What foods are you eating to reduce recurrence?

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  • gemini4
    gemini4 Member Posts: 532
    edited January 2015

    If you add coconut oil to your coffee, it's really important to blend it in. I have an immersion stick blender that I use. It's completely different than if you just stir it in with a spoon. It is rich, creamy and has a delicious nutty flavor to it. It might not pass through your digestive tract as quickly when prepared this way, but probably best to start with just a teaspoon. I've also hadunsalted grassfed butter in my coffee (also blended). I know it sounds crazy, but it's so delicious. Like the richest, creamiest latte you could imagine. :-)

  • flaviarose
    flaviarose Member Posts: 442
    edited January 2015

    I've checked out the food for breastcancer site. Not sure what to make of it. Things that I have read elsewhere that are good, they say are bad. It adds to the confusion.

    things that I've read estrogen positive folks shouldn't take:

    astragalus

    milk thistle

    flax

    soy

    turmeric

    but other sources have recommend all of these things. who to believe???


    the only one of these that I take regularly is flax. I have taken the others (except soy) in the past, but no longer do.


  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    I know what you mean! It is so confusing. I was taking Astragalus during my surgery recovery, and I think it helped me from getting my caretaker's head/chest cold. I have been following a doctor friend's advice--follow the scientific evidence, look for unbiased studies that have held up over time. Also, check for compatibility with your medications (for instance, curcumin and Tamoxifen don't play well together).

  • starbrightlyshines
    starbrightlyshines Member Posts: 344
    edited January 2015

    Tumeric is on the list of things to avoid? My onc just said that was one thing safe to add! It does make you wonder what is the truth.

    Also a nautropath recommended adding reversatrol to the turmeric (curcumin). So know I am not sure what to do.

  • starbrightlyshines
    starbrightlyshines Member Posts: 344
    edited January 2015


    Ok, after googling reversatrol, I think it is safer to stay away from it. In some studies it has an estrogenic effect. I really think I need to consult an Integrative Oncologist because I think most regular oncologists don't have all the newest data, and most naturopaths don't have all the cancer knowledge. If anyone else has anything to add I would love to hear it.

     

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2015

    Memorial Sloan Kettering's Integrative Medicine has this very indepth resource for researching herbs, etc.

    http://www.mskcc.org/cancer-care/integrative-medic...


  • mary625
    mary625 Member Posts: 1,056
    edited January 2015

    Here's a report on the study re: coffee and diabetes risk: http://www.webmd.com/diabetes/news/20140424/could-more-coffee-lower-your-odds-for-diabetes

    That said, I do of course agree that less sugar and more exercise is probably more helpful.

    Re: carbohydrates in the morning, most of my life I've suffered from hypoglycemia. I've played around with what I could eat and be able to manage it. I can never eat bagels, pancakes or cereal in the morning. I will almost always have an attack if I do so. I had a doctor some years back who thought it was what I was eating in the evening rather in the morning that was causing the crash at 11 a.m., but I don't think so.

    I've also had metabolic syndrome for many years. I think it was a contributing factor in the BC.

  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    Starbright, Curcumin may interfere with the metabolization of Tamoxifen: http://www.ncbi.nlm.nih.gov/pubmed/22512082. There is some anecdotal information on these boards supporting this. I was using it too but stopped. I pretty much pulled back from everything I was taking before, except Vitamin D (when not getting enough sunlight), Selenium, Zinc, Melatonin, MCP and mushroom extract. I am looking into Metformin as it is purported to enhance the effects of Tamoxifen. And I may add baby aspirin into the mix.

    Does anyone know if taking powdered collagen supplements is okay? I'd like to take it for my skin but don't want to take something contraindicated for ER+ bc.

  • glennie19
    glennie19 Member Posts: 6,398
    edited January 2015


    Mary, I have a similiar problem with carbs. I believe it is what you are eating in the mornings, not evenings that is causing the crash.  I have to have protein, I can't eat just carbs.  If I have eggs/bacon/sausage, whatever,, then I can have a small amount of pancakes or bagels. BUT I must eat the protein first, and the carbs last. Over the years, this is what I have found works for me.  I think the carbs cause an excess secretion of insulin, thus causing the crash. Eating the protein first seems to only secret a normal amount of insulin and all is well.   I do not have any medical proof for this,,, This is just what works for me, and the conclusion that I have come to from reading and dealing with it for years.

  • GrammyR
    GrammyR Member Posts: 702
    edited January 2015

    Erinm216- Yes it is totally right to try to get your BMI down for health reasons, however I will add that I was 5' 6" and 108lbs wben I was diagnosed w/BC. Rode my bike 3x per week too. My BMI was 19 for years. Now I plan to get back to my diet after lapsing over the holidays. I have drank only unsweetened almond milk last 2 years. No soda for 7 years. Maintaining a waistline of under 35 " is desirable for womens cardiac health. Of course veggies and cutting sugars too , high glucose level is harmful as we get older and as weight goes up.Glucose fuels cancers. I use stevia instead of granulated sugar, still there is so much added to foods we buy. Cutting a lot if dairy which fuels hormones is good too. Cheese, butter, reduce eggs. I just eat organic ones , not often though Cholesterol another issue.

    Funny w it does not seem to leave much does it- oh and cut alcohol to an absolute minimum ( I had an occasional Bailey's over the holidays ) but plan to get down to business now. Need more excercise too- ha.

  • SoLinda
    SoLinda Member Posts: 120
    edited January 2015

    ha ha - then I certainly won't be trying the coconut oil in my coffee SweetHope!

    Manu14 - thank you, the coconut milk suggestion sounds good! It actually comes in a bottle here rather than a can. Normally, I find that things here are much sweeter than I am used to!!! I am wondering if I could make my own coconut milk since fresh coconuts are more than readily available here - that would certainly cut out added sugars, etc. But, first I will try the bottled coconut milk in my coffee to see if I like the taste. I am worried about drinking powdered skim milk every day even though it is just in my morning coffee ...

    bc101 - you made me laugh with your comment about your Russian friend. Canned condensed milk is extremely popular in this country, too!!! And no, I am not a fan!!!

  • Manu14
    Manu14 Member Posts: 153
    edited January 2015

    SoLinda - Since you can easily get coconuts where you live, maybe the link to this recipe on how to make fresh coconut milk might be helpful. Let us know if you try it and what you think.

    http://nourishedkitchen.com/how-to-make-coconut-milk/

  • SoLinda
    SoLinda Member Posts: 120
    edited January 2015

    Manu14 - wow! Thank you so much for the great link - I can't believe I have never made my own coconut milk until now. I will definitely try it and let everyone know the results. So many health benefits from coconut, too! Apparently, you can also freeze this milk, which is handy when there aren't as many coconuts around ... My husband is not keen to try it, but I definitely am going to make it! Thanks again

  • Fourminor
    Fourminor Member Posts: 354
    edited January 2015

    Yes, these are all the reasons I went back to half and half, and instead cut back to one maybe one and a half cups of coffee a day.


  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    Kayb - I agree that the study is very confusing. I am afraid to muck around with anything that might interfere with Tamoxifen, so to be on the safe side I cut it out as well as supplements I thought might be estrogenic. I would be interested in more information as well and will ask my naturopath.

    Here was the posting on the boards I mentioned earlier. It's anecdotal, but freaked me out enough to quit the curcumin:

    https://community.breastcancer.org/forum/78/topic/815626?page=2#idx_46

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015

    Thanks for that link, Kat; it was very interesting and one I'd not run across.

    Like you, I'm playing it safe as far as anything that might counteract or diminish the effectiveness of the Femara I'm taking. There is some talk that curcumin is slightly phytoestrogenic, so for now I will continue to use turmeric as called for in recipes but am not taking supplements of either turmeric or curcumin.

    A lot of the research re: curcumin and cancer is very promising but specific cancer have different biologies, of course, and that's almost never addressed in the popular press and frequently not even in more scholarly articles. It's quite frustrating.

  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    Kayb and Hopeful, all I can say is that I wish I had that emoticom "beating my head against the wall." lol

    Really, it is so frustrating. I may try to find an integrative oncologist. I've been working with a naturopath, and often she is helpful but she has also been wrong at times. And then all these conflicting studies just drive me bonkers. I did start Metformin tonight. I don't know if that is playing it safe or not, but I do feel encouraged by some of the literature on it. Here I am in crazy Mexico where I can walk into any pharmacy and buy Tamox and Metformin without a prescription. I am starting with 500mg and will work up to a higher dose. And I was someone who hated to take meds.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015
    That's crazy, Kat. Are the rx fairly inexpensive, too? I remember buying something once in a pharmacy down there and being surprised by the prices but do 't know if things have changed I. The last decade.

    I may email my MO and ask her about turmeric but I kind of suspect she's not into nutritional therapies..
  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    I suspect that the Nolvadex brand is more expensive, but I bought Taxus Tamoxifen here. One month supply for less than $10, and the Metformin -- 60 500 mg tablets for about $3. Not sure how that compares to the U.S.

  • newinab
    newinab Member Posts: 12
    edited January 2015

    I am eating a lot of citrus fruits, buckwheat,broccoli, melons.

  • flaviarose
    flaviarose Member Posts: 442
    edited January 2015

    katcar, I also am on Metformin, 500 mg. once a day. Not diabetic. First heard about it as an anti-cancer agent through the Life Extension Foundation. My doc was in agreement. What dose are you thinking of working up to? I haven't found too much definitive in that area.

  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    Hi Flavia, I read that the trial participants are taking 850mg once a day for 4 weeks and then working up to two 850mg pills per day, I think in divided doses. Right now, I am just doing 500mg per day and working my way up to the trial doses. I am taking it with food as that seems to increase absorption and help with potential tummy SEs.

  • SoLinda
    SoLinda Member Posts: 120
    edited January 2015

    Manu14 - my update on homemade coconut milk ... Ok, I made my own coconut milk this morning with coconuts from my back yard. I used a slightly different recipe which was very easy to do and which utilized the coconut water, as well as the coconut "meat". A truly creamy product. It will take me a while to get used to it as not much flavour, especially since I am on a diet and cutting back on fats, so can only use two tablespoons in my coffee. Not bad, but not woo hoo either. I froze half of it since the site said it was ok. for about 4 days. I am thinking it will be much better used in oatmeal. Thanks so much for the info.!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015

    Katcar, those RX prices sound dirt cheap. I have no idea about Metformin's cost, although I'd be surprised if it's anywhere near that low. My co-pay for generic Femara is $10. I suspect the full price is quite a bit more.

  • Manu14
    Manu14 Member Posts: 153
    edited January 2015

    SoLinda - glad you had some success with your first try making coconut milk. I wonder if adding a couple drops of vanilla extract to it might help provide a little more flavor. Not sure how true it is but I've read that the fat in coconut milk is a medium-chain fat which may promote a faster metabolism.

  • mary625
    mary625 Member Posts: 1,056
    edited January 2015

    I guess we'd get in trouble if we tried to bring it over the border without prescription. Metformin would be a $10 copay. I'm just thinking about the women who can't get it from their doctors.

    I'm on it -- 750mg extended release dose. I'm wondering if that's enough. I've been taking since March 2012, and I'm still here!!!

  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    I have never, ever in 16 years had anyone at the border question me about my meds. Now, if you're crossing by foot over the Tijuana border, that might happen. The thing is to spread your meds throughout your luggage and take them out of the boxes. One thing I noticed after visiting Ensenada is that the prices were higher there than were I live in central Mexico.

  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    Mary and Flavia - Now I am not sure what to think about Metformin dosages. While the trial is using much higher doses, those trials are for TNBC and Her-+, not ER+ (I think).

    This mouse study (wish it were human)

    http://cancerres.aacrjournals.org/content/69/19/75... concludes the following; As a cancer preventative, metformin would be required on a long-term basis, and in this regard, the concentration of metformin needed for the anticancer effects observed here is considerably below that used for the treatment of diabetes.

    I have read a lot about the potential for B-12 deficiency with long term Metformin use, so the lower dose would make sense for preventing that but then why are the doses for the trial so much higher (the same doses used to treat diabetes)? And what is a low dose? 250 or 500 mg?

    Also, this mouse study http://www.biomedcentral.com/1471-2407/14/172 showed that Metformin enhances the effects of Tamoxifen, but what dose would be appropriate in humans?

    Wish I had an integrative onc here in Mexico to discuss this with.

  • momoschki
    momoschki Member Posts: 682
    edited January 2015

    Re metformin dosage: as I am high risk (ADH), my integrative onc has rx'ed metformin for me for the past four years. I've been taking 500 mg, 2x a day. No side effects at all, except weight loss (a welcome SE!) Very affordable, too-- my copay is $15.

  • katcar0001
    katcar0001 Member Posts: 621
    edited January 2015

    Does everyone lose weight on Metformin? I can't afford to lose any more weight; in fact, I am trying to gain weight!

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