Starting Chemo June 2013!?!?!

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  • KatiAK
    KatiAK Member Posts: 138
    edited October 2014

    my hair is still the very fine blonde it's always been but very curly, which it's never been.  It's not thick - but it never was.  I having had a lot of hair grow in other places on my body ...?

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  • KatiAK
    KatiAK Member Posts: 138
    edited October 2014

    My hair is the same fine, blonde it's always been but curly which it's never been. It's not thick but it never was. I'm not getting a lot of growth in other areas of my body ... ?

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  • Netter
    Netter Member Posts: 107
    edited October 2014

    My hair came back curly and frizzy.  A lot of people don't know me, lol.  My eyelashes have fallen out 4 times and eyebrows grew thinner at the same time.  I am not taking a cancer pill.  Decided that I wanted to live without pain and have energy.  Still happy about my decision.  I have very sharp pains in my breast quite often.  Does anyone have this?

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  • annika12
    annika12 Member Posts: 433
    edited October 2014

    I do have some "funny" pains and my doctor told me " good radiation is still working "  hmmm !! Mine usually stop is I stretch or go for a run !!! I also try to go braless to get some blood flowing through all that scar tissue !!! 

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  • dlm425
    dlm425 Member Posts: 209
    edited October 2014

    still no val? :( Everyone says my hair is so cute and I hate it!!! It was down my back and now it's cruly and has a mind of its own!!!!  Been over a year since chemo and I'm not the same leg and feet pain. My eyebrow just fell out again and still wear eyelashes 

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  • VAL1966
    VAL1966 Member Posts: 37
    edited October 2014

    hi everyone.. I am so touched to read all your messages .. Everyone wondering about me .. So sorry that I haven't been well enough to respond.. But I'm  still here boxing gloves on.. Fighting with every bit of energy that I have ... My bc has spread to my lymph nodes in my neck and chest .. I've been doing chemo 3 weeks on and one week off since august .. Had a ct scan 2 weeks ago .. Not good news.. It's not working .. So Wednesday I started a new chemo vinorelbine .. 2 weeks on 1 week off .. I have amazing support from my family and friends ... I don't have the courage to tell my 18 year old son how sick I am.. But will have to soon.. This is it .. My last resort .. I appreciate all the support from all of you!! Should of logged on a long time ago to read all your messages.. I feel the love from all of you.. I pray and hope that all of you are doing amazing and have moved forward with your life .. Sending all of you my love xox

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  • annika12
    annika12 Member Posts: 433
    edited October 2014

    Hi Val , its so good to hear from you !! Sure wish your news were brighter but hope and pray this new stuff works for you. Thoughts and good luck for the right time and words to tell your son , I'm sure you will find the words . Our kids are usually braver and stronger we think !!

    Hugs, Annika 

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  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited October 2014

    Val,

    Glad you are strong enough to reply.  I wish you had better news and I am praying that your new chemo is the cure.  Don't hold back from your son.  He will never have another chance to spend time with you, even if you live forever, you can get back wasted days.  Let him dote on you every day.  You and he surely deserve it.  Check in whenever you can and keep fighting wicked hard. 

    Tracy

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  • Netter
    Netter Member Posts: 107
    edited October 2014

    Glad to hear from you Val but very sorry with what has been happening to you.  Your son needs to know how sick you are so that he can deal with it in his own way.  I think it will be another wonderful support for you. I am praying for you, your family and your doctors.  We want to help you with this fight if we can.  Netter

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  • KatiAK
    KatiAK Member Posts: 138
    edited October 2014

    good to hear from you Val.  Wish you had better news.  Praying, praying, praying that this chemo is the cure!  Stay strong!!

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  • dlm425
    dlm425 Member Posts: 209
    edited October 2014

    hi Val I'm so sorry for your shitty news!!! What a wonderful mom you are!!!! Even how sick you are as a mom your child's feelings come first. My hats off to you!!! FUCKEN cancer sucks ITS the only thing in life I can use the word HATE for........ Just not fair sometimes.  Keep in touch and again I'm sorry Love Donna

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  • annika12
    annika12 Member Posts: 433
    edited November 2014

    Going in for my one year ct scans Wednesday ......yup scanxiety is getting to me !!!! 

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  • Cuculi
    Cuculi Member Posts: 148
    edited November 2014

    Annika, I am sure everything went well!!

    Xoxoxo

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  • annika12
    annika12 Member Posts: 433
    edited November 2014

    after a few crazy days a few doctor appointments and some extra tests I got the results today I AM 1 year cancer free :D I am being de-ported on Dec 8th !! I need a biopsy of my uterus wall and a follow up on a not functioning very well thyroid !! On to catching up on some living, loving and laughing !!!!

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  • Netter
    Netter Member Posts: 107
    edited November 2014

    Annika, so happy for you! I have my appointment Tuesday. Hoping that a cyst has burst and won't have to worry about removal. It is no big deal after all we have been through just want to be done!!!!!!!

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  • dlm425
    dlm425 Member Posts: 209
    edited November 2014

    hi all Happy Thanksgiving if your reading these boards there is a lot to be thankful for!!! Val How are you? Anyone on here live near her? My thoughts and prayers are with her and her family Would love to hear from her just have this feeling!!, hoping for some good news about Val!!! Take care be well all

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  • knmtwins
    knmtwins Member Posts: 598
    edited November 2014

    June Ladies that did chemo first - when do you start feeling better. I'm still so sore in my muscles and I feel the neuropathy in my hands and feet keep getting worse. I had TCHP and my last chemo was 10/29 and I'm having a BMx with TEs on Tues. BTW - anything I must get to help with the recovery. Really freaking out about that. Thought my MIL was bringing a marsupial drain pouch belt, NOPE, just 1 hand made pouch by a lady from her church. Very nice... but.... too late or order the belt now. I'm thinking of clearing a path to my sewing machine and trying to concoct something.

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  • dlm425
    dlm425 Member Posts: 209
    edited November 2014

    the easiest way is just put on a fluffy or not bathrobe and put the drains in the pocket my plastic surgeon gave me this belt with four pouches hanging off so ask them!! But the belt around my waist annoyed me!! So I bought a lightweight robe and heavy fluffy one got as a gift for days of being chilly. As far as the drains empty them once a day after showering and if possible have someone do it for you much better to sit back and let someone else help!!! Good luck I'm going for my last procedure on Dec 11 for the areola's.

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  • dlm425
    dlm425 Member Posts: 209
    edited November 2014

    one year and three months later and I still have neuropathy just a FYI in the morning my feet don't work right away

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  • annika12
    annika12 Member Posts: 433
    edited December 2014

    I feel pretty good .... or maybe I just keep pushing cuz I want to be back to normal me. I feel better then I did a year ago but not at all like 2 years ago :( For me the se from radiation is worse , frozen shoulder and tendinitis !!! Try massage for the neuropathy and sore muscles !!! Val - keeping you in my thoughts and prayers !!!

    And yes so very thankful for everyday is a gift I try to unwrap with great care :)

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  • dlm425
    dlm425 Member Posts: 209
    edited December 2014

    hi All How is everyone feeling I have just completed my nightmare and happy to say I'm done!!!! I think about all you ladies often and wish you Health Happiness this holiday season!!! Val if you are still reading these boards My hope is that something worked for you and you are doing well!!! Ladies enjoy everyday as though it's your last and never let anything get you down!! Life is short as we know so have a happy holiday and New Year!!! Will check in from time to time take care strong ladies".......

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  • Cuculi
    Cuculi Member Posts: 148
    edited December 2014

    I start holidays today! yeee!!! I will be busy cleaning up (my room and apartment are a mess) so I want today to wish you all happy holidays and a great 2015!

    Big cyber hugs!


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  • annika12
    annika12 Member Posts: 433
    edited December 2014

    Merry Christmas and a Happy healthy new year !!! Every day is a gift , I unwrap it with great care and enjoy every moment given to me to make memories with my loved ones :D

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  • kmurphy
    kmurphy Member Posts: 55
    edited January 2015

    Hi all !! Haven't been here in a while but I remember many of the names. I was feeling crummy and came on to see if many of you are still dealing with the effects of all the treatments. I never used to get sick but this winter I have had at least 4 bad colds. My shoulder still hurts, I still have nueropothy and I usually feel quite achy. But I see that many of you are dealing with the same issues so I guess that is just par for the course.

    Other than that things are great!!! :)

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  • Cuculi
    Cuculi Member Posts: 148
    edited January 2015

    kmurphy: Have you tried exercising? Yoga? pilates? I have been on yoga and pilates and I havent had those side effects. I have changed my diet (aryuvedic... I try to) and visit my homeopath. Acupuncture as well. Maybe if you try something like this may help :) My lashes wanted to fall again! I started using MDlash which really helps. My worse SE is my arm (surgery) that is getting better... very slowly but better anyway. And, sometimes, frustration... We need to be patient... it is very hard but we must work on it.

    cyberhugs!



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  • kmurphy
    kmurphy Member Posts: 55
    edited January 2015

    I have not done an exercise program of any sort but I according to my activity tracker, I average 8 or more miles a day at work (I am a restaurant manager). I also think that part of it is exactly what you said....frustration. It feels like the recovery process takes sooooooooooo long!!!

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  • Cuculi
    Cuculi Member Posts: 148
    edited March 2015

    I think exercise gives some peace. I think about something else, it is also a challenge and makes me happy. I feel more strength now. So it helps to deal with my frustration.


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  • annika12
    annika12 Member Posts: 433
    edited March 2015

    Happy spring ladies! ! I have realized time flies even you dont have fun...... can't believe its been 2 years since this crazy journey began. I wasn't diagnosed til may but it started with a yearly check up in march 2013....... Hope everyone are enjoying there life's! !!

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  • Cuculi
    Cuculi Member Posts: 148
    edited March 2015

    Hello! Yes, time flies!!!! I am on my annual check ups. I had a bone scan and will have an additional MRI. Of course I am very concern... so I just hope everything goes well... at least the breast ultrasound is normal.

    Have a great week!!!

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  • Cuculi
    Cuculi Member Posts: 148
    edited April 2015

    Hello,

    Any comments about bone mets? I had a petscan and it is very probable to have a bone met in my left rib. I simply can't believe it, I just can't since I have been very positive since all this started

    Take care and enjoy your weekend...

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