Stupid comments ....

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited October 2017

    Don't be too hard on yourself, TWills. I don't think that was so bad in the context of two patients discussing their surgeries, and I'm sure she understood what you meant.

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2017

    TWills, we've all been there one way or another! You caught it and apologized and were very gracious. I think it's good for all of us to remember that most people are just trying to encourage us as we go through a bad time. The rest of them...not so much!

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited October 2017

    TWills:

    I actually totally get what you meant and I bet she did, too. (Or maybe not if she never had to experience the joy that are tissue expanders.) Don't feel bad. This was not a harsh statement.

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2017

    I take that opportunity for a teaching moment. I've learned a lot through my process and was guilty of the same misconceptions before diagnosis. If I can help someone be more vigilant, then it's worth the awkward conversation.

  • solfeo
    solfeo Member Posts: 838
    edited October 2017
    October is a big month for stupid comments. I call it Stinktober for the large amount of time I spend giving folks the stink eye for their dumb remarks! haha

    In hindsight I can think of plenty of stupid things I said myself before my personal experience with BC, especially to my aunt who was diagnosed several years before me. She has turned out to be my biggest support and rarely says anything stupid.

    I can also remember one particularly clueless thing I said to a co-worker with a different kind of cancer. She went on to pass away and I cringe every time I think of how I may have caused her even momentary distress with my unintentional insensitivity. Unfortunately I have a tendency to put my foot in my mouth in general, so even knowing what I know now it wouldn't be above me to say something very dumb. I try not to be too hard on others who suffer from the same foot-in-mouth disease, and I do tend to find humor in these situations most of the time, but they will definitely get a sideways glance.
  • TWills
    TWills Member Posts: 679
    edited October 2017

    I've just stopped wearing my wig and have started back to yoga. I was in a class at a place I have never been to and a lady came m over to introduce herself, she said I might not remember your name but I'll remember your hair!! WTH! I almost said I would remember her missing teeth. I was nice instead.

  • Kahnartist
    Kahnartist Member Posts: 111
    edited October 2017

    my mom just announced she is 71 and can't help me after surgery and my sister told me she can't help due to her allergy to My cat. Good times.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited October 2017

    I say this as a cat mom of 2: I'd rather have my cat as family. Allergies my ass! (Although cats aren't terribly helpful after surgery.)

    Do you have anyone who can assist? Do you know what surgery you're having yet?

  • Meshell5324
    Meshell5324 Member Posts: 54
    edited October 2017

    Oh my Kahnartist I think our mom's would be good friends. Mine is 75 and said she couldn't help me because of her bad knee. (I pointed out that I hadn't asked her for help) .

    What about friends? Or and I know this probably isn't ideal but could you stay at your sisters and have someone watch your cat for you?

  • Kahnartist
    Kahnartist Member Posts: 111
    edited October 2017

    meshell5324 and eastcoastTS, I prefer my cat to everyone. My boyfriend and best friend are going to pick up most slack. I can be by myself for other blocks of time. I would rather it that way. It is just sad to think about how the people in your life can only be counted on until they can't be

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited October 2017

    I know I've said -- maybe on this forum -- that this crisis shows who is in and who is out. It has for me. And not all family have been in. That has been my experience.

  • Herculesmulligan
    Herculesmulligan Member Posts: 175
    edited October 2017

    ok eastcoast can I ask you to talk about that a bit more?

    I'm struggling to redefine my relationship with my sisters who didn't cut and run when I got cancer, but who weren't super involved or supportive either. I can't keep being disappointed and upset when they forget I'm having surgery or don't show up when they say they wil. But what exactly does the redefinition entail? I want to keep somebody relationship with them.

    So how have you ladies redefined those relationships with the people saying the hurtful things on this thread? Do you remove them entirely or modify the relationship?

  • coachvicky
    coachvicky Member Posts: 1,057
    edited October 2017

    HerculesM,

    I have "let them go." Had a former boss and I thought we were close after the boss relationship ended and friendship began. I send a Christmas card but that is it.

    Same with some family. I will send a birthday and Christmas cards but nothing more. They don't ask and I don't tell.

    Funny thing is that I realized how much I was pouring into these relationships.

    Now I have time and energy for the relationships that really matter.

    I did have someone that didn't show up email me and apologize. I was gracious but I am also weary of allowing her back into my circle.

    I wrote about this in this blog: http://leaderlines.net/it-is-over/

    The paragraph about showing up is at the end.

    Coach Vicky


  • Shellsatthebeach
    Shellsatthebeach Member Posts: 316
    edited October 2017

    I love when people comment on my new hair style and how much better my hair looks. Should I tell them "thanks, but it's a wig".

  • Kahnartist
    Kahnartist Member Posts: 111
    edited October 2017

    Last night my sister texted me and said she has a sore throat and wishes she could just take a month off and rest. K. Yea

  • edwards750
    edwards750 Member Posts: 3,761
    edited October 2017

    I think the mindset of people who make these comments is twofold. One is they are afraid of BC especially when someone they know has it. Of course it's not contagious but it's hit too close to home and two, they think once all the surgeries and treatments are completed we are cured so no need to talk about it anymore. They don't want to hear about a possible recurrence - newsflash neither do we.

    There are also people who put the blame on us for getting it in the first place. Right - we asked for it.

    I can understand them being in denial because they are really afraid it might happen to them. I had a friend who argued that it was all genetic and since she had no family history she was home free. The fact is for the most part the experts don't really know why some of us drew the unlucky card.

    There are also people who avoid us like we have leprosy because it's easier for them to deal with it. What you don't know....

    For the most part I had a supportive family and friends. I didn't confide in anyone about my fears except one person who had been through it all.

    I guess you really find out who your friends are at a time like this.

    Diane

  • runor
    runor Member Posts: 1,798
    edited October 2017

    I don't know whether to say I HAVE breast cancer or I HAD breast cancer.

    Hub likes to say that I HAD breast cancer, they cut it out and now it's gone. But is it? Is that the end of it? Because if it is, then yes, I agree, breast cancer is a past tense event, it is over, gone, tralee, tralaa, I am cured!

    But hold on a minute (sound of screeching tires). If I HAD cancer and cutting it out was the absolute, forever end to it, why was I radiated, why am I tamoxifated, why am I lymphedated? There seems to be a whole lot of shit still going on including the use of diagnostic mammograms instead of screening mammograms for someone who (past tense) HAD cancer.

    To me the word HAD implies that this is a done deal. Because if I say I HAD it, telling everyone that I feel I have beat this thing once and for all, no Olivia Newton John for me, and then it does come back, what do I say? Well, I got more breast cancer? I had it, I beat it. Then lo and behold I got some more of it! Who knew?!

    Well I knew! I DO NOT BELIEVE I AM CURED, merely postponed. I think if I was 70 when diagnosed I might live long enough to die of something else and then wow, I guess they were right, I guess I was cured of cancer (since something else killed me). However, I was diagnosed at 53 and I doubt very much I will live to even see 70.

    I HAD breast cancer - and went through several surgeries and still taking treatments.

    I HAVE breast cancer - and went through several surgeries and still taking treatments.

    What is correct. Have or had? Present tense or past? I seriously do not know how to refer to my situation.

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited October 2017

    You raise good questions, runor. I just had a friend ask me, "So you've finished all your treatments? You're cured now?" Well, that discussion has already unfolded on this site. There is no cure - there's treatment that makes us NED. Our surgeries and treatments are in the recent past - our hormonal therapy continues so we are still in treatment. If I tell anyone about my BC now, I say I was diagnosed in March.

    MJ

  • VL22
    VL22 Member Posts: 851
    edited October 2017

    Runor - good question. I say I had cancer, even though I'm still in treatment. It was cut out and all of this is just precautionary. I know all the data and stats, but it helps me mentally.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited October 2017

    good question. I agree. Is it i 'had' it, or am i in some type of holding period. My MO always says I'm in full remission. So is there a partial remission? She did say until I reach 3 years and then 5 she will say remission. I understand with my stats: 3b, inflammatory.

    Stupid comment by a good friend: She had to come back for a diagnostic mammogram, and it was clear. She then said she would have just died if she had to go through what i did. Umm, I didn't die.

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited October 2017

    Valstim52 - OMG - what a thoughtless comment!!!!

    I've had people say to me that they've had minor illnesses - but - "wouldn't know" what they "do" if they "got cancer". Amazing.

    Like it's Ok for us to get it - but - not them. WTH.

  • VL22
    VL22 Member Posts: 851
    edited October 2017

    I get annoyed by hair comments. I know "it's only hair " and "it'll grow back", but it's my hair ! Don't call me "silly " or "vain" . I miss my hair mostly because it is really what makes me look sick and I am a very private person. But , yes, I'm guilty of missing itbecause I really liked my hair!

  • coachvicky
    coachvicky Member Posts: 1,057
    edited October 2017

    I don't think anyone can understand unless they have walked this path or one very similar. I am grateful my husband is empathetic but he still thinks my new hair is better than what I had. I know it is a better style and condition but it IS NOT MY HAIR!!!

    As for people who did not show up ... when I look back I was the one doing the work in the relationship. Glad their colors showed.

    I think the only thing I am really happy about this change was getting rid of my breasts. I grew to hate them when the cancers were discovered in both.

    There is a line in a country song that goes something like, "God is Great, Beer is Good, People are Crazy."

    Yep.

    Coach Vicky


  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2017

    My husband makes comments that irritate that crap out of me. I tell him, you know it is harder for me to do the things I used to do since my DIEP surgery. His comment, "And how many years ago was that". Actually, the discomfort is more noticable now that nerves keep coming back to life.

    I want to give a him swift kick in the ass.

  • edwards750
    edwards750 Member Posts: 3,761
    edited October 2017

    It's hard to comprehend how some people can be so clueless. I usually respond I am 6 years out. Not cured but made it 6 years.

    No offense Meow but I would be irritated if my husband said the same thing. Actually mine thought it was business as usual too. I let him have it. It's k when they are sick and you are at their beckoning call but God forbid we get sick.

    It's a shame we have to call them out for being insensitive. I have always been the strong one so I should handle my own illness. Seriously.

    Diane

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited October 2017

    Count my husband in as one for stupid comments. I recently finished the 2nd stage of my breast reconstruction. His comment was: "You'd like them better if you got the C cup instead of B".

    F*ck him.

  • kathindc
    kathindc Member Posts: 2,042
    edited October 2017

    My husband is right there with the no empathy. Five months out of my BMX I had a shooting pain across my incision scar and was told, "Get over it. You don't have cancer anymore." No s..t Sherlock! All I can say is, I wonder what would have come out of his mouth if I had gone the lumpectomy route and had side effects from the radiation and AI

  • runor
    runor Member Posts: 1,798
    edited October 2017

    My Hub is of that same mindset, they cut the cancer out, it's gone, you have healed, you had a nice 3 week holiday at the cancer lodge for radiation, and now carry on. I find too that I CANNOT work like I used to. I poop out. It bothers me. I struggle to push myself, to heave and shove and dig and rake and shovel like before. But I can't keep up. He doesn't say too many insensitive things, other to say that as far as he's concerned the cancer is gone. Well bully for him. He sleeps at night. I hear him snore while I lay there and think about no longer being here. As in poof, gone, over and out, 10-4 good buddy. So while he doesn't say much, there has been no change in our daily lives that acknowledges that everything I do hurts now. I don't want to be a princess, but jeez, the last 10 months have sucked hard and changed my life forever. Can we at least acknowledge that?

  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2017

    runor, so true. My husband wanted me to go to the hardware store and get the 6 gallons of paint we needed. I asked him to come with me, "Why you can't get the paint?" Lifting them, carrying them upstairs. Give me a break, my arms a break. I did it, but you know he just can't put himself in my place.

  • solfeo
    solfeo Member Posts: 838
    edited October 2017
    I had to kick my husband out of the house for stressing me out during my recovery from BMX two years ago. I recently let him come back but I will never forgive him for adding to my burden. We are also business partners so I don't guess we will ever break up, but things will never be the same. I just can't forgive and forget that he wasn't there for me at the lowest point in my life, and that I can never trust him to be there again. My teenage son put me through hell at the same time with his bad behavior. I told them both flat out that the stress could kill me, but neither of them changed a thing. Of course it's harder to hold a lasting grudge against one's child, but I'll never forget.

    I spent more than a few minutes wallowing in self-pity, feeling like I was the only cancer patient who didn't have the support of my family. I hate to hear this has ever happened to anyone else, but ladies, once again you lighten my load by making me feel less alone.

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