April 2015 Chemo Crew... Starting in April? Please join us!

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  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited January 2016

    I had my hair dyed professionally. I wet my hair and put a little gel to keep it down. It curled after chemo but I had it cut back short on sides. I love everyone's looks...we are so damn coooooll

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Love, love, love it! Every photo!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    Andrea, you look fantastic! And you have the perfect shade of lipstick!

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    Wow! You all look fabulous! Love the pictures! Anyone else I've missed on Facebook? I just got one more message and will add. We'd love ofr you all to join us there too!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited January 2016

    image

    So...here is my faux hawk to go along with all the rest. kbeee, I don't do facebook. Sorry. I know it excludes me from a ton of stuff, but it's just one of those things I chose not to jump into long ago.

    Anyway, so it's a bad day. I accidentally found something this morning. I was putting on my sports bra and my thumb rubbed across a rice/pellet sized lump that is located in the exact same spot as before. It's just under the skin....you know...the skin I chose to keep....the skin that I was warned would have a small amount of breast tissue left over. I am trying to cling onto the bridge with all my strength...I keep telling myself not to jump into that murky water beneath me. I calmly tried to tell DH about it and promptly burst into tears.

    In 24 hours, my pcp office will open and I will call and get an appt asap...I will then call my care manager in Chicago and find out what they want me to do. Sending a picture doesn't seem like an option. I am dreading the idea of going in for a biopsy, but it seems like that is the only eventuality on the horizon that can ease my mind or confirm my worry. I hate that this is the freaking day....the one. The one I knew was coming. I Knew that someday this would happen. Yesterday was such a good day to....these are the type of days that people don't hear about. Great, you're cancer free...now you can move on with your life. Right. Sure. Totally. If by moving on, you mean running in front of a speeding train for the rest of me life.


  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    Dizz, I am sorry you are dealing with that crap. Let's hope it is scar tissue or a suture granuloma. Call tomorrow first thing. Yes, a biopsy is the only way to know 100%, but hopefully it'll ease your mind to gets benign result. The waiting sucks though. I lost weight in December just because of the stress of the lump, biopsy, etc. please keep us posted

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    Dang it Dizz, that just blows. Welcome to the "Holy shit I found a lump" club part 2. And on a Sunday too. Deep breaths lady. We are here for you! Also, your hair looks Fab!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited January 2016

    Thanks!!! I keep chanting to myself that it's fat necrosis! or that maybe somehow I forgot about an alien abduction and that they inserted a tracking device in that spot to keep tabs on me. I'd take either one over a recurrence. Obviously tryin to keep my sense of humor. 👍

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    My latest scare turned out to be fat necrosis. I didn't think I had any fat left!

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    It's so scary. Mine was fat necrosis.

  • Rpayton
    Rpayton Member Posts: 235
    edited January 2016

    Dizz, hang in there. Tomorrow can't come soon enough. Errrggghhh keep busy and know we are wrapping you in a big hug. Keep us posted.

  • AndreaC
    AndreaC Member Posts: 220
    edited January 2016

    Dizz, hang in there, we're with you. If the lump is in the same spot your cancer was, it's doubtful that it's anything to worry about because the cancer was removed...then there's scar tissue. And with all the poisons your body has sucked up, it's doubtful that there's more cancer. But I know how worried you must be, and that you'll have it checked out as soon as you can.

    My chest is so lumpy - especially on the right side - it's hard to know what's a lump I should be worried about. And it's not like I can have a mammogram anymore, no boobs...at my next GP appointment I will ask her about ultrasound or something.

    Andrea

    p.s. Dizz, you look FABULOUS!


  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited January 2016

    Hang in there, Dizz. You look great - pretty eyes! Breathe... we understand the lump situation and don't like it one bit.


  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited January 2016

    Checking in with my "lump". I called care mgmt in Illinois. First got sent to MO office nurse then got sent to care manager for surgery team. I sent pics with a dot on the spot and described what I am feeling to them. Their first gut instinct is that it is 'necrotic tissue'...fat necrosis to you and me. I askes them how confident they are and the likelyhood that it is actually something to be concerned with and they said "very very low." They said since I am scheduled to for stage 2 surgery in about 5 weeks, they will plan on excising the area at the same time. My other option is to go through my local pcp, get an u/s, go to a local surgeon if it is questionable for excision/biopsy.

    I am actually feeling pretty calm about it today. Based on everything I have read and what they said, it does seem highly probable that it is fat necrosis. Am I crazy to wait 5 weeks for them to investigate it? I was told to feel is no more than 1x/week and keep the dot on top of it. If I notice any change at all (even if I think its in my imagination) they will re-evaluate. Another option they gave me was to fly to illinois for an exam, u/s, excision biopsy next week. It seems a little drastic for something that is highly probable to be fat necrosis.

    My pcp did a ton of bloodwork when I saw her about my joint pain last week and I have my pelvic u/s scheduled for Wednesday. So, I figured she will probably call me Friday or next Monday to go over the tests. I figured I will go over the 'lump' then and ask if she wants to 'feel me up'.

    I am just trying to develop a rational attitude about 'lumps'. I am not ignoring it, but not freaking out. For now.



  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    My feeling is, the more hands on us, the better.

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    having your pcp look at it is good. Glad they will excise it when you have surgery just to be safe.

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    My PT and PCP agree that I experienced a sudden strong cramp or strain rather than a blood clot in my calf. Took a bit of differential diagnosis to sort out, but both were very helpful and informative.

    Both my surgical pectoral stiffness and rotator cuff impingement are less significant than 4 weeks ago. My PT is now on an as-needed basis. I think I'll schedule with her for early March, and see my MO at the end of March. I'd like to get them on an alternating schedule for now.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited January 2016

    scary Susan. The clot risk is one that frightens me a lot. Was the cramp related to exercise? Kbeee can you let me into the April Facebook group? We are friends on the March page. .

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Yep. Dropped me during Zumba.

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    That cramp had to have been really scary! I am glad you got it checked. The clot risk from Tamoxifen is nothing to take lightly.

    Dizz, Keep us posted!

  • Stephmoen
    Stephmoen Member Posts: 563
    edited January 2016

    jen has inspired me to go blonde I have an appt Friday these are the looks I'm going for

    image

    image

    image

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited January 2016

    Had pelvix u/s today. It wasn't as bad of an experience as i was afraid it could be. I have been having some horrific pain when trying to get frisky with dh. Doesn't seem to be a dryness issue. Anyway, pcp said we would use the pelvic pain as a reason to get a good look at the overies and makensure there isn't anything else to be worried about. So, I was called back today by the same woman who did my breast u/s last March. I told her I was grateful to her and the mammogram tech for spotting my tumor. It was kind of emotional talking about the last year, but I am glad I got the chance to say thank you to them. I explained the pain I was having and she told me she would be very gentle. She was. As much as I am wanting to resolve the pain I am having, I hope that she didn't find anything wrong. My bloodwork came back normal. No arthritis. That's a good thing, but why the hell all the joint pain...? I also asked the u/s tech about the fat necrosis and if an u/s would actually tell her if it that's what it was. She said usually. I told her that I may be back next week if I decide I can't handle the waiting. Now that I have talked with her, I am very tempted to call pcp and get a u/s referral...then I don't have to think about it anymore. I'm not worried so much as it's just on my mind.

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2016

    I hope the u/s shows no abnormalities, but I do hope you can get some resolution to the pain. It's a while to wait until you go to Chicago. I would not hesitate to have PCP make a local referral to get a look at the lump......but them I an NOT a patient person at waiting, so I may not be the best one for advice on that. Do keep us posted. And I love the pictures of hte look you're going towards!

  • Stephmoen
    Stephmoen Member Posts: 563
    edited January 2016

    dizz park if it puts your mind at ease I say do the ultrasound we have been through so much shit I don't deal with the wait and see game now I say the sooner the better

  • AndreaC
    AndreaC Member Posts: 220
    edited January 2016

    Dizz, I have been having joint pain and general body aches for months...it could be related to Tamoxifen but my GP thinks it's more likely the effects of chemo. I am glad you don't have arthritis!

    It would be so nice if we didn't have to think the worst every time we feel a lump or have pain. But the unthinkable happened to us all, some of us more than once...

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2016

    Thanks, Kbeee. I wasn't too worried about it until my PCP started offering to image it.

    I signed up today to walk a half-marathon this spring. I haven't done that before, but it's 13.1 miles and I did 11.5 in steps on Tuesday with no particular effort.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2016

    Dizz, I admire your mental strength. When I had a lump I was in my surgeons office demanding he take it out even after an ultrasound. He told me it was nothing, and he was right, but he saw the crazy in my eyes and helped me out.

    Steph, I'm stoked to see your new do! I felt like a totally different person after I bleached mine, which was exactly what I needed!

    Kbeee and Andrea now I can't remember what you said and my phone won't scroll back, but I'm thinking good thoughts at you!

    Ksusan!!! 13.1! Get it girl!

  • Rpayton
    Rpayton Member Posts: 235
    edited January 2016

    Dizz definitely get the US and peace of mind! Steph love the hair look! You guys have such adorable faces and can pull that off!!!

  • ERNurse21
    ERNurse21 Member Posts: 15
    edited January 2016

    Hey all! I may be one of the "quieter" ones but having all of you wonderful peeps in this group has been such a revitalizing blessing over this past almost-year. Your stories, triumphs, pitfalls, and recoveries have been such an encouragement for me. I think of all of you often and just want you all to know you've got a big cheerleader here, even if I may not get online as often.

    The last few months since finishing chemo have been up and down crazy but just wanted to share a huge win with my Chemo Crew: In February (just a few days away!) I start my new job as a helicopter flight nurse!!! I have been working towards this over the last 4 years and am so excited to finally have it come to fruition!!

    Also, LOVING all the feauxhawk and post-chemo hairstyle pics! All of you ladies are gorgeous! Many, many blessings to all!

  • lovlilynne
    lovlilynne Member Posts: 405
    edited January 2016

    ERNurse, CONGRATS! That is awesome. What a cool job!

    Heather, did your blood work show any D deficiency? Because mine did and MO prescribed 8 weeks of mega D dose (50k units), then down to 2k daily - I think it has helped with achiness and joint pain.

    Here are some pictures from my collection of hair cut pictures - I was always looking for something new and edgy. These are all way longer than my hair is now, though.

    image

    I could probably do this:

    image

    image


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