How was your DCIS found? What grade?

Mine was found by annual screening mammogram at age 59. Grade 3.

Strong family history has led to yearly mammos since I was 30. (Gma had BC at 35, 45 and 84, mom at 42 and 50, her sister at 32 and 34). Mammos and ultrasounds last June showed water-based cysts and possible calcifications, which led to a 6-mo 'watch and wait' follow-up in Jan. Following the Jan mammo and ultrasound, I was sent to MRI, followed by MRI with biopsy and marker placement. Diagnosed with moderate grade DCIS, cribriform-type at age 43. Feeling like there should be an award for enduring 4 mammograms in less than a year.

I was diagnosed after a lumpectomy for an intraductal papilloma. I'm 38 and was diagnosed on March 17 with high grade micro papillary DCIS. There was no lump and nothing was seen on mammogram. I had bloody nipple discharge which sent me to the doctor who sent me for a mammo. They then did a ductography which showed a dilated duct and a papilloma. Surprise, after the lumpectomy for the "papilloma" it turned out to beDCIS.

I just turned 43 and was just diagnosised yesterday. I found a small lump and went for a mammogram and ultrasound. Turns out the lump is nothing and the DCIS was just under in. Have lots of mixed emotions

Mine was found during my regular yearly mammogram. I had been to my gyno the previous week and he didn't find it. Mine was grade 3. My lumpectomy found a small portion of IDC, grade 2 that was HER2+.

Thank you. Have lots of questions and very confused ☹️ Some people say it is just DCIS no big deal. Um I think it is a huge deal. Hoping that hearing other people's stories and asking questions will help me.

When they removed the 1.5 cm IDC tumor during the first lumpectomy they alsofound the following: "DCIS, multifocal, solid architecture, nuclear grade 3, central necrosis." No one explained what that meant exactly, but I had to have two extra surgeries because of close margins with DCIS.

Routine mammogram at 57 - watch and wait for 6 months and then the diagnosis. Grade 2 and 3, no necrosis (thank goodness) I think a baseline should be done at age 35 (the old guideline) and then yearly after age 40. Period. No way should people wait to 45-50!

Rountine mammogram. I really had no concerns because there is no family history. Apparently Ijust changed my family history.

Hello,

My 50 yo mom had clear and bloody discharge from her left breast, and went in for a mammogram, then a 3D ultrasound, but nothing was seen until she had an MRI. They saw 3 2cm masses, and performed a biopsy that came back with secretory-like findings. Originally, her doctor said it was stage 1, grade 2 and triple neg. He said she had a very good outlook and wouldn't need chemo or radiation, only a lumpectomy. Then he came back and said she would need chemo, and came back again 2 weeks later saying she wouldn't. She just had a double mastectomy 2 days ago. After the surgery, her surgeon came out and said they got all of the cancer and that her outlook with secretory was good. The pathology report just came back today saying that she had 2 tumors in the left breast. One was 0.6 cm and the other was 6 cm. The report says the pathologist found DCIS, cribriform and micro papillary, and secretory types. It also says she is stage 3, and her doctor says she will need radiation or chemo. What I don't understand is how 5 months ago there was nothing on a mammogram, she only had 2 cm masses, was stage 1, and wasn't going to need chemo. Now she has a 6 cm mass, is stage 3 and probably needs chemo. How could they have missed a 6 cm mass? How did it take her doctors 5 months to figure out what was wrong with her? I feel like they have no idea what they are doing, and I need to find her a doctor that has treated invasive secretory carcinoma before. I'll take her anywhere. I don't care if we have to travel to the other side of the country. Any suggestions?

i believe my doctor saved my life. She insisted that she preferred a baseline at 40, even though the false positive rate is high. So I went. 3 weeks later I had cancer. I had just turned 40.

I did my routine checkup every 2 years. 2014 was the year I was going to skip my exam. Right before Thanksgiving I rubbed against a chair and felt a pain on my breast and saw it was red and warm to the touch. The next day I went to my doctors office and asked for an appointment and was seen the next day. My doctor was going to aspirate I think that's what she called it but didn't feel comfortable with what she saw. She sent me to a surgeon across the street and that is when it all started. I had some form of infection which caused my breast to look red. After a couple of weeks of antibiotics and no change the surgeon said that he had to surgically remove the mass that was there. What they removed wasn't cancer but what they found next to it was. After mammogram. US, biopsy I had DCIS, Stage 0, Grade 2. I underwent 5 weeks of radiation on my right breast. I just recently had my left breast show signs of DCIS. I have to now see my surgeon this coming week and I hope everything is ok and that results will be negative. I am also telling everyone to do their mammogram every year or every other year, but not to sleep on it because all the years that I had previously had my exams nothing showed up until 2014.

I spent a year having pain, skin changes, and hot/itching sensation after a breast aug. My plastic surgeon kept saying I was just healing slow on that side. I finally went to my PCP and asked for a mammo, which found microcalc cluster. We couldn't get a needle biopsy because the implants were in the way (tried 2x under a mammo press to get the needle in... that was FUN! Not.) An excisional biopsy found high grade DCIS. I had to fight with the surgeon to even do the biopsy... he insisted it was not going to be cancer, and he kept finding ways to put it off for three months.

I've been fairly good about getting annual mammograms probably since 40, although my mom did have something that was probably DCIS--she had a mastectomy at 62 but is still doing great at 87 and has had no recurrence. (One doctor told her several years later that had it been diagnosed then, she would have had a lumpectomy vs. mastectormy.) I had ALH with lumpectomy seven years ago. Was a little late getting my regular gyn exam/mammo this past time, but had the same microcalcifications on the one in February that they saw the last time. FWIW, DCIS is not something that can be felt (or seen during surgery). Yes it's non-invasive, Stage 0, but my BS calls it "squirrely." I'm 58.