My (perhaps controversial) thoughts as a "newbie" to CA.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited July 2017

    Trill, I am so sorry you are ill. Do you have anyone who checks on you?

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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited July 2017

    Hi Molly--- Yes, if I really needed that I could call on a neighbor.....i was feeling yucky but able to get up when nature called and to scramble food and drink as needed....thanks for thinking of me!

    I now feel like myself again... I thought it was gone but I felt that pinching feeling a little when i peed....and I wondered if the flu was actually from a recalcitrant UTI....but now the feeling is gone...so i dunno....I see my regular doc on wednesday and am gonna do a urine sample at the lab beforehand to see if it's indeed gone or not....

    My thermometer broke and I wanted to see if maybe i had a fever...i ended up using my digital candy thermometer and it worked great!!!

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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited August 2017


    A relative just sent this and I thought it would be good to forward....


    Messages

    Phoebe Hoaster

    You're friends on Facebook

    Lives in Saint Simons Island, Georgia

    8:46AM

    Phoebe HoasterHi lady can you put a Not your typical forward...please read... THIS IS A MATTER OF LIFE AND DEATH READ IT CAREFULLY & SHARE IT !!!! This is from Dr. Geetha Krishnaswamy, Please give your 2 minutes and read this: 1. Let's say it's 7.25pm and you're going home (alone of course) after an unusually hard day on the job. 2. You're really tired, upset and frustrated. 3 Suddenly you start experiencing severe pain in your chest that starts to drag out into your arm and up in to your jaw. You are only about five km from the hospital nearest your home. 4. Unfortunately you don't know if you'll be able to make it that far. 5. You have been trained in CPR, but the guy who taught the course did not tell you how to perform it on yourself. 6. HOW TO SURVIVE A HEART ATTACK WHEN ALONE? Since many people are alone when they suffer a heart attack without help, the person whose heart is beating improperly and who begins to feel faint, has only about 10 seconds left before losing consciousness. 7. However, these victims can help themselves by coughing repeatedly and very vigorously. A deep breath should be taken before each cough, and the cough must be deep and prolonged, as when producing sputum from deep inside the chest. A breath and a cough must be repeated about every two seconds without let-up until help arrives, or until the heart is felt to be beating normally again. 8. Deep breaths get oxygen into the lungs and coughing movements squeeze the heart and keep the blood circulating. The squeezing pressure on the heart also helps it regain normal rhythm. In this way, heart attack victims can get to a hospital. 9. Tell as many other people as possible about this. It could save their lives!! 10. A cardiologist says If everyone who gets this mail kindly sends it to 10 people, you can bet that we'll save at least one life. 11. Rather than sending jokes, please... contribute by forwarding this mail which can save a person's life.
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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited August 2017

    Panty on the book

    Yesterday I got an email from my friend Maggie, who is13 years post bc diagnosis. She has a blog called Poemelf that's so wonderful and fun and full of great poems, etc. She--Poemelf--goes around dropping copies of poems she loves....I highly recommend it! Anyway, the email she sent--am gonna try to copy and paste it here--leads you to a link where she wrote a piece in an online mag called Easy Street. The piece was touching and beautiful about moving day angst and then one night her husband rolling off her and saying, honey I'm sorry to have to tell you this but there's a lump in your breast....OK, I gave it away..but not really, as she shares this fact. Anyway, so beautiful and touching... I hope you will click the link (and that it works) and read it for yourselves. I was in grad school with Maggie and she was the first person--or nearly the first--I called as I knew she'd been through that discovery moment that I was just experiencing when I got my diagnosis.....she's doing fine, thank goodness.

    OK, and Quinn--hey, there's ART to lift our spirits in these strange, tense times!!!




    New post on Poem Elf Shameless plugging by poemelfToday is the thirteenth anniversary of my breast cancer diagnosis (all good here) and a day I'm going to do something I've always thought I shouldn't. Give up my anonymity and promote something I've written. Makes me feel like I'm wearing a push-up bra and shimmying my way into a bar, but it's not really that big a deal and I hope you don't mind.

    So here's a link to a piece I wrote for Easy Street Magazine. While you're at the site, take a gander at the other pieces there. . . some wonderful writing.


    Excuse me as I find my way to the disco dance cage. Shimmy shimmy.




    poemelf | August 8, 2017 at 8:02 pm | Categories: Uncategorized | URL: http://wp.me/pU8Yh-IzComment See all comments

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  • Molly50
    Molly50 Member Posts: 3,773
    edited August 2017

    Trill, thank you for sharing. What a beautiful, mournful, haunting piece.

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2017

    Trill, that was a beautifully-written and gripping article. Thank you for sharing it.

    To answer an earlier question, no, I’m not having chemo. I was curious, though, after hearing stories of women with Oncotypes of 16 or 17 who elected to get chemo, to see what if any extra benefit it would have conferred over an AI alone. And then I wondered how much extra time an AI is giving me over just having had the “scoop & burn.” So I went to the various prediction calculators. But risk percentages are only numbers. I had only a 12% risk of getting breast cancer (being robustly average in everything else from hair color to eye color to stature to blood type and therefore supposedly destined to meet my maker courtesy of a bum ticker or inauspicious blood clot), but here I am. If you don’t get a recurrence, then the risk % was 0. If you do it’s 100%. It’s all a coin toss. But we’ll never know if the coin is normal, has “heads” on both sides or “tails” on both sides.

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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited August 2017

    Sandy, Thanks, I directed Maggie to this thread to read our posts etc but will pass on your nice words to her in an email just in case...

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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited August 2017

    Molly, glad you liked it. I'll pass that on to Maggie...am sure she'll enjoy the compliment! t

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  • Molly50
    Molly50 Member Posts: 3,773
    edited September 2017

    Howare you, Trill? My mom passed away two weeks ago from Alzheimers Disease. I was surprised at how much it hurt.

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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited September 2017

    Oh, Molly, I'm so sorry to hear that! Wow, I know how hard it can be. There's really no way to prepare for it, either.

    My mom had senile dementia but ultimately died of pneumonia. I miss her every day.

    I'm fine. Sinus issues of course are kinda always on-going but now that the weather isn't so hot and sticky that seems to help ease them a bit. Fingers crossed it stays that way.

    That Alzheimer's--well, all forms of neurological breakdown really--are wicked in every way possible.

    Take care.

    I'll be thinking of you.

    love,

    trill (and Miss Panty)

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  • Molly50
    Molly50 Member Posts: 3,773
    edited May 2018

    Trill, just thinking of you!

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  • Trill1943
    Trill1943 Member Posts: 1,677
    edited May 2018

    Hi sweet Molly! I'm on a website where I am watching raptors--eagles and such--and a gal there is going to have surgery in June and I just told her about HERE as a place to come to to help her... She's coming to learn more...hope it helps her...

    I hope you are well and ALL here are well! Right now I'm in eagle land!!

    Have a FB page under Trish Rawlings with avatar similar to this....I never do FB but someone on the IWS (Institute for Wildlife Studies) got me into it a little...it's got art and kitty pix...FB is so crowded....I get dizzy!

    Love to you!

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