Any Northern Virginia ladies on this discussion board?

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  • MomMom
    MomMom Member Posts: 523
    edited August 2017

    Hi Lumpie,

    I seldom check this website, but I do have some info for you.

    On the recommendation of a friend, I went to Amy of Denmark for my very expensive (but nice looking) wig. Address is 11302 Grandview Ave., Silver Spring, MD 20902, (301) 942-3733; website is name of the store. Even if you have really good insurance coverage, which I do, it will not begin to pay for the wig. They also have less expensive ones that are not made of human hair. Whatever kind you get, be sure and get a wig band with velcro, which are sold at Amy's. I also got a number of cheap cotton/poly caps there that I wore to the gym every day for my work-outs. Everyone at my gym knew I had no hair & were extremely supportive.

    Because it's human hair, you have to have it washed and styled there every month or two.

    Hope this helps.

    Paula


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  • placid44
    placid44 Member Posts: 497
    edited August 2017

    Lumpie,

    You are welcome to my wig if you want it. I got it at Eivind and Hans in Georgetown. They did the styling. I think it was $300 or so even after insurance paid some. It is a long brunette wig. It is synthetic, but very natural looking. They actually recommended synthetic. You would need to pick it up from me as I am moving in 10 days. Please privatemessage me if interested.

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited August 2017

    MomMom & placid44: thank you so much for they suggestions. I have checked out both web sites. They look promising. Really apppreciate the advise.

    placid44: I have PM'd you. Thank you!

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited September 2017

    In case anyone in No. Va. is interested in BC activism, especially re stage 4, I thought I would post this link:

    http://www.metavivor.org/take-action/campaigns/sta...

    The 2017 "Stage IV Stampede" involves grassroots lobbying on Capitol Hill. It will take place Oct 12 & 13, 2017. Exciting to have *action* taking place in our area!

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  • Cuetang
    Cuetang Member Posts: 575
    edited October 2017

    Next scheduled lunch to be on Saturday, October 21 at noon. Wildfire inTysons Corner. Let me know if interested!

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  • dessert1st
    dessert1st Member Posts: 190
    edited October 2017

    HI - !! I hope to make it!!

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  • Cuetang
    Cuetang Member Posts: 575
    edited October 2017

    let me know if you're interested in joining us this Saturday

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited November 2017

    Sorry I missed the October lunch. I'm working Saturdays until December. Maybe I can make the next one...

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  • Cuetang
    Cuetang Member Posts: 575
    edited December 2017

    Happy holidays! Lumpie--would totally look forward to seeing you at a future lunch! Next lunch TBD, but looking to do one to kick off 2018. Stay tuned. Hugs to all!

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited December 2017

    Thanks, Cuetang! I will keep my eyes peeled for the next lunch date.... and my fingers crossed that I don't have to work. (I have fewer work Saturdays after the new year.)

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  • Cuetang
    Cuetang Member Posts: 575
    edited February 2018

    Next lunch date,Saturday, March 24 at noon. Open Road (Dunn Loring/Falls Church). Let me know if you'd like to join us!

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  • Cuetang
    Cuetang Member Posts: 575
    edited March 2018

    Reminder for lunch this Saturday at noon at Open Road in Dunn Loring...PM me if interested.

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  • Cuetang
    Cuetang Member Posts: 575
    edited June 2018

    Hi all!

    We're meeting up at Cheesecake Factory in Fair Oaks Mall in Fairfax, VA on Saturday, July 28. PM me if you're interested in joining!

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited June 2018

    Arg! I am scheduled to work 7/28. If things change, I will circle back. Thanks for organizing.

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  • Cuetang
    Cuetang Member Posts: 575
    edited June 2018

    lumpie— shucks! Next time next time!

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  • Cuetang
    Cuetang Member Posts: 575
    edited July 2018

    We're still on for this Saturday, July 28 at noon for lunch. Cheesecake Factory in Fair Oaks Mall in Fairfax, VA. Let me know if you'd like to join! Thanks!

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited July 2018

    I had hoped I might get moved to another day but I am still scheduled to work :( Hope I can make it next time! If you come up with a next date, please post and I will try to be off. Thanks!

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  • Cuetang
    Cuetang Member Posts: 575
    edited July 2018

    Lumpie -- we will find a time eventually! . Have a great weekend!



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  • Lumpie
    Lumpie Member Posts: 1,650
    edited August 2018

    Since this is a Northern Virginia forum.... I was exchanging messages with a contact at Metavivor regarding get-togethers for stage IV-ers. I have been to their get-togethers but the closest group is around Annapolis which is a bit of a trip. If any Northern-Virginia stage-IV-ers might be interested in occasional informal get-togethers, please feel free to post or PM me.... just to get a sense of the level of interest. no obligation.... Thx.

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  • Cuetang
    Cuetang Member Posts: 575
    edited January 2019

    Happy 2019! Lunch on Saturday, 2/2 at noon. Will be in the Tyson’s Corner area. Let me know if you’re interested in joining!

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited January 2019

    Cuetang, I would be up for lunch on 2/2. I have put it on my calendar. Hope others will be able to make it. Tysons works for me. Thoughts on where?

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  • Cuetang
    Cuetang Member Posts: 575
    edited January 2019

    Hey Lumpie! La Sandia inside the mall. 😀.

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  • Cuetang
    Cuetang Member Posts: 575
    edited February 2019

    A couple of us are still meeting up tomorrow (2/2) at noon at Tyson's Corner. PM me if you are interested in joining.

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited March 2019

    Thought I would post this info about a study at Johns Hopkins, since it is fairly close by for those of us in No Va, in case others may be interested. There are three cohorts being studied: those in treatment, those with benign breast disease and healthy volunteers. If you have completed treatment for early stage cancer, check with the study - I thought the research coordinator told me they were interested in post-treatment early stagers, too.

    In short, they are studying markers in blood.. and possible other tissue as well. They basically just want some blood and for you to fill out a questionnaire. The material notes that they may request medical records and even tissue samples. The program coordinator told me that they aren't requiring the tissue samples at present so, while they could at some point in the future, do not to allow lack of tissue to deter participation. They would like additional blood specimens if you change treatments or have a change in status. You do not have to be receiving treatment at Johns Hopkins to participate. If I can get us closer to a cure with a few vials of blood, I would do it every day of the week! I would be glad to share an info sheet on the study and contact info for the research coordinator. You can also get those on the clinical trials website. The national clinical trial number is:

    ClinicalTrials.gov identifier (NCT number): NCT01937039

    and here is the link (posting it two different ways in case one does not work for you):

    Johns Hopkins Breast Cancer Program Longitudinal Repository - Full Text View - ClinicalTrials.gov

    https://clinicaltrials.gov/ct2/show/NCT01937039?re...


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  • Marguin
    Marguin Member Posts: 21
    edited January 2020

    Does anyone know of a medical transport service that can drive me home after a biopsy with sedation at Inova?

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited January 2020

    Marguin,

    Someone in this group or from Life With Cancer (@ Inova Fairfax) may be able to. (For that matter, I may be able to. PM me if you would like to discuss. I am going to be out of town a few days coming up, but not for a while yet.) The American Cancer Society has a ride program. Not sure whether it usually includes a post-anesthesia option. The hospital may have something through their volunteers that they could offer. There should be a social worker that serves oncology patients that could help. THey are pretty good about coodinating with Life With Cancer. In the past, I have hired a home nursing service. They met me after the procedure and we took a cab home. As I recall, the minimum hire period was 4 hours. It was pretty pointless because I was fine but, of course, the facility requires you to have someone with you when you leave. Hope you find just what you need....

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  • Marguin
    Marguin Member Posts: 21
    edited January 2020

    Hi Lumpie, Thanks for all the options, esp your offer to drive me if you are around! ☺

    I ended up scheduling a medical transport service.

    Take care,

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited January 2020

    Marguin, Very glad you have a solution worked out. That is a relief. (I have a local friend who is able to get time off to chauffeur me when necessary. Without that, I would be in a pickle so I really sympathize!) Take care and I hope all goes well.

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  • Lumpie
    Lumpie Member Posts: 1,650
    edited February 2020

    Just in case anyone is interested but has not heard about this event:

    DC Metastatic Breast Cancer Symposium

    free event on Saturday, February 22, 2020 at the National Press Club in Washington DC

    https://komennationalcapital.org/2020-metastatic-breast-cancer-symposium/


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