Starting Chemo March 2015

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  • IndyGal35
    IndyGal35 Member Posts: 340
    edited April 2015

    LOL! Just when I felt all hope was lost, the topic switches to anal waxing. Oh, I needed that laugh! :)

    I really like my other physicians. So far, they've been top notch! I'll talk to the MO at my infusion next Tuesday and lay out how I feel. One more issue, and I'm requesting a new provider.

    I hate that you guys have felt my pain with your own awful doctors. I know that docs have to maintain a level of detachment, but don't they know how much we are already scared and suffering? Don't they care? I swear, joining a message board is the best decision I've made yet.

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    I have had a few good, considerate doctors. But for every good one, there is a loser in the crowd.

    Hey at least it's not anal bleaching. Yes, apparently that's a thing.

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  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    Hi everyone! Thanks for all the good feedback regarding my hands. They still hurt just as bad but are less red. I decided to say screw you MO and took a dose of prednisone yesterday and today. I think that's what helped already. I'm also using a hydrocortisone cream with aloe. feels good going on but that's about it.

    Good news and not so good news....the bracelet has arrived!!!! Let the journey begin. So far I have one address so that's where it will go next. I'm planning to add a little guest bed in honor of the comforting image Katy provided me when I was feeling so down. I'll take a pic to document the start of the day tomorrow (need to paint my awful nails tonight, hee)

    Not so good....pulled off my clothes as soon as I got home from work and noticed my "good" breast seemed really full. I started feeling around and felt a hard smallish marble, just like the bad boy I had removed from the mastectomy site. I stopped feeling and will go back to check it later, maybe just a cyst but I don't think so....damn.

    I'm going to stay positive if at all possible. Will catch up on your posts tonight after I eat some tasteless food.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    oh Diane. How troubling. I'm very concerned and you must get it checked out ASAP. I'm not nagging. Just loving. You got Bekah's footlong too. Ass waxing isn't going to cut it tonight.

    We are all here for you. You KNOW that.

    xoxoxo

    K

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    Diane, glad you are doing the prednisone. Screw that. They wanted to put me on it for my bee sting reaction and I said no, give me the topical form. Just to be clear, the topical stuff your doctor will prescribe is way more powerful and will work better. So sorry about the scare of feeling a possible new lump. I just got back from meeting with my MO, not the nurse practitioners, and asked her that very question because I still have some seroma and some scar tissue. I said how will I know if it is a new lump? She said she would be completely shocked to see anything come up during this chemo regimen, which is really strong. Did you have a Pet scan after surgery? I insisted on it, and petitioned for it to be approved. The scariest test I had, but gave me piece of mind. My surgeon called me the same day with results.

    Also, she said they should have seen me at her office for my bee sting, and she will ensure that will not happen again. I have managed to get my vitamin d level to 92, and the nurse practitioner freaked out, said was too high, and she told me no it is perfect, just don't go any higher. So when in doubt, go directly to the MO.

    She couldn't believe how much hair I still have, and how well I am doing. And said she would love for me to speak to people just starting about my experience and what I am doing. She said she couldn't believe my bloodwork and how great it is.

    About anal waxing, wtf? No way, I can't even imagine how painful that would be. Still roflmao.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Theresa you ARE AMAZING. It would be a great thing to speak to newbies about the benefits of exercise and anal waxing during chemo.

    Myself, I wouldn't even know where mine was lately, except it's the place the blood comes from. Not a scary new dx, just barely controlled constipation that never quite heals.

    And FYI to everyone, I guess there's a limit to how many pms I can send since I haven't been a member long enough (and because I say fu&k too much. I experimented by friending acouple of you, then the PMs went through. So hope none of you mind, I will friend all who want to participate in the traveling f bracelet scheme so we can freely discuss logistics. I'm not staking you.

    And lastly, I would like to be the first to say (a bit early, as it is tomorrow)

    HAPPY BIRTHDAY ITALYCHICK!

    You are a beacon of hope, a veritable font of useful medical and holistic information, and one hell of a funny gal. I am so happy and so sad we met. But more happy than sad. Have a great day. Wear your most special do rag, ride your bike, and let that gorgeous husband of yours do the waxing. Wax on. Wax off grasshopper.

    We all love you Theresa. You are a major spoke in our collective wheel. KS.

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    Katy, I just love you. What a special post. Thank you from every place in my heart!

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  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    HAPPY HAPPY HAPPY BIRTHDAY THERESA!!! You really do rock and anyone would be fortunate to have you to talk to.  

    Love, Diane

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    aw thank you so much Diane! You ladies are a bright light in my life, I feel blessed to have you all here!


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  • SueH58
    SueH58 Member Posts: 632
    edited April 2015

    Diane, did you have an MRI as part of your diagnostic care? If so, it should have picked up anything "bad" in your order breast....

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  • greenae
    greenae Member Posts: 540
    edited April 2015

    Happy Birthday, Theresa!

    Enjoy Your Day!

    Ride Outside for Me!

    At the bar all freakin day... Passing out (or shoping on decadron?) now. I hope everyone feels good.

    Hugs,and a smile from NYUimage

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  • Carrie37
    Carrie37 Member Posts: 331
    edited April 2015

    Happy Birthday to you Theresa!! I hope you have a wonderful day!

    Green you are looking great in the chair! Praying for minimal SE for you.

    G'night

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  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    Sue-I did have an MRI just a couple months ago and that should reassure me. However I was in the less than 1% that had a recurrence on the side I had a mastectomy on so nothing surprises me anymore! I worry that because the majority of the tumor was HER2 positive....the tumor they removed was not there on Jan 28 or at least not palpable, but 2.2 cm on the last day of that month...It still blows my mind.

    I am hopeful this is a clear cyst like I had for many years prior to the BC party.


     

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Happy Birthday, Theresa!

    Greenae: You look gorgeous!

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  • greenae
    greenae Member Posts: 540
    edited April 2015

    Thanks, ladies!

    Have today and tomoro on decadron, highand happy. Hoping for a gentle crash this coming week. Love to All!

    Arlene

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  • melb44
    melb44 Member Posts: 130
    edited April 2015

    Denise (Raisemeup) and Cherie (Starrgirl) - I see you are both in Michigan. Me too. Where is Mi? I am in Troy.

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  • BeatIt2015
    BeatIt2015 Member Posts: 45
    edited April 2015

    Happy birthday Theresa

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    thanks everyone for the birthday wishes. Gonna have breakfast with my daughter and my two grandbabies! Oh yeah, and probably ride my bike lol. I know, broken record. But feeling good! Got 7 hours of sleep last night, even on the steroid and Neulasta. Feeling so fortunate. Mouth ickiness not so bad this time so far. I will take it. Gotta love the coconut oil, whatever works. And pooping, the simple pleasures of life

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  • slothabouttown
    slothabouttown Member Posts: 449
    edited April 2015

    happy Birthday Theresa! I was thinking, I'm sure coconut oil would take that residual anal wax right off! But I guess none of us will have to worry about excess hair removal anytime in the near future.....Hope your day is filled with fun, great weather, zero insect attacks and food that tastes delicious.

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    I wish. I still have to shave my legs, seems so unfair. And I still have three Inches of concentration camp hair, go figure. Just enough to look like a hag lol.

    Hope everybody is surviving today after this weeks chemo infusions. Stay well and stay strong!

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  • PrincessOfMeh
    PrincessOfMeh Member Posts: 167
    edited April 2015

    Trvlr, just quickly checking in because if I remember right, you were a couple-few weeks behind me with sorta the same treatment plan? Anyway, I've been busy with work and knitting when I haven't been mental sharp enough to work (relaxes me), but wanted to let you know my MO mentioned possibly going with a lumpectomy rather than the mastectomy last spa day, after treatment is done (given that there's a lump left TO ectomy, that is). My genetic test came back negative and Mr. Lumpy is getting his *ss handed to him so thoroughly by chemo...That's possible now. Granted, I don't meet with my breast surgeon again until next week and she may have a different opinion, but just sayin.There's hope. Always hope!

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  • avmom
    avmom Member Posts: 324
    edited April 2015

    Happy birthday Theresa. I'm glad you are feeling well.

    I'm not doing so well today. I am finding that my nausea and fatigue have increased with each round, but am planning on at least 30 minutes on my indoor bike today. I met with my MO yesterday, to schedule the next 4 rounds of dose dense paclitaxel,mwhich went fine, but he submitted my pathology for a review with the tumour review board. I'm waiting to receive a full copy of that review, but the initial information I received is that they reassessed the grade of my tumour, from grade 1 to grade 3. Not good news. For quite a while after my surgery, the only good thing about my path report was that grade 1 finding, given my triple negative tumour and the gigantic bed of DCIS (8x8x3.5 cm)that had been invisible to both mammogram and ultrasound. At the very least, my treatment plan will change from I'm no radiation recommended, to least a consideration of radiation. I'll be seeing a radiation oncologist pretty soon to discuss risks/benefits. In combination with the crash after the steroids and the in increased nausea, I'm feeling pretty raw. I think I just need a bit of time to process.

    I'll try to keep up with reading posts for the next few days, but likely won't have much energy to post, myself. Best wishes to all for a healing weekend.

    Gentle hugs to all.

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Thats great, Princess! I am so glad you checked in. I miss your posts. (They are so interestingly written. In a good way).

    Av: Take it easy and post when YOU can.

    I didn't shave my legs for a couple of months. I kept thinking it would fall out, too. Finally, I started wearing shorter pants to work out because the weather was warming up and I had to shave them. I can't believe how much hair was on those suckers.

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  • PrincessOfMeh
    PrincessOfMeh Member Posts: 167
    edited April 2015

    LOL with the shaving. Just go ahead and do it. I pulled the same "oh no, I'm not," but I shaved out of desperation a couple weeks ago. No hair has grown back on my legs since. Freedom, sweet freedom!

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    I do have to say the upside is being bald is not spending time blowdrying my hair. That's it though. Other than that, it totally sucks!

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  • wpmoon
    wpmoon Member Posts: 270
    edited April 2015

    I threw up water this morning. First time throwing up on chemo and it was far from fun.

    I need a vacation. And sleep. Lots of sleep!

    Happy Friday everyone!

    -Whitney

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  • wpmoon
    wpmoon Member Posts: 270
    edited April 2015

    and happy birthday Theresa!!! I hope it's a day of minimal side effects, sunshine, laughter and no anal waxing.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Avmom- understandable concern. Hoping for the best. Sorry you are crashing and burning at the same time. I am holding your hand.. Firmly. Much love and support going out to you. You may not read it. But I hope you feel it

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Princess! Welcome home. Great news Mr. Lumpy is shriveling under the house like the Wicked Witch of the West! We all miss you but glad your life is fairly productive. Your presence is here even when you are not.

    WP- so sorry about the water barfing. Yuk. Glad you took the time and effort to check in under the circumstances. We all think about you and are sending our love even if you aren't around every day. Not a requirement. You are stuck with us.

    My day 2 is not going as well as previous infusions. I think all the stress of the blood backing uo in the port etc. has taken its toll. The fatigue/dump trunk backed up this morning with the fresh footlong. (I really cannot wait to to see the creativity heaped upon our traveling bracelet!), and for the first time I do have nausea that is more than just a passing gas feeling. I am determined to get out and walk today today

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  • IndyGal35
    IndyGal35 Member Posts: 340
    edited April 2015

    Happy birthday, Theresa! :)

    AV, your diagnosis sounds similar to mine. My initial tumor size went from 2 cm to 5 cm. Then, after MRI, they found 3 other tumor areas that appear to be connected. I am grade 3, and my size quickly went to just under 9 cm. It's crazy how large those deep tumors can get before they're detectable on US.

    WP, so sorry you got sick. If memory serves, you're a week ahead of me. I hope the nausea doesn't keep getting worse as our rounds progress. Hoping your meds help you feel better and get some fluids down.

    I'm on the mend after my big ER debacle yesterday. Hoping to be able to feel better and enjoy the beautiful weather before the chemo train runs me over again next Tuesday.

    Hugs and prayers for minimal SE's, Dears.

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