Starting Chemo March 2015

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  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Katy, watch out for that Tutti! One of my cats brought a live pocket gopher into our house and turned it loose. We were all running around with brooms, screaming. That thing was mean. But we had to get it out of the house before we went to bed, no way was I sleeping with that thing in the house! And I can't tell you how many presents over the years of a rodent carcass eaten out with just head, legs, arms, tail and backbone were given to us as presents. My daughter has always had cats, so that was the price we paid for having them lol

  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    T! Come on over!!! I've got a spare bed :)

  • Trvler
    Trvler Member Posts: 3,159
    edited December 2015

    lol, Katy. Wow, my cats never did that. Glad I don't have a cat. :)

    I want to come!

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    avmom I'm have a tantrum too. I've have enough of this crap. I just want to take my ball and go home now. No one (the universe) seems to be playing fair.

    Someone at work said to me yesterday. Surely the good karma should start going your way soon!

    Katy. I'd still prefer a rat to a bird.

    I'm about to ride to the lymphatic clinic it's a little before 8 in the morning and it's already hot. I love the heat as long- as long as I'm at the beach! Not in the middle of the city riding a bicycle!


  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    a gopha! That would have been interesting.

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    We've had these:

    • Mouse
    • Snake
    • Chipmunk
    • Opossum
    • Bat
    • Giant scary beetle
    • Dragonfly
    • Huge moth
    • Night crawler
    • Giant scary spider


  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    We've had these:

    • Mouse
    • Snake
    • Chipmunk
    • Opossum
    • Bat
    • Giant scary beetle
    • Dragonfly
    • Huge moth
    • Night crawler
    • Giant scary spider
    • Barred owl
    • Hummingbird
    • Other bird
    Much of it with no outside access except an enclosed porch.
  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    omg. What a varied selection.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015
  • IndyGal35
    IndyGal35 Member Posts: 340
    edited December 2015
  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    Here's Jack: escorting me off the ledge for the afternoon.

    image

    image

    #Suchagoodboy

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    if you've never seen a pocket gopher, here's what one looks like. And when it stands on its hind legs and extends those dagger talons and hisses at you, it's like oh crap, better not fart, I will poop myself! The hands are enormous on them! Hence lots of screaming dealing with it

    image

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Eileen, I wish. Friday traffic would kill me, what are you planning for New Years?

  • DavisD
    DavisD Member Posts: 338
    edited December 2015

    thanks for sharing the pic of the bracelet Sharon. I still remember the day I put the bed charm on and what it meant to me. So many of us were having trouble sleeping... what a year and what a wonderful idea this was to honor the contributions of so many. love you guys:)

  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    Teresa! We might do NY eve at the lake! You and yours are so invited. We often go NYE - this year we are still waiting to hear the girls' schedules but I think we will be there - come come come come come!

  • DavisD
    DavisD Member Posts: 338
    edited December 2015

    Katy-what a good boy Jack is! You've been on my mind today Katy. I wish I could do something to make you feel better.

    T-my cats don't go out due to an outbreak of feline aids but they've been on high alert to something under the dishwasher. butts wiggling ready to pounce and I'm ready to climb on the counter! Glad they're on top of things..

    ksusan-you have some badass cats!

    I've been just going about my business at work and even sometimes forget I look like a little old monk...I went to drop off some documents to our Family Services admin desk...one of the ladies said "oh I didn't know you cut your hair" I said "no I didn't, it fell out" probably could have handled that differently but I thought WTF??? Why would you say something like that in a waiting room full of people?? My face burned and the interaction stung for a few minutes but I went back to trying to be "normal" again...

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    That's truly fierce theresa

    I'm with you Lee. That's a lot more than 30 mins a day!

    I've been for my laser and massage. Arm is getting worse and my forearm is hard. They ordered me a new sleeve with more compression. I asked her if it will ever go down. She didn't say no, but she might as well! Someone at work asked me why my arm was so swollen. 😕I hate lymphoedema.

    As for the indent, she was very kind to me after we talked about it. Makes me feel worse. Roll on monday, the edge of the cliff is crumbling.

    It is F×cken hot!

    I've decided not to attempt the 5km fun run in the city tomorrow. It's going to be over 40. So I don't think the words fun or run apply.

    ...and how cute is Jack! Melts my heart.

  • DavisD
    DavisD Member Posts: 338
    edited December 2015

    I'm so sorry you're having to deal with lymphedema Sharon. I hope that it will get better. Sounds like you're doing all the right things, don't give up. You've come so far and brought us all together:) sorry I can't express myself well but sending positive everything and big hugs

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Sharon, so sorry. I know you are trying everything, but one thing that worked for me post surgery with swelling was wearing a bike compression shirt. I didn't think it helped, but it did because if I didn't ride for a few days, I felt some mild swelling. The beauty of a bike compression shirt, for me, is that it not only compresses the arm, but also the torso. And it does it gently and doesn't create any hot spots. Yeah, I know, I'm all about the bike lol, but the shirts did help me a ton with surgical swelling. Something like below, but super form fitting. This one is definitely way too loose, but this model is probably a child size. The one I have has a built in bra, and it doesn't pinch or bind anywhere. It doesn't have to be a bike one, can also be a running style compression shirt. I haven't ever figured out how a sleeve that has elastic at the shoulder area works, seems like it would create an uncomfortable hot spot.

    Do they have you doing any light weights? Sometimes weights can help, not always.

    Again, I don't think I have lymphedema, but I wear compression shirts a lot, they support well without pinching or binding and feel good. I so wish you could get some relief, so sorry, sister


    image

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    thanks Diane. I'm awkward with words too. But you said it nicely.

    Thanks Theresa, I did wonder about them I have compression pants for running which are great. I'm in the shops now trying to escape the heat for a bit. I will have a look. I haven't tried weights but I have heard that some people have good results. I might try it when my new sleeve arrives. See if I can push the fluid out.

  • avmom
    avmom Member Posts: 324
    edited December 2015

    Hi, Sharon,


    I have mild lymphedema as well. In addition to wearing my sleeve and glove, my therapist has recommended truncal compression, so most of the time I wear either an Underarmor sleeveless compression tank, or a "shaping" camisole. I like the camisole because it comes up high under my armpit, and I have some swelling there. Since I started to wear compression basicall all the time, I have noticed that I feel less swollen. My next lymphedema follow up is on the 18th, so we will see. I don't bike outside, although I do have a recumbent bike machine, so I don't know about bike attire, but Theresa's info looks interesting.

    There are folks in the city up here who bike most of the year, but where I live I am surrounded by gravel roads, which are not very rideable. Also, I'm a wimp in the cold weather, and it gets cold here! So far, we've had reasonable temperatures during the day (it was about 5 degrees C yesterday afternoon - maybe low 40s F) but it was minus 24 C at dawn about a week ago. In midwinter, we usually get at least a couple of periods with at least a week where the daytime temperatures are minus 30 C - brrrr! At that temperature, it's hard to get me out of the house. On the other hand, we do get "Chinook" winds that come through the mountain passes, and the temperature can rise more than 20 degrees C in an afternoon, so although we do get some snow, it usually melts away on the roads regularly, causing messy road conditions several times each winter. 40C is HOT! Is it humid where you are? I know that when I was living in Papua New Guinea, it could be 40C with 100% humidity, and that was pretty tough to take.
  • neverthought
    neverthought Member Posts: 90
    edited December 2015

    Beachbum - thanks for your post. Now crying but true. I hope everyone has many Christmas' ahead.

  • neverthought
    neverthought Member Posts: 90
    edited December 2015

    Certain exercises that stretch my chest make me dizzy. Dizziness and breaking out in a sweat at PT. Afraid I was having an MI and had to stop. PT looked so worried as BP was low. Sometimes staff/MDs scare me more than I do myself. Now afraid to go back to PT until I get a cardiogram. Didn't help that relative told me it could be reflex bradycardia, could even cause cardiac arrest... At least they have an AED at PT. Am I crazy for being scared or scared because I'm crazy? Is this because of chemo and still run down and not getting enough sleep? Not enough hours in the day for sleep.

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    avmom, how did you choose the size for your compression shirt? I've tried some Underarmor compression tops but in my normal shirt size they're too loose, and the next size down seems uncomfortably tight.

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    In my humble opinion, it is all about the fabric. Some running and cycling compression tops have special fabric that compresses, but breathes and moves. I posted below two pictures of my absolute favorite compression top, but it doesn't have sleeves, and they quit making it. But there are similar shirts out there. The reason it works so well is all the black lined areas with the fabric that looks like it has little white dots on it stretches in every direction, so when I am riding, the material moves the way I do. The second picture is the top inside out showing the built in bra. So I think a key point is to look for a breathable, movable fabric in a shirt. My husband has some under armor tops, but the fabric just doesn't breathe and move very well, they feel like an uncomfortable girdle to me. I have it in white and black and sometimes, depending on the clothing style I am wearing, I even wear it to work underneath a top, especially now when I can wear a sweater over a top because it is cooler. It's a combination of nylon, polyester and spandex.

    Honestly, you just have to go and try a bunch of shirts on, but I would go to running or bike specialty stores. They do make similar tops without the built in bra, my husband has the same shirt in the men's style, which I can also wear. I also have a black one that is extremely thin, but it works pretty well too. The third picture is that top, covered with white fuzz because I accidentally washed it with a towel.

    image

    image


    image

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Thanks. I am mercifully no longer hostage to a bra, so I have more potential choice.

  • avmom
    avmom Member Posts: 324
    edited December 2015

    As a (now) completely "boobless" person, I bought. Men's size small Underarmor sleeveless shirt, which does ok, but I agree, you just have to try things on. I have been looking online, and I think that the Genie shaper camisoles might do as well. It has a built in bra, but I think that iif I got a size that provided enough compression, the cups knitted in would lie flat, but the have pockets so I can put my knitted fobs in if I want some shape up top. The thing I look for is a high armhole because my truncal LE goes right into my armpit.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    ugh. Mine too. I wear compression all the time now too. It does help.

    I tried on many types, men's and women's. In some case an men's XL didn't fit. WTF. In other cases a ladies large was fine. My favorite is a strapless camisole with Velcro front closure.

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    here are the ones my husband has, they are super comfortable too. I am providing the pictures so you can see examples of what I mean when I say the fabric stretches and moves with you. The subtle striping on the sides show additional compression areas, but without being crazy. There isn't one millimeter of give on these shirts, no gapping, they completely conform to your body. A good compression shirt has built in areas that move with you and conform and don't bind. This company doesn't make these shirts anymore, but I am sure there are comparable ones. I bought 8 of them for me when I knew they had been discontinued.


    image


    image

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Thanks for the photos!

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