INSOMNIACS place to talk in the wee hours

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    Alls I can say is you guys better beHAVE! Dang! Oh???? So NOW I have spell-check on here? I didn't before... I' amazed.

    Loverly! You TOO? WTH? I am too scared to post or say or talk or even whisper anything controversial...! I am just plain chicken! So I usually won't get myself into a pickle, even when I don't think something is quite appropro (that's really a word)... I won't get into it...

    UNLESS someone is fooling around with someone's feelings, and being down-right mean and snarky, then I WILL step up and say a word or two. So you can just find me on the side-lines.... on the edge..... when things get muddled.

    What if we woke up, and we weren't all able to post? I mean watching video's of .... well just ANYthing would not be much fun... Okay, here's on that I LOVE!

    http://www.godvine.com/mom-drummer-surprises-everyone-with-wipe-out-fb-gv--7121.html

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  • susan3
    susan3 Member Posts: 3,728
    edited April 2015

    really sas...almost a tie out again...lol. Well I am glad they changed their minds :)

    I get zometa with my chemo today...I to hate it. The flu feeling is only supposed to be for the first one. I feel bad every time. I get it every other chemo. I make sure my heating pad is in good working order and there are shows on on demand I haven't seen .

    Patty p, how are you doing?

    Mom 2, good luck. Didn't realize you were having surgery..what's up.....in your pocket

    Jazz, I will check it out...and yes..this is all therapy

    Mommaray.....how are you doing

    Congrats on all the good test results

    Question....my last chemo constricted my sinus canals, so your eyes and nose run all the time. It hasn't returned to normal on this chemo, so I am guessing permanent condition now. I can get stints put in so everything drains normally again. Has anyone had this done? Doesn't sound appealing to me. Thanks

    Have a good day all

    We woke up to a dusting of snow...go figure

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  • susan3
    susan3 Member Posts: 3,728
    edited April 2015

    sas..that was suppose to be time out.....where is the grammar check..lol

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Mommy- good luck with your recon surgery. We will be waiting to hear from you. Prayers for you today and in your pocket.

    Blondie- brownies and milk sound really good to me (especially since I gave up sugar two years ago.....)


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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Good morning everyone.

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    Mommy, thought about you last night. I am having mine in May. Can't wait to get this rock out...so wonkie looking and uncomfortable. Hoping for speedy recovery and no future revision needed. Hugs to you.

    Ms Chevy, yours has spelling checkWish mine has grammar check.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    So I was thinking...I know..... just hang in there with me for a minute..... See, Cams and I couldn't ever be banned, because no-one knows what we are talking about anyway.

    Phyllidink couldn't either, because she is still locked up in the big-house with Alice-whats-her-name, and her correspondence is limited..... Spookie is too busy taking photos's of her thermometer....

    Smarty is too busy quilting to get involved.... like Jazzy..... and Mom2 is going into surgery????? Yikes! And 2222222 ALMOST said something there, so no worries for her.... we should all post in "signs" and then we would be okay!

    Blondie is still looking for a ride.... she just wants to get somewhere.... ANYwhere other than where she is at....

    So that's how I see if girls.....

    Sass.... I think we should have ALL our info, right there under-neath us.... like how many kids we have, stage whatever, our likes and dislikes, so we don't have to go checking on these other gals! And like who likes chocolate cokes, and who likes Jack! See? That is important stuff.... and it should be posted.....

    Anything else? Bet you won't ask MY opinion again!

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  • Teka
    Teka Member Posts: 10,052
    edited June 2015

    Chevy still the wisest Owlette!

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    image

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited April 2015

    Love the dog stuck in the cat door! Hope he got back out! Susan- yikes I hope your sinuses get better. I am with you on that zometa punch. Although when I took it for a year 2013 it was just the first couple of doses that wholloped me, then it went in ok. I didn't feel perfect but no fever, no chills no aches like the first couple of doses. Weird these reactions. Cancer makes me feel odd anyway... or maybe I was odd to begin with.. hmmm maybe don't go there..

    On a happy note, I found this neglected rock maple night stand, tall, heavy & well made, one drawer, cubby for books solid maple for 15$ at a thrift store. The former owner smoked and there are 4 little burn marks on the top but other wise it's in perfect condition. So I will sand and see what can be done, if it's too deep, then the top will become painted and the rest maple. Wish me luck. This night stand is taller then the one between my daughters twin beds and the light will be higher for reading. Perfect!

    Happy day ya'll !! Be well!

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    Rosie! Hah! You almost said something there, so I have to answer it.... whatever it was! You said cancer makes you feel funny.... YES it does.... it makes you feel like chit.... and scares the beegeesus out of you, and takes your breath away.... and you don't feel "normal".... Your "normal" has been taken away, and you just have to fight it.....

    But then things start to get better, and we become more like ourselves.... so no you aren't odd.... we are just all progressing....

    I should write a book.

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited April 2015

    Chevy bless your heart.. cancer does make you feel odd, robs us of our innocence and takes away so many relationships and changes them into something else, which is the most hurtful thing of all. Cancer also physically hurts when it's stage 4.. and may you never ever experience that. I hope some day my 3 kids think of cancer the way we think of polio... oh ya I heard about that in the history books, but no one gets it anymore!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    I am still finding my new normal with my body, mind and spirit.

    Smarty- I am glad your scans were clear but the pain is worrisome. I hope you won't have to live with chronic pain that cannot be figured out. See what else your doc says.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    Those of you who are still fighting this.... and ones who are stage 4.... THANKS for being a part of this thread.... I was told one time I could not post on a stage 4 thread.... because I was commenting on SOMEthing.... trying to offer some support.... but I felt sooooooo left out.... I hope we never make anyone feel left out on here.....

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited April 2015

    thanks jazzy. I left her a message, she's off today. I'm going out of town to have some GF time. To hell with the body. It's bad enough that the new girls hurt off and on, I'll have to live with that. I just don't need anything else to hurt. I want this year to be "normal"!!! Last year was all the weight loss and restricted diets, the year before that was the boob saga. I know ive had it easy but I just want to be a better me and get on with it.Ok, rant over.

    Mommy, good luck and welcome to the squishy side. Just remember, just because you can, doesn't mean you should. Take it easy for the first couple months.

    Sassy, glad they didn't ban you and I think it's really mean that the mods would not tell us. Some of us would think someone has dropped dead if they stop posting!!

    I have to get busy, stuff to do before I can leave town.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015


    OOps can I post---Whew things didn't look right.

    Loverly, you are so right. I was banned a second time for about 6 hours. It was an auto thing in the BCO computer program. Thet reversed that one.

    Sue, have you tried Simply saline spray. Running is better than stopped up. Yes--No? Stents in the nose? Never heard of it, but doesn't surprise me. Did they tell you about long term effects. Can it erode? Infection possibility? Hope you are comfy tonite.

    Rosie I was told about the brain tumor the same day as the BC. We did the usual BC stuff>>BMX with TE's>>4 sx's>>1, killer chemo. We watched the meningioma until it started to grow, then out it came. We were pretty sure it wasn't CA, final pathology report it was benign. It was in a bad spot--base of brain over the right eye, near the optic nerve. Glad you read OMG. I used to sit here with my tin hat on. So, funny when DS came home from FSU. He held the tin hat up,  quietly and softly said "Mom what's going on?" poor baby.

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  • Wren44
    Wren44 Member Posts: 8,585
    edited April 2015

    I can see it.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015


    Thanks Wren

    Oooh just wiped out a long post

    Chevy. I've posted on stage 4 technical threads. when I have something technical to offer.

    Smarrty--how uncool of her to not tell you. Did you have Versed yesterday? Numerous times I've been with patients still with Versed doing it's work--amnesia, and docs telling patients results of whatever. It's like "Hey they aren't going to remember" Thanks, about the banning. Yes, them not telling about  a ban is a problem when dealing with people that can take a change for the worse and disappear. We've had it happen---very unsettling.

    Waving to everyone. Thanks to 2nd, and spookie for talking to me yesterday--I needed that :)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2015

    Sassy,


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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015

    Smarrty, Found your post on the previous page. So no versed. The radiologist usually have a rule that all films must be read within 24 hours. Have they done an Endoscopy yet? That's the usual next step. Sometimes docs will do it early before tests are done. Other times they are limited by insurance that says all the tests need to be done first. All the other tests can be normal and then the human eye can see what all the machine and labs can't.

    If the discussion comes up and the doc suggests a Proton Pump Blocker. Think short term not long term use. PPI's can have long term negative consequences. Examples are Prilosec, aciphex, prevacid, protonix, etc. The older group 5H2 blockers have less consequences long term. Examples, Pepcid, Tagamet, Zantac.  Avoid Calcium containing products like Pepcid Complete and Tums.

    I just did an extensive search for Dear Brother. I've been at him for years to get off prevacid. Now he's going to have Open Heart. I was trying to convince him this time by sending him all the research. He dismissed it, but it was worth the relook.

    Anyhooows, I had post RAI131, gastric pain since April last year. January, I started Pepcid 20 mg  twice a day.  3 1/2 months. Now evenings only. Will do for another 3 months. Doc wanted me to start last year in May. Retrospectively, it was a mistake not too. Still evaluating whether I need it twice a day. On the Radioactive Iodine---UGh flushing it through the Gi track is the usual. I had a sleep attack that day. The RAI sat in my stomach for 3 1/2 hours longer then it should have.  Self made problem.

    If you want me to take a look at your meds, send the list by PM. A relook at meds is always a good first step. One of my mantras is " just when you think you know something , take another look". It's never failed to teach me something.

    Have a great GF day :)

    LOVE YOU ALLLLLLL

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015


    image

    Back at you Loverly :) sassy

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Awww, thank you Ms Sas. Like everyone else here- happy you are back.

    Ms. Chevy and Rose, I can't say it any better on how bc has changed all of our lives. I agree, Ms Chevy...you should write a book and have Rose co-author.

    Ms. Smarty, I was told sometimes pain in the stomach can result from muscle pull/spasm....you mentioned the new girls hurt on and off. Did the stomach pain start after your most recent reconstructive surgery? .....just a thought.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Feels good to have the TE's out and my new implants in so far. Happy that everything went well and I don't plan on doing anything I'm not supposed to.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Smarty- good that you are taking a break to go have fun this weekend. Shifting gears may help. It usually does for me when I am feeling pulled down about anything.

    Mommy- glad you are on the other side of this and feeling relatively okay post procedure.

    2nd Time- Happy Earth Day!

    image

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited April 2015

    That's why Sassy has contacts out there who know what she's up to lol.

    OK I've read back 3 pages. Insomniacs signed me on at page 726, February. I truly don't know why I haven't been on much. I do know that spring is the magical doctor visit nightmare rollercoaster. So between BC and eye doc visits and PCP and dentist and other stuff it's just been ridiculous. Been going to Bible Study which I like but have to prepare for but that ended yesterday until fall. Bad news from all of this is I have to have a repeat colonoscopy in a week (TMI I know but prob. hemorrhoids but doc being cautious). And have derm. visit for itchy dark spot on my scalp. Then I get the pleasure (not) of seeing MO - not my fav. doc. And then I have to find a new optometrist and get new glasses. I dread that expense but I didn't get new ones last year and golly gee these are bad now.

    Who had the cute giraffe picture? The Dallas Zoo has the cutest almost two week old female giraffe. Saw birth live on net and it was televised live on Animal Planet.

    Yay Mommy for being on the 'tother side of that surgery.

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited April 2015

    Mommy Happy Healing and may your new girls bring you peace. I never went that route, but I have been told by others that once they heal up and you get the "ok," that massaging the area prevents scar tissue and hardening. I am passing this along with out any personal knowledge, since I had no reconstruction. So check that out - you probably have! Anyway all the best to you. Relax and heal and play with the kitten.

    Hi Luvmygoats! Happy your back and sorry about the prep and testing.. Glad things are going well.

    Wish Cami would post in and get into it with Chevy since I enjoy their mock battles!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Luvmygoats- I had a scaly spot on my scalp for awhile. My PCP said it was nothing, but it got bigger and worse looking so I just went to the dermatologist and it was basal cell. We got that removed last summer and all is well. I hope yours is nothing, but important to get checked out. Sorry you have too many doc apts. June to July will be my zone......

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Mommy, u out already? Did u have drive through surgery? Did u acquire any drain with the exchange. My PS said I will get one on each side...geez, thanks doc.

    Goats, you are in BSF?

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited April 2015

    Lover - no not BSF. Just local thru my church, Beth Moore studies and others. I'm pretty rural for BSF

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  • susan3
    susan3 Member Posts: 3,728
    edited April 2015

    sas....asked doc today if this was a permanent condition from the last chemo...he said no, told me to try Claritin d. In my mind (scary place always) doesn't sound right to me. If that is the only place I can drain, I would rather not stop that. Could be wrong, but I am not going to add more meds just cause my eyes and nose keep running. Got enough my body is processing .

    On a vent...yes I am going to vent.....ahhhhhhhhhhhh insurance agencies. They have paid everything, always, not ever an easy process, phone calls and stuff, every time , but at least they pay. I get pet scans every three months. The hospitol got rid of their position of the person who handled Med/insurance stuff. It has been now outsourced. Doc has no idea who it is or where they are. They have declined part of the last two scans and it's in appeal now . The part they won't pay is the reading of the test by the radiologist. I told the head nurse today, the insurance company just wants my medical forms attached to the pet order. She told me today she doesn't have time to do that for everybody. This is where i pass the baton to my hubby and somehow after many phone calls it gets fixed. Communication shouldn't be that hard.

    I don't cry much, but I had a good one today. Had to wait in the parking lot till I commed down.

    And.........what is up with lymphadima .....thought I could talk to doc, get a sleeve, call it a day. But noooooooooooooo, there is a different doc I have to see to be evaluated and then get a prescription and then go somewhere else to get fitted. All you with lymphadima know this already. I had no clue. I said to the nurse, you see my arm, you have known me for 14 years, write a script and let's be done with this. Nope, everybody has a specialty . I want to go back to the docs making house call days...lol

    Ok I am done. Got my pjs on already and going to pull covers over my head.

    Ok I am not done....construction still isn't done, more things came in damaged and one thing is lost somewhere in shipping. And as a side note, my mom took me off all her bank stuff and house and it's all going to my brother. I honestly could care less where her money goes, but I didn't have to be taken to the bank to sign off on accounts I had my name on. She could have done a land trust and rewrote her will tocut me out without me knowing...it was mean the way it was done. All because my brother has always lived with my mom, and when she is gone she wants us to take care of him . There is nothing physically wrong with my brother. He is a loner. And chooses to be that way. He doesn't like people .so my mom wants him to live with us when she is gone so he is not alone. So I am beings punished for something I dont agree with and my brother has no idea she is working this behind his back.

    Wow, my floodgates are open...sorry...ooopppps, someone doesn't like sorry....sorry...lol

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Susan- wow, you are having a bad day. Sorry about the crappy medical system and that your family is being so hard with you.

    Hugs sister, wishing you a peaceful evening and better day tomorrow.

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