Having a scan? Waiting on results? The waiting room is open!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    Josalive - we are right here with you, hoping for good news. Google can be a scary place for folks like us. Try to get out and enjoy some sunshine. While your symptoms are indeed worrisome, it is worth noting that many of us on Herceptin/Perjeta have also reported vision changes (although not with headaches). I'm glad you are getting the MRI so you will know for sure what is going on. Please keep us updated.

    I had the opposite result with my first MRI. It was scheduled for midnight and the MRI tech was extremely gruff and grumpy. I was the only one there and I'm sure I'd interrupted his nap. Anyway, after the scans he was very kind and wished me luck and said he'd keep me in his prayers. That is when I knew...this ain't good

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2015

    josalive,

    Welcome! Waiting for results is, for me, far worse than pre-scan waiting. So, cozy up on one of our sofas and enjoy the snack or beverage of your choice:)

    Techs are not radiologists and though experienced ones may be good at understanding the scans, they are not trained to interpret them, just perform them correctly so the radiologist can interpretthem. Don't try to read anything into their behavior or you might drive yourself crazy.

    I get an email notification when my scan results are available,,but that doesn't stop me from checking a million times before that. Wishing you the best.

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  • 208sandy
    208sandy Member Posts: 2,610
    edited April 2015

    So far stress reducing activity (yeah right) was going to the vets and Petsmart with two friends of mine who walk dogs at night with me and my Penny - nothing like taking Penn by the vets (only for food) and then to Petsmart for a new leash and collar - she is asleep on my feet and I am exhausted and getting ready to binge watch something as my PVR is at 100% - I'll probably nap which is a good thing - no room in my mind for worry now - I am too exhausted - oh yes, went to my favourite bakery also and the weather is sunny and warming up - tomorrow is supposed to be 15C which is the warmest since last fall - it's been the worst winter EVER!

    Josalive - stay off the internet!!! We're here if/when you need us.

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  • sandilee
    sandilee Member Posts: 1,843
    edited April 2015

    The most indiscreet tech I ever had was the one at the orthopedist's office while performing my MRI, before I knew that the reason for my issues was mets to the bone.

    "How long has it been since you've had breast cancer?" She asked while I was in the tube. Fortunately, I was too nervous to put 2 & 2 together and realize why she was asking.

    Usually, they are all business, and you can't read them at all. If I try to look at the screens sometimes they get a bit annoyed. ;)

    Best of luck to everyone waiting. It's one of the hardest things that we go through, I think.

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  • nred2002
    nred2002 Member Posts: 59
    edited April 2015

    Good luck on your scans as well Shutterbug (:

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  • teacher911
    teacher911 Member Posts: 853
    edited April 2015

    Caryn and kebab, Congratulations on receiving good news on your scan results!!

    This is a wonderful thread. Even though I think I'm doing fine while waiting I don't realize how stressed I've been until I get the results.

    Susan, I am sorry to read that that you have progression in some areas. I am glad you are headed out on an amazing adventure. Enjoy your trip and we will be here for you when you come back and start new treatment.

    Josalive and Shutterbug, thinking of the two of you while you wait.

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  • steelrose
    steelrose Member Posts: 3,798
    edited April 2015

    I'm in my pre-scan anxiety mode. Scan is tomorrow, and my oncologist usually calls soon after. I do love this thread, as I don't like starting my own thread about my stupid anxiety when others have much more important issues. Surely I can suck it up! Okay… going to binge on cookies now…

    Hope to hear more good news from those waiting for results!

    Rose.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2015

    steel rose,

    Best wishes for your scan tomorrow. Cozy up on one of our sofas. What kind of cookies would you like and had about a refreshing drink?

    Caryn

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  • nancyh
    nancyh Member Posts: 2,644
    edited April 2015

    Good luck, Rose! We'll thinking of you.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2015

    steelrose, best wishes to you; hope all goes well with the scan and results. Hugs n prayers.

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited April 2015

    sr, Best of luck to you!

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  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    Can I come here if I'm waiting on labs? Gemzar does not like me much. I feel so tired, nauseous, and just BLAH. I get bloodwork done this week to see how much damage is being done to my liver. Please PRAY, PRAY, PRAY, for great labs, especially the liver enzymes. Thanks, all.

    :-) Penny

    image

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  • annieoakley
    annieoakley Member Posts: 870
    edited April 2015

    Steelrose, sending positive thoughts your way for tomorrow's scan. Wishing you the best results.

    Redwolf, praying for great labs for you and stellar liver enzymes!  

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  • steelrose
    steelrose Member Posts: 3,798
    edited April 2015

    Caryn, Nancy, Divine Mrs., MusicLover, and AnnieO, thank you for your good wishes. I will report back when I receive the results. I have quite a bit of pain, but it may very well be treatment related. That was the case last time, and my fingers are crossed that nothing has changed!

    Penny, you are in my thoughts and prayers for excellent lab results!

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited April 2015

    Rose and Penny, praying for the best results!

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  • carpe_diem
    carpe_diem Member Posts: 1,256
    edited April 2015

    Well, so much for Faslodex. I could almost just copy Susan's letter, except that I have two small but clear liver lesions (1.4 cm) and a vaguer 9 mm spot, plus some growth in the shoulder blade met and a small new one on the skull. This after almost four years with stable pleural mets. To quote susan, "SHIT, SHIT, SHIT!" which is exactly what I said at the mo appointment. I'm also on to oral Xeloda as soon as it arrives in the mail.

    At least I had my incredible trip down under first, and met up with KiwiCatMom in Wellington NZ without any premonitions to get in the way. I came home to lab work, scans, and appointment and did have a few twinges of concern, mostly based on a misapprehension. First the bone scan tech called me back to ask if I had radiation to my left shoulder area (yes), and the mo's office called first to change my appointment to the nurse practitioner since my doctor was covering for another mo, and then to switch me back to my own mo at a later time. My bad news radar went off at that point, but turns out she had realized that I was there after scans (which she hadn't seen yet) and wanted to see me herself. And nothing was reported in the left shoulder area.

    I'm off to research Xeloda and see if radio frequency ablation could be considered for the liver mets, or does the growth in bone mets rule that out. See y'all around.


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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    Oh Carpe Diem, I'm sorry you did not get good results. I think that is the scariest part, that we can go in feeling just fine and then have the rug pulled out from under us. Four years is a good run, but it is never enough. I hope your next regimine gives you that and more!

    It was nice to see the photos of you and Kiwi, and I'm glad you got to enjoy your trip. May there be many more in your future

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  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    Sorry, carpe_diem. Prayers for a new successful treatment ASAP.

    Prayers for all,

    Penny

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  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    image

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    carpe. - dang and double dang. 4 years is a great run but hoping next tx gives you even more. Thinking of you

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    Just talked to the doc. Stable! I'll take it! Now I'm hooked up to my Herceptin drip with my ginger, coconut, vanilla green tea and my ginger snap cookies. My warm blanket is on the way. They really spoil me here.

    Best wishes to those still waiting for scans or results.

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    shutterbug - stable !  that rocks !!!!!!   started posting here to encourage others waiting but its good to hear about stable to often .     

    carpe -   hoping you are singing stable again soon .  thinking of you.  onward to the next tx. 

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2015

    shutterbug, so glad to hear your great news. Now you can breathe a bit easier.

    Carpe Diem, sorry to hear your news. Digest it and then come up with a plan of attack. You may just be in for another long run. Take care.

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited April 2015

    SB, Great news.

    For anyone not receiving good news, I hope things get better soon.

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  • josalive
    josalive Member Posts: 76
    edited April 2015

    I just got my Brain MRI results and the result is... No Evidence of Metastatic Disease! This is a relief as it was my first Brain MRI and I'd been having blurred vision and headaches which I guess are just coming from the chemo and herceptin/perjeta. So I guess my path forward is to finish this first-line chemo and then on to lumpectomy and radiation on the primary tumor and then considering surgery/radiation options for my single liver met. Then as I'm learning from all of you... cross your fingers and hope for some good, long healthy time. Thank you for waiting this out with me everyone!

    Shutterbug - So good to hear you're stable!

    Steelrose - Good luck on your scan and results!

    Carpe Diem - So sorry to hear you had progression and praying that the Xeloda gives you as much time as the Faslodex did. Do look into the options for liver radiation. I am thinking of doing the SBRT which is showing really good results at keeping those liver lesions in check.

    Everyone is in my thoughts and prayers!






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  • kt1966
    kt1966 Member Posts: 1,326
    edited April 2015

    Yay, Josalive, for a clear brain MRI.

    Sorry about your news Carpe Diem, I'm on xeloda & it's pretty good as far as chemo goes. My dose was dropped for a while because of hand & foot syndrome, but it was upped again last cycle. I hope it is good to you as well.It was lovely to see yours & Terre's photos, soglad you had a great visit.

    I got my CT results yesterday- mainly stable but a weeny bit of growth on my lung nodule & the pleural effusion (of which I didn't know) has increased slightly. So I'm staying on xeloda, phew, and it should deal to the mets as I had only been on the increased dose for a week before my CT was done.... That's what I'm hoping for anyway (don't want to go to IV chemo yet).

    So glad to hear of everyone's stable results & for those of you who aren't, hoping the next treatment does the trick.

    kt

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    Josalive - That is fantastic! Sooo happy to hear that. Now you can keep on keeping on. :)

    Kt - Sorry you didn't get better news, but "mainly stable" isn't too bad, I think. Hopefully it will just take time for the increased dose to do the job on that lung nodule.

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    kerp on keeping busy those ego are still waiting. I am still hanging out waiting with you.

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  • sueopp
    sueopp Member Posts: 1,541
    edited April 2015

    Carpe, sorry to hear that you are done with the faslodex, but now on to the next better drug for you. I had a great run with xeloda and wish the same for you. I don't have liver troubles (as yet) but if I do, I plan to look seriously into ablation for a fix.

    Very happy for you SBug - we H&P girls gotta stick together. And happy too for you, josalive. For those still waiting, sending good karma. SUE

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  • intothewoods
    intothewoods Member Posts: 449
    edited April 2015

    Patty Pepper so great you are going to hang out here with others!

    My sister just had surgery for DCIS and they found IDC as well with 5/10 lymph nodes. She had scans Friday. bone scan good but BIL says there is a spot on liver they want to double check. sis and I aren't particularly close but I/m finding myself more anxious about her scans than I have been about my own!

    Take good care everyone!

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