Has anyone started a forum for Chemo in Dec 2008?

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited October 2015

    Hi havehope!

    I am so glad to hear your good news about being in remission! Sending you love and prayers.

    Hugs, Mandy

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited December 2015

    Hi Divas! It's our seven year anniversary and I wish you all well. Have a wonderful holiday season!!!

    Hugs, Mandy1313

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  • havehope
    havehope Member Posts: 503
    edited December 2015

    Wishing you Happy Holidays and a great, healthy new year!

    Hugs and love!

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited February 2016

    Don't know who is reading this besides havehope and myself. Anyway, it is 7 years and I wish you all a new year of health, happiness, and peace.

    Hugs

    Mandy1313

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  • Texas357
    Texas357 Member Posts: 1,552
    edited February 2016

    Seven years are such a blessing! I don't check back often enough but I do care how all of you are doing. I'm still dealing with chemo brain. Not sure if it's from the chemo at this point or the Femara. Seven years of no estrogen is no doubt taking its toll. I'm still determined to live a healthy lifestyle and it seems to be working. I feel better than ever.

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited November 2016

    HI All! I don't know if any of you are still reading this, but i did want to check in and wish you a Happy Thanksgiving. I am doing fine some 8 years out==wow, 8 years! My older daughter is a journalist and my younger daughter is a second year medical student---time does fly. Take care and I'll check back in for Christmas. hugs! Mandy1313

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  • havehope
    havehope Member Posts: 503
    edited December 2016

    Hello ladies,

    I am still here. Going thru chemo for the 3rd recurrence on ovarian cancer. I am having horrible skin rashes due to Doxil, but I am staying strong hoping for another remission.

    Wishing you all a Happy Holiday Season and I hope you are all well and healthy!

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  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited December 2016

    Hi sweet sisters! Long time indeed! Have hope, I am so sorry that you are going through a recurrence. I will say a prayer for you! I just had double mastectomy with immediate DIEP reconstruction and am very happy with the results. Blessings to all my sisters!

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited December 2016

    Wishing everyone a happy holiday seasn and a new year of health, happiness, and peace. havehope, i am sorry you are going through this again, I am praying for your health. Hugs to all of the 2008 Divas!

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  • Texas357
    Texas357 Member Posts: 1,552
    edited July 2017

    HaveHope, how are you doing?

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  • havehope
    havehope Member Posts: 503
    edited October 2017

    Hello everybody,

    I hope all of you are healthy and having a great time. It's been 9 years since we got together, here on this board.

    I am still here, enjoying another time of remission from ovca. Feeling great and looking forward to celebrating a Holiday Season without chemo.

    Sending hugs and good wishes!


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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited February 2018

    Hi all. I don't know how I missed the fall posts from havehope and texas. I hope you had wonderful holidays and the winter is treating you well. I am doing fine--my older daughter was married during the summer so we had a big celebration for that younger one is in med school which is worthy of a celebration too. Sending you all hugs and warmest wishes. Mandy

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  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2018

    Good to see you checking in, Mandy1313!

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  • horsercn
    horsercn Member Posts: 32
    edited May 2018

    Hey everyone it's horsercn....I started this forum back in 2008. Happy to say I have been CANCER free since chemo and radiation. Always keep a positive attitude and ask for help when you need it. I think asking for help was hard for me. I was so used to doing it on my own. To beat this you need all the help and prayers that come your way. If you ever want to talk or have any questions I'm always here.

    Tricia


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  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2018

    Good to hear from you, Horsercn!

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  • havehope
    havehope Member Posts: 503
    edited October 2018

    Hello everybody!

    This month I celebrate 10 years since Dx. I hope all of you are well and healthy.

    Happy to report that I am in remission from ovca, since March 2017 and feeling great. Life is good!

    Send you lots of love, hugs and kisses!

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited October 2018

    Hi Havehope!!! Congrats on the remission--may you stay that way for a long long time! :-) It is hard to believe that we are ten years from our chemo treatment together--so far so good for me. Take care and keep in touch!

    Hugs

    Mandy

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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited December 2018

    Hi all my divas!


    It is ten years since we showed up on this forum to support eachother. We have lost some divas but others of us are doing well--so I want to take a minute to remember busqueen and some of the others who are no longer with us. But I also want to send my hugs and good wishes for a new year of health, happiness and serenity to those of us who are lucky enough to be celebrating.


    Hugs

    Mandy1313

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  • Texas357
    Texas357 Member Posts: 1,552
    edited January 2019

    Through this experience, I learned how to live one day at a time and in the moment. Feeling good! But I just realized that 10 years ... and I have bilateral silicone implants ... wondering if I need to have them checked for leakage. I'm going to contact my plastic surgeon's office today.

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  • Texas357
    Texas357 Member Posts: 1,552
    edited April 2019

    Well, here's something interesting ... I just learned yesterday that for my form of BC (ILC), they no longer recommend chemo because they say it does no good. At the time, it was the standard treatment. But the news is unsettling because I have a list of permanent side effects, including tear ducts permanently scarred shut from taxotere. For 10 years, I've told myself that the side effects were worth the benefits.

    On top of all that ... the doctor said unlike IDC, ILC is more likely to recur years later. I'm not as protected as I thought I was, especially since the current thought is that Femara is the best treatment and I had to stop that 3 years earlier than recommended because of side effects.

    Oh boy!


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  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited April 2019

    Texas,

    I saw your post and want to answer but I am on my way to New Zealand--a long long trip--believe it or not, I am meeting up with two bc.org friends who live there. I will write more when I have more time but I want to say that not every study applies to each one of us---so do not fret and they a re always changing what they think is the perfect treatment. You and i have made it for over 10 years---at the time of diagnosis, I would have thought that to be a miracle. I count each day as a gift and try not to worry about the what ifs---yes we both probably had more chemo than we should ahve--but we will never know and we also will never know if we are those people for whom the chemo was a gift and saved us.


    Take care and try not to worry.

    Sending many hugs your way.

    Mandy


    PS I am sending you a private message

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  • havehope
    havehope Member Posts: 503
    edited April 2019

    Texas,

    Hi! It's me, havehope. Still here and doing great. According with the studies I was supposed to be dead long time ago from ovarian cancer. Here are I am, 7 years later, 3 surgeries, 4 sets of chemo, and in remission for the last 25 months with a high chance of still being in remission for the next 6 months.

    Sorry for the side effects you have to deal with, but you can't change what it is done. If you are scared of recurrence to the point that you need piece of mind, do a double mastectomy. That's what I did 10 years ago, one prophylactic, and I don't regret it one bit.

    Don't think too much of "what if". You'll deal with it if it will be necessary. Until then, take care and enjoy life.

    Sending hugs and kisses.


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  • Texas357
    Texas357 Member Posts: 1,552
    edited April 2019

    Thank you both for your replies. Mandy, of course you're right that we'll never know if the chemo helped. Plus, it's in the past. Havehope: I did the prophylactic immediately after finishing chemo and radiation. Most days, I don't think of it but it always takes me a bit to absorb new information.

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