STEAM ROOM FOR ANGER
Comments
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Thumbs up, Micmel!
And sometimes we have to pick our battles. I STILL have problems with DD...for example, yes, she did her laundry, but she left the basket of clean clothes in the TV room on the hassock for about a week. I didnt say a word. I figured, "When she runs out of underwear, i guess she'll come empty the basket."
DH doesnt clean the stove top to my standards, but hey, at least he does the dishes. I'll keep him 😇
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Micmel, wonderful that your blended family works so well. Sounds llike you've got a head start with the kids, now just add the chore board and you'll be good!
My mom passed away tonight. Just got home from watching the mortuary take her away.
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Mimi~ my heart breaks for you. I am so sorry. Please accept these virtual hugs and comfort, I have no words for something like that and I feel is the worst part of living at all. Please know you're in my thoughts and prayers. I know my mom has been sick for months now. She lives far and I can't see her. I am sending you my love and hoping that there was no suffering involved. God bless you and your family. I am deeply sorry. Deeply. Hugs ~M~
Lita~ good advice on picking battles. I agree. I hope that you're having a good day today. My son has ran out of underclothing before and that has prompted movement. For laundry. It has always sounded like you have a good DH Lita. That makes me happy. Hugs ~M~
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Well ladies, all I can say is you have made me really appreciate my DH quite a bit. We do have a "sick sense of humor" though. He's had a transplant and was super sick prior to getting it and has been near death's door knocking about 4 times since then as well. We've been fortunate enough that he hasn't been trying to die on me when I've had medical stuff going on at the same time. We had both of his parents die during this time as well and a sibling. We had one parent move in with us for a bit and is now in her senior building. We go to each other appointments so we have another brain since neither of us can remember everything. A sense of humor is all that gets us through it all. I think the docs and nurses at the hospital think we a just crazy and need a padded room though!
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~Oh Mimi~
I am so sorry about your mother. Please accept my deepest condolences and know I will keep you in my thoughts. I know how hard this is.
I hadn't been able to see my mother while I was in treatment because she lived 1500 miles away. I went home in August and spent two wonderful weeks with her. She died 3 weeks later.
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velvet and mimi, I'm so sorry for your loss. I know the pain of losing a parent and there are just no words. You are in my heart.
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Mimi, you have my deepest sympathies.
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Velvet and Mimi, I am sorry for these losses. It seems life steam rolls over us despite how we feel about things, or how well prepared we are to withstand them. I hope peace and healing find you both.
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Thank you all for the condolences. Last week the doctor told us she had pneumonia and congestive heart failure, her body wasn't able to process all that fluid, and he said she had probably about a week, and he was right, it was 8 days. She went in the best way possible, went to sleep, as her breathing slowed down, until it finally stopped. It was her time, she had no kind of real life these past few months. My head knows this, but my heart just can't accept it yet. She was my mom! I was her baby, the closest to her, and the most like her, which is a compliment, because she was a wonderful person. I can't believe I'll never see her again. And of course it's most difficult at this time, I didn't tell her about my new metastatic dx. I had to start my 2nd cycle of Xeloda this morning, and I so didn't want to do it. And it's also very difficult, being alone, the only divorced one. All of the family, siblings, children, nieces and nephews, are all married, so they have a spouse for support, I'm the only one going home to an empty house. Looks like the funeral won't be until the 19th, so I have quite a few days to suffer thru before putting her to rest. Thanks for letting me vent, for listening, and for the sympathy. I know many of you have been thru this.
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My heart goes out to Velvet and Mimi and all those who have recently lost someone they love.
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Mimi~ I am so sorry. I can hear the emotion In your words. I am truly deeply sorry for your loss, there are no words ever. Especially when it's your mother. I hope you find peace somehow knowing you have an angel above who is earning her wings wtching over you and those she loves. And yes I say loves. Because she's still with you. Everywhere. I'll be praying for your family! ~M~
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Thank you Micmel
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Got to vent. I had dinner last night with a friend I hadn't seen in quite a while, and I shared with her my recent dx of generalized anxiety disorder dx, made worse at times by the Aromasin I have to take. I told her over dinner I have to guard against anxiety and anxiety making topics, and she proceeded immediately to share a story with me (prefacing it first: "I probably shouldn't tell you this") about the spouse of a friend of hers, who has just been dx with some kind of c (the spouse had bc and got tx years ago for it; my "friend" didn't have any more information about what kind of cancer it is now. She said uterine; however, I heard this same story from this same "friend" about this same person about 7 years ago; I don't know what to believe anymore from her, just that she's heartless, I guess).
What is wrong with people? When you tell them that you are suffering from anxiety and they know you're often worried about recurrence or new development, they immediately launch into some awful story like this? With friends like that, who needs enemies? I guess that's why they call them "frenemies". It happens a lot to me. I am very careful who I tell my history to, since so many people want to say "Oh, my sister/mother/friend/aunt/ had b.c., and she died".
Just had to vent because I was the one who contacted her (friend)--she lives alone and just retired, not by choice, and I felt some compassion for her because I thought she might be lonely. Now I'm just shocked again that people can be so cold and heartless when you've trusted them. Thanks for listening. People are freaking stupid.
Claire
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Claire, it never fails. The minute you tell someone you have cancer, they immediately feel the need to tell you about everyone they ever knew who had it, and that they died. Like we want to hear that?! As you said, freakingstupid.
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Or to give you unsolicited Dr Phil and Dr Oz type of advice. My fam is like this which is why only my bff and bro know because they aren't.
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I get mad at dh, he just get it or me. Like I can not STAND to see anything connected to bc or any type of cancer crap on television. I don't want to see them advertising for more people to come and be tortured at their dumbass cancerland. What? They don't have enough money making patients already? He knows I hate it and insist he change the channel when those stories come on the news or on commercials. He argues about changing the frigging channel for a minute. Tries to act like I am just annoying and fussy. He was almost never supportive when I was actively being "treated" He even compared me to our old neighbor who didn't have as much "treatment"as me, said I wasn't as good a cancer patient as she was. I wasn't able to cook and clean as much as she was. He was and still is a dumbass so much of the time. I say to him, when he says these horrible things, that he is letting out his inner a**hole. The sheer nerve, to compare me to another suffering woman when I was neutropenic and anemic.
We are getting on better most days, but sometimes, like tonight, he was being a real jerk again. The biggest difference now is I am prepared to let him walk away, like he threatened repeatedly during the whole torturous mess of surg/rads/chemo. I won't put up with his manipulative crap any more. Basically I demand Respect for my views and my feelings. If he says, "That's it, if you don't (fill in the blank), I am leaving" , I will tell him " Don't let the door hit you on the ass on the way out" This emancipation I have experienced was a huge shock to him. I have suffered too much to put up with rude, disrespectful crap or unsupportive people, including him. Even after 15 years together, no more stupid nonsense will be tolerated.
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A good cancer patient! What the H is that, be subject to brutal treatment but smile through it. I wouldn't let anyone give that nonsense either. Especially my husband.
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Macbo4, I did some research on the so called Cancer treatment ctrs OF America (the ones who advertise on tv all the time), and they are somewhat sketchy. They only accept people they think will have a good outcome. If you're stage 4, they really don't' want you.
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Macb, good for you for getting to the point to stand up for yourself and demand respect! Each day I am flabbergasted by hearing stories like yours, about family members and friends, saying the most awful things. I can't believe how selfish and uncaring people are to their own loved ones. Boy would things change if it were them with cancer.
Lita, interesting about CTC of America, those commercials drive me nuts! They make it all sound so warm and fuzzy, and like every cancer patient has wonderful supportive spouse. UGH
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I know! It makes it sound like a resort spa! Anything that is so heavily advertised like that is always suspicious to me.
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Cancer Centers of America will not accept any government insurance... even Veterans. They only accept "private insurance."
Coach Vicky
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Yes just the fact that they have to advertise all that "feel good" crap to recruit patients is a major red flag...
mac, I am so sorry you have to put up with that attitude from you "DH". I can't imagine how you don't blow a regular gasket.
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I had a visit with cancer center of America and I have Medicare. I would think if they didn't take the governments insurance, they would be losing out on money. I don't think that they are in the business Of losing money, especially since they can slide the scale of what they charge to Medicare. I never received a bill from them ever and I went there for my second opinion. I don't have any other insurance either. They told me that my oncology department here was giving the me treatment that they would have given me. Since my care here is local, they recommend I continue treatment here instead of traveling over an hour each week or more in some cases. That would be awful if hey didn't take the most common insurance for senior citizens. What a blow that would be. I'm interested in this now. Research time!! Have a great week! ~M~
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MC doesn't pay much so many providers of hc decide not to accept it. If they have plenty of private insurance people why bother with MC? They are a pain in the butt to deal with from what my friend who's been a biller in a surgeon's office for 12 years says.
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I HATE THOSE >,+%,+~~ COMMERCIALS!!!
Whew. Ok. Hope all are properly vented.
Hey B
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This rant is about BCO. I wish I had the energy to be more detailed, but you'll have to read into it.
I wish BCO were smaller. I feel lost often times. I look for answers and search results give me lots of information about nothing important.
I've posted threads with questions that have gone unanswered, with mods explaining that I should post questions in different groups (bone mets, lung mets, tamoxifen, etc.) Well, I don't know how you ladies do it but I can never keep up in those groups. Discussions go so fast and get so splintered that I can't follow.
And if you aren't a regular poster who gets involved, responses are not a given. I am now on hospice and can really use some advice, but I feel lost on the discussion board. I've found a few groups on FB that have been helpful, but for every 2 helpful responses, you get 1 that's judgemental with wacky advice.
So.... Just venting and letting it out. I've been coming here for ten years and feel like it's failing me at the end.
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I'm sorry for your frustration but totally get it, I've been a newbie lost in a fast moving thread myself. In some cases, I feel like I barged my way in to a conversation until I was better known, lol
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Noni so sorry you have had a hard time navigating thru BCO....the threads I have been apart of...to keep up with them..I added them to my favorites and you can receive notifications to your email when someone posts...
Also when I have a question for the ladies on here...I keep bumping it...to keep it in active topics...until someone responds...
I hope one of the mods will jump in here and give you some tips on how to make your experience better on this website...with all your going thru ...you don't need this too🌹
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It's a very busy forum because unfortunately it's a pretty common disease we are navigating which never has an end date.
Tips: Don't post in threads where there hasn't been action in a long while. Those folks from awhile back are most likely no longer posting. If you are unsure where your thread should go, choose what you think is the right forum. If it's not in the best place, the mods are being helpful by saying this would receive more attention if posted in this forum type info. Use the favorite function. That's the best thing is you can do is have a list of threads that interest you including the ones you post. I have a very long list on my favorites starting from when I was first dx'd and on. I've kept them all to refer back to. If you still feel lost with it, add the email notification to it so you get an email when someone has responded in the thread.
We don't know just how good we have it in terms of the massive info and various forums on an active board like this. When my friend's sister was dx'd with pancreatic cancer, I could not find a forum like this with such details. How sad is that. Majority of us get most of our tips and info from here, not from docs and other medical personnel because they don't know like we in the trenches do.
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I've had a list of favorite topics for quite a while. Those are the ones I have a difficult time to keep up with. I guess I'm just grumpy.
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