Brain Metastasis

3Mom321

Stage 4 TNBC dx 2012 to liver and bone. Newly dx brain mets 8/5/16 with 14- 3mm lesions. Need info on WBRT, side effects and benefits.

Anyone had Keytruda experience?

marie5890

http://www.cancer.ca/en/cancer-information/diagnos...

Mom, I have a friend who has had WBR, and now is having a horrible time with vomiting and pain. It's a possible side effect that is important to know about and talk about with your Dr.

They are having a very hard time controlling her vomiting. A very hard time.

3Mom321

Thank you marie5890 for the radiation link. Info listed many possible SE which can be daunting but it is better to know and be informed that not.

MaryK87

hi

i had WBRT 2 months ago...been on steroid decadron for 6 weeks which controlled the symptoms pretty well. But have many horrible side effects. I had no symptoms upon diagnosis but vomiting for two days which prompted brain MRI and subsequent WBRT. Every person is different. You should also check Brain Mets Sisters thread..goodluck for wbrt
hihi

Sunflower964

Hi, just diagnosed with brain mets last week and need to make a decision on this too. Really scared of the potential side effects. Have only been offered WBRT due to number and size of lesions. As I'm not Her2 + and have used all hormonal therapy options only alternative seems to be taking capecitabine as there's a small chance it will help (can't see anything online to substantiate this though) and holding off on the radiotherapy for now.

All the best with your decision. I think I'll have to ask for a chat with the consultant as have only spoken to a more junior doctor so far.

Sunflower964

Moderators

Hi Sunflower-

We want to welcome you to our community here at BCO. We are so sorry for the circumstances that have brought you here, but we hope you find these forums to be a place of support and encouragement.

Good luck with whichever decision you make, please keep us posted!

The Mods

Tina2

This interesting article popped up in my inbox today. I don't have brain mets (yet), but thought some of you might appreciate reading it:

http://www.medscape.com/viewarticle/867268

Tina

Bestbird

I am sorry to hear of your diagnosis and hope your do well on your treatment.

You may want to visit an excellent thread on this forum for mbc patients with brain mets: https://community.breastcancer.org/forum/8/topics/777599?page=158

kt1966

Yes, come see us on the brain mets thread.

I had WBR, just finished 2 weeks ago. It wasn't bad for me, just a little fatigue, my headaches actually improved (I'd had a month of headaches- thought it was sinus pain after a cold-& 3 days vomitting).

Unfortunately, they've just found a tumour on my spine, so now I'm having rads for that, so not quite done with all that!

I hope you go well

---

3Mom321

kt1966,

Sorry to hear of your spine mets. Did you have a bone scan and/or pet/ct scan? Hope the radiation goes well,

3Mom321

3Mom321

Bestbird,

Thanks for your input and this forum.

3Mom321