INSOMNIACS place to talk in the wee hours

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  • JWoo
    JWoo Member Posts: 1,171
    edited November 2015

    it is very, very, very humid. It sprinkled earlier. now- just steamy.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited November 2015

    Talk about weather....at breakfast this morning, I made a comment about how the rain must be on its way because my hip was (still is) sore. DD2 said we don't need technology to inform us about the weather because we have mom's hip to predict the weather.....smart Alex!!

    Ms. CHEVY, did you tease Ms. Theresa about her running down the hall way naked? Happy for you that you have your beloved friend back.

    How is the headache, Ms. Sas? Just curious what does craniotomy pain feels like

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2015

    not typical for Nov. usually around 80, less humid.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited November 2015

    image

    This is for Chevy. And everyone else who has a guy in their life.

  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited November 2015

    Just saw your question from last night, Loverly. I've been having trouble sleeping comfortably. As my incisions heal, I seem to be moving around more in my sleep, and sometimes when I wake up I've been in a position that makes the SNB incision under my arm pull and hurt. I had to get up in the middle of the night and get some extra pillows and rearrange myself so that I could prop my arm on the pillows so I couldn't put my arm in a position that would end up hurting.

    Does anybody else have cancer dreams? Honestly, this should be the one escape from thinking about it, but it's all I dream about anymore.

    Chevy, I'm so glad to hear about your visit with Theresa.

    Sas, hope you are feeling better.

    Mags, that photo made me laugh. So true!

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited November 2015

    Aw, sorry Cubbie. It's hard when we are so used to sleeping in a certain position. I sleep on my left side in a fetal position and wake up with pain/spasm in my left arm most nights (had MX and delayed reconstruction on left). I started out sleeping on my right side and always end up on the left in the middle of the night. No fun! You had surgery not too long ago so hopefully the pain is short lived. Healing for MX is quicker than recon for me. Sorry you have to return back to work so soon...tough when you don't get enough rest at night.

    Good one Mag. Mine is stubborn too, Ms. CHEVY.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited November 2015

    Cubie- the snb incisions bothered me for a long time. Sorry they are causing you sleeping problems. I spent many months sleeping on my back with pillows on each side for a long time.

    I don't have cancer dreams. During my whole treatment process, I stopped dreaming at all. I am vivid dreamer and it was like my subconscious went blank. My guess is you are processing a lot of what you have been through via your dreams.

    I hope you can sleep better soon. It is why we all call ourselves the Insomniacs.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited November 2015

    Mags loved the sign.

    My David really liked his fajitas

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    JWOOOOOOOOOOOO we wouoda come.............................

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    J woooooooooooowestill could come You are dead center to the two of us. One hour from each of us. (maybe a tad more)

  • Beatmon
    Beatmon Member Posts: 1,562
    edited November 2015

    Sas...we are in Oklahoma. Dead center of the US. But you are always invited. Grab Phyllodough on your way. I have 2 spare bedrooms

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    Thanks everyone about the head. PCP thinks it's my neck. The hyperextension for too long. Definitely TMJ explanation and facial numbness, maybe forehead. Feels like a very tight bathing cap. Migratory. Pain where it's been numb since crani. Headache. migratory. Frequent optic migraines. Nasty golf ball in center of head twisting in. Someone slicing down the center of my brain. Two fists at temple twisting and boring in. Back of head pressure like two hands squezzing . Word finding. Trouble completing sentences. Not thinking right. Eyes not tearing right. Periodic stabbing squessing migratory pain. But improving this morning. :)

    Cubbie, I agree with Jazzy that you are working it through. I don't like bad dreams. I have worked out over time to make myself wake up. Think " I'm outta here". Then don't think about the dream. Unless of course you want to figure out what you are trying to work out. Then sit quietly at the side of bed and think. Besides an army of pillows, change sides of the bed. For an unknown reason people turn to the outside of the bed. For regular folks this recommended to be done on a standard basis any way every 3 months. Helps if you have a spine problem

    Spookie weather still bad?

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2015

    Sassy! Oh EEeeeeeeeks! What you said, made MY head hurt! And I don't have a clue about anything you said... Just hope you are better... Your BRAIN is top-notch I might add!

    Only 27 degrees here.... just plain cold.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    HI Beatmom, Love when you pop in :) THanks for the invite. We would laugh so much. I owe Philly a call from last night. Sandy just went back to Houston. I'm sure they had a great time. They have been friends since high school. Neat. You know the invitations there in return. I have solar heat for the pool now.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2015

    Did any of you watch that special on CNN about Glenn Campbell? I've known about his Dementia, or some call it Alzheimer's... But looking up more, I find it could also be mis-diagnosed as Alcohol Dementia... Didn't even know about that one... I KNEW there are many types of Dementia, but at least they are bringing more awareness to Alzheimer's.....

    But changes my perspective on the whole thing... I felt so bad that they were broadcasting his decline! And most of us have been around our loved ones who have suffered from this... but thinking that this could have been prevented, puts a different spin on it.

    I remember reading about him and Tanya Tucker years ago, and how he used to beat her silly after drinking.... so things aren't always what they seem.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    OH Chevy what an uplifting this too say. HUGS. Glad it went well with Theresa. Would it be to much to ask for you to tell the full story about Theresa and you all the way back from the beginning in the 1940's. I loved the story when you told me. Please, please. All the details. It's such a good story. Good stories need tellin :) they do our hearts good :)

    Mema the eyes doing good? How many weeks post op?

    LOverly, you are going to laugh at me. All my sources on Baclofen said different initial does than my PCP's drug source. According to her palm pilot drug source, I should have started at 5 mg. and work up.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited November 2015

    Chevy- I did not see the special, but knew he had Alsheimers. Wow, who knew that there was an alcohol related dementia? We have tons of dementia in the family, including early onset (father) so I follow everything on this disease closely. After reading up on it this morning, it makes complete sense that alchohol would damage the neurons. Glad I don't drink much anymore, I already have some genetics working against me on this one.

  • Enerva
    Enerva Member Posts: 3,162
    edited November 2015

    wow this is interesting. My relative in france has alz and he drinks red wine with every meal 2 bottles a week hummmm

    Jazz funny you mentioned but I stopped dreaming during treatment it was so wierd completely blanc brain. And now after 2 1/2 years out of chemo it's all coming back I started to dream again .

  • Wren44
    Wren44 Member Posts: 8,585
    edited November 2015

    There are lots of forms of dementia. I had clients with alcoholic dementia and my brother in law had hepatic dementia as he became more and more ill with Hepatitis C. I think they're finding dementia in football players and boxers who had a lot of hits to the head.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited November 2015

    I went to a poetry reading the museum today with a friend and heard the ABQ Poet Laureate Jessica Helen Lopez recite some amazing poems. I first of all a) did not reallize my city had a poet laureate in residence and b) her readings were JUST amazing. I have not been to a poetry reading in a long time, and this one was so worth it.

    Here is something from that I can share with you from a TedEX talk she did here called Love Letter to ABQ. Enjoy.

    Love Letter to ABQ by Jessica Helen Lopez

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited November 2015

    Oh my Dear Ms. Sas!!! How do you function with that kind of head pain? Yikes! My head hurts too reading your description. So sorry.

    You did't go straight to 20 mg, did you?? Ay ya. Ok, there is still hope that the med will do what it's supposed to do in the general population. I think healthcare workers are the worst patients. Hahahahaha

    We have rain again,Ms. Smaarty!! Are you back in town?

    image


  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited November 2015

    Feel lazy with this weather...and so is Mitzy.

    image

    image

    Thanks, Jazzy for sharing the poem

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited November 2015

    Yes.... I also heard that the only way to tell if it is Alzheimer's, is AFTER they pass away.... I was told that by my Grandma's Doctors.

    I was also told there are about 5 different types of "Dementia".... When Grandma started getting so forgetful, I didn't know what to do! I called a Senior resource center to talk to someone, because I was really afraid.... Sometimes Dementia starts from a "life change".... Like a "Fall, or a heart attack"...... which was what Grandma had..... But it hit her really fast!

    Alcohol related Dementia makes so much sense.... Guess Glenn Campbell was also into Coke.... not only an Alcoholic... at least that's what I read. Heavy drinkers just don't make any sense anyway.... And it figures that it pickles your brain, just like it does when they get drunk.

    But if it helps bring awareness to the Alzheimer's Foundation, then that is good.....

    And Theresa....! Theresa would remind you of the Golden Girls.... "Ma'! That feisty little Italian Mother of Dorothy! She is soooooo sharp, and just cracks me up.... I've known her since I was 10... We moved in a block away from where we are now, and I used to play with their next-door neighbors! Theresa & Eddie then had 2 little boys... Danny & Steve....

    I used to do her hair in the 70's! I charged my cousins and neighbors a dollar! And everybody got the same hair style! Like mine! We moved here in 1964....DH used to go fishing with Eddie, and the 2 boys!

    But we really got close... Danny had a hear-attack when he was 50! Had to have a heart transplant... Finally a few years later, he got Lymphoma, and the chemo from that was just too much for his heart.... He passed away .... It was so hard on his folks....

    Then we were going up every morning, when we would walk Lacee... She LOVED our dog.... And Lacee would go sit on her feet.... But Eddie who was a couple years older just became too much to take care of.... Steve and Judy finally moved him into Assisted Living.... And Theresa's nerves and stress caused her so many problems... High blood pressure.... passing out spells...

    So then they moved her over to Assisted Living, in a different room from Eddie... which was GREAT for both of them.... SHE got better! Could see Eddie whenever, but didn't have to take care of him! But he got worse.... passed away....

    But we always cared for Theresa... Then SHE got problems... a little at a time.... Just too old to get over anything! Now she is in this dinky little rehab place. But she seems to "like it!" And that's all that matters.... I honestly don't think she will ever be able to go back to Assisted Living.... Her "mind" is getting better, but not her body... very weak... but they are working with her....

    So I love her... she is like my Mom.... closer to me than my Mother was... or like my Sister that I never had... We just enjoy being around each other, and making each other laugh... I know someday this will all change, but right now, things are good.... That's all I want.....

  • Smaarty
    Smaarty Member Posts: 2,951
    edited November 2015

    lover, not home yet, still in Fresno. Didn't know it rained at home. We might catch some of it in Fresno and on the way to walnut creek tomorrow. Don't know which day I'm going home yet. Need to see DS before he's off to Oz again.

    Cubbie, I still sleep with a pillow held to my chest. Not big, about 10 x 16 or so. For whatever reason, it hurts if I don't cuddle and its almost been a year since the last sx.

    Sassy, sorry about your head, ouch. Hope it still keeps getting better.

    Patty, where are youuuuuuu.??

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited November 2015

    Beatmon, so glad your David liked his fajitas! We should all meet there sometime, hubbies, cousin, and us. Maria would be in her element.

    I finally got my other digital painting posted in Artists thread if anyone is interested. A little fuzzy. I've looked everywhere for that doggone file, can't find it, so I had to take a picture of the framed piece.

    Sassy, what do you know about Post Exertion Malaise? I've been researching but my brain is so fried I have no idea what to look for.

    Rose wants out, later Owlettes.

  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited November 2015

    Thanks for all the sleep position tips everybody. I'm normally I side sleeper, and I'm just getting to the point where I can lay comfortably on my right side for short periods of time.

    Chevy, I'm glad that Theresa is back to being "Ma" of the Golden Girls (can totally picture that). Glad she likes her rehab place, it's amazing what rehab can do sometimes. I've seen people come back from being very weak physically. Even if she can't go back to Assisted Living, they should be able to do a lot for her.

    Sas, I hope your head feels better.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited November 2015

    Chevy- both my parents had dementia at the end of their lives. My father had early onset dementia and went down the path that many people are familiar with around the disease from repeating himself to the point where he could not talk or even focus his eyes to look at us. He was very much in there though, and every once and awhile would say something as clear as a bell.

    My fathers sister got it later in life too, although I never saw her during the worst of it. Their mother had it too, but it was thought to be related to small strokes. I saw her towards the end and she was pretty high functioning but did not know who I was. The last time I saw her we had the most wonderful lunch together at a Perkins Pancake House in PA and when I asked her if she she knew who I was, she said "no, but I know you are important to me." Good enough for me. Needless to say, the family history on that side is not encouraging.

    My mother had a stroke in the front of her brain so she lost her short term memory/executive functions but always knew who we were and was pretty high functioning until later on. Then she started really living in the past. But she always knew her children. Her dementia was much less cruel than what my father went through, and for not as long either.

    So unfortunately, I know a lot about it, but clearly they are finding out more all the time about what contributes to it.

  • mema4
    mema4 Member Posts: 574
    edited November 2015

    Champagne: Study Finds Drinking Alcoholic Beverage Could Prevent Dementia and Alzheimer's Disease

    A study published by University of Reading found that drinking three glasses of champagne per day could help prevent dementia and Alzheimer's disease and can improve spatial memory. My mom died with dementia at 87. She loved to drink!

    Champagne: Study Finds Drinking Alcoholic Beverage Could Prevent Dementia and Alzheimer's Disease

  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited November 2015

    Jazzy, that's sad your parents both developed dementia. One of my aunts had it, although she seemed to enjoy telling us about the stuff she could remember. I learned stuff about her childhood and growing up before electricity that I never knew before, and I doubt we would have talked about otherwise. I hope they come up with better treatments soon.

    Mema, you ever notice that all the alcoholic beverages that have health benefits are wine-based? Has anyone ever said that beer has health benefits? Not that I drink either one, I just find it interesting that grapes seem to be the key. Wonder if grape juice has any benefits!

    Think I'm going to be up a while tonight. I've been having a really rough weekend. Lots of tears and worrying. I'm not sure why its worse now, of all times.

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited November 2015

    Cubbie- ((((Hugs)))) You just had your surgery pretty recently and all surgeries take a while to recover from. It took a long time to sleep well after my mastectomy. Are you taking chemo or any estrogen blockers? That might affect your sleep. Ask your doctor to give you something for sleep. Lots of the pillow sugestions above sounded like good advice. Be gentle on yourself, allow your body to heal and don't expect an instant return to normal.

    Jazzy the poem and visual tribute was gorgeous! What lovely skies you have. Thanks for sharing that. I enjoy all the posts. Mags- I love the stubborn sign.. pretty funny! I will never ask for directions - not ever!

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