Starting Chemo June 2013!?!?!

annika12

Hi its May , day after Mothers day  !! This marks one year since my dreaded phone call that confirmed my fear ....I had breast cancer !! So much can happen in my year....... thank you ladies of June 2013 chemo , you were my go to for support ! I celebrated with running my 1st since diagnosis 5k dressed in purple ( survivor color) !!  Learned so much see life from a new perspective , I love and laugh more

KatiAK

Isn't nice to be back around to June and not to be looking at chemo this year?  Although I swear I have ptsd, including flashbacks and waves of chemo nausea from time to time.  Will continue to pray we never have to deal with that again.

MaineRottweilers

Elated to not be looking at chemo this summer.  Feeling on top of the world.  Praying each of you feel the same.  Continued healing for all!

Cuculi

I am in winter, but I am as happy as you all.  Taking care of myself by taking care of my body (nutrition) and spirit (meditation) in order to be in "balance" and scare any cancer cells, hahaha I feel soo good!

Enjoy your weekend!!!

VAL1966

so having gone through chemo last year with all of you.. was looking forward to an amazing summer, but oncologist found lump in my neck.. opposite side of my mastectomy.. did fine needle biopsy and it came back positive for cancerous cells... i have been non stop crying since i found out.. ct scan, bone scan schedule for thursday, and meet with my oncologist and radiation oncologist on July 9 to discuss treatment plan.. i am more than petrified.. don't know what to think.. 

Annie54

Val, I'm with the May 2013 group but also followed you all in the June group. Hate to hear about what you are going through but have hope! You are hormone positive so there are many drugs for you to fight this with. Hang tough and know we are with you in the battle. Hugs.

Annie

MaineRottweilers

Oh, Val....   ....that sucks.  Did they say what type of cancer?  Praying they are wrong.  I'm so sorry, you must be terrified.

KatiAK

Oh Val, sending positive thoughts your way.  Hugs and prayers.  Stay strong, there are treatment options.

annika12

Oh Val I'm so very sorry you have to experience what we all fear !!! Thoughts , prayers and a HUG !!!! 

dlm425

agh Val that really sucks so sorry to hear this but you can kick ass with this too SOMETIMES LIFE IS SO UNFAIR 

dlm425

I just had my nipples put on an fat graphing as well in so much pain How do people elect to have lipo it is so painful I'm one week since surgery an still feel bet up, Hearing about Val made me so angry such a blow Sucks 

Cuculi

Hello ladies... 

Val, it made me so sad, angry, frustrated to hear about you.  I can´t find the right words for you.  You are in my prayers.  As I have told before, I am 37 now, and BC has changed my life. The "journey" is just soo hard! Listen what your doctor have to say. Maybe more than one can be helpful.  Be patient, breathe (yoga helps) and keep going.

dlm425

curculi how you feeling otherwise

Cuculi

Hi dlm, I actually feel very well.  I believe that i have recovered my life!!! There are certain issues that are still hard to deal with (maybe more emotional than physical) but I am doing very well.  Everyone loves my new haircut (if all of them knew...hmmm), I am starting to change my wardrobe...this new haircut makes it want to change my "style", hahaha  And I feel everything is starting to work out... even with my husband.

I hope everyone is doing well!!! Positive attitude always! 

cyber hugs!

Netter

Glad to hear that most of us are doing well.  Val, very sorry!  Please let us know how you are doing.  I had my mammo last week and more imaging needs to be done.  Hoping and praying for the best.

annika12

hi June ladies , I had my 6 months mammo and though I didn't think I was to anxious it sure was a huge relief when it came back all clear ...... I still get herceptin every 3 weeks so I'm still seeing my onc a lot !!! Do you still have your ports??? Thinking about having it out in Nov but don't want to jinx myself

MaineRottweilers

Annika, I finished Herceptin in May.  I'm having my Port out on the 19th.  I cannot wait to have that thing out of me, DONE!  Congratulations on your clear mammogram, huge sigh of relief, I am sure.

KatiAK

Val - we haven't heard from you in 6 weeks.  Hope the tests came back good and they have a positive plan for you.  Stay strong, we're still here for you!

Cuculi

how is everyone doing?

Val, how are you? I really hope you have found the right option for you and that you have the support of your family and closest friends. 

Take care. 

KatiAK

I've been feeling pretty good. Due for my mammogram and check up with the surgeon so that gets a little nerve wracking.  Still a little jittery about new pains too but Tamoxifen causes pains so ...  I hope everyone else is doing well.  It would be nice to know how Val is doing.

Hang in there.

annika12

so far so good I have 2 more times in the chair with herceptin , ct scans second week in October (yikes) then port out if all looks good !!! 

Cuculi

val, how are you? 

dlm425

Hi my June friends Been thinking about all of you!!! How is everyone feeling I have a couple of questions if anyone can help me please What does tamoxifen do you everyone's body? Why do my feet hurt especially when I first wake up?  Does anyone have there eyebrows still falling out? Mine have fell out 5 times. 

dlm425

still no Val I'm very worried Anyone know how to contact her Hope all is well

annika12

been thinking and praying for Val too !!! Tamoxifen has been OK for me , started out on Watson brand and did OK but had some joint pain and hot flashes. Pharmacy switched me to teva brand and I was annoyed but didn't have a choice and had to take them now all my se are gone . No hotflashes , no prickly skin no pain ( knocking on wood here ) !! My brows are still on but my lashes are a mess .....

Angstapp

dlm I have foot pain every morning - I'm not on Tamoxifen but my onco told me it's from the taxol chemo - nasty shit that!  my eyebrows my eyebrows have stayed but are very far and few between.

Cuculi

Hello girls! I really like the posts, to know how everyone is doing and the side effects we have.

I understand that we can still be having chemo side effects, such as lashes or eyebrows falling out. The onc of one of my friends told her that.  I believe it also depends on the body of each of us. In my case, my lashes fell out when I finishe chemo and a second time in May.  However, like Annika says the eyelashes are today a mess.  When I think "my lashes are ok now", something happens! They are not a total mess but partial mess.  I am using MDLash.  It is a very stong product I bought in the drugstore.  I used in January and then again May (when I realised they were falling again) and now today.  It helps them grow, be stronger, etc etc.http://www.mdlashfactor.com/

My eyebrows are quite ok.  They grew horrible (like the eyelashes) too much, like mmm garden but they have "changed" and now I feel ok .  

My finger nails are ok although a month ago I felt they were not growing... cant exactly said what but they were not the same. Finally I feel them back to normal. My toe nails are ok but very thick  

I believe these SE will leave our body soon.  

I have vaginal dryness as well... this is defintely the SE of the tamox.  My gyn suggested replens or another product (cant remember the name).  

I was wondering if another topic must be opened to talk about tamox SE... since the name of this topic is chemo june... just wondering...

I feel tired, I weird tiredness... I dont have that much energy. I do what I have to do but if for example someone tells me to go over the fence for xxx, I would think ahhhh ... I was so hyper, and did sports... now just work, pilates (at work) and my son and home...and my husband but he works all day, from dawn (literally) till night...  Does anyone feel like that?

I am taking homeopathy and it is helping as well as yoga...but I am not doing as much as I should.

Angstapp: I really believe we must clean our body. Thus: nutrition help (I visit a naturopath and a practitioner in aryuvedic medicine) and excercise.  

Val!! Are you ok?

Take care!

raindeer1217

Hi Gang.  Ive been crappy about posting, but I read and watch post every so often to check in on this group.   Has anyone heard from Val?

raindeer1217

Out of Curiosity how is eveyone's hair regrowth?  I used to have crazy long thick black hair, now its really think on the top. I hope it comes back, sounds so vain that I am worried about my hair being thin but it used to be a trade mark for me.  Just had it cut the last time it was cut if was shaved !  I could almost do a comb over hahah.

annika12

hair thick and curly here.....totally out if control crazy hair but I like it !!!! I've always had really long straight hair so I guess this do is as different as I feel from the last year and a half . People like to see me back to me but I feel different ( not all in a bad way) !!  Tamoxifen is nice to me .... no se's really !!! Having some trouble from herceptin other then that life chugs on one day at a time Still thinking of Val !!!