INSOMNIACS place to talk in the wee hours
Comments
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tessie - You are not being unreasonable in wanting your results, but they are not released to the patient until the ordering doctor has had a chance to review them, then he should call you ASAP. Once that is done a copy of the pathology report has to be available to you upon request. Since 25 days since the aspiration have elapsed I would think that is more than enough time to get results. Do you have access to a patient portal like "My Chart"? If so, then once the doctor releases the results you can read them there.
As far as the PET scan, the doctor does have to fax the order to the facility and since you had just been there and it would create a hardship for you to have to drive there AGAIN, you should not be required to make another trip. Especially since he has already told you that the PET would be one of the steps in your process and all he has to do is FAX the order to the facility. You did good in advocating for yourself. Do not be afraid to stand up to any doctor. They put their pants on one leg at a time just like you. Plus, never be afraid to find a new provider if the one you already have won't listen to you or doesn't take the time to explain what you need to know or treat you with dignity. I've had to do that before. I am thankful that at one point I had a friend who pushed me to take care of myself. I even went so far as to call the Mayo Clinic and ended up getting treatment there. For me it was an excellent decision.
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Thank you JunieB....I appreciate your feedback. I need to be more aggressive in all of this in order to get my DX.
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Help anyone? New and not sure how to post new topic but if anyone's up can you please help? Either with an an answer or telling me how to post in the proper forum? I had a biopsy today, meaning Friday, and now it's 6 AM and I haven't slept yet and I noticed an itch & when I went to scratch it , I saw my scar for the first time, & realized I saw it because the Steri-Strips completely came off and there was a little bit of blood in the center of the Steri-Strip! They had used 4 or 5 small strips to make a cross pattern..I didn't know what to do so took a small alcohol swab and swapped around it and noticed what look like a tiny hair (maybe part of a clot? Or could be a part of gauze that got stuck in wound? Was afraid to tug on it for fear of dislodging if clot...and it's the weekend so can't reach my doctor. I couldn't find any information online on how to Steri-Strip it myself! Have Steri-Strips in my house so I just did what I thought I would do for a wound and made like a tic-tac-toe pattern and left the center exposed a tiny bit, but since they did crisscross and didn't expose I wonder what I should do? I'm afraid if I make a crisscross, if I am wrong to do this if someone lifts it up or I lift up in a few days it will rip the scab/wound..I wondered if anyone knew if there was a reason why it had to be covered completely, or since it's already been about 16 hours from the biopsy, do you think it's OK to have a small spot of it exposed? I also covered it with a small cootin pad that I ripped off the center of a Band-Aid...thinking that was the most sterile gauze I had. (feel like Mrs. Mcgyver) The pads came undone also so I just took some surgical tape and taped them the best I could so they don't fall off my breast, but I'm not really sure what the point of them or since they don't seem to be over the wound per se but the center of the breast where I guess the actual biopsy pieces were taken? I'm scared of getting an infection and I'm scared that I'm doing all the wrong things… Has anyone else had their Steri-Strips come off prematurely? If anyone is out there, thank you for listening. I feel so alone and scared. If I am replying to someone's post and not posting a new topic, can you please tell me how? And my apologies. Ty
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Concerned2018, I also had my biopsies Friday, in the afternoon. I was told to leave the bandages on for a minimum of 24 hours and not to get them wet. It is a shame they didn't put yours on better so you wouldn't have to be dealing with this problem. I was told to watch for redness or sign of infection. Did you put ice on after? Do you see any redness? Hopefully the itch is just a sign of healing. I was also told to expect to see some blood on the bandages. You would think what you are seeing is from the gauze but who knows? I have never seen a clot. I think too doing the alcohol swab would be a good thing. I asked if I should put polysporin on after and they said I likely wouldn't need to. How long is your incision? I haven't seen mine yet.
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Hi I will join you both, I had my MRI guided biopsy on Tuesday, December 5th I am still waiting for the results, This is my 6th biopsy on my left breast. Last year I had to have a surgical biopsy and a lumpectomy after a biopsy showed Atypical Ductal Hyperplasia. I was started on Tamoxifen as a preventative last Sept 2016. But this has been a long week and I haven't slept a wink..
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Welcome, MissMariss; it must have been a slow night last night. I'm sure others will be along to give you a more comprehensive welcome, but the "waiting for your results" is most certainly the worst of the insomniac phases! I've had nasty insomnia for all two of my followup testing cycles.
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Concerned, it sounds like you crafted a reasonable solution to your steristrips coming off for now to keep your wound clean, just watch for redness, heat, fever, drainage as signs of infection until you call again Monday or can go in to get it checked or send an iphone picture to your doc of what it looks like.
However, you need to get clear ASAP with your medical team what numbers you are supposed to call after hours and on weekends when you say you cannot reach your doctor. Most all docs have some kind of cross-coverage set up for off hours, even if it is just a nurse chat hotline to start for simple things. Is there no emergency number to dial when you call his office? No online contact nurse? Most private insurances and also Medicare and Medicaid offer a 24/7 nurse advice line, check your plan, so you are prepared for next time
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Hello ladies,
It is my birthday today and I am in the hospital with an infection in my right arm. Probably cellulitis. On IV antibiotics. Don't know how long I'll be here. When I had this 2.5 years ago I was inpatient for 3 days and then 4 days of daily outpatient IV antibiotics.
I sure could have found a much better way to spend my b-day. Arrgh! I am so bored.
Tessie, Miss Marissa - I hope your incisions are doing well and that you get your results soon. Try to keep busy to distract yourselves.
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Oh, JunieB! I bring you a birthday cupcake, with ooscoobs of frosting and a CANDLE, and a stiff drink as desired/permitted, and companionship. And most importantly, the suggestion that you declare you birthday this year to be some other convenient day, 'cause this is so NOT your birthday. Just saying.
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Yes, do pick another day for your birthday. Or order a cake delivered to let the staff know you need special treatment. Hugs.
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Oh JunieB, so sorry to hear you are in the hospital. Happy Birthday. I agree with Queenmomcat and Wren that you pick another day this year. May I ask where is Kirby? He has become such a handsome fellow.
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Thank you ladies!
kathindc - My precious Kirby is with his trainer. I called her last night at 8:30 p.m., just before she put her jammies on, and she drove an hour from her house to pick Kirby up, then an hour back. I miss that little bug sooooo much.
Kirby has 7 Papillions & 5 Shepard to play with. He's probably having a great time.
Here he is watching me sewing last Sunday.
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Plus, I agree with you on celebrating my b-day on another day. When Loverly, Sas, Shep & I get together would be an excellent time.
A friend of mine did bring me cupcakes today. That was very thoughtful of her. I kept 2 and shared the rest with the staff here on the floor.
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on whatever day you chose! -
All y'all with snow just need to call Loverly to bring her magical Insta Pot to get rid of that nasty stuff!
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Junie ~ Yes! We must celebrate your birthday month at The Beach! In the meanwhile, I sent you something to keep you hydrated to speed up your recovery! 💕
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Hope you can have a belated birthday celebration when you get home. Get well (and home) soon.
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Thank you Smaarty & Feline,
The infectious disease doctor came by this morning and let me know that my blood cultures are growing critters and it is good I came to the hospital when I did. I was headed for sepsis.
They are doing new cultures today to narrow down the exact bacteria family in order to tailor my treatment to that bacteria.
So hard to imagine that this whole episode started when I tripped over Kirby coming back from a walk and banged my right elbow against my front door.
I did not know that a small trauma like that can lead to cellulitis.
Anyway, that is all for now. BBL.
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Ohhhhhhh that NAUGHTY JunieB! Hospital my arse!
Look what I just saw in the Charleston, SC news............
Junie B. in Jingle Bells, Batman Smells!
A Delightful New and Fun-filled Story for the Holidays
By Allison Gregory
Direction by Marybeth Clark
Musical Direction by Sam Henderson
First-grader Junie B. Jones is super-excited about the upcoming Holiday Sing-Along and Secret Santa gift exchange at her school. Too bad tattletale May keeps ruining all of Junie B.'s fun. So when Junie B. draws May's name for Secret Santa, she comes up with the perfect plan to teach her nemesis a lesson! But will the Christmas spirit of peace and goodwill interfere before she can give you-know-who what she deserves? A hilarious and endearing tale based on the best-selling book series by Barbara Park.
Performance Dates:
Dec. 9 - Sat 11:00am and 3:00pm *Opening Day
Dec. 16 - Sat 11:00am **Sensory-friendly Performance
Dec. 16 - Sat 3:00pmWho would ever guess our "sweet" Junie was such a trickster!
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OMD cold. We are having 30-40 degree weather at night and below whatever during the day. 50-60-'s . Have to put on long pants and socks and blankets. Very, very disconcerting.
Socks are very uncomfortable.
Loverly, your pot actually said " Burn"?
Shep I cut and pasted the Share info to JD_GP thread.
Mommie--------cold very cold
rlj's welcome, your funny, we like funny in the midst of stuff. YAY for funny. Damn credit cards make it way to easy to have fun when we want it.. Then the piper says "PAY". I get "guys" too. Everything is so hyper now. We have to think every friggen word. "You guys" was a universal word phrase for decades and decades. (I'm old). It was alwys said with warmth and love. Now we feel like we have to apologize. UGH>
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Tammy Honey bring it on, except we are here 24/7
Tessie NO you are not unreasonable about getting your results. Use these words "You have the right to the medical record, I have the right to the medical information".
The procedure to get the info is Call the medical records department of the facility that did the tests and ask if the
1. The record for the requested information has been signed? Each department has to have a final physician signature before it can be released. The rules generally follow must be signed with in 24 hours of the test.
2. You have a right to all documents.
3. Get them as soon as possible after each happening. They can be altered. The rules supposedly prevent this. But I and my SIL have each experienced altered documents after we had original signed documents in our possession. These documents did not stated in the subsequent documents that they had addendums or were substitutions for the first documents. Legally, they were both problems.
4. They legally have a right to charge a page fee
I will add . It's been awhile thinking this response.
Okay back after re-reading your post for the third time. Where are you? My thought is you are in a medical wasteland. There are many in the USA and else where. But Tell us your city and state. Seriously we can get you to some help. Even if we suggest a conference call. Your delay in info is not acceptable
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Tessie, once the Lab doc or imaging doc has signed off you can go into Medical records with a photo id and sign a release form and get a release of records.
With Pathology results that's more difficult depending on the facility. I always was able to obtain pathology reports before my docs. But you have to be prepared to read negative results. Whereas, a doc can interpret them in a way to make them sound /be different. My pathology report said "Unfavorable outcome" (2009). Are you prepared to read that?
But remember the words "You may own the medical record, but the information in the medical record is mine"
Edited: to remove offending phrase
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Concerned, okay it's now the 11th Monday. Biopsy was the Friday. How are you doing? Member chronic pain gave you excellent advice. Hope you used it.
Missariss----------whehee, that is a long wait. Today is the 11th What's happening now? The world stops between T-day and Christmas. Terrible time to have any medical problems. Sorry.
Adding: Between Thanksgiving and Jan 4-5th expect delays on all scheduling.
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Junie, hope all is getting better. try screaming at those bugs that they can't mess up your trip!!!!!!!!!!!!!. Possibly these antibx's will help the leg. Wouldn't that be way cool.
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Sas-schatzki, I like your "skidding in sideways shouting holy crap,what a ride! " signature. I used to ride motorcycles, lots of skidding
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Sas - What I posted to Tessie was based on my own experience and the steps I've had to go through to access my own medical info. So while your experience has been different it does not mean I was wrong.
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Junie sorry, Yes you are right your experience is yours. I shouldn't have said it was wrong. I was quoting what the law is. The law states that the facility/ doc owns the medical record, but the information in the medical record belongs to the patient. Ergo, the patient can't be denied access to the Info in the medical record. But each specialty has to have a signature on their particular piece before it can be released.
All Joint Commission on Hospital Accreditation facilities have required employee teaching to go through for yearly requirements. It's a couple inches thick the last time I did it. Then state requirements cover some of the same material.
When and if a person is denied access to a medical record once it is signed by the doc i.e radiologist. pathologist, they are breaching the law. But to access those records, you have to know where and how.
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I went through this problem with Quest labs. They had a policy that values would not be posted until released by the docs, then until x amount of time i.e. 1 week or so. I kept pushing them with what the law stated. I don't remember all the details. Then they started posting when available(i.e. after physician lab doc review). It was a battle. They were breaking the law.
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The next complaint should a facility not comply with a request is to Joint Commission on Hospital Accreditation. That wakes them up real fast. Well, the government to under HIPPA, they get real buzzed about it
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Sassafras! Don't you be picking on our Junie! What if she gets too upset to make us her glorious cupcakes when we're all together? Or worse.....what if she does make chocolate cupcakes using Ex-Lax? Oh dear, I should never have advised her to do that to get vengeance on that rat of of a doctor that was so awful to her. LOVERLY and myself , SHEP are always so sweet and kind to JunieB. We LOVE her and are always thinking of NICE things to say and do for her. LOVERLY & SHEP are always, always so sweet and kind to our Junie. I know she would never ever be mean to us. Right DEAR, DEAR JUNIE?
Waving hello to our new friends 👋. I am so sorry for this drama. We all are usually perfect Gentle-Women. 🙄
Now for a crisis of my own. FFH (Fart Face Husband) has been adamant that we will never, ever have another dog again. I miss Marti so, so much. She was my soulmate and there will never be any other to take her place. (sniff)
However....I don't like being alone in the house without my big Shepherd. Before her health problems started, Marti was my Service Dog. I knew I should have gotten a pup years ago to train for the job but I just didn't have the heart. Marti would have been crushed to have me spend time with another dog.
So anywho's..... I have been looking a little to see what dogs were available. I may have a long session of rads in January, so I was going to wait to see what my MO's plans are. FF knows all this and knows very well the traits I am looking for in a "new" dog. I want another GSD but would consider an Aussie or a Rottie. Herding breeds are the best; smart, loyal, and eager to please.
FF announced last week that he had picked out the perfect puppy and made a deposit on her. She will be ready to leave her mamma mid-January. He felt compelled to make this big decision on his own because he was afraid I would somehow take off and bring home "something stupid" that he wouldn't like. Soooo guess what the jack ass is buying? A freakin' BLOODHOUND! Just what I need, a huge dog that can never be off lead 'cuz it will haul arse if it catches a scent it likes. I am so beyond pissed. Forgive me if I offend anyone, but as the best gosh darn trainer in 2 counties (not bragging, I was) I hated working with the hounds. What they see or smell takes precedence over anything else. The owner needs to continuously work on the desired behaviors. Training a hound is 24/7. Plus, although intelligent, a Bloodhound takes a very long time to house break - it just isn't that important to them. They need constant grooming to keep their ears clean. Those nasty rolls of skin they have must be cleaned daily because they are highly susceptible to yeast infections. The jowels and teeth need daily cleaning as well.
I am a fall risk, use a walker in the house, have mets from head to thighs and have to avoid ucky stuff because of my Xeloda. WTH?
Here's what the little girls in the litter like look now:
This what the pup will look like when FF drives the 4 hour trip to pick her up -this is an older sibling from a previous litter;
This a pic from a different breeder showing how big a full grown hound is. A female can be up to 120 lbs!
Suggestions anyone? Ay yi yi.............
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