Starting Chemo March 2015

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    E- your post about Alan and his reaction, and not realizing....it all made me cry. I'm still crying. Yes we have been very strong. I'm glad we are still hanging on to each other.

    Leigh- you are almost done! That thought certainly brightened me up a bit.!!! Hang in there.


  • pboi
    pboi Member Posts: 663
    edited December 2015

    I'm so sorry this is happening...thinking of you today Karen.

    I had no idea there were so many of us on this ledge. I find comfort in all of you here, but I hate being here! But Eileen is right, we have been strong this year, we can do this and get past this, and get off the ledge! Hugs to all who are here...

    Now to focus on some good news...congrats to Allison for being done with rads, and to Leigh who is nearly done! It looks like you both made it through ok, so I'm very happy for that!

    Katy...I agree with Lee, do you have time for a Jack and/or Tutti pic? We could all use a smile around here...😊

    PB

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    I'm not sure, I may have posted these little gems from the other day. Toots brought me ANOTHER bird yesterday, but I saved it. She's out hunting right now so I can't get a pic and I'm in my way to the MO. Jack is under the covers.


    image

    imageSs

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Clean bill of health from my surgeon. That's the last I'll see of him (he's retiring). Nice guy.

  • pboi
    pboi Member Posts: 663
    edited December 2015

    Thanks Katy! Hope your appointment goes well!

    So good to hear Ksusan. Yes! Love hearing good news! We need a lot more of those posts around here 😊

    PB

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited December 2015

    Yay ksusan! Way to go!

  • Trvler
    Trvler Member Posts: 3,159
    edited December 2015

    Great news, Susan.

    Thanks, PB. My skin is recovering quickly, thank god. Gotta see my MO tomorrow to get my Tamoxifen. Oh, joy.

  • lovlilynne
    lovlilynne Member Posts: 405
    edited December 2015

    Has anyone heard from Whitney lately? It seems like a long time since I've seen a post from her.

  • avmom
    avmom Member Posts: 324
    edited December 2015

    (((((To everyone on the ledge)))))

    Today I saw my PCP, to review how things are going and to discuss a few things. First off, my MO cleared me for vaccinations, so I had the pneumococcal pneumonia vaccine, the flu vaccine and the shingles vaccine today. We discussed my weight loss goals, and since I am taking the clinical trial dose is Metformin despite no diabetes, and my diet plan restricts carbs, it has been suggested that I monitor my blood Sugar for a while, just to be sure that it stays in range. So... Another thing to add to my routine. Got the meter and supplies, and the first test was well within normal range. I think it's overtesting, but if nothing else I have learned how to be a compliant patient this year. The meter logs 800 tests, so at least I don't have to write it down every day. I'm already writing down every morsel of food that passes through my lips.

    I'm holding each of you in my heart. Waiting is one of the hardest things. Gentle hugs.

  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    Ok - some good news on the thread. Glad for the clean bills of health & finishing rads. Good luck at the doc's Katy. I go on Thursday.

    Had a great job interview today. They want me back next week for part 2.

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    yay for good news!

    I'll hold on to that info all day. That and they fact that the bracelet will definitely be with me on Monday! I can't believe how exciting that is. I can't get to the post office until Friday. .. my head is trying to work out a way to get there earlier.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited December 2015

    Yay for all the good news! It's always nice to hear. I hope that all who sit on the ledge find their way back to safety quickly and we get even more good news. I've visited to the ledge yesterday for a bit, but I'm doing a little better today.

    I was wondering about Whitney too. We haven't seen her here in a long time.

    I haven't gotten the MRI approved yet, three times, two different specialists have been denied already. And the time is ticking, the breast is hurting.

    I had a flu shot today at the advice of my MO's office. I've never had one before; I hope this one doesn't give me problems.

    I'm seeing my eye doctor tomorrow for my yearly exam. I know my prescription has changed, I'm just worried that there are some other issues too - my vision changed a lot. It dawned on me that my eye doctor is an optometrist, and my husband says that I really should see an ophthalmologist. I don't have one and at the end of the year it's not easy to get to see one being a brand new patient. I finally was able to get an appointment in two weeks.

  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    I went to the eye dr for my annual check up and I was so aggravated (but later relieved) when he said "good news...no mets in the eyes!". I was aggravated only because I was looking forward to an appt that didn't have cancer as the focal point but it reared its ugly head anyway.

    After the appt I was glad he was on his toes and looking for mets. He said I should see him in 6 months just for a quick check to make sure. I thought really?!? I didn't think eye mets were a common thing at all but I guess every doctor has seen it happen

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Excellent, Eileen!

  • pboi
    pboi Member Posts: 663
    edited December 2015

    Yay to more good news! Great to hear about the interview Eileen and good luck on part 2!

    Need to get my eyes checked. Eye mets, really? Bekah which one did you go to?I normally go to an optometrist, now wondering if I should see an opthalmologist. Maybe go to the optometrist and see if I need to see the opthalmologist? Thoughts?

    PB

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2015

    Eileen, fingers crossed - a second interview sounds promising!

    Whitney is posting on Facebook, seems totally into cross-fit, seems to be living life large. I haven't paid attention to when she posted last, but she seems to pop up every couple of days with a new quote or comment.

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2015

    Eileen, Great news!

    Bekah, Glad your doc is on his toes, but that is a scary prospect!

    BB, How frustrating the MRI has not been approved yet. I hate when people try to dictate your healthcare from behind a desk.

    Sharon, hoping the bracelet is a great way to end your week and that you feel wrapped in everyone's love when you wear it.

    AV, The metformin sounds like a great trial to be a part of.

    Allison, I hope your skinheals quickly



  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    I need to schedule an ophthalmology appt. Prior to cancer I went for an optometry appt and they noticed something like a freckle around my optic nerve. They sent me to the ophthalmologist for eye scans & pics. I have to get it rescanned yearly to make sure it doesn't grow/turn into cancer.


  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    I just saw the ophthalmologist (I have diabetes, so an optometrist isn't sufficient). He recommended Systane Balance 4x a day for the ongoing chemo dryness, plus the nurse recommended warm compresses (i.e., buckwheat pillows warmed in the microwave) on the eyes several times a day to melt out/clear the ducts.

  • avmom
    avmom Member Posts: 324
    edited December 2015

    Hey, lots of good news!


    KBeee, I'm not actually enrolled in the clinical trial, but I took the information about the trial to my MO and he (at the time - he has moved away and my new MO is a woman) was fine with me taking the clinical,trial dose. Since it's an ongoing prescription, I also went to my PCP, and she is the one who prescribes it. Since Metformin is an old drug, with few side effects, both docs are of the view that it is unlikely to do any harm, and just might do some good. My only sides effect is an tendency to diarrhea, and given that I usually tend the other way, it has been no problem at all. One benefit of not being in the study, I suppose, is that I don't have to wonder if I'm in the placebo arm.

    I don't think the study is still recruiting, but it's a ten year study, I think, and won't report out until after 2020. Fingers crossed!
  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    E- so glad about this news! Fingers crossed.

    Bekah- glad you got an all clear.

    PB- I think the more likely prospect wrt eyes after chemo are cataracts. I got them in both eyes, possibly started before dx but greatly advanced in six months. I have the two surgeries scheduled. My vision is so bad right now I can't see the floor. I slipped the other day. Fell hard straight down. Something was on the floor that I slipped on but I didn't see it. Even with the new lenses I can't see a 42" tv clearly from 5' away.

    It is really affecting me. I drive as little as possible, never at night anymore. I think I'm going to pass on getting a tree because I don't think I'll be able to see to enjoy it.

    There was a mix up on my appt time so I only did blood work. Going back Thursday. While I was waiting I saw my 3 post chemo lab draws. Liver enzymes doubled since I started Tamox. Is that a thing? Rbc, wbc, platelets and lots of other stuff still low. I remember Specialk saying it sometimes takes a long time for the numbers to get regular again no wonder I feel like shit. Keeping my spot here on the ledge for now.

  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    What's the metformin dose?

    Katy, sorry for your woes.

  • IndyGal35
    IndyGal35 Member Posts: 340
    edited December 2015

    Allison, congratulations on your rads ring out! I'm on quarterly Lupron shots with Arimidex. It has its side effects, but they've been very manageable so far.

    Katy, my counts are all still low, and I'm still anemic too. I'm almost 6 months PFC, and the MO keeps telling me to hang in there. Those poisons blast our marrow so hard. He keeps reassuring me that the narrow will bounce back eventually.

    My xchange, deportation, and fat grafting are in 2 weeks. I read that the grafting sites actually take longer to heal than the recon foob area. Sheesh. I'm praying for a flatter belly and less of a love handle. I should get something positive out of this, right?

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited December 2015

    Alison, I'm so busy feeling sorry for myself I didn't realize you ARE FINISHED!!!!!

    🔔🔔🔔🔔🔔🔔🔔🎉🎉🎉🎉🎉💃💃💃💃💃🎉🎉🔔🔔🔔🔔🔔🔔

    Well done! You have handled all of this so well and I know you had more than yourself to take care of. I hope your skin held up really well and you are feeling stronger every day now. You have had as much shit thrown at you as anyone here. Surgeries, chemo, rads, kids, husband..... And now Tamoxifen. I am so glad you'll be able to look in the rear view mirror on New Year's Eve and kiss 2015 goodbye. And tell cancer it can fuck off as well!!!!


  • eheinrich
    eheinrich Member Posts: 792
    edited December 2015

    Lee, we did some fat grafting w/ my TE placement and yup it was quite uncomfortable. I did lose belly fat & we are aiming for the love handles this go 'round.


  • ksusan
    ksusan Member Posts: 4,505
    edited December 2015

    Allison, congrats!

  • avmom
    avmom Member Posts: 324
    edited December 2015

    Allison, woohoo! Katy, you can hang out on the ledge with me anytime. Ksusan, the Metformin dose is 850mg twice a day (once a day for the first four weeks). I have an asco doc in my email that describes the study. I will try to pm it to you.

  • rleepac
    rleepac Member Posts: 755
    edited December 2015

    I saw an optometrist because I didn't think about it really. If I were having problems with vision (other than my normal astigmatism) I would probably gone to an ophthalmologist given the history of cancer and I have hypertension too. But since my eye exam was just a routine thing I didn't give it a second thought.

    I had fat grafting from my belly and it was definitely more sore than my breasts! Plus I'm only 2 1/2 weeks post op and I still get swelling in my belly late in the day. I had a pretty flat tummy before - just a little bit of fat there but it does seem flatter (in the morning) now. Will probably need more fat grafting though because my breast skin is so thin and you can see rippling in several areas

  • shaz101
    shaz101 Member Posts: 718
    edited December 2015

    the things you learn.... I've never heard of an ophthalmologist before.

    I had a lovely chat with katy today.

    Work was shit!!!!!

    😊

  • Trvler
    Trvler Member Posts: 3,159
    edited December 2015

    I was going to try to get into an ophthalmologist by year end (deductible met) but I know doctors are booked up this time of year because of everyone trying to do that. I just have these ugly blood vessels in my eyes which I never really noticed until I had the magnifying mirror looking at brows and looking for hair. lol. I doubt there is anything she can do about them but I need to go anyway for a checkup. All the routine maintenance got put on hold for obvious reasons.

    Seeing my MO today to get my Tamoxifen. I am on the fence. I am going to try it but if I am miserable, I don't know. We'll see.

    Katy: You need to get those cataracts taken care of. It's an easy surgery. Just make sure you find a really good doctor.

    So much of how we are after any surgery is related to the doctor we choose. My hair colorist said she had breast implants and was telling me all about her problems. But the PS she chose doesn't specialize in implants. He's a face guy. In fact, my husband is having some minor cosmetic stuff done by him next week. He has those big Italian people bags under his eyes and he is getting them fixed. But she could have avoided problems by finding a guy that specializes in breasts. Now she has 3 kids and can't afford to go anywhere to fix it.

    I got my hair colored yesterday. It felt so good to go to a hair salon. I had a stylist dry it because I hate going out with wet hair and she goes 'Gee, your hair is really short'. I felt like saying "Wow, ya think'? Just told her it was chemo. I was waiting on the inevitable 'My mom died of BC' but she just tried to sell me some expensive hair product.

    Thanks for all the congrats. Skin is still itching but improving every day. I know it wasn't anything like what Karen went through.

    We went to pack boxes last night for hungry kids around the world with our GS troop. It was so wonderful. THAT'S the kind of stuff I want to be doing with my kids.

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