The Hermit Club

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2015

    Lily I have to say, I love how u are doing--u'r attitude has turned so around and it sounds so promising, I am so happy for u.

    I'm trying to catch up so I'm writing page by page.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Thought hubby was going to avoid a cold. Looks like I was wrong.

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2015

    Hi again Hermmies---page by page so I remember better.

    Welcome JK, and there is so much good advice on this thread for u (and sure there are on others) but I'm partial to this--Please try so hard not to ever feel guilty about anything from this day forward, I'm one of those guilt is a wasted emotion type of people and do whatever u feel u'r up too. And working with all those kids has to be tiring in itself and altho rads are different for everyone, I think the main thing that most of us have had is exhausting--so do whatever u have to do so u feel OK.

    Oh I missed a BD--I'm so sorry.

    Foots I hope u'r breathing improves, that has to be exhausting in it self.

    Daisy it sounds like u have a good plan--to really wait to work and feel better--give u'rself the time--u'r DH sounds good.


     

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2015

    OK Bippy--One day  a week--perfect for now, I'm so happy for u, and u can pick the day??? Perfect. Happy

    Jazzy u are so sweet, please don't worry about me--I'm having a hard time )more now than before--I didn't get my Valentine's call--my sister and I talked 2-3 hrs on the phone--it was good for both of us.

    I do worry about Blondie tho.

    MO I do hope u'r DH is OK and of course u need coffee.

    Oh I'm flat as a pancake, except for those boobs under my arm, I wondered why he left them--now I know why, oh yea like I'm going to get new foobs, why bother

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2015

    OK I think I caught up, but I might have missed a page.

    BTW I loved the cat pics--u know me and our furbabies--I'm a sucker.

    All u gals who are having all this snow all I can say is yuck--I watch the new --yes sometimes--there's more snow in some states than at the North Pole--we've been lucky missing so much of it--but the cold has been horrible with wind chill 20-30 below and u can feel it in a minute. So this looks like something that's going to

    U were right MO u'r DH was getting a cold, hope u don't catch it now.

    Hey Teka--how's it going?

    Jazy I love u telling us all u do and accomplish it really makes everyone feel so hopeful and good inside--

    Wel as u know I'll be starting a newer phase with my job soon, brother answering 2 phones when I can barely do all the work I do on one phone. Well at least I don't need work clothes, my PJ's are wearing well.

    Hey Mags!!!!

    Joey is making me coffee now, bless his heart----Oh Jazzy he can actually play without sqeeking, it's amazing--the dog doesn't howl and the cat doesn't run anymore--not that he plays that well, but the squeak has finally been conquered--I hope. But his coffee is great. LOL

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Cami- good to hear from you. You sound like you are doing okay. You know us worry-warts here, when we don't hear from people, we worry they are not okay!

    Get a video of Joey playing and post it! Would love to hear!

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  • camillegal
    camillegal Member Posts: 16,882
    edited February 2015

    Good idea Jazzy, I'll see if my DD can do that.

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  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    hi hermettes,

    I am frustrated as all hell trying to get pain relief for rads burns, yes, BURNS not a "little red or sunburned" as as described to me by RO before tx. It hurts, I am pissed. It is a large area. Was told last week to try tylenol, and did and it "don't do shit" as my neighbor used to say. I did not ask for real pain meds then, but sure am today. And I am not putting up with any doubletalk, windtalk, or jibbajabba today. Is there a reason I must suffer? No, doc, am not getting relief from the vast assortment of aloe, gel, etc. No Doc, I am not going to walk around naked and put cool compresses on it today, since it is very cold here now.

    Sighs. Give me DRUGS.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Bippy- not right that you should have to suffer if you have such bad burns from the rads. Do ask for the higher pain meds so you can get through the rest of the week. My doctors gave me everything I needed for meds during treatment, including good pain killers, and I used what I needed for the worst pain when I had it and quickly moved to Tylenol as things got better. You just need a few pills of the good stuff. I hope they help you today!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Made hubby stay warm and let him sleep as much as he wanted today.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Mommy- sorry your husband is not feeling well. I hope things are better soon. And that the snow and cold stop.


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    He's feeling a bit better so far

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  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
    .
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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Onco- you have had stomach issues for awhile now, so it is good you got this checked out. I am glad to hear things look good, and hope nothing comes up with the biopsy. I think they would have been remiss in not checking things with a sample as not everything is visible. I hope things are good with the results.

    I did know someone who had that stomach emptying issue problem, and hope that is not anything you have an issue with. She had to have some surgery around it, but don't think it was effective either.

    Hope you are feeling better and stronger post surgery. If it is a result of coming off the drug, that is the best news one could hope for. Checking on our health issues is never a waste of time, especially after having cancer.

    Rest well my friend.

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  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    onco, thinking of you! Moo backatcha.

    Jazzy and all my hermies, bippy got her pain meds. Burn pain fading......she will finish rads. 2 to go! Had a meltdown at ROs, told him exactly how I felt. He says burn looks medically acceptable, blah blah blah.

    Had to turn down work today, my friend arrives tomorrow from Maine! Woohooo, cannot wait to see her, she is like a sister. Stay warm and dry girlfriends

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Bippy- it is too bad we have to melt down to get attention for our pain. I had a melt down once in the hospital after being on a feeding tube for a week and finally being able to eat and no one would bring me a tray. I mean it was BAD! The nurse came in and was pissed the tech had not doing anything (he was the biggest jerk) and made it happen. Then they were bending over backwards to feed me. Sometimes it is what we have to do to get the point across. That RO sounds very clinical. Hello, this stuff hurts!

    Be pain free and enjoy your company this weekend!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Just enjoying sitting watching the "kids" playing and listening to the tv.

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  • daisylover
    daisylover Member Posts: 310
    edited February 2015

    Onco, It's a struggle to deal with just the cancer treatment SE's - so frustrating that you have to suffer through withdrawal as well. I have experienced the inept IV nurse - it does hurt. At least they brought the pro over later! It's good that you had the scope. I think that you should get the gastric-emptying study done. It would be good to have a base-line. You should know exactly what you are dealing with... Prayers continue to ascend.

    Bippy, I do not like your RO. I have not done rads - are all RO's so un-empathetic? 2 left - you can do it! You have come so far. Good that you finally have your drugs. Enjoy your friend from Maine's visit - hoping the drugs don't space you out...

    Mommy, take care of yourself as well.

    Cami, how are you handling 2 phones? What is Joey playing w/out squeaking? It's good to hear from you!

    Mags, you sound so upbeat! You are a trouper! I had to google Kishka. I would not eat such a thing... but I hope that you enjoy them! Stay strong. <3

    Jazzy, you are so good at supporting Hermies!

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  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    image

    Yes, I will be glad when its over! Here is my pretty armpit. Hurts like all hell

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Bippy- hugs sister. That look so painful.

    Daisy- thank you for the kind words.

    Good night everyone! I have been a networking fool this week, but tomorrow I am going to shift gears and do some fun things along with some must do things.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Hubby is feeling much better!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Good to hear Mommy.

    Bippy done with radiation today, time to dance the happy dance! Hope you have a good visit with your friend from Maine. I bet she is glad as anything to get out of the northeast for a break.

    Mags, I think you are almost done, maybe a few of those boosts at the end left?

    Blondie- hope you are continuing to heal.

    Hugs to Cami.

    Hope Lilly is getting settled into her new digs and figuring out the plans for her sanctuary.

    Wishing everyone a good day and a great weekend!

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  • maidentiredofwaiting
    maidentiredofwaiting Member Posts: 155
    edited February 2015

    Oh Bippy that looks so painful! My heart goes out to you.  I just had my first good look at the girls since exchange surgery on Friday the 13th and it was ok on the right side, the left side looks like a horror movie.  Still bleeding a little, very bruised and frankensteinish.  But I'm hoping for the best and boy did that shower feel good!  I have become a baby when it comes to blood now as I got nauseous and had to lie down after bandaging up and wrestling into the surgical bra.  Whew, that was a work out! I hope you are all doing well.  

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  • magdalene51
    magdalene51 Member Posts: 2,214
    edited February 2015

    Jazzy, I have two full weeks left. Two more regular tx and eight boosts;: five to the whole incision and tumor area and three to the tumor area. I saw the RO today and she apologized for not informing me of the change, but since my tumor had invaded the chest wall they wanted extra boosts on it. I confess I am very discouraged right now. The crease of my underarm feels raw. And I'm just so tired, and tired of hurting, and tired of cancer. Going to bed now.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Another storm heading my way later on. Gonna be snow and then a wintry mix or even all plain rain!


     

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  • daisylover
    daisylover Member Posts: 310
    edited February 2015

    Mags, Hope it was a deep sleep. You are so strong. This is the time when faith is so crucial. Just know that you are not alone - even in that room. I have not suffered like this way(no radiation or shoulder pain). I did spend a year of my life not sitting (only lying down or standing) due to back pain, but I just avoided painful positions. I have no experience like yours to be able to share coping mechanisms. So, I will do what I can and pray for you. <3

    Mommy, we are expecting the same here in MA - hope your roof is sloped and relatively clear. Is your husband back on his feet? Did you get your DD this morning?

    Maiden, it's good to hear that you enjoyed your shower. It was tough to be uncomfortable in the shower. When is follow-up? I did not have reconstruction but certainly sounds like you should be looked at? Again, no experience here. I hope you heal quickly with pleasing results on BOTH sides. The journey seems so long and arduous. I can not remember now... Is your son applying to college now? Do you have another year with him at home? May life beyond cancer be joyful.

    Bippy, You and Mags need a break. I had a friend who did radiation tell me that it was nothing - like a light sunburn. I think NOT! I would have gone into radiation expecting something totally different than what you two are experiencing. I can't imagine the discomfort. Stay strong. Know that this too shall pass. Wishing you speedy healing and fun with your buddy!

    Jazzy, enjoy your time for fun... Do not think about work. Just relax in the pink room :).

    All Hermies, stay dry, warm, happy, and strong INSIDE :)

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Roof is safe and has a good pitch to it, so no worries there. We have had snow and ice coming off all this week. I'd be sitting down and I'd hear a loud noise and then see it come down and land in the snow in the yard. Hubby is better and when we went out this morning to get stuff I needed for dinner before this crap started falling again I got my DD.

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  • daisylover
    daisylover Member Posts: 310
    edited February 2015

    Mom, that's awesome! DD can really set the tone for a day. My daughter gets an iced coffee every day at college! When she comes home, she always needs a daily caramel iced coffee. She does not like any substitutes like Starbucks... The bad part is that when I know that she is going, I might indulge in a chocolate creme-filled donut, so messy, covered and filled with sugar... difficult to hide your splurge with powdered sugar all over you. You show great restraint just getting a coffee. Glad your roof is safe. Stay dry. No ice slides here - Just beautiful shimmering icicles...

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Staying dry and comfy here.


     

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Mags- I don't blame you for being discouraged. So much thrown at you for so long now. The pain with external rads at the end is awful. Bippy's photo made me feel so sad when I saw it. It is okay to be tired of the whole damned thing. Cancer sucks and cancer treatment is really hard.

    Stay warm folks with the snow. We have a storm moving in today.

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