- I still have a deep appreciation for being able to go outside in the sun.

    Carole, Rita is in Fla. right now but I'm pretty sure will be returning home soon to Bloomington. She doesn't post as much here when she is gone but does post now and then ( with pictures ) on Facebook. I hope she will soon ( when she gets home ) return her and say hi. I also think ( like so many that are fairly well past their original dx. and tx. ) that she just doesn't make the same time for coming on the boards.

    I admit that if you hang around it is easier to stay up to where every one is and what issues may be going on -- thing is, if you don't come too often we miss the greats joys as they happen as well as helping to share the not so wonderful things and try to help relieve the pressure. So sometimes I think there are times when people feel just sort of not up to snuff and feel like it is difficult to discuss things with each other if you haven't followed along the way from the beginning.

    Anyway -- hope anyone who hasn't said hi for a bit will. You are all thought about and missed by someone and you'd likely put a smile on a face or two. I hope you are all having some wonderful sunshine out your widows too. I shall have to go out and feed the feral cats in a minute so I will get to feel the sun directly on me. Keep smiling.Winking

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2018

    Sunny & 70 yesterday. Today was the same till about 4 pm, when it began raining off & on. Forecasts differ for tomorrow: some say showers, some a storm, but both predict a high of 77, with 74 & sunny Thursday. Chicago? Nope, Rome

  • 19501952
    19501952 Member Posts: 86
    edited April 2018

    Hi Everyone,

    I finished my 8th and final CMF infusion on 4/9/18 and in the past couple of days I’ve developed an occasional cough and occasional hoarseness. Of course I worry that it must be something awful and maybe cancer spread. Has anyone else experienced this side effect from chemo? I don’t have an abnormal temp. I have had reflux the entire 8 infusions. Any thoughts, experiences would be most helpful.

    Thanks,

    Kate

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    The answer to helplessness is not so very complicated. A person can do something for peace without having to jump into politics. Each person has inside a basic decency and goodness. If we listen to it and act on it, we are giving a great deal of what the world needs most. It is not complicated but it takes courage. It takes courage for a person to listen to his or her own goodness and act on it. Do we dare to be ourselves? This is the question that counts. -Pau Casals

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited April 2018

    Hi everyone,

    Kate- I have had a cough since I finished chemo. Most of the time, I cough occasionally and it’s not a problem. Sometimes for several days, I cough so hard, I can’t catch my breath. I have been to my primary care Dr, who has sent me for exrays. And a pulmonary specialist, who did a CT scan, and every other test possible, and they cannot find anything. When it was at its worst, I was given antibiotics for 10 days. It’s been 4 years, and it has gotten bad maybe 3 times, the rest of the time! I hardly notice it’s there. My breast surgeon says it could be damage from radiation, but the tests don’t show anything. If you have no other symptoms, I would wait for a few weeks. If it hasn’t gotten better by then, I would have it checked.

    The weather here is incredible. I said to my brother, it’s days like today that make suffering thru the summer worth it. I have started to walk again, and I am up to about 2/3 of a mile. I have also changed my eating since Jan., and have lost almost 20lbs. That, of course, meant a shopping spree. I wear capris most of the time, but had ones that were elastic waisted and very generous in width down the leg. I have gone to more fitted capris and even some “jegging” capris. I got the first delivery of he capris, and they were too big. I got about 6 pair of joggings at Walmart, got then home, and realized they didn’t have pockets. They went back and I ordered ones with pockets

    While ordering for me here, I also ordered a second set of everything for Ga. The first ones with pockets arrived yesterday, and again, they are too big. So I am trying to cancel everything that hasn’t arrived yet, to reorder in a smaller size. Have to be honest- that’s a good problem to have. Problem is, with my memory, I can’t remember what is cancelled and what is reordered. I was going to have my daughter in Atlanta get them all washed and ready before I get there next Fri, but now I’m afraid they may be too big.

    My daughter from Ga is flying down on Fri and we are going to spend the weekend with my youngest daughter and her kids in Lake Placid. Nancy wanted her visit to be a surprise, so I texted Jamie’s husband with the details. A few minutes later, I get a call from his phone, but it’s my daughter. First, she checked that it was me, then asked if I knew I had texted her husband, not her. I said “yes, that was who I texted”, then she asked why. I said the text itself was pretty clear, but that it was supposed to be a surprise. She is very glad she found out about it, because she knows I can look past the chaos and mess, and enjoy her and the kids- but her sister’s house is so clean! She would have been so upset at the mess. We are all excited that we will be together.

    Jamie was here Mon., and we got to talking about beds. I knew she as sleeping on a mattress on the floor- I didn’t know it was a mattress they cut in half because it was too heavy for them to move. I looked online yesterday and found her an inexpensive mattress, box spring and frame. Since I bought them a new washer and dryer, she won’t let me buy anything else or I would already have ordered it. Then I asked her what colors did she want in the bedding. Poor baby has been living in such chaos, she had no idea what I meant, then had no idea what colors she likes.

    Hopefully we can find some time this weekend to narrow down the choices. I said that I am really itching to fix her bedroom for her. I said I want it to be a place that when she enters it, her stress level drops. She got teary-eyed at that, because she has not had anything resembling that since the day she moved out of my house.

    Hope everyone is doing well

    Anne


  • Wren44
    Wren44 Member Posts: 8,585
    edited April 2018

    Kate, I have reflux not related to chemo and it can cause those symptoms. If it's really scaring you, I'd run it by the nurse and see what she says. Reassurance is part of their job.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2018

    GERD (reflux) is notorious for causing cough, hoarseness, need for throat clearing, even asthma. See your MO or primary, or get a GI referral to treat the reflux. (Might require a few dietary modifications; also try to elevate the head of your bed and don’t eat too close to bedtime). In the meantime, take care of yourthroat and see if you can get an Rx for a bronchodilator inhaler (Ventolin). Stay away from the combo inhalers which have steroids, since you are still so recently past chemo that you are likely immunocompromised.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Wow !!! Turned out pretty incredible today. Not totally sure of the temps. out other than pretty nice. We did have some winds going on but even then it didn't seem to make it too cool Just really great. I think our temps. will start staying higher now and give us some general consistency -- so Spring can finish out its welcoming chores. The thin tree-like bushes are thick enough to hide the biggest parts of the neighbors houses in front of us. They are over ten acres from us and while it is something of a comfort to have people fairly near I love the feeling of being hidden in the summertime. Many people are almost unaware that our little lane exists back here. Also enjoying so much the deep, rich, vibrant green that only comes in the first part of Spring.

    My car needs a bath again since I washed it one day before the rain. I may concentrate a bit more on the inside -- and though I don't like it, go to the car-wash a couple more times. Until our trees get some leaves it will be hard to do the car with the sun beating down. Not too hot for me as the temps are mild right now, but it will tend to dry the car too fast.

    Anne, so glad you have found a bed for your daughter. I can't imagine ( well, I have to remember that younger people do have a better tolerance level ) having to sleep on a sliced up mattress on the floor. Seems her whole life is just sort of inventive surviving and when I read what you write I never know whether to clap for what Jaime is able to do or cry because she has to. I'm sure it will seem like heaven to her to have a 'real' bedroom with the trimmings and hope she will be able to just sink into mental confort.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited April 2018

    Jackie, thanks for the update on Rita. I'm glad she's doing well. I know how she likes FL in the winter.

    We had a pretty day here today. Started out a little cool, in the 60's, and warmed up to low 80's. A little breezy. I travelled about 45 minutes to play golf with three other women at Carter Plantation golf course. Our pro set up the tee time for a good price because our courses were closed to members because of a tournament. After golf we had lunch at the restaurant.

    So that was my day. All I plan to do is cook dinner a little later.

    Hope everyone had a great day. I know Sandy did in Rome!

  • Wren44
    Wren44 Member Posts: 8,585
    edited April 2018

    Little breeze here, 55 F and SUN!!

  • carolehalston
    carolehalston Member Posts: 6,887
    edited April 2018

    Will skip gym again this morning and work in the yard. It's the only way I can get the yard work done without skipping golf or missing my visits to the nursing home three afternoons a week. If I had more stamina or more incentive, I could fit everything in as I did when I was younger. As it is, my house is in need of cleaning.

    Hope to finish pruning the giant azalea bed this morning. DH's responsibility is loading up the branches (not clippings) and transporting them to the burn pile behind his workshop. He can do that at his leisure. He will be going to the gym this morning. There are three more overgrown azalea beds that I hope to get "whacked" before we leave for the summer.

    I shake my head as I recall that I planted all these shrubs 20 some years ago when I landscaped this large yard. Even laid out and built the flower beds. In those days gardening was one of my hobbies and I had no problem with weight gain.

    Thinking of Sandy off having a great time in Rome and eating wonderful food.

    Happy Thursday. Do I have the right day? LOL.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    In every adversity there lies
    the seed of an equivalent advantage.
    In every defeat is a lesson showing
    you how to win the victory next time.
    image
    Robert Collier

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Yard work to do here as well in my Illinois yard. Not sure but today may be the day for some. One of the things I do dislike about getting older is that I too can't as they say 'cut the mustard' like I once could. I always start out thinking I can and before long I'm on track, off focus and figuring out that I have to curtail my personal expectations for the day by quite a bit. Rare days come along when I'm able to do much more -- but they are definitely the exception now.

    I also saw myself as someone who was always mainly under-wt. Oh what joy back then, and I assumed it would always be that way more than the other, if ever. Well, if ever has been a constant friend for the last 20 yrs. I'm now 'always' concerned about my wt. It is not horrid -- I am tall, but while I might look okay I am not doing myself any favors. One thing to think about for people like myself --- the coach in the nutrition class I liked so much says a lot of people would do better by focusing on healthy habits ( like enough fresh air, sunshine, and healthy foods ) rather than trying to maintain what they are told is the 'right' or by the book wt. for them. I try to see it in that way but still feel disappointment sometimes -- when I'm trying on clothes. Anyway, I'm going to have to make it work for me.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2018

    There's a price to pay for the wonderful food, weather & time I had in Rome: it's called air travel. Got an e-mail at 4 am to tell me my flight to JFK had been rescheduled but I had no idea what the new time would be—the Alitalia & Delta apps & sites both had the original time listed and it took the concierge to get through on the phone (I had no cell service) and found it it would leave 2 hrs.late. Too late by then to call off the car I'd ordered. Got there, checked in, ordered the wheelchair for JFK arrivals—and the gate agent said I shouldn't need one here at FCO (ha!). She couldn't put me on a later Delta flight from JFK-ORD, saying I'd have to do that at the Delta desk at JFK. (My 2-hr layover—tight enough—has been obliterated). My bags will be checked through, though. TSA was easy, but that was the only thing that was,

    Anyway, nobody could tell me where the right Alitalia lounge was—took me over an hour (including exit passport control) and several false starts—including broken escalators, missing elevator and a tram ride—to find it. I have demanded a wheelchair to the gate, since my back & feet already ache and my injured wrist is throbbing so hard I can barely use my cane (or steer my rollaboard plus tote and duty-free stuff). Finally had coffee, a light breakfast, and am nursing a glass of Ferrari brut till they announce my gate. At least they won’t give away my business class upgrade this time. Will sleep on the plane because I can. Heck with the free drinks & great food—I want that lie-flat BED!

    Not looking forward to dealing with immigration & customs at JFK—at least I’ll have a wheelchair for that. And there’s no way I’m hiking uphill 2 bl. to T2 to catch the tarmac-shuttle to T4 (of course, I will still need to go through domestic security again. And if it turns out I’ve missed the last Delta flight out to ORD, I will end up having my bags sent to my home.

    In 2 weeks we’re flying SW out of Midway nonstop to Boston. It’ll be like taking the bus down the street by comparison

  • carolehalston
    carolehalston Member Posts: 6,887
    edited April 2018

    Sounds like a real headache, Sandy. Once you're home, you'll forget all that and remember the good experiences.

    After 5 hours of labor on two different days, my giant azalea bed still isn't completely pruned. But I'm close. Another session with the loppers (sp?) and hand clippers should do it.

    Great forecast for today. Cool this morning and warming up to 70 degrees. I'm supposed to play golf at 9 am and will probably carry through with that plan.

    Happy Friday to all.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    "Life becomes harder for us when we live for others, but it also becomes richer and happier."

    – Albert Schweitzer

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited April 2018

    Sandy, it does sound like mucho headache time returning home. I stopped traveling a long time ago, but just a normal ( like from here to Calif. ) flight would put me in a major tailspin. Too difficult to do what was once easy to do without a second thought. I'm sure your right -- going to Boston will be about like going three blocks and back.

    Yards are hard work aren't they Carole -- and I don't have anything really planted in the ground. But then living nearly in the woods there are plenty of green growing tree-type bushes and we have a couple of raised places where a couple of things have managed to survive.

    Sounds like our daytime temps are going to start holding steadier so we are getting ready. Now I'll have to try and inspire Dh to get the deck ready ( it truly needs re-done with deck stain ) so we can bring out the outdoor table and chairs -- start having coffee and sit in REAL chairs rather than the fancy built-in benches which are nice for short periods -- but no backs to lean on. I'm spoiled at my age and want to lean back. Good for you to get in some golf. You have to have GOOD exercise now and then.

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited April 2018

    after all I went through to get home this summer with two broken ankles in casts, no weight on either foot with my own wheelchair we had to buy,I am staying away from flying for a while. Normally we go,go to all over the world. My husband is leaving for a Missississipi river cruise to New Orleans with his college class. NOT I...

    I will stay here where we have beautiful days like today

    image


  • carolehalston
    carolehalston Member Posts: 6,887
    edited April 2018

    Lisa, anyone who lives in the San Diego area, the perfect climate, doesn't need to go anywhere! Goodness, your last trip that resulted in broken ankles must have been the trip from hell.

    DH and I visited his uncle and aunt in Vista, CA, a couple of times. On one of those visits we took a fast, quiet train to San Diego. The route went along the ocean and provided beautiful views. We stayed in an rv park in Oceanside that was on the ocean. There was a path leading out of the rv park to the ocean. A short walk. I greatly enjoyed watching the surfers as I took a walk along the ocean.

    In San Diego we took a tour bus to various parts of the city. It was an interesting day. I remember we ate lunch in an upscale Mexican restaurant with seating in a lovely outdoor area.

    I'm feeling a little fatigued this morning from an active week. I'm opting not to don the gardening gloves, not to don the gym clothes. Instead I'll do some things around the house, maybe a little sewing before I visit my mother at the nursing home this afternoon and wheel her to bingo. Like some of the others daughters and relatives, I assist residents who don't have a family member to help them.

    The new Louisiana budget has deep cuts to hospitals and health care and the majority of the residents in the nursing home are there, thanks to Medicaid.


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