Rosevalley - this is for you!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2016

    Rosevalley- I am sorry to hear things are not as good as you were hoping with the tumor markers and all the rest. Keeping you in my circle of love and light always. I pray the Ibrance can help to make things better again.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited May 2016

    Good morning, dear Rosevalley!

    It's a new day and I'm wishing you renewed strength and balance.

    After jotting off yesterday's note, my friend came and took me for a shower (Yum!).

    Just before falling asleep I said a little prayer for your well being and there in the smooth blue sky and against the rough green firs, a large white heron glided toward the pond.

    The heavens heard my prayer and reminded me we are all always okay at some level, no matter what the pain and upset of our lives.

    May you experience equanimity, joy, compassion and loving kindness even in challenging times like these, dear Rosevalley.

    Holding the possibility for you, Stephanie

    P.S. Still too dark to go out for photos. Here are the low life chickens at Moonlight Farm. I call the white one speckle neck and we're friends, she always comes to visit when I'm sitting outside. We see life eye-to-eye. ;-)

    image


  • Bestbird
    Bestbird Member Posts: 2,818
    edited May 2016

    Dear Rose, my heart is heavy with your news. I truly hope that IBRANCE gives you much more time, and that you will be able to reach a goal that is far beyond Sept. Sending you gentle hugs and wishes for a brighter day.

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    Thank you for your kindness and encouragement. I had a little cry over my disappointment at faslodex fizzling out and decided I have xeloda and Ibrance yet to try. My oncologist wants me to start Ibrance Wednesday to line up with my next appointment and labs. So down the hatch on Wednesday. Pray it gets me through the summer. The thought of leaving my 15 year old alone in an empty house while DH is at work just upsets me. I feel like I failed everyone. I know in my heart this is not my choice or fault, but when you are a Mom you agree to be there for the long haul...18+ years. The unspoken Mom pledge- I will watch your back, feed you, take you to appointments, support and love you.... every day until you fly off on your own. Unless cancer mucks up the works.

    I am sad about Nancy dying. Glad she is free from cancerland and suffering, and sorry to see a wonderful soul leave. I know we all die and I accept that, but she was young and loved. It's hard. Some how when you are in your 80s it seems ok to die and natural, but before that it seems sad. Realistically I have packed a lot of life, learning, love and experiences in my 57 years and feel my life was/is really sweet and fulfilling. I didn't miss anything. Not that I wouldn't love to see marriages of my daughters, graduation from college/ highschool and Grandkids someday and to grow old with my DH, but I feel I packed quite a bit into my 57 years. It's been a good life. No regrets when I die. Life is good.

    I am grateful. Thankful for everybody and everything. Lovingkindess to all.

    Speckle neckle the chicken is very pretty! I like to watch chickens they have a lot of personality. My oldest DD loves to feed the chickens at a nearby community. They eat right out of her hand and she just laughs and squeals with delight. They are also beautiful.. blacks, speckled, brown and white chickens. Some are quite big.

  • Kandy
    Kandy Member Posts: 1,461
    edited May 2016

    Rose, I do hope your new treatment is the ticket to not only sail you through the summer but for months after that. I so understand about the feeling of guilt. I join you on that. It feels like you are letting the family down. I agree we are not at fault and would definitely change it if we could. I hope you are able to knock off some more of those milestones.

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    Kandy I thought of you tonight when they showed 2 young 18 year old kids on the news. Both had Downs Syndrome and were fully involved with life and going to the prom together. It was a wonderful story. We both have loved special needs kids and it fills my heart to see them enjoying life and fully participating in everything everyone else does. I remember when my DD1 was little just fighting for a place at the table of life... a place in dance and art lessons etc. My daughter got all those things and now reads and writes at a 3rd grade level, has a job and lovely place in a wonderful family group home. She goes to ARC dances and has friends and activities she loves. Life is good. She makes me happy.

    Thanks for understanding my guilt and trying to stick around to raise my last one in the nest. No one loves you like your Mom. It's true. Hopefully Ibrance and fasodex will buy me some time. I surely hope so.

  • Kandy
    Kandy Member Posts: 1,461
    edited May 2016

    Thanks Rose. I so worry about how my daughter will do one day when I am no longer here. She has been such a blessing to my family. I can't imagine life any other way. I get told every day that I am the perfect Mom. I am so happy your daughter has done so well. I hope you are doing well today.

  • susan3
    susan3 Member Posts: 3,728
    edited May 2016

    my dear Rosie, I pray the next few drugs give you much needed time. At this time, I should be done with treatment and waiting for the end...but instead of 4 months then they stop and we change, this last chemo has lasted me 15 months. Out of the box and very unexpected, and docs have no readon why. So instead at the end, I still have 3 more on the table . I so wish this happens to you too. I know I have this summer, and hopefully more. We take it as it comes, with tears and with joy. Prayers and love and hugs to you. You are a beautiful lady who has touched so many people with your kindness.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016
  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016
  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016
  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    Susan3- Thank you so much for your encouragement. I hope Ibrance works. The only concern I have is that you can get low blood counts and I have an indwelling Pleurx catheter to drain ascites. This puts me at risk for peritonitis. But the 2 things left on the table are xeloda and Ibrance. They should each work on 100% ER+ cancer. I hope so. I will pop Ibrance at dinner time. I am grateful that I have an option at all. Not everyone does. Thank you for stories like yours. Ebru shared that her tumor markers were 3000 and went to NED on one of her treatments. This is amazing. Hopefully there will be more life ahead for me. My DD3 is home for 7 weeks July-August and I want to be there for her. Thank you for your prayers and well wishes.

    Feelinfeline-what beautiful photos! Did you take those yourself? I know you take lots of pictures of Arthur the cat. He's beautiful.

    I thank you all for your support and kindness. It helps me so much. Cancer is lonely.

  • HLB
    HLB Member Posts: 1,760
    edited May 2016

    Rosevalley I am happy to see your post. Last time I was here quite awhile ago, your doc was giving you a hard time because you would not take afinitor. I went though the same thing and remembered you because of that, and I was so upset that he was not giving you anything else at the time. I will starting Ibrance in a few days and I have avoided the Afinitor for a year. Best wishes to you.

  • Xavo
    Xavo Member Posts: 364
    edited May 2016

    Rosevalley, wish you continuing going strong! Remember the Hellebore in my garden got snowed in very early April? It is vitalized by the warmth of spring and is still blooming. It's you! It's us! 


    image  Now.

    image 4/3/2016

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2016

    Thinking of you as you start Ibrance. Praying for another miracle

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016

    Amen to that Loveroflife.

    Rose glad you like the water drops - yes those are mine.

    Here is a drop in a tiny feather

    image

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016

    image

    and here is Arthur as normal refusing to co-operate with being photographed.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016

    image

    and here is a bubble :-)

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    You are very talented! The photos are lovely. Thank you for sharing. Your cat Arthur looks so much like our 15 year old cat Percy. Who was angry at us for locking the cat door in the garage so he couldn't get out. He jumped up on my bed and peed on the comforter... right in front of me! He's not done something like that for years. My husband said that's his answer for closing the cat door. Take that. He knew we would throw him outside which he wanted.. after he gets his meds. We shut the cat door because he needs thyroid meds twice daily and we frequently can't catch him in the morning to squirt the liquid down. So locking him in means we have time to catch him for a dose. Now I have to wash the cover... ugh. Dang cat.

    Xavo- I have lots of Lenten Roses/ Hellbore around our lot because it is very shady. They do well and are hardy plants, blooming early. You are right we are hardy like them.

    Well the Ibrance went down without any fanfare. I hope it does the trick. Buying me some more time. I feel pretty good today. I like Thursdays because the new episode of "Alone" is on the History channel tonight. I am addicted to this show and am fascinated by their survival skills and how they manage. Funny what captures our imagination. I love the woods.

    May you all have a wonderful mindful day. Lovingkindness to you all. Thank you.

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016
  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    That is Hilarious! That's exactly what he looked like this morning.. pissed off! Literally. Bad kitty!! I had a good chuckle over that drawing.

  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited May 2016

    image

    Dear Rosevalley,

    Here's a rose by another name, potentilla. It is for strength (potency) and a different species is used to treat abdominal distress. May you be strengthened and relieved of all distress - abdominal, worry and cat troubles.

    Much healing light your way, Stephanie

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    Well my skinny old man - Percy cat is curled up sleeping on my lap. I spent the first part of the morning with my Siamese cat Emmy purring and curled up on my lap. I got up for a second cup of coffee and Percy came in for a snooze on my lap. It seems I am a cat lounger! They do this every morning. Sometimes one cat will come in to see if the lap is taken or open... they will look and if it's taken flatten their ears and go sit and stare down the offending lap cat. Makes me laugh.

    Stephanie thank you for the beautiful photo. I have two bushes of open petal roses one in red and the other pink that bloom prolifically all summer. I really enjoy them. I decided that draining every 3rd day makes the morning of the third day icky. So I drain at night before going to bed on the 2nd day. Then I just am done and my recovery is finished by morning. The company sent me boxes of supplies. I feel better every other day. You understand the issue I am sure. We have had our drains longer than most folks. The Ibrance hasn't made any difference in the fluid. It's only been a few days so we will see. I am an experiment! A big guinea pig as far as the pleurx drain and cancer goes. I am hopeful to be here for the summer.

    It's cool, damp and cloudy this morning and makes me sleepy. Lovingkindness to all. May you have a wonderful weekend. rosevalley

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016

    Rose that reminded me of a this - just perfect for your new career

    image

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2016

    Yep I am the cat-a-lounger! Pretty funny. I just got a jury selection summons and am sending it back. Amazing that you can't defer for health reasons. I asked to defer for a year... that should take care of that. I can't sit all day in a chair over there. My back would kill me.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2016

    It's cloudy and cool here too....good napping weather. Cats are not as forgiving as dogs, are they? I love Feline's macro photos also. She inspires me to continue taking pictures. Here is one I took this morning:

    image

  • feelingfeline
    feelingfeline Member Posts: 5,664
    edited May 2016

    Gosh I can't believe you can't defer for health reasons - that is plain wrong.

    Good job you found some other way to defer.

  • Kandy
    Kandy Member Posts: 1,461
    edited May 2016

    Rose, my oncologist took care of my jury summons. They wrote a letter and I was taken off the list to ever be called again. Might want to ask your oncologist about it. Not sure if rules are different depending on what stare you live in either.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2016

    Morning Rosie! Been reading the last 2 pages.... thinking of you and your family..... Hopefully all this new treatment stuff will bring you many more YEARS! I'll come fix you up some Biscuits and Gravy! That'll fix you right up.... Oh! And a chocolate coke! xoxo

    image



  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2016

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