Rosevalley - this is for you!
Comments
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From my backyard...
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Kjones- that's pretty wisteria picture! I am sorry the vines took off. In our CA house in Davis we planted wisteria on the posts and slats covering our porch. The vines provided just enough shade. It was a very airy lacy effect. The vines weren't very old though. It did attract bees when it was flowering but I love the smell. Sounds like quite a yard lots of upkeep.
Loverly your flowers are so beautiful. Our peonies are just about to flower and they are huge buds. The rhodies are still bursting and the roses have not fully opened. Wish I could send pictures. My DH has a smart phone I need to get him to send some pictures. This morning I have a whopper headache. We are supposed to get sunny weather maybe it's a high pressure system. I need the sun.
Went to my monthly appointment at the oncologist yesterday and I saw the PA. Things are stable. Labs good. Tumor markers only dropped 40 points but they dropped. I was disappointed they didn't drop more. Ascites is the same. So we stay the course. My goal is to live through the first week in September so my DD3 has someone here at the house over the summer. That's a 3+ month block June, July,August and first week in September. I hope for that.
Here is sending you out hugs and well wishes. Thank you for your support.
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Here's to a good summer!
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Dear Rosevalley,
You've been on my mind and in my heart as you renew your commitments to love and support your family members. You inspire me with your devotion to your husband and daughters. Also for your willingness to deal with whatever is, including facing depression, getting help and changing what can be changed. You are an extraordinary human being.
Cancer isn't a gift, but you are one of the gifts that cancer has brought to my life. Thank you!
Today, my friend the birth and death midwife Constance Miles brought me this bouquet from her garden. She's birthing plants as well as babies. The red rose on the right is 6" across!.
The scent of roses and rose geranium are filling my cottage.
Love overflowing my heart, Stephanie
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Rosevalley- I like your intention to be present through the summer. Summer is such a treat to us all with our gardens, outdoor music, BBQs and so much more. I am glad to hear things are stable and/or dropping. You continue to sound good and valuing each and very moment of every day. I am trying to do the same.
Stories from the neighborhood today, I am always reminded that every person we meet has a story. I saw this man in a motorized wheelchair with the cutest little girl about a year old on his lap down the street. Something about this just warmed my heart, so I approached him to say hello and found out he is a neighbor up the street. He was taking a cruise with his granddaughter. I said nothing about the wheelchair, but he volunteered he is waiting for a liver transplant. It touched my heart because I had a brother who was waiting for a lung transplant and did not make it. I told him I knew about the process from a relative who had been waiting for something similar. Sounds like he got out to Phoenix for an almost surgery, but then it did not happen. He told me he always sees me out front working on my gardens (which you all know I love) and how nice they are. Anyways, I wanted to share this story because I am often reminded everyone has something going on and extending a little loving kindness can make a person's day. So many of you do that every day on this thread for our dear Rosevalley!
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HAPPY MOTHER'S DAY gals! Jazzy, that was so cute, what you said about all of us, including you, helping Rosie feel better! It's like we have all the wagon's circled... and we're out there with our camp-fire, singing "Kum-ba-ya my Lord"... or whatever that camp-fire song was... We have lots of marshmallow's and Hershey's with Graham-crackers, and we're all just good friends, helping each other as best we can!
Jazzy, how sweet about your neighbor...! Yes, sometimes we see something, and we don't need to say anything... it's just that's what life is... and we go on... Every time we visit our old neighbor in Assisted Living, and walking her to Dinner, we see so many things that could break your heart, but you put on that smile, and talk to them, and maybe make their day a little brighter...
Special hugs to you little Rosie.... AND to your girls! xoxoxxo
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HAPPY MOTHER'S DAY ROSIE! I'm just waiting for my Comte de Chambord Heirloom Rose to bloom for the first time! A little early in the season, but I know it will be beautiful! xoxo
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Rosevalley- Happy Mothers Day. An iris I found blooming in my garden today and just for you!
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happy Mother's Day, Rose
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Happy Mother's Day to you all. Even those who had no children of their own - we all "Mother" ourselves, pets, friends, family. We all have a piece of what it means to be a mother in us. It's special and caring and puts others before yourself. Not to say Father's aren't special because I believe they are! Mother's are why we are here at all. Caring and nurturing is what keeps us alive and it's the ultimate gift of life.
I got to spend some time with all my girls. My one drove from college for a super with us bringing me the most delicate and lovely crimson orchid. Just beautiful. My oldest gave me a poem she wrote celebrating our love for each other and a lovely card and balloon. My youngest gave me a tomato plant she grew, card and a rose. DH made me breakfast and bought a beautiful hanging basket of geraniums. I love flowers and we walked the gardens today, fed chickens and enjoyed each others company around a simple dinner. I am blessed. I love being a Mom and consider it a honor, hardest job on the planet and the best job you can have. To all those Mom's out there celebrate!
Jazzy love the story about your neighbor. It's amazing how much we all struggle with. Life is hard. Sweet but not without trials and struggles. Taking time out to acknowledge people, see them and encourage them makes a difference. Thank you all for the gift of your kindness, your observations about life, gardens, stories and sharing. Blessings that make me grateful. Much love to all.
rosevalley
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hey rose. Checking in on you and I see you are surviving and improving. Hooray !! You've been on my mind and in my prayers but I've been wrapped in m own depression funk. So glad to read your latest post. I see you new goal is to live til Sept. I think you can do thisand hopefully so much more. I remember when your goal was to make it thru Christmas, and you did. I remember when you were ready to quit , but you didn't. Your strength and love of family is amazing. Big hugs
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Dear Rose,
Been on and off the boards, so missed some threads. The past few months was no picnic for you, I just read. Ugh! We gotta deal with it, right? I remember the first few years on the boards, with so much more energy for everything.. Not any more. Life's still good though. I adore Mr. Morphine for taking good care of me. Hope the days treat you kind my lovely sister.
Huge hugs
Ebru
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Hi Rosevalley,
Here you are!
Glad I thought to look at your thread and even gladder to hear about your Mother's Day celebration with daughters and husband. Feeling happy for your happiness.
"Caring and nurturing is what keeps us alive and it's the ultimate gift of life."
I've been reading Tibetan Buddhist descriptions of loving kindness and they often use the image of a mother's care for her child. May we be kind to one another and ourselves, whatever our circumstances.
Sending you warm well wishes, dear Rosevalley, Stephanie
This is from the veterinarian at the SF Zoo. Baby born that day! Beautiful mother, beautiful baby!
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Dublin Zoo last month.
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Ebru good to see you! It's been hard this life in cancerland... you have been having hard times too. I saw the picture of your DH in the hospital when you were having lung problems. I hope you are feeling better and breathing better. You are so strong and try so hard. Having a child makes us work that much harder to stay alive and be a mom.
It's such a roller coaster ride this life in cancerland. I try so hard to live a good life and be there for my kids and DH and pets. I woke up this morning queasy and full. I pulled off more fluid then normal with my drain and got very nauseated and vomitd several times. I haven't vomited in weeks so that was depressing. I panic when it happens since I don't want a return to the bowel obstruction and relentless N/V of Dec-Feb. I worry the faslodex is slowing down and will stop working. Worrying does not help but I can't stop myself. The zoloft is working but not enough so my PCP increased it. We will see how that does. I am worried about my dog who is sick and my youngest DD who suffers from mental health issues. Life in cancerland does not mean life doesn't have it's challenges. Ugh...
Patty I was so happy to see you post. You too have had a hard time with N/V and the big D... my heart goes out to you. Glad you are out of the hospital and home with your boys. I hope your depression funk lessens. Gentle (((Hugs))) life is hard and sweet. Being a Mom is big motivation.
Stephanie and Feelingfeline thank you for the Mama and baby photos. I thank you all for your posts, photos and kindness. It lights up my life and makes me smile. I am grateful and wish you all great peace and love.
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Sorry Rose for the return of the N/V and the other challenges you are facing with your daughter and pup. Could the increased dose of Zoloft causing the nausea? Zoloft can cause nausea in some people. Even though there is no report of significant drug-drug interactions between Zoloft and Faslodex, we can't be certain that Zoloft doesn't cause changes in your liver which in turn may affect how your body metabolizes Faslodex. Hope that makes sense.
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Rose--so sorry to hear about the n/v. Crossing my fingers and toes that it doesn't happen again! Just a thought...maybe ask about taking Wellbutrin along with Zoloft. These two are supposed to help with not only mood but energy. Lexapro and celexa were the two (not at the same time) that I had the longest go with. It's just hard. No drug is going to take away the crap of cancerland blues. Hopefully it can take the edge off a little. I pray for you everyday. I wish I could take your worries away. Your puppy feel better, your daughter to have less stress and dh too. You are loved and we are here by your side holding the hope for you
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That's it KJ!! It is hope that we are holding on to for our dear Rose.
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Thank you! I feel better today. My pup is eating a little. The vet thought maybe the med we were giving her for arthritis hurt her tummy so I am giving her pepcid. The vet recommended that. At least she took it and ate most of her breakfast. Yay. I managed to eat and have a cup of coffee, no N/V yay. So today is going better. The sun is out and it's a new day. We must take it day by day. I don't think the NV of yesterday was from zoloft. I ate some cooked carrots and I think it was the roughage in the vegetables. Peas made me puke too the little skins don't go down. Bummer as I love vegetables. Oh well bread and cheese and milk products go down. Make the best of it.
Thank you for your encouraging support. It brightens my life! Lovingkindness to all.
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Judy's roses and nicotiana next to my cottage wall.
Joy!
I send you joy, dear Rosevalley.
Fingers crossed that you continue to eat and enjoy. And that you and your pup feel a bit better each day.
We are walking the hard road and yet there's still much beauty to en-joy.
warmest healing regards, Stephanie
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hugs & love dear Rose
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Thank you wonderful sisters. I am sad right now. I just got off the phone and got results from the tumor marker run last week. It jumped up to 870. My ascites fluid is increasing and I feel full after eating again. I had that one episode of N/V. So the faslodex reprieve was short 3 months. Sigh.. My oncologist will add Ibrance. I need to make it to September so my 15 year old doesn't spend a summer in the house alone. Cancer sucks.. this is such a roller coaster ride.
Stagefree you know what it's like these ups and downs, as do you Stephanie.. life in cancerland is hard. We just keep on keeping on. My hopes were too high. Well Ibrance has to work for 4 months. It just has to.
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Rose, seeing 3000 something TMs and having it back to 10s in just a couple of mpnths, it's no miracle.. I experienced it, so hope you find the right drug soon. Asap! Ascites suck! I am praying day and night for your comfort my dear sister.. QOL over everything else.. Huge hugs and much love
Ebru
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Oh dear Rosevalley, my heart is cracking open and all the love is pouring toward you like light.
You and our D&D thread is why I joined bco.
While I want to be okay with whatever happens to/with/for you, this is such hard news for me to receive.
If my heart is breaking and my tears are flowing, I can only imagine how it is for you now.
I'd likely be numb and angry...yet I wonder if the depression and meds are keeping you from plunging into emotions - places you might not want to go now.
Remember, dear Rosevalley, you've had so many unexpected reversals already. I am praying for another reprieve for you. For your dd3. for your whole family and all of us who feel connected to you.
You are so lovable and so loved, Rosevalley!
love always, love, Stephanie
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Aww, Rose. I can only hope and pray for mercy for God to continue to show favor to you. As I mentioned earlier, what if Zoloft along with how your body metabolizes drugs affect the break down of Faslodex. Both drugs are highly protein bound. Could Zoloft cause displacement of Faslodex thereby causing the latter drug less effective (shorter duration of action of Faslodex) ? I don't know...just hoping and thinking out loud. There isn't enough study out there.
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That really stinks. I am also praying that things can be turned around again, the sooner the better. Ascites has got to be miserable. We are all hoping that something helps soon.
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