Stupid comments ....
Comments
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Don’t get me started on those who tell me to spurn treatment because it’s all a plot by the “Cancer Industry” and Big Pharma. (Not to mention the idiots who think I got b.c. from wearing bras--underwire or not--and using antiperspirant).
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Cancer is created by the govt?? Wow,, that is really out there. So all the governments in the world are in cahoots to give us cancer,, since cancer is everywhere,,, and has been for centuries.
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Yes, all governments are in cahoots with regulatory bodies to keep us from the cure that was discovered years ago. Yes, I heard that one recently at a social gathering. Yes, I saw other people accepting it without question. Yes, I wanted to bang my head against the nearest wall. The screamin' stupid was unbelievable, but I decided that - since it was a social occasion - I would just suck it up and not embarrass my hostess.
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I've loved, and cringed, reading all of these comments! I can forgive the people that you can tell just don't know what to say. I've found men say the dumbest things by far. A male friend asked me why I just don't go ahead and have a double mastectomy because then I could get some "really spectacular fake ones". What an idiot.
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Cuz it is all about the free boob job.
RC: Love your dog!!
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Free boobs..wow! Since I kept mine with a lumpect, maybe I should now go for the free boob job. I could have 4 of them, 2 saggy real ones and 2 new perky ones. Could they be interchangeable depending on the occasion or should I just keep all 4? Would that make me twice as sexy I wonder??? What stupid stuff folks think is important if they've never fought for their life. Today I am so grateful for having many things in perspective. And for a sense of humor, kooky as it is. Love, Jean
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After all the mastectomy, expander, chemo, PT, and reconstruction I find it absurd that anyone would willingly go through even implant surgery just for bigger boobs. My implant is not uncomfortable but it is not real and nothing will ever make it real.
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glennie19: I love your dog, too! I have a Pittie too...she's the love of my life!
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Dogs are the best !!
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Merry Christmas, Happy Holidays, Safe Travel and a healthy New Year to all!
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I ran into a friend the other day that I haven't seen since before chemo and she just looked at me and said 'hey...your hair is coming back'
Ummmm...that's all you've got after 8 months and knowing that I've been through hell? Pffftt whatever.
Downgrading her from friend to acquaintance!
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I don't know if I can call it a stupid comment but I just have to share this story ! Today I had a missed call from a friend. When I saw this missed call it was around 11pm. I thought it' was too late to call back. But then this friend started texting me : is everything ok? Please tell me you are ok! Please call me back !
So I called back... I said : what happened? Why you worry so much? Did you see a bad dream about me or something ?
He said : no.
So this is what happened. He went to the place where I used to work before. And everyone there knows that I have a breast cancer. He walked in and met another friend of mine, she was standing and crying. When he asked what happened she couldn't even answer, she was in tears.... Finally she said : you know... Ruska died yesterday...( Ruska is my real name). So now it was two of them crying over my death....
The thing is that one of the coworkers probably decided to make a joke and said that I died...
What a joke!
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*jawdrop*
Oh Ruska - that's beyond horrid! I'm so sorry some tw@tbadger thought that would be anything like a joke...for once I'm speechless...wow...just wow...
(and we're all thrilled you're still here with us)
x
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OMG,, that is not a joke!! What a jerk to do that.
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That is a horrible thing for someone to do, but finding out how your friends feel about you while you are still around to enjoy it is kind of sweet. They obviously love you very much to be so broken up by the possibility of losing you. Imagine their relief!
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I absolutely refuse to believe someone would make that up, I just can't imagine that. It had to be a misunderstanding. Horrible! Good to have friends who care so much though. Solfeo is rigbt, they clearly love you very much.
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I've had fun reading about how tactless--though well-meaning--people can be. And want to share my little story.
I had some family here for Thanksgiving dinner...this was after I had my diagnosis and about two weeks before I was due to have a double mastectomy.
Somehow we got to talking about our various health issues. My brother had a total knee replacement last winter. My other brother fell off his roof and cut his leg. I told everybody about a fall I'd taken coming back from the library. I had about 25 pounds of art books in my tote bag and the toe of my shoe caught a variation in the sidewalk--the block I stepped on was about an inch higher than the one I was leaving--and I went right down. Hit my knee, hand reached out....hurt my wrist...
Just then my brother's girlfriend jumped up from the table and pointed her finger at me:
"That's a sign of CATARACTS! You get so you can't see low-down things! That's a sign of having a cataract!"
We were all stunned. It was so odd.
I was dying to say thanks, I'm still rocked with a breast cancer diagnosis and impending surgery and you have to make me aware that I perhaps have yet another malady....so appreciate that!
It just seemed like too too much to dump on someone...
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I guess mine are more "reactions" to me telling them I have BC, than comments. But, I want to share and get these things off my mind with others who know where I'm coming from and how it feels.
I told my (ex) mother in law this morning about my diagnosis in person. She is someone who has always been "open mouth, insert foot". But, I was taken aback by the 1st word that came out of her mouth. She said "AWESOME". I don't believe she meant it as "yay, you have cancer". I don't even recall what she followed up with. She is one of those people who inappropriately responds to bad news. I almost did not want to tell her, but she is my children's grandmother and I thought it would come up at some point. It is almost as bad as when I told my step father (on the phone) and his first words were "you are joking, right? Is this a joke?" Who the *insert angry word* would joke about having BC?
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Last weekend I was visiting my ex in laws, including my sil, her dh and a family friend. I hadn't seen anyone since my bmx 4 weeks prior. There we were, 4 women sitting at a table chatting. It was actually good conversation, until.....the subject of breasts came up. My ex sil was holding hers saying "they just keep getting bigger", my mil sys "mine didn't stop until I was 50". The family friend just sat there, probably as shocked as I was that they were talking like this in front of a woman who just had hers amputated. I know they didn't mean to be ugly, buy really? It was so shocking and validating of their ignorance, I just laughed.
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Okay here goes nothing.....I have to turn myself in as the person who said something stupid regarding my diagnosis. I had to give the news by phone to both my daughters before they heard it from the family grapevine. I said something like "I'm sorry to have to tell you this, but I just f***d up your family medical history cause I have breast cancer".
My girls didn't see the humor in this at all. I said something similar to my sister on the phone cause she lives in Florida. Now she acted like she saw the humor; but my sister is my rock. She will listen and follow my lead no matter what; when she gets off the phone is when she lets herself break down and cry but NEVER when we are talking.
But I want to add that IMO I think it is stupid for doctors/medical staff to shoo away your concerns about possible bad test results just because you don't have a family history of breast cancer. I always used to say "but somebody had to be the first". Now I have the privilege of being that first. Of course, my opinions are based on the fact that my oldest brother died 17 years ago 9 months after he was diagnosed with non-Hodgkin lymphoma and prior to that there was no family history of any kind of cancer.
Anyway I think we have all been on both sides of the "stupid remarks" category....at least I know that I certainly have.
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I have found that I have to keep a sense of humor, if I hadn't I would be insane at this point. There was no breast cancer in my family. The only cancers were melanoma in my Mom and younger brother, moles that were removed and an AIDS related sarcoma that he had in the weeks before he died in 1997 at the age of 32. I would hope that I haven't said too many stupid things in my life, but I am sure I have. I think people do not know what too say....with the possible exception of people like BethL's inlaws. My latest is one of my students who said my hair was creepy in a nice way....but she is a 6th grade student with special needs and no filter.
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God bless the children! When my grandson saw me for the first time after surgery (it had been less than a week post op) he said "are you sure you had cancer cause you just look like regular grandma". I was putting out great effort to look like I wasn't in pain or feeling miserable so I wouldn't worry my grandkids (ages 10 and 12....my grandson is the 10 year old). I just had to smile at him. But then again I think of my grandchildren as straight IV infusions of pure joy! By the time we left their house, though I was very tired, I felt better than I had since surgery.
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I've done a cancer tree- Known cancers on the paternal side are 25 out of 53 blood relatives. Not only can't I get the relatives to pay attention, I can't get the docs to pay attention. WTF?
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AnnieKay: 'regular grandma'! I love that!!...I asked my daughter to tell my granddaughter (age 8) about my dx before I saw them for the first time since losing my hair: I had seen last them before chemo. We decided my GS (not yet three at that point) was probably too young, but DGD is smart as a whip (and the light of my life) and I was pretty sure she'd figure out something was up...
DGD actually acted shy when she first saw me, a reaction I've never seen before: usually after not seeing her for a while she runs into my arms for a big hug. This time, no. She hung back and started to leave the room. Apparently she wasn't sure how to act around me. I just smiled and asked 'aren't I going to get my hug?'. She gave me a big hug at that point, and since then (two visits since) I have been 'regular grandma'. Does my heart and soul good.
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RaiderGirl, you hit the nail on the head. I guess the most stupid comment I got was "we can't find it, maybe there is nothing there". This was repeated by two different radiologists after "something" showed up on my initial mammo. I went through 5 hours one day of testing with one doc and 6 hours the next day with another. MRIs, ultrasounds, too many mammos and too many blind biopsies to count. No one could find the area.
Another stupid comment I got "I guess we can do a lumpectomy, but I don't exactly know where to go", as uttered by the surgeon who was going to initially do my procedure.
Ended up having a double mastectomy with another surgeon and tissue analysis after showed invasive cancer.
Last stupid and hurtful comment came when someone said, "it isn't stage 4, so what is the big deal?"
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So sorry about that. Kids just don't understand things and ones between 16 and 24 seem to think they are experts on everything. I have noticed there is a lack of compassion and empathy is this next generation too, as well as a lack of respect.
Focus on being healthy. Take one step at a time.
When I was being tested for my diagnosis last February, the second radiologist told me that he could not find my cancer on the scans, but jut to know that he saw calcifications in my cardiac arteries, so that I had blockages and needed to get to a cardiologist ASAP! This is the day after being told I had "something" show up on my mammogram.
I had to have all kinds of cardiac testing before my mastectomy. It was exhausting having to deal with two health problems at one time, so I know how you feel.
I would suggest making an appointment with an ophthalmologist to rule out any eye issues. Then you can have this issue behind you. Good luck and God bless.
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IMO there is no better medicine that time spent with grandchildren. I was awakened early this morning to hear my grandkids coming in the front door. We apparently have a snow day and my daughter needed a babysitter. Oh and since my husband works for the school district he had a snow day too.
I am so lucky my gkids live close. For 2 years they moved 3 hours away for their dads job. Now that they are back I treasure the easy and frequent accessability. I also left it to my daughter to do the "telling". Their parents are the ones who have to answer their million questions, and who know them best so....they get the job of giving bad news.
My daughter had warned my gkids I had just had surgery (don't know what she said in detail but she is usually pretty honest with them). So when I first saw them they were both hesitant about approaching me. I told them both I don't hurt anywhere on my back so a good hug (with my arm protecting my chest) with a back pat would make me feel great. I got the biggest hugs.
Who would have thought we could be thrilled to be "regular" grandma? I used to want to be super grandma or cool grandma. I guess it was just comforting to my gkids that getting "sick" hadn't changed who I was and am.
Gkids are one of Gods greatest creations!
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Not seeing my grandkids last summer when I was doing chemo was one of the worst parts of the experience.
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Tjh
So sorry to hear you couldn't see your gkids during that time. It can be really hard on the kids seeing us "not ourselves", but it is hard on us too. Problem is we are the adults and have to do what is best for them. It is hard not to be selfish and grab onto those little rays of sunshine to make us feel better. I thank God my gkids are old enough and mature enough to handle what is going on. But then again I'm lucky enough that I don't need anything but surgery as treatment......and surgery alone was bad enough. I am in awe of all you women who have had to do chemo and/or radiation or have to have multiple surgeries. You are all warrior women in my book. So far for me everything is going according to plan....BMX with TEs then exchange somewhere down the road. I pray I continue without complications.
So everyone who is lucky enough to have gradkids make sure you appreciate every moment with them. They are so precious!
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