Here's what cheezed me off today
Comments
-
SInce we're all ranting here, I'd like to dish out some... I'm on Taxol right now and my taste buds are driving me crazy!!!! Can't eat anything, everything tastes horrible
AND on top of that,., can't have my morning coffee!!!!!!!!!!!!!!!!! People don't understand I'm upset about something like that!! They don't get that I go to sleep at night dreaming of that cup of coffee... It's what I live for,,, And it's the only thing that brightens my day & makes me smile to myself !!! What makes life bearable. It tastes awful now... makes me want to cry
(((( And what makes matters even worse, is that when I found out I had cancer... I never felt bad... I laughed it out and tried to look on the bright side.. "Hey !! People with cancer get to be skinny"!! But oh boy, I was in for a treat... I'm gaining weight like crazy... from all the steroids & hormones, I heard!!! This breaks my heart, cause I'm originally a vertical sleeve patient... had my surgery 2 yrs ago and lost loads of weight.. Life was great, I was enjoying the new me, until I found out about my cancer.... You know. I didn't care about the lumpectomy. didn't feel sad about my mastectomy.... Almost lost my life when started AC but turned out ok.... BUT what is really getting to me, pissing me off and making me shake my fists to the heavens.... My weight gain & my COFFEE!!!!
-
Dera, I had the exact same problem on AC. I am still early in Taxol, coffee is just drinkable. My MO was surprised that I still drink it. Even though I switched to flavored coffee, I don't enjoy the taste anymore. I do enjoy sitting down for a few minutes sipping my hot coffee when I get up in the morning, and before my kids get home from school. Quitting smoking was easier.
-
Dera, I was like that on Taxotere. It got to the point that the only coffee I could tolerate was iced coffees. I also gained weight from the steroids, had to wait until after my bmx to start trying to lose the weight.
-
had that coffee thing too. One morning I left it on the coffee table, went to potty. Came back to find my other dog on the table, finishing it. I decided even if it didn't taste good, it was MINE and I wasn't gonna share. So I chugged anyway. It tastes ok now, but I still watch where I leave it
-
the coffee hound
-
The TC chemo combo seems so long ago. I recall a slimy mouth and only being able to eat pot stickers and yogurt shakes. I don't remember how I felt about my morning coffee. What I do recall is that after chemo, rads, etc., I was able to drink my coffee black. I just figured that had to do with getter older, but who knows.
Thanks for checking in rohanna. I hope you mom is doing well and not making you too crazy. My mom wants to move out to my state (which I am not completely against), but one of my conditions was that she have a neurological exam to access where she should live now and what the future may hold. She is being a pain and not going for the check up. I told her "no exam, no move," but so far she's no budging. What a pain!
-
Had lumpectomy 2/6. My BS office manager pisses me off, and makes me so emotional. Very cold, almost sterile. I've only seen her 3 times, first time I left without paying my co-pay. She called me, and I said when I came for pre-op I would pay, which I did. Brought wrong CC, but ended up paying properly. Think she made me nervous. Then this morning I did the follow-up call, she asked for drainage info and seemed mad I didn't measure in ml. Said I have to convert these numbers and call you back. Well the tears started, and of course then I had all the comeback answers. Not a passive person, as I am an elementary school principal, and know half the battles are solved through positive communication. Should I mention to her or BS when I have appointment?
-
fmmbw, absolutely! Sometimes the doctors have no clue about the personalities of their office workers. I am sure you could mention it without offending the BS. Office workers are hit and miss. Some are terrific, but others are just nasty ladies who wish they could have been something more in their life. I worked with these types years ago and decided the "office" atmosphere was not for me. Eff her for asking you to convert your numbers. Rohanna may chime in, but I think I would take my drainage to the office, in the blub (I recall those days...yuk), and ask her to take care of the conversion for me!
-
I never have had that problem with my BS or her staff. They are great and very caring.
Fm, sorry to hear you are having that problem with yours.
-
Just that one person gave me problems. Everyone has been great and my radiologist and nurse navigator were friends of mine before BC. She did call back very pleasant with my appointment for tomorrow. Life's too short!
Thanks for the advice. Maybe I'm extra sensitive today. Constipated (FOS) dr. gave me Linzess must take 30 minutes prior to meal, but was too hungry to wait, so missed the dosage!
-
rohanna - sorry to hear about your mom. Hang in there!
dera - that stinks about your coffee troubles! This is a great place to vent about everything!
fmm - here's hoping that when you go in tomorrow she will be more pleasant! You deserve to be pampered and treated extra nice right now! Hope you are healing well and your appointment tomorrow is good!
-
fmm, I had some problems with some staff at my Onc.'s office and other people must have too. I received a letter in the mail asking for honest, anonymous opinions about the office and medical staff. I love my onc. but hated some of his staff so I answered truthfully. Next visit, new staff. Not saying just because of me, others must have been just as honest. I agree with Rocky, take the stuff in and tell her to measure it! Have you considered sending an anonymous letter of complaint? Not being passive/aggressive, just weeding out the worthless. You have enough to deal with without her snotty attitude. I've found that BC makes me less accepting of the obnoxious. And it's making life after BC more tolerable. You don't need the downers! If they want to kick you while you're down, bite their foot! That goes for everyone from phony friends to snotty clerks! It gets to be refreshing after a while!
Rocky, we love our mothers but DAMN! I wanted mine to be tested for Alzheimer's and she refused! My 2 brothers live with her and one called last night and said I needed to get back down there ASAP! Never mind that I have a family and household of my own to take care of and neither of them do. Never mind that I needed to get back home for dr. appts.,etc. You know what? I've decided to stay home for a couple of weeks and let them figure it out. I can't solve everyone's problems anymore. If that makes me a bitch, so be it. They're grown men and they need to act like it. As Judge Millian says, "you drank the hot chocolate, now you can pay for it."
Whew! That felt better!
-
Day 4 under the ice. We're in single digits but the sun is out and I may finally be able to get out of my driveway. More snow and ice predicted for this weekend. Stay warm Cheezers!
-
We had ice/sleet on Tuesday and it melted some, especially on the roads, but there is still enough that we have another two hour delay for schools tomorrow. They were out Tues and Wed and had a two hour delay today. It is so cold that is just hasn't gone away. This is the first real winter weather we've had and I'm looking forward to it melting all the way and being Spring!! I've been spoiled by our light winters!
rohanna - I hope you get out of your driveway so you don't go stir crazy!
-
Sunny and 75 degrees here... oops, I'm not suppose to brag. Either way, I have had so many things that cheeze me in the past week that i can't even begin to write them. Maybe that's the price I pay for my lovely weather :-).
-
Getting cabin fever because I'm still healing up from the TE surgery and I don't want to attempt to go for a walk to Dunkin' Donuts to get a treat for myself and slip and do damage and have to go back to the drawing board because some idiots on my street don't put down ice melt, so there are huge icy patches on the sidewalks!
-
Yay! We finally got snow instead of freezing rain and sleet! Time to make a snowman!
-
rohanna- I'll send you the snow we have here!
-
Yes, mommy. Please! We may get some more Thursday!
-
Ok, you asked for it!
-
The PA in my MO's office cheezez me. I always want to slap her upside her head. She comes in and asks questions and I answer the questions - so far so good. THEN she proceeds to tell me that she's had everything that I mentioned, only worse. Who gives a flying fork, you snotty PA? Whose appointment is this anyway? Why ask me the questions? Hell, just answer them yourself. I've not slapped her yet but I'm keeping my options open.
Phyllis
-
Do it!!!!!!!
-
Dera 104, I know your pain when you talked about your coffee. I started drinking Ensure instead of my coffee. I understand that's absolutely no help. I am only here to sympathize. My taste buds were off all through A/C and taxol. I just finished taxol a week ago but my taste buds have not returned yet. This inconvenience made me cry more than anything. Hang in there! In a year's time we won't even be thinking about any of this anymore.
Hugs,
-
phgraham - Wow that PA better watch it! How irritating it must be to sit there and listen to her. Another thread I'm reading has been talking about giving a "junk punch" to anyone who makes a stupid comment. It's been decided that there is also an ability to give a "lady junk punch." It sounds like you might need that! Hope the next appointment is better. I figure even if I don't give an actual junk punch, just imagining doing it will give me enough of a chuckle that I might be able to tolerate the person for a short period of time.
-
Sorry I haven't been around for a while. Still taking care of my Mom. Everyone stay safe and have a Happy Easter. Maybe things will settle down soon!
-
Hi rohanna, you're a good daughter! i hope is well with your mom. I am still doing the same, but from one state over. Taking care of mom can be mentally draining so make sure you also take care of yourself! I have had so many things cheeze me these days and I probably should have come here to bitch, but I let some time pass and cooled down. Maybe I'll post later, but let's just say it involved neighbors once again... ugggg! Rohanna, where is that tolilet when we need it. I'd love to mount it on my shared wall. Perhaps even place some disgusting stuff coming out of it (facing their side of course)1
-
rockym - hope your neighbor issues have gotten better!
I am really cheezed off today...I really dropped the ball and have not kept up well enough with health insurance junk. I went to get some physical therapy for my right shoulder since it has been hurting so I figured I should get it evaluated. I should have called the insurance company on my own to get details, but I relied on the very vague answers the receptionist gave to my questions. She didn't have all my info handy because she had been out the day before, but I gathered from our talk the initial appointment would be more expensive (like $250-$300) and then the subsequent ones were supposed to be less and I was expecting around $80-$90. Well, got my EOB's from UHC and the first appt was billed at around $650 and the second one around $350 with me being responsible for $192 each time that would be applied to my deductible. I know it's my fault since I just decided to trust her vague answers, but, I still had to call to let them know I was very surprised at the bills. I was told they don't handle the billing and don't know how much the hospital will decide to charge. What the heck is it these days with places charging different amounts depending on what kind of insurance someone has or whether or not they are self paying???? But wait...it gets even crazier...I mentioned something about the self-pay thing since that had been mentioned to me at the beginning when I was asking about the cost since I wanted to have a ballpark figure in case insurance didn't cover it. She said if I wanted to switch to self pay it would be $60. WHAT???? Are you kidding me???? The same services that they billed insurance around $350 for and require me to pay them $192 to be applied to my deductible would only cost $60 if it didn't go through insurance??? I'm sorry, but this is such a racket I can't stand it. Similar thing happened with my genetic testing - I was told it would cost $2,500 and I would be responsible for $100. Well, it was billed at over $10,000!!! I was charged $200 and was told that they would re-send a new bill for only $100, but they never did so I just paid the $200 to be done with it, but that wasn't really the issue, it was the ridiculous cost of the testing. I'm certain the same thing is going to happen with my prosthetics I got in December. Still no EOB on them so when I called insurance about the other stuff I asked her a few questions and it sounds like the company told me some wrong things about that, too...or rather incomplete info. They assured me they had a contract with UHC that they billed through Multi-Plan and it would be in network, but UHC told me it would be out of network. They also did the same thing and said they couldn't give me an exact price since it depended on who the insurance company was as to how much they billed. So much frustration and I didn't even have half the treatments other people have had to endure. I can't even imagine how difficult it must be for others and it must be even more difficult for those without health insurance. I feel blessed to have it, I just wish the providers would give accurate info in writing when they are asked how much something will cost. ARGH!!! Ok, rant over...for now.
-
Unreal, but totally typical. It's all a racket.
-
You'd think I would be used to it by now, but I just keep thinking of all the mastectomy-friendly clothes I could buy with that money and it cheezes me off!!
-
The price of swim suits is cheezing me off!!!! I just don't happen to have $100 or so for that!! And I won't wear foobs.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team