Brain Metastasis

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3Mom321
3Mom321 Member Posts: 12
edited August 2016 in Stage IV/Metastatic Breast Cancer ONLY

Stage 4 TNBC dx 2012 to liver and bone. Newly dx brain mets 8/5/16 with 14- 3mm lesions. Need info on WBRT, side effects and benefits.

Anyone had Keytruda experience?

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  • marie5890
    marie5890 Member Posts: 3,594
    edited August 2016

    http://www.cancer.ca/en/cancer-information/diagnos...


    Mom, I have a friend who has had WBR, and now is having a horrible time with vomiting and pain. It's a possible side effect that is important to know about and talk about with your Dr.

    They are having a very hard time controlling her vomiting. A very hard time.

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  • 3Mom321
    3Mom321 Member Posts: 12
    edited August 2016

    Thank you marie5890 for the radiation link. Info listed many possible SE which can be daunting but it is better to know and be informed that not.

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  • MaryK87
    MaryK87 Member Posts: 53
    edited August 2016

    hi

    i had WBRT 2 months ago...been on steroid decadron for 6 weeks which controlled the symptoms pretty well. But have many horrible side effects. I had no symptoms upon diagnosis but vomiting for two days which prompted brain MRI and subsequent WBRT. Every person is different. You should also check Brain Mets Sisters thread..goodluck for wbrt
    hihi

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  • Sunflower964
    Sunflower964 Member Posts: 12
    edited August 2016

    Hi, just diagnosed with brain mets last week and need to make a decision on this too. Really scared of the potential side effects. Have only been offered WBRT due to number and size of lesions. As I'm not Her2 + and have used all hormonal therapy options only alternative seems to be taking capecitabine as there's a small chance it will help (can't see anything online to substantiate this though) and holding off on the radiotherapy for now.

    All the best with your decision. I think I'll have to ask for a chat with the consultant as have only spoken to a more junior doctor so far.

    Sunflower964

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  • Moderators
    Moderators Member Posts: 25,912
    edited August 2016

    Hi Sunflower-

    We want to welcome you to our community here at BCO. We are so sorry for the circumstances that have brought you here, but we hope you find these forums to be a place of support and encouragement.

    Good luck with whichever decision you make, please keep us posted!

    The Mods

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  • Tina2
    Tina2 Member Posts: 2,943
    edited August 2016

    This interesting article popped up in my inbox today. I don't have brain mets (yet), but thought some of you might appreciate reading it:

    http://www.medscape.com/viewarticle/867268

    Tina

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited August 2016

    I am sorry to hear of your diagnosis and hope your do well on your treatment.

    You may want to visit an excellent thread on this forum for mbc patients with brain mets: https://community.breastcancer.org/forum/8/topics/777599?page=158

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  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2016

    Yes, come see us on the brain mets thread.

    I had WBR, just finished 2 weeks ago. It wasn't bad for me, just a little fatigue, my headaches actually improved (I'd had a month of headaches- thought it was sinus pain after a cold-& 3 days vomitting).

    Unfortunately, they've just found a tumour on my spine, so now I'm having rads for that, so not quite done with all that!

    I hope you go well


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  • 3Mom321
    3Mom321 Member Posts: 12
    edited August 2016

    kt1966,

    Sorry to hear of your spine mets. Did you have a bone scan and/or pet/ct scan? Hope the radiation goes well,

    3Mom321

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  • 3Mom321
    3Mom321 Member Posts: 12
    edited August 2016

    Bestbird,

    Thanks for your input and this forum.

    3Mom321

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