Starting Chemo March 2015

LOL! Just when I felt all hope was lost, the topic switches to anal waxing. Oh, I needed that laugh!

I really like my other physicians. So far, they've been top notch! I'll talk to the MO at my infusion next Tuesday and lay out how I feel. One more issue, and I'm requesting a new provider.

I hate that you guys have felt my pain with your own awful doctors. I know that docs have to maintain a level of detachment, but don't they know how much we are already scared and suffering? Don't they care? I swear, joining a message board is the best decision I've made yet.

Hi everyone! Thanks for all the good feedback regarding my hands. They still hurt just as bad but are less red. I decided to say screw you MO and took a dose of prednisone yesterday and today. I think that's what helped already. I'm also using a hydrocortisone cream with aloe. feels good going on but that's about it.

Good news and not so good news....the bracelet has arrived!!!! Let the journey begin. So far I have one address so that's where it will go next. I'm planning to add a little guest bed in honor of the comforting image Katy provided me when I was feeling so down. I'll take a pic to document the start of the day tomorrow (need to paint my awful nails tonight, hee)

Not so good....pulled off my clothes as soon as I got home from work and noticed my "good" breast seemed really full. I started feeling around and felt a hard smallish marble, just like the bad boy I had removed from the mastectomy site. I stopped feeling and will go back to check it later, maybe just a cyst but I don't think so....damn.

I'm going to stay positive if at all possible. Will catch up on your posts tonight after I eat some tasteless food.

Diane, glad you are doing the prednisone. Screw that. They wanted to put me on it for my bee sting reaction and I said no, give me the topical form. Just to be clear, the topical stuff your doctor will prescribe is way more powerful and will work better. So sorry about the scare of feeling a possible new lump. I just got back from meeting with my MO, not the nurse practitioners, and asked her that very question because I still have some seroma and some scar tissue. I said how will I know if it is a new lump? She said she would be completely shocked to see anything come up during this chemo regimen, which is really strong. Did you have a Pet scan after surgery? I insisted on it, and petitioned for it to be approved. The scariest test I had, but gave me piece of mind. My surgeon called me the same day with results.

Also, she said they should have seen me at her office for my bee sting, and she will ensure that will not happen again. I have managed to get my vitamin d level to 92, and the nurse practitioner freaked out, said was too high, and she told me no it is perfect, just don't go any higher. So when in doubt, go directly to the MO.

She couldn't believe how much hair I still have, and how well I am doing. And said she would love for me to speak to people just starting about my experience and what I am doing. She said she couldn't believe my bloodwork and how great it is.

About anal waxing, wtf? No way, I can't even imagine how painful that would be. Still roflmao.

Katy, I just love you. What a special post. Thank you from every place in my heart!

aw thank you so much Diane! You ladies are a bright light in my life, I feel blessed to have you all here!

Happy Birthday, Theresa!

Enjoy Your Day!

Ride Outside for Me!

At the bar all freakin day... Passing out (or shoping on decadron?) now. I hope everyone feels good.

Hugs,and a smile from NYU

Sue-I did have an MRI just a couple months ago and that should reassure me. However I was in the less than 1% that had a recurrence on the side I had a mastectomy on so nothing surprises me anymore! I worry that because the majority of the tumor was HER2 positive....the tumor they removed was not there on Jan 28 or at least not palpable, but 2.2 cm on the last day of that month...It still blows my mind.

I am hopeful this is a clear cyst like I had for many years prior to the BC party.

Thanks, ladies!

Have today and tomoro on decadron, highand happy. Hoping for a gentle crash this coming week. Love to All!

Arlene

Happy birthday Theresa

happy Birthday Theresa! I was thinking, I'm sure coconut oil would take that residual anal wax right off! But I guess none of us will have to worry about excess hair removal anytime in the near future.....Hope your day is filled with fun, great weather, zero insect attacks and food that tastes delicious.

Trvlr, just quickly checking in because if I remember right, you were a couple-few weeks behind me with sorta the same treatment plan? Anyway, I've been busy with work and knitting when I haven't been mental sharp enough to work (relaxes me), but wanted to let you know my MO mentioned possibly going with a lumpectomy rather than the mastectomy last spa day, after treatment is done (given that there's a lump left TO ectomy, that is). My genetic test came back negative and Mr. Lumpy is getting his *ss handed to him so thoroughly by chemo...That's possible now. Granted, I don't meet with my breast surgeon again until next week and she may have a different opinion, but just sayin.There's hope. Always hope!

Thats great, Princess! I am so glad you checked in. I miss your posts. (They are so interestingly written. In a good way).

Av: Take it easy and post when YOU can.

I didn't shave my legs for a couple of months. I kept thinking it would fall out, too. Finally, I started wearing shorter pants to work out because the weather was warming up and I had to shave them. I can't believe how much hair was on those suckers.

I do have to say the upside is being bald is not spending time blowdrying my hair. That's it though. Other than that, it totally sucks!

and happy birthday Theresa!!! I hope it's a day of minimal side effects, sunshine, laughter and no anal waxing.

Princess! Welcome home. Great news Mr. Lumpy is shriveling under the house like the Wicked Witch of the West! We all miss you but glad your life is fairly productive. Your presence is here even when you are not.

WP- so sorry about the water barfing. Yuk. Glad you took the time and effort to check in under the circumstances. We all think about you and are sending our love even if you aren't around every day. Not a requirement. You are stuck with us.

My day 2 is not going as well as previous infusions. I think all the stress of the blood backing uo in the port etc. has taken its toll. The fatigue/dump trunk backed up this morning with the fresh footlong. (I really cannot wait to to see the creativity heaped upon our traveling bracelet!), and for the first time I do have nausea that is more than just a passing gas feeling. I am determined to get out and walk today today