INSOMNIACS place to talk in the wee hours

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2015

    Ah man.... these girls aren't having very good days lately........... Sorry gals.....

    About the BIG D Rosie... My SIL did have to have much of her intestines removed... but her's was caused by always having to take laxatives.... And they just wouldn't work by themselves anymore... And Cammi has had an issue with that it seems like forever!

    But her surgery went fine, and she is up and running... no problems now... Had to change her diet... but hers was not caused by any meds or cancer... Just always using laxatives... She is now 65 I think.... doesn't have to wear a bag.

    And we don't want to hear about just reading and not posting! You HAVE to post...! Exclamation point there!!! If we can't "fix" you, we can drive you nuts trying....!

    My friend Carol is HOME! Mike posted she is driving her electric wheel-chair around like a pro! First day home, and they were all there eating dinner with her! So I'm happy for her! I'll have to ask him if he is going to trick it out... He loves to drive race cars.

    Sorry Sass.... Funerals just get to us.... makes us sad... I don't want our girls to have to go through that... When we are gone, just have everybody over, and throw a big party! Have a barbecue, and play lots of dancing music, and celebrate our lives... !

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    Loveroflife- my yellow prickly pear just started blooming, and my pink one is finishing. Here is a picture of the pink one. I love my cactus blooms!

    Those green sandals were $126 but on sale for $63. When I went into the store, I found them right away and the owner said she had just put them on sale that morning (last pair). How about that for timing. Those green sandals were meant for me! I have had a lot of problems with my feet the past few years and been getting rid of shoes (donating or taking to consignment) and replacing them with more comfortable shoes.

    image


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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    image

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  • U4iachic
    U4iachic Member Posts: 84
    edited May 2015

    I'm sleeping in 30 min increments I'm going bonkers!

    Panicking, yesterday I found a small knot beside my expanded near my arm pit. I called my surgeon, she said lots of lumps and bumps after a mastectomy are not uncommon. Also could be my expander. Radiation Onco felt it yesterday and he said he wasn't worried. Especially since that is the area getting radiation. I found it putting my lotion on for burns. I see surgeon on Tuesday to have her look at it. What do you all think would be the odds of me having a local recurrence after 1. After a masectomy, 2. just finishing chemo a month and a half ago and 3. currently in radiation? Any encouragement would be appreciated. Prayers anything please......

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited May 2015

    Claritin didn't do the trick for me. Dr. Changed me,to nuepogen and it was much less painful. My wbc stayed perfect the whole time on Taxotere

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    U4- I had a lot of scar tissue show up right after my lumpectomy, and more after radiation, and more with time. The first lump I felt was about a month or so after the surgery and before rads. It was a seroma (fluid) where the scar was. They can easily ultrasound it to see if it looks suspicious. I know there are other women on these threads I have seen have the same things happen during treatment with lumps and bumps showing up after LX or MX. I wish they prepared us better that these things can happen.

    I think bringing it to your doctors attention and having them tell you if anything more needs to be done is the right direction to go. I remember I had such anxiety when finding the first lumps and bumps and thought the same thing. Can this be back already? It may be causing your sleep problems.

    Let us know how the apt goes on Tuesday. Hugs sister, I know this is scary but you have many eyes on you right now ensuring you get the best care.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    Good morning beautiful ladies!

    image

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    U4, it could be the edge or the fold of the expander or it could be scar tissue. How much saline do have in your expander currently? I remember feeling a bump at the beginning when the expander was barely filled. It is good you are seeing your surgeon this coming Tuesday. For peace of mind, you can request an ultrasound as Jazzy suggested.


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  • U4iachic
    U4iachic Member Posts: 84
    edited May 2015

    I'm fully expanded. I'm almost done with rads. I'm just thinking surely if it was more, the radiation should be taking care of it

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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited May 2015
    U4, I did not have reconstruction, but I have lumps all along the mastectomy scar. First couple we found got ultrasound and biopsy, but they are simply fat necrosis. My scar area looks like a hilly landscape. Usually they can tell by the shape and outline. It also depends on how radical your mx was. My cancer side they took all breast tissue and part of the chest muscle to get clear margins. The other side had hyperplasia, and that's where they did the u/s and biopsy, because they didn't know whether there was any breast tissue left to develop a tumor in.
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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    Marlana, oops only 4 patients observed, but here is the article anyway. Hydroxyzine is sedating; however,it is better for allergies than Claritin as far as allergy relief. Hoping you get better result with it if you decide to try.

    http://www.medscape.com/viewarticle/566300


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  • U4iachic
    U4iachic Member Posts: 84
    edited May 2015

    mine isn't along my scar........I hate feeling so scared.....you all are so kind to respond to me. Thank you

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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited May 2015
    Fat necrosis can appear anywhere they have removed tissue, as I understand it, mine happen to be along the scar because there's so much extra skin.
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  • U4iachic
    U4iachic Member Posts: 84
    edited May 2015

    thank you so much for talking to me...it's nice to not feel so alone!

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2015

    U4....! I know nothing about nothing, but we are here just to help you get through this.... These gals have been through it all..... and I've been through what they haven't.... Ha! That's because I'm older... so chances are, if anything else happens to you, it's happened to one of us also....

    When I fell (off the pole) and broke my hip... (and had a rod & screws) I had lumps all over the place on my leg! But they gradually went down, and then away.... glad you are checking in with your team.... Tell them you want to know for SURE what is going on. Then write it down, and keep all your stuff in a notebook or somewhere....

    And don't take anything I say seriously.... except for a few things....

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015


    U4, stick with us for awhile or forever  chickie :) we've all been where you are. As you wander around the BCO treads you may find that you feel you want to be on another thread __normal. Many folks post on multiple threads. Generally, folks have what we call a home thread. This is my home thread. There are technical threads that talk one particular topic like the "cold cap" thread. Many when they start treatment will join a group that relates to their treatment. Like Chemo March 2015. The gals are all in "active" treatment. They are comparing their treatments and how they are doing--definite support to be able to comisserate. They have a common bond through treatment. You could post both places. They are no limits for the most part where you post. Avoid the stage 4 thread threads though they can get testy. They don't tend to get defensive on the technical threads.

    With your insomnia, there are lot's of suggestions in the topic box above. Insomnia is a direct effect of allot of the drugs you are being exposed to, plus you're worrying. Must admit most of our group here are sleeping better than they used too. But check in at night if you are up. You never know.

    Have you learned how to use the Favs button yet? Click on favs and that will save a topic to your "Favorite topic list". You can save as many as you want. I'll send you a few links by Pm that are good to have in your favs list for when you need them.

    You are overwhelmed now and scared. It will get easier. All here have given you suggestions---good stuff.

    We are pretty irreverent here. Be prepared to have variations on your name.......

    Hugs sassy.

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  • U4iachic
    U4iachic Member Posts: 84
    edited May 2015

    I've been wandering around and figures to stay off some threads, they just scare the hell out of me. I cold capped and did that one for a while. I saw your title and thought yup, maybe this is my spot! Thank you for all of the advice and encouragement. It means a lot. I'm a single mom and my family is 350 miles away. I'm trying to reach out anyway I can. :)

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2015

    You are a single MOM? Ah geez.....! How old are the little ones....? If that is you in your Avatar, you are mostly very young... So your avatar says your name is "U4iachick"...???" You must be related to R2D2! Or you like chickens? Or you ARE a chick? I'll never get this straight....

    So we can be your "new" family.... SOME of us are close to you.... but WE are here every day and some nights.... so don't ever be afraid, or worry.

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  • U4iachic
    U4iachic Member Posts: 84
    edited May 2015

    Thank you! I'm 41, my daughter is 15. she has been a rock watching me go through chemo and now rads. She's just amazing. You all have been great!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015

    To All:  Hydroxizine is a dangerous drug. Should have been taken off the market in the 90's. May be good for nausea, but can put you out in a space worm hole. I simply hate the drug. Had too many patients over the years with bad responses.

    Rosie, What not post---balderdash and fiddlesticks. BTW been meaning for weeks to tell you there is a Rosevalley street in Cocoa Beach or south of it. What's the origin of Rosevalley?

    Beatmom whoa Nellie..........We don't see you for months and you blow in without and update. Come on back girl and drop in for a visit :)

    U4, Yes , we are just peaches & cream. Don't let that list I sent you overwhelm you. Just put them in your favs and wander through them as time allows or when needed.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015

    imageimage

    latest find at SPCA, except mine has a scalloped beaded edge. Jeannette Glass Harp pattern. Picture doesn't do it justice. 2$image

     They're we go. Looks from the 1800's, but was produced from 1940's -1957image

    I wasn't happy with myself. I chipped it I think when I was cleaning it. But not noticeable. A thrif lady recently taught me how to file chips down. Use a paper emory board and just keep working it till the chip isn't sharp anymore.

     

    imageimageimage

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited May 2015

    Ms. Sass is home!!! Oh gosh! Did I just try to kill Marlana? Was not aware of problems with hydroxyzine?Was it the Atarax or Vistaril or both that your patients had problems with? What were the reactions? Btw, thank you for the links


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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2015

    U4- you have a lot going on. I don't live around family either (they are not that helpful anyways), but it is still very scary to be single and far away from folks. I hope you have good support around you with other resources like friends, church, maybe your job. I hope you have people to help you with care for your children too as you finish treatment.

    I am single too although no little ones. There is a singles thread I am part of and some ladies there who are also single moms. Place to talk about life in the single lane. Come check us out if it would help.

    https://community.breastcancer.org/forum/99/topic/...


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015
    Loverly no, no, no...........It messes with the brain too much. Out in the universe type thing. But I also, had many, many patients with no s.e.'s. It's just when they did, it could be from mild to severe. It only takes a few bad experiences and a nurse can get very wary of a drug.
    Your welcome on the links. I sent them to Marly too. Nice resources :)
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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited May 2015

    Welcome u4....glsd u found us...wonderful ladies here, lol

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited May 2015

    U4 welcome! It's tough being a parent and a single parent is even tougher. Reach out to help where ever you might find it! (((Hugs)))

    Well I almost got out of the house... made it to the driveway, we were going to go to the park basketball..creek walk gorgeous day... My intestines grumbled and cramped and I walked back to the house. DH, DD1 and DD3 left without me. I hope they have fun. My day is prison bound to the bathroom. No coffee, one piece of toast and 1/2 sandwich, diet pop. This so sucks. I should be thin WTH?

    So tell me what's going on in the world? Thank goodness for the internet.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited May 2015

    Hah! Loverly, what are you doing??? You just tried to knock off Marlana? We musn't DO that.... They really frown upon us when we get too frisky! Besides you would probably need a prescription for that.... but we all know that even the BEST of prescriptions sometimes have a tendency to throw us out of whack.....

    U4.... Your Daughter is just 15? She sounds so sweet to you.... You both need each other.... Now take good care.....

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited May 2015

    Rosie can we do anything...HOW ABOUT A GROUP HUG 4 ROSIE....IM IN..

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  • MarlanaB
    MarlanaB Member Posts: 292
    edited May 2015

    loverly--I'm alive. I've been surgically attached to the sofa (or that could be drool gluing me down!) so I couldn't have tried any meds, good or bad, if I'd wanted to.

    U4iachick--welcome. I joined about 10 days ago and all the ladies have been welcoming, encouraging and empathetic. I'm a few years older than you and no kids but we all have BC in common. I understand the paranoia. I've got benign fibroids so I'm always feeling myself up! Long before I was diagnosed, I was starting to irritate the fibroids so I have to limit myself to one check per week. I have a friend that's a BC survivor that still does not self-exam at all because she's afraid of what she'll find. Not for me but the point is we all have our ways of dealing with that fear.

    Really bad morning for chemo day +3 but I'm starting to feel somewhat human again in the afternoon. Thank God, no more neupogen for this round.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited May 2015


    Image result for free image group hug

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