INSOMNIACS place to talk in the wee hours

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015

     


    Image result for free image group hug

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015


    Image result for free image group hug

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    For Rose, and you too Marlana, and Mamma Ray ( like your new avatar), and Ms. BLONDIE, and where is Patty?

    image

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    I am in on the group hug! Count me in.

    Rose- I am sorry that you were not able to go. So frustrating. Whenever I have GI issues, I always feel like I crap out about 20 pound and never see the scales move much. WTH is right. Hugs sister.

    Loveroflife- I love that pic. I just saw a cool clip on the local tv about a lamb who became BBF's with a golden. I found it on YouTube. So cute....

    Stormy and Tammy

    I have been lazy today, but getting my act together to go listen to outdoor jazz tonight! Rose, I hope you can enjoy an evening outside at least.

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  • MarlanaB
    MarlanaB Member Posts: 292
    edited May 2015

    imagethanks loveroflife and jazzygirl!

    I'm in but I went for a rugby scrum since I'm trapped on the sofa flipping through every channel on my dad's direct TV sports package.

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  • MarlanaB
    MarlanaB Member Posts: 292
    edited May 2015

    cousins are coming in from out of town so I'm trying to at least get myself into the shower. I probably should have passed on the visit but his mother was my aunt that had BC at the same age I am and I want to ask questions to which my mom doesn't remember the answers. My aunt was a 10 year survivor before being diagnosed with stage iv pancreatic cancer in 1993.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    Ms. Sass, even Claritin, which is like a sugar pill for me and my kids, makes both my friend and her son very irritable. She notices that her son has a hard time controlling his temper whenever he is on it. Certain antihistamines at high doses can cause psychosis. I understand that all drugs have side effects because they are foreign to our bodies. Different people react differently to drugs and if you take multiple drugs, you have drug-drug interactions to consider.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015


    Loverly, That's why I said what I said. A phrase I embraced  now 15 years ago was " all drugs have consequences". I lost part of my colon to Celebrex. Doctor approved by a rheumatologist, neurologist, PCP, gastroentrologist. I don't count the orthopedist b/c their cutters---no clue about drugs. Rare a surgeon is truly well versed in drugs. They work on automatic. All that approval it would seem someone of them should have known that I should have never been prescribed the drug. Especially the GI doc. History of diverticulosis and one bout of diverticulitis on all their charts.  At the time my chiropractor left town on a Harley to see the world. I figured --do the right thing. Make sure my life long Post Polio pain was just post polio pain. Reasonable. The Chiro seriously took care of the spine pain. How does that figure into Post polio. Not all the muscle groups are working right, puts extra work on the spine. After all that doctoring and my own research. I took Celebrex.

    What never popped in my google search was the Black Box Warning(BBW). The Cox 2 inhibitors were new at the time. Not exactly sure it was there when I started Celebrex. Anyhoos at a point I went to the old trusty Physicians Desk Reference(PDR). BBW: Not to be used with anyone with a history of ulcers, nasal polyps, diverticulosis, diverticulitis, has been known to cause spontaneous gastrointestinal rupture. I just stared at it. Yes, I was a nurse. Until the internet the PDR was our drug resource. I skipped it. Besides I had all these ologists telling me it was okay.Collectively, they're was maybe better than a 100 years of education and practice. I trusted.

    Lesson learned: Just when you think you know something look again. It was an old mantra.  Gained a new perspective when I had to apply it to myself.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    hi ladies! Just stopping by BCO to read PM's, let you know I'm still alive and kicking. Thank you to those of you thinking of me, especially those who have kind words. I love reading the posts on my (cheap) phone, doesn't show images, so I'm missing out. Officially 25 pages behind, will never catch up.

    Ipad is operating in slow motion mode, taking forever to type this out. Probably would be easier to write up as a word document, then C&P here.

    Anyway, life is finally, slowly starting to look a bit better. More details when I have more patience with this iPad..

    Hugs and love to all!


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015

    OHHHHH 2nd glad you came................

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2015

    Howdy! 2nd time around! Glad to hear you are doing better! Come back in more often and tell us how you be! Take care of yourself Marlana because the fatigue after CT is wicked and creeps up.

    I had a persistent nasty case of plantar facitis years ago that the doctor wanted me to take Viox and I flat refused. My Uncle took Viox for his shoulder and later had an unexpected fatal heart attack. It made me wonder if they were at all connected since his cholecterol was great, he was thin, fit, active, low BP and here he just dies suddenly at 65. what role might that drug have played? Terrible what happened to you with celebrex, Sassy. We self medicate with so many things and think they are harmless.. not really. OTC meds can be very dangerous. As Sassy pointed out you can kill yourself over drinking water! Most doctors don't know enough about the drugs, just read off the screen and go.. hmm. No wonder either look at the sheer volume of drugs... insane amount of information.

    Thanks for the groop hug.. my gut is not happy these days. I wonder if just not eating for a while would calm the intestinal tissue down. Just do juice and water and nothing else. (((Hugs)))) back at the tribe!

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2015

    I wanted to take Vioxx, but wasn't allowed because I was "too young". So then it was determined my age and problems were no longer an issue, I got the rx. Stuff worked great!!!! Then they pulled it off market. Back to pain. I tried ALL the rest. Each one made me feel like an elephant was sitting on my chest and I couldn't breathe.

    What actually helped the most with that pain? Retirement.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    Oh crap! So sorry about your colon Ms. Sass. Things do get overlooked by our doctors. We just have to be our own advocate. Yes, we have so much to learn. We do take a risk when we put any chemical in our system. I am still having tinnitus from the Keflex I took a few weeks ago. Never suspected it because it is not one of the commonly reported ototoxic drug

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    2nd, good to hear from you too. I have a hard time typing on my phone too. My daughter just told me it's so painful to watch me type. I miss you posing on warm and fuzzy.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015

    Loverly, I was in my mood when you first wrote about your tinnitus.Sorry, wasn't up to responding.  I've had it for a very long time. (Crips I have everything). The first year was a roar. It changes all the time now. 1-2 years ago during an irritating period of loudness, I googled it.  Found material on how to reset it. There's fancy stuff and expensive stuff out there, but the cheap way is I turn on my vibrating bed and rest the side of my head on the bed- no pillow. I sleep that way. Of course the bed goes off after I sleep. If I don't fall asleep, I turn the bed back on. In the morning there's a difference. I tried the back massager---different ways over mastoid, over ear, front of ear. it didn't work as well, but was better than nothing.  Google has lots of info. But since yours is new onset, that's an unknown. But, conversely, if you try to interfere with it early it may do better than letting a pattern develop. There has been recent news, very recent about new research re:tinnitus. It's changing accepted ideas...........I was in a mood......ignored it.........Google:new research on tinnitus 2015

    Good Lord, I hate to see what Chevy will make out of this>>>>>>>>>>>>>>>>>>>>>>>>>

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    Rose, try coconut juice(not milk) for electrolytes and fluid replacement and easily digest food like rice porridge cooked with chicken broth and fresh ginger

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015


    Vioxx was taken off the market b/c of it's stroke/ heart problem. I was surprised that the other Cox2 inhihibitors weren't taken off the market too because they're were complaints about them too. Not as badd as Vioxx though. Meloxicam and Celebrex are still on the market.

    http://www.npr.org/series/5033105/vioxx-the-downfall-of-a-drug

    Guess you call that a typing stutter.------inhihibitors

     

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited May 2015

    Sassie thinking of u

    2nd...thanks 4 checking in

    Mar, sorry...thinking of u also

    Welcome 4 the hug...

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  • mel147
    mel147 Member Posts: 479
    edited May 2015

    Hi, all! Jumping in here...Advil is one I can't take. Was taking it years ago for some foot trouble and next thing I know...big tummy troubles. I also feel like a cortisone shot messed me up around the same time. All sorts of problems started with those two things. I hate taking meds because I seem to react negatively to lots of them!

    Went to Relay for Life last night. The kids and I have gone to that many times over the years and always buy luminaries in Memory of or in Honor of some family members. A little strange this year to be on the other side of it doing the walk. Didn't actually stay for the lighting of the luminaries...we were getting tired, but the rest of the night was good. Did some cleaning today and listened to a Ted Talk by Brene Brown. Anyone heard of her? My cancer counselor suggested her talks. Have another one to listen to and will probably re-listen to the first one again. Counselor want me to make a wish list of what I want to do for ME...things that bring me joy...things I dream of doing. Is it odd that I'm happy just hanging out at home and doing stuff around the house? Seems kind of boring, but I don't know if I have a BIG thing I want to do. Will have to think about it more tomorrow. How about you ladies...what makes YOU happy???

    Have a good night and take care, everyone

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    No need to apologize. Haha can't wait either to see what our wise and clever Ms. Chevy makes of it. Thanks for the suggestion with the vibrator. Don't have one though

    FDA should keep an eye on Celebrex. The Cox2 inhibitors can throw the balance of throboxane and prostacyclin off which in turn can lead to MI or heart attack. Honestly, I lost my trust in the FDA. I believe they knew about Vioxx problem but slow to act. It is sad how it all comes down to money

    Hi Mel, I am boring like you. I'm Happy staying at home and doing things around the house. I also enjoy watching my girls playing chess right now and trying really hard to beat each other by making silly comments or laying silent fart to distract each other

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  • Wren44
    Wren44 Member Posts: 8,585
    edited May 2015

    All I can take is Tylenol. All the Nsaids give me stomach trouble. I am suspicious that Tylenol isn't safe despite my doctor's swearing it is. I figure that a drug that causes liver failure in large doses probably has some bad effect with frequent smaller doses. I saw one study that said people who took Tylenol twice a week were 50% more likely to die the people who didn't take it at all.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    2nd time- good to hear from you and think of you often. I hope things are better with your husband. I know you have elder care issues going on too. Nevermind your own health. Sending you a big hug too!

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2015

    I have persistent and loud tinnitus and have had it since 2003 when I got a dvt in my right leg. The doctor I had put me on a gram of aspirin because she was too cheap for the shots.. Kaiser managed care. They were also the swell folks who told me if "I wanted to see a vascular surgeon for this that I would NEVER get a referral from Kaiser." Just for the record I switched insurance and went to a vascular surgeon who did a stellar job thrombectomy and vein stripping and ligating some funky anatomy! Yeah no issues after he fixed it! Sometimes you have to just bail. ugh.. Anyway after being on the asprin it gave me tinnitus, then the chemo made it worse, then arimidex made it louder... anyway it roars all day everyday. NSAIDS just kill my gut too. I get stomach pain and feel like a drank 4 expresso shots on an empty stomach.. not pleasant. I took celebrex for back pain and it works but I can't take it for long. Motrin also breaks my mouth out in tiny ulcers.. always pleasant.

    Lovemy life- What did you used to do before you stayed home with your girls? I think the amount of pain my intestines are causing me means they need a break, sabbatical from digestion. My DH made me this huge salad, broccoli from the garden, spinach leaves snow peas... the works. I asked him if he wanted to kill me? I passed on the salad and salmon and potatoe salad.. looked good, smelled good. But it won't feel good. I ate yogurt. I miss coffee so much. Be well ya'll.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2015

    I guess I'm boring too. I hang around the house, and go to the dog park. Bucket list? No, not really. Eyeore won't fly, thinks cruises are for drunks. Wouldn't be fun to go anywhere with him. I have white sugar sand beaches 10 min from my house if I want that.

    Tinnitus, I have a fan by my bed, for hot flashes and white noise I focus on the fans hum, drowns out my static.

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  • myra104
    myra104 Member Posts: 102
    edited May 2015

    Hello! I suck! I am really pissed at my friends for not understanding what I go through on tamoxifen! I'm not yelling..... just yelling! Waaaah! Where's my blankey?!😳

    I know someone can relate in here.

    What did I miss?

    If you ever wonder, I'm on facebook, Stephanie Cortman.

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  • MarlanaB
    MarlanaB Member Posts: 292
    edited May 2015

    thanks, Blondie! I used to be blonde...started turning brown in my late 20's. Now I'm blonde again because it covers the grey. I'm in serious need of a touch up; my roots are almost 2 inches long so I probably should have gotten it done before my Lx. But no sense in getting it done when it's going to fall out in a few weeks. That's one upside of losing my hair. Think of all the $$ I'll save not spending $125 plus the tip every 8 weeks!?! And I'm hoping I won't have to pluck chin hair on a daily basis for at least a few months.

    Overdid it with the family--only up for about 5 hours and I feel like I've spent the whole day clipping bushes and mowing the yard

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  • MarlanaB
    MarlanaB Member Posts: 292
    edited May 2015

    hi, Stephanie! I'm not there yet but I will be in a few months. Sounds like I'll be in for a treat when I finally start the hormones. Yay!

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2015

    So now wait!!!!!!!! I saw this scrum, and was just thinking, MAN I'de just like to be in the middle of that, and then I came to my senses, and kept on reading. I saw a practice game of Rugby once, at DU, and I didn't want to LEAVE! DAMN!

    And then further reading finds Sass in bed with her vibrator again on her ears! I've TOLD her "Hon, no! Why don't you just sleep on your phone, and have it set to vibrate!?".... We had a percussion vibrator once.... That think would shake your teeth loose... No matter where you PUT it, it was just not a pleasant feeling! And then DH got his pace-maker, and his Doc said "QUIT USING THAT ON YOUR BACK!" "Let your wife have it!" But no, I declined and gave that thing away.

    And I'm so sorry about all you gals taking all those things for what-ever it is you HAVE! Dang! I TRY and get you better with campo-phenique, turpentine, Aloe-Vera, Bag Balm, and Mustard Plastars, and you are still sick!

    A typing-stutter???? Like I know what that is.

    You guys I am so bummed..... I had sent a message to our other friends Daughter.... See, Carol, me and Anna used to all run around together... all through grade-school, junior high, and Anna & I went through highschool together... And we've stayed friends, through all these years...

    So we lost touch with Anna, because she had "issues" and after her Husband passed, moved in with one of her Daughter's... We always would call her before this, and meet for lunch.... for YEARS! But then she had her hips replaced... wouldn't try and walk.... then John passed, and she moved into her Daughter's so they could all take care of her... She wouldn't ever call back, so we gave up...

    Now Daughter must have told her I wrote about Carol having a stroke.... Anna writes back 2 dis-jointed messages... Now I feel so bad... She isn't thinking straight... doesn't remember us being at John's funeral... She says she enjoys her grand-kids, and G.grand-kids... and she seems to not remember anything... didn't mention Carol's stroke... Geez........... Known her since we were 12.

    I guess I'll just write back about what she wrote.... nothing else... I just can't believe this crap happens to us! Maybe too many "shocks" in our lives take away our memories and our brains....

    I must drink more coffee now.... and go walk outdoors and thank God for this day......


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  • MarlanaB
    MarlanaB Member Posts: 292
    edited May 2015

    chevy--so sorry about your friend. Not only do you have one gravely ill but the other is losing her faculties. That just plain sucks. My gran lived to be 102 but was sharp as a tack until she had a stroke days before her 100th birthday. Her memory went after that. She'd buried 6 of her 8 children but didn't remember the last 3 and kept asking when they were going to come visit her. Heartbreaking to watch.

    Haven't slept all night. Bones are on fire even with another Claritin and a Vicodin. I had 2nd burns to both breasts (I can't seem to leave those things in peace!) from a cooking accident 4 years ago and had to undergo skin debriding, including my nipples, and that was a pleasant walk in the park compared to this. I think I may have to call my MO to get something stronger for the pain. Makes me feel weak because I've always had a ridiculously high pain tolerance.


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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    Good morning friends- lots of news here to read. I am going to go pick up a friend this morning that just finished chemo a few weeks ago and is still having some problems coming through that. She is anemic, and just needs someone to help her with a trip to the grocery store. I offered yesterday and you would have thought I was giving her a check for a million bucks. She wants to go out to eat after, and said we can, but lets take care of the must do's first; the groceries, me taking the bags in to unpack them and put things away for her. We can always do take out too, right? She is so anxious, as everyone is, as she comes through treatment to feel better, but knows it is a "process" for sure. We have talked a lot about that.

    Stephanie- welcome to the thread. Living with SEs and also the longer term med protocols is no picnic. I am sorry you are having problems on Tamoxifen. I have been on anastrozole for 2 plus years and live with the SE's daily. I never told a lot of people about the 5 year protocol. But with stiff joints and sore feet, if they comment I don't move too fast anymore, I say it is because of some longer term medication I take to keep my reoccurrence risk down. I am done trying to make people understand who really don't care to anyways.

    Rose- oh that salad your DH made sounded yummy, and hard to think of you not being able to partake in it. It sounds like yogurt works. Wishing you a better day today.

    Chevy- I am truly sorry about Anna and Carol both being so ill. I am glad you are keeping in touch with everyone still.

    I hope everyone else here is doing okay on this Sunday and wishing everyone a peaceful and pain-free day.


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