Starting Chemo June 2013!?!?!

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    I have had a eecurrance in ONE aux lymph node. I thought they would have me rads. Here I am. In the chair again!!!!! Chemo !!

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  • dfwDM
    dfwDM Member Posts: 15
    edited April 2015

    Cuculi,

    If you have a single met, then fight! Ask for local treatment of that met (or others if you have a few). Some groups just dump the chemo in, but other groups will add advanced radiation (like SBRT, or gamma knife) and destroy the met. My wive has four tumors have been around for a long time, we got tired of getting the same idea of drugs, we asked for local treatment and were denied because of no pain or SRE's. Finally we met with the radiology department at MD Anderson and they will treat bone mets if your just have a few, no waiting for the cancer to grow or change. You might need systemic treatment AND local treatment just like you would get for the original breast tumor. We were told that " there might be a limited window of time to control the disease..." but no promises of course.

    Keep asking, present research, call MD Anderson.

    regards,

    Doug

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  • KatiAK
    KatiAK Member Posts: 138
    edited April 2015

    Cuculi -

    Sounds like good advice from Doug. Fight! And we'll pray!

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  • Cuculi
    Cuculi Member Posts: 148
    edited April 2015

    Doug, I truly appreciate your advice. (I will send you message by inbox if you dont mind). I will follow your advice, although, I have to admit, I am quite tired of this issue. I think I am in a denial phase and my son is what makes me think about what is going on and thus fight cancer. If not, I would defintely not do it... I have always priorised quality of life, how we live and not just be alive. And reading about bone mets has not being very encouraging. There is a lot about paliative treatmente, controlling it... so yes you could live a long time (which is what I hope for and what I am focusing on) or not.

    The worse part is that 2012 my mother in law passed away from cancer... 2013 my father in law again cancer, 2014 my Dad (not cancer) and 2013 my diagnosis and now this.

    Thanks Katiak for your words! Promise I will do everything!

    Have a great week!



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  • annika12
    annika12 Member Posts: 433
    edited May 2015

    Two years ago tomorrow. ...... I got the call that pulled the rug from under me !!!! I spent all night reading everything on this site.....not sure how my last two years would have looked without the knowledge and support from all the women here.Thank you :)

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2015

    No doubt, we have come a long way. I am grateful for every single breath no matter how different or sometimes uncomfortable life can be. There are a few of us who are no longer here today.

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  • Alibeths
    Alibeths Member Posts: 656
    edited May 2015

    https://www.facebook.com/sendBCpacking?fref=ts

    That is awful...I have had a recurrence....Started chemo about a month ago.

    I stared a FB page to encourage those with BC.


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  • annika12
    annika12 Member Posts: 433
    edited May 2015

    I just took the time to read posts :( I am so very sorry to hear about mets and reacurances !! Hugs, thoughts and prayers for strength, health and peace about making decisions!!! Cancer sucks.....I hate how its so unpredictable .....

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  • candi07
    candi07 Member Posts: 188
    edited September 2015

    Anyone get the flu after post treatment? I'm extremely tired, sore throat and 100.5. Do I need to be concern and call the onco or my primary care physician?

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  • KatiAK
    KatiAK Member Posts: 138
    edited September 2015

    I think your primary care would be the place to start if you trust his opinion. Probably a seasonal thing but I do believe flu shots are worth getting.

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  • dlm425
    dlm425 Member Posts: 209
    edited September 2015

    Hi ladies it's been awhile Summer is over in Long Island and fall is about to begin. very quiet around here from all the ladies from June chemo 2013......... Hope everyone is well and healthy!!!!! All is well here

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  • Alibeths
    Alibeths Member Posts: 656
    edited September 2015

    I had a Recurrance in March. Just finished chemo n raf

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  • kmurphy
    kmurphy Member Posts: 55
    edited October 2015

    So, so sorry to hear that Alibeths. I feel like i have so many questions. i know we all worry about that happening and small things can make us wonder if it is back. I really hope you are doing okay and that the chemo wasn't too rough on you.

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  • Alibeths
    Alibeths Member Posts: 656
    edited October 2015

    thanks. Xo

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited October 2015

    Hey, ladies. Sad news, it wasn't a cure after all. I'm headed back to the chair on Friday. Last week I was Dx'd stage IV with mets to my spine. I have a PET on Wednesday to see if it's anywhere else. Hope everyone is hanging in there and doing well. I plan to beat this thing back into remission in no time at all. Watch me!

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  • annika12
    annika12 Member Posts: 433
    edited October 2015

    oh nooo mainrottweiler......so so sorry !!! Love your attitude, kill those buggers !!!! Hugs

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited October 2015

    Thank you for the hug, Lord knows I could use it. This is a rugged week.

    Tuesday: MUGA, chemo Teaching in Farmington and check in for surgery tomorrow in Augusta.

    Wednesday: Kyphoplasty

    Thursday: meet with oncologist in Farmington, PET scan and first radiation treatment in Augusta.

    Friday: chemo ---all day in the chair.
    All smooth sailing after that. I just need to fit in time to have my port placed.

    He never gives us more than we can bear, right? I am beginning to feel a bit like a science experiment. It'll be a wonder that I don't glow in the dark from all the radioactive tags and radiation exposure this week.

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  • annika12
    annika12 Member Posts: 433
    edited October 2015

    Awe yuck what a week :( I was so relieved when I realized it doesnt say He doesn't give you more then you can handle cuz I do NOT like that saying...... but He will give you what you need in that moment . You have been on my mind all day........hang in there, hate that you have to do this !!! More hugs and prayers

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  • KatiAK
    KatiAK Member Posts: 138
    edited October 2015

    thoughts and prayers for you tomorrow MaineRotweilers, as you get started. I still have fear with every pain. Keep up the great attitude. Kick cancers ass!

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  • Alibeths
    Alibeths Member Posts: 656
    edited October 2015

    thinking of you!


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  • dlm425
    dlm425 Member Posts: 209
    edited November 2015

    Hi alibeth
    How are you feeling ive been thinking about you and wondering how you are doing hope all is well
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  • dlm425
    dlm425 Member Posts: 209
    edited November 2015
    Hi maine how are you feeling you have Bern on my mind this whole thing Sucks and is so unfair sometimes please keep lodging and stay ax positive as you can
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  • annika12
    annika12 Member Posts: 433
    edited May 2016

    It's been quiet here :) Three years ago, day after mother's day is when I got the call that pulled lifes rug from under me. I spent most of that first night on this site grasping for hope getting support.

    Living and loving life every day

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2016

    Three years, it seems like such a long, long time ago. Tickled to still be here. Thankful to God for every day I get.

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  • dlm425
    dlm425 Member Posts: 209
    edited August 2016

    Hi strong Ladies I'm happy to say that it's 3 years since last chemo treatment and life has been quiet and I'm well Hope everyone is living life to the fullest keep posting Donna

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  • dlm425
    dlm425 Member Posts: 209
    edited August 2016

    Maine you still posting

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited August 2016

    I'm still here. Last scan (in June) showed NEAD! Things are looking pretty darned good right now. It certainly was a rough go for a while there. I put in a pool this summer (after collecting my life insurance because I had an accelerated death benefit rider) and am doing my best to be satisfied with retiring at 46. I miss working but I do enjoy no stress and being able to concentrate on living well. How are you? I often think how far we've come and what we have been through together and how we move forward---living. I'd love to hear what everyone has been up to over the past three years. My oldest married, my youngest graduated college and moved to Japan to teach. Life just keeps marching on and I keep living and breathing, very well. I hope everyone else is too.

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  • annika12
    annika12 Member Posts: 433
    edited November 2016

    Haven't been here in a while but think of all you beautiful ladies often. Glad to see you are hanging in there living life MainRottweilers . It's been almost 3 years since my cancer free phone call and a little over 2 since last herceptin treatment. Life is good right now :)

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  • raindeer1217
    raindeer1217 Member Posts: 90
    edited February 2017

    Hi gang, it's been a while since I've visited. We are all just trying to live life "after cancer" I am approaching my DX date so I always have a little anxiety 3-13-13. Looks like there hasn't been much activity of late, which is a good thing? Sending Luv and happiness to you all!

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited September 2017

    Hey, ladies!

    Summer is nearly over. I hope everyone is doing super well and had lots of fun vacations. I am quickly approaching year two of my metastatic diagnosis and still going strong with little to no progression since Dx. Just checking in to see how everyone is fairing this far out from our original Dxs.

    My best to you all!


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