Anyone taking Ibrance or Afinitor for Stage 3

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trinigirl50
trinigirl50 Member Posts: 343
edited April 2017 in Stage III Breast Cancer

I was wondering if anyone here was prescribed either Ibrance (with Letrozole) or Afinitor as preventative treatment? I would like to try them but I understand they aren't standard therapy as yet.


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  • SSInUK
    SSInUK Member Posts: 245
    edited February 2017

    Hi, I have been looking for the same answer. Both have trials for stage 3 - are you eligible? You should be by your stats? I'm not, to my disappointment.

    The only lady I've found on the boards being prescribed ibrance for prevention outside a trial is in Singapore or Hong Kong as I recall.

    As I say - you should get into PALLAS or PENELOPEB?


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  • trinigirl50
    trinigirl50 Member Posts: 343
    edited February 2017

    I don't live in US so can't do trials. I might be able to convince my oncologist to prescribe me Xeloda though. I couldn't possibly afford the Ibrance or Affinitor.

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  • Deborajoy
    Deborajoy Member Posts: 3
    edited April 2017

    I have stage IV BC matastic . I had a lumpectomy in 2011 and targeted RAD. Just diagnosed with Stage. My OCO has prescribed Ibrance and arimidex. No surgery, no Chemo, no RAD.?? He is confident that th combination of drugs will shrink cancer in all areas, or of course it won't. I know that sounds bizarre right. But I read all about Ibrance and combo drugs. The side effects are minimal compared to Chemo,Rad, which of course

    I have read that this will be the first choice therapy for the type of cancer I have. post menopausal er receptive matastic BC. I am hopeful but scared I have been reading a lot about women who are taking one or the other but not in combination, which is most effective.

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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2017

    Deborajoy, welcome to Breastcancer.org and thank you for posting!

    You may be interested in also joining the Stage IV forum, where you'll find helpful threads related to your stage and members with tons of advice and experience, which we're sure you can learn from!

    We hope this helps!

    The Mods


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  • Wildplaces
    Wildplaces Member Posts: 864
    edited April 2017

    SSinUK/Trinitygirl50

    The trials mentioned( PALLAS/Penelope B are RCT - there is a 50% chance you will get placebo.

    They are for early stage disease with the hypothesis tested being - delay or prevention of recurrence.

    I believe they have a time interval for enrolling - PALLAS - adjunct chemo it is sitting 12 months of initial surgery.

    Possibly the "easiest" thing to do if your oncologist approves of the plan is to contact Pfizer directly and ask whether they would subsidise you or whether they have trials going where you might be eligible. With Kisqali on its trail they just might help a bit. At the most the risk it's easy for a letter and dealing with a no.....

    All the best 😊

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