Having a scan? Waiting on results? The waiting room is open!

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  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    Shutterbug, Josalive, and kt - Good news all around! Thank You, Lord!

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  • chris1959
    chris1959 Member Posts: 1,121
    edited April 2015

    rose and everyone else who is waiting on scans I will be thinking of you and I hope everything turns out good .

    carpe diem..so sorry for the news .hope your next tx will work wonders for you .

                   love chris

  • Heidihill
    Heidihill Member Posts: 5,476
    edited April 2015

    Yay for all those with good news. Carpe diem, i'm sorry fo your news. I'd tell myself it would have been much worse if you hadn't had such fun in NZ. Hope your next treatment kicks cancer butt but is gentle on yours.

  • Becs511
    Becs511 Member Posts: 303
    edited April 2015

    My time in the waiting room is now over. I had a PET and CT on Friday and met with my MO last night. After 11 months since my diagnosis and one semi-successful first line of treatment, TDM1/Kadcyla has officially brought me to NED status!! Original tumor, 4 lymph nodes, and mets to my lungs and sternum, all gone!

  • chris1959
    chris1959 Member Posts: 1,121
    edited April 2015

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    becs511

    hooray   ,so happy for you . love chris

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    bec  hip hip hooray  love these stories altough i am very aware this is not the necc the normal outcome.  did you do something wonderful to celebrate.   i think we got  to celebrate each victory.  we (i) certainly sprital with bad news  gotta come back up to be hapy and excited to be alive.   and for today i'll take it.

     

  • screech
    screech Member Posts: 212
    edited April 2015


    I love this thread-it's so nice to have one place to go to see at a glance how people are doing and to know when to keep them in my thoughts.  Congratulations to all that have been able to post good news!  I can add myself-NED with 3/26 PET.  I will continue to keep everyone that didn't get the news they wanted in my thoughts and pray that they get good news the next time!

    Does anyone know if there are statistics re: percentage that reach NED?  Does reaching NED influence prognosis very much?

  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    Becs511 & Screech - Thank You, Lord!

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    Penny

  • 208sandy
    208sandy Member Posts: 2,610
    edited April 2015

    Add me to the happy dance list - just came back from onc. appointment and more faslodex and after three months scan shows regression and tm's are trending down - onc. is thrilled as am I! Becs511 & Screech will be toasting you with my tea this afternnoon.

  • steelrose
    steelrose Member Posts: 3,798
    edited April 2015

    Sandy… Yay!!! Wonderful news!

    Carpe… Just want to give you my encouragement. I was on Xeloda for five months, then had a liver ablation. My liver remains clear. I know how discouraging progression can be, but I'm hoping you can turn this around quickly!

    And add me to the list of happy people today. A nurse just called with my CT results. NED! So the pain I've been having for over a year now is treatment related (surgery/rads/anti-hormonals). Not every pain is cancer!

    I hope more good news follows here. Thank you all so much for your kindness.

    Rose.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    keep the good new coming.

  • MusicLover
    MusicLover Member Posts: 4,225
    edited April 2015

    Yeah, on the good scans and hopefully improvement is on the way for those who haven't gotten good news this time around! (I'm jealous of Caryn's awesome threads - nice job Caryn!!! this thread is humming...)

  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    Yay, 208sandy and steelrose! Thank You, Lord!

    Penny

  • screech
    screech Member Posts: 212
    edited April 2015

    208 and Steelrose and everyone else.....CHEERS!!!!

  • Northtexas
    Northtexas Member Posts: 67
    edited April 2015

    congrats and yea to everyone getting good results! I'm new to iv and am still waiting on scan results. I'm a nervous wreck! I'm not adjusted to this new life as stage iv! I had 15 years of good news and now we're all devastated. I'm empty and lost. I appreciate all your posts but I'm scared to death at this point! Sorry to be a downer!

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2015

    Northtexas, plz don't apologize; we've all been at that starting point and know how it feels, your feelings are very understandable. The beginning is very rough. I hope you find support and hope on this forum. It took me many many months to sort things out. I still have my ups and downs but appreciate that we All have this place where we can find others going through similar experiences.

  • kt1966
    kt1966 Member Posts: 1,326
    edited April 2015
    Wow, lots of great results!
    Well done & enjoy the feeling :D
    kt
  • kt1966
    kt1966 Member Posts: 1,326
    edited April 2015

    I hope your scans come back ok Northtexas- it's always hard waiting.

    Thinking of you

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    i get a pet scan on thur am.  never had one.  tumor markers are down .  have had so many c\t scans and mri's in hospital so feeling pretty goood about the pet.  my only concern is that i have heard pet shows every little spot light up and it may be healing or imflammation.  mo said is often causing conern from something that may never porgress to cancer since they can see it when it is so small  its more of a baseline pet.  really?   baseline???  was dx stage IV June 2013,  guess its just part of the new tx since my mo retired and this is the new guy.  holding out thoughts on him  seemed both very smart and compassionate - which i love -  and also rushed. - which i hate.  -

  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    208sandy and steelrose - Wonderful news! Happy dancing with you!

    Northtexas and Patty and anyone else I missed - Waiting with you and hoping for GREAT results!

  • MusicLover
    MusicLover Member Posts: 4,225
    edited April 2015
    Patty, I don't think you will find it to be too much different and they will be able to differentiate between healing and cancer, so don't worry about that.
  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited April 2015

    Whoa...I just ate a bag of chocolates...to celebrate such good news! So happy, and honestly, relieved, for all: Caryn, Shutterbug, Screech, Steel, Sandy, Becs...I'll eat a couple more just in case I forgot someone. I also eat them because it makes me feel better when I'm thinking of the not such good news...I think we've all been there, NorthTexas...it's hard to feel positive & hopeful with a stage 4 dx...but there IS hope, as this thread conveys...and strength from so many on this journey with you. I'm praying for miracles all around!


  • Northtexas
    Northtexas Member Posts: 67
    edited April 2015

    thank you for positive thoughts!

  • 208sandy
    208sandy Member Posts: 2,610
    edited April 2015

    NorthTexas - you're not a downer - we're waiting with you.

  • screech
    screech Member Posts: 212
    edited April 2015


    Yes, North TX - agreeing with 208 and the rest-we're all in this together.

  • 3-16-2011
    3-16-2011 Member Posts: 559
    edited April 2015

    hi all Excited to see great news from screech and 208! I just got my pet scan report and am joining the happy dance all 5 bone mets are reducing. Will see RO on Friday to learn more

    Thanks to everyone for sharing experience and wisdom. I am so new at this and find learning here soooo valuable.

  • diana50
    diana50 Member Posts: 2,134
    edited April 2015

    Scan next Thursday. Not anxious as I view scans as more information. Hopefully no progression and only good news. Liver lesion maybe has shrunk. Will post after results. Taxol has worked for me since July. Hoping for easier tx. Great thread. Thank you

  • annieoakley
    annieoakley Member Posts: 870
    edited April 2015

    Becs, screech, 208sandy, steelrose and 3-16-2011 doing a happy dance for all of you, great news!

    PattyPepper and diana50 prayers for all positive results for both of you!

    Hugs to all, Annie

  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited April 2015

    Great news, 3-16-2011! Thank You, Lord!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    3-16-11 Wow! Great News!

    RedWolf - Just love your Hallelujah squirrel! I hope we see lots more of him!

    Hoping for good results for you too Patty and Diana.

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